The all consuming nature of chronic illness

It’s been a weird couple of weeks. I wonder if it’s something in the Universe and others have felt this way as well, or if it’s just unique to me? I feel like when I haven’t written (on here) in awhile, I need to find my way back to my writer self. The muscles groan and protest, as if they are saying “you can’t just come and go as you please and expect us to function, this is a commitment. That’s how it feels anyway.

I’ve been consumed in not feeling well lately, and exploring the emotions that arise here. Lots and lots of anxious thoughts, and worst case scenarios. Probably not helped by the fact that I recently saw a campaign to raise money for a woman with stage 4 lymphoma. The woman was someone who traveled in circles of friends of mine at a significant time in my life. During my newly being “out” as a gay woman phase. I knew people who dated her. I hadn’t thought about her since. And here she is with a wife, two adorable children, and cancer.

As humans we protect ourselves in a variety of ways. One of those ways is a powerful, fully operational form of denial. It is constantly present. This idea that could never be you. The less degrees of separation bordering you from a truer realization or your fragility, enter more anxiety. I often function by thinking thank goodness that isn’t me, and quickly busying myself with a protective layer of every day life that holds no room for morbid thoughts. But I am the type of person who possesses a keen awareness of the whole truth and nothing but the truth, as much as my human mind can comprehend. Often I wish I wasn’t, because then my mind would not be able to drive me as crazy with its frenzied thoughts of madness. To live fully is also to be mad I think. Mad with desire and mad with fear. Because if you know how much true beauty there is to be had in even the simplest of moments, you also know how fleeting those are. Always outracing an invisible force, that only I seem aware of. Or only I appear willing to acknowledge, and when I talk about it frankly I know the darkness in my thoughts frightens others. It’s like we know but don’t say it. You’ll jinx it. What superstitious creatures we are.

The first of the not feeling well began with some odd pain in my upper back, and extreme fatigue. I remember laying with my partner and feeling the first 2 fingers on both my hands be sort of numb and tingly. This driving me crazy of course, firing all my alarms there’s something wrong here, and the story tells if worse horrors then a flare up. It always does. I couldn’t get warm to save my life. I’m often cold. As all the weird feelings took their turn on my body I steadied myself in her arms. A safe space. Thank God for my safe space these days. It’s the only reconciliation I can find for knowing that my days are numbered. All of ours are, and someday maybe, like my grandparents, we will be resigned to checking the obituaries page daily and reading aloud to one another about the latest friend who has passed away.

The episodes include flushing. A delightful thing that is triggered by being over-tired, alcohol such as red wine, and sometimes stress. It feels like you’re on fire, mostly just your face. Hot, head achy, and dizzying. All you can do is lay down, maybe and ice pack and wait to it to pass. Often this is followed by a bad stomach and then elimination that leaves you shaking and freezing in an exhausted heap after. Either too hot or too cold always, the days you feel good being remarkable in their noticeability due to rareness. During times like this it’s a guessing game of what yuck Unidentified symptom will be the flavor of the day, and how you will keep the silver linings ever present as protective cloak. After only so many days you feel your spirit being eroded away at, and the irritability sets in.

Being overwhelmed happens so easily when you’re trying inside your head to manage your invisible symptoms so no one worries or feels sorry for you. Trying to feel normal. If you fall into the trap of thinking about them too much, or too much validation you run the risk of letting it take over your spirit. I refuse to do that ever. But then I think of how draining this is, and cannot imagine fighting cancer to keep my life. It’s hard now. I fear I would not be up to that task.

After the couple of draining days follows a moment of hope, a good day. I bask in it, soaking it up to carry me through the rest. And then the back injury, ironically it happened when I wrote my last blog post. Sat too many hours in a tall kitchen chair without lumbar support (apparently). Because when I got up my back was sore and I couldn’t figure out why. But with as many ailments I thought par for the course and carried about my day. What was supposed to be a quick trip to The grocery store to drive my son to work, became a nail in the tire and 3 hours at a shop with bored twin teenagers. We ate McDonalds, gross no wonder I’m sick 😉 it was 16 degrees and the only walkable distance to bide our time. By the time I sat and got up a few dozen more times into that evening I was nearly paralyzed. Could not walk without agonizing pain. Since I’ve also been down this road I called a physical therapist I know and trust and got in right away. This story could become so long… so let’s just say I finally won the round for much needed pain medication. I may have won the round, but it feels like I lost the game. Going on two weeks of limited everything. Co-pays, heating pads, one wrong move and spasm again after so much hard work… the back let’s up and I get 1/2 a good day and the migraine strikes. Pulsating, furious, making me nauseous. I take the migraine medication and feel weird like I may not actually be breathing, like my heart may have stopped altogether, like if I go to sleep I may not wake up. All this has been in between work and life and dogs and snow and ice and teenagers.

So here I am today at the beginning of two much needed days off, and I’m so afraid they will need to be spent resting, because the migraine remnants have left nausea and a sapped spirit in their wake.

Amidst all of this writing is my breath of fresh air. This is me when I can find hardly the will to do anything still fighting for what I love. I have wanted so badly to write, and yet my mind has been consumed with pain. It’s nearly impossible to think when your body is racked with one symptom or another and you’re just trying to catch your breath in between. This is my way of honoring my experience. When I see it on the page I judge myself. I sound so dramatic, it’s not as if I have stage 4 cancer. This perspective becomes a slow dance with denial, so I can live as fully as I want to. I was blessed with an iron clad will. My gift from the Universe. It must have known I would need it. I choose my reality regardless of my circumstances. I have chosen for it to always be this way.

This is an experience I am having currently with chronic illness. Right now it refuses to be ignored, and constantly sucks at my writer’s soul. Stay tuned because I refuse to give in. Stay tuned because between the night sweats, pain medication roller coaster, confusion of “the correct approach at healing”…there is wisdom between the lines, and between the symptoms.

Under Construction…..

Filling my morning with some of my most treasured….
A Home and Life Under Construction….

Good morning readers! It is 1:31 pm and I am still in bed. My immediate view is the one you see in the first picture. My son who no doubt stayed up most of the night “nerding out” on the computer, and my fir son snoring together gently at my feet as I write. What isn’t pictured here is my daughters that were also in the bed, and my person. Storytelling, snuggling, them listening (in short spurts, we all have ADHD) to me reading about writing. I am noticing (realizing) in this very moment that several years back my mind would have been in total chaos and none of this peaceful contemplation space was able to exist. This is heaven right here on earth.

This home that I live in…. I have been in it for six years this March. Six years is longer than most things in my life have been consistent save for my children, everything else has been constantly changing. It was move in ready when my ex and I bought it. The previous owners favored yellow, orange, and brown paint colors, but it was fresh and clean and bright. At the time we said it was ours we knew, but hadn’t told the kids. They were ten, eight, and eight years of age. Her parents video taped their reaction in the living room to us saying “do you like this house”, and they jumped around excitedly, an emphatic yes uttering with sheer glee from their innocent mouths. And then we said “good because we bought it”, and we all jumped up and down together in the empty clean living room and celebrated. I wonder if and where this video still exists.

Since then this house has seen many changes, and it has become a refuge for many a “lost traveler”, someone needing something in their lives, and they found some piece of that here with us, in the roaring of our beating hearts. This home is full of life, and strong strong personalities, every one. Members of this home that have lived here and departed include; my one almost marriage partner of most of my children’s young lives, this one came with a lovely supportive family that I am ever so grateful to to this day for all they taught me about family. The woman that I dated after her who lived with us for about 1.5 years. A magical wizard of a chef who wore her heart on her sleeve, and shared similarities with me in family of origin shit. Our triggers lied within each others triggers. We were mirrors. The roommate and still bestfriend and her son who is like my own, who gave birth to her second son here in our home. A single mother who always put her son first, and loves with every ounce of her heart. They rented our downstairs, and still to this day some of my fondest memories are of them being here. Then there was the last of my life changing relationships of someone who would inhabit this home. There is still much unfinished work in processing this relationship. This person brought the nurturing, almost parent like capacity to our lives. She was the first person I ever co-habitated with that I functioned well with. We worked very well together. She helped me get my practice off the ground and managed my business for a time. She taught me how to fiercely love myself, and to self-care. She showed up for us, and it all felt very safe. I was trying to crack the code on my inability to last in a romantic relationship. I broke my pattern by not turning this into a romantic relationship it wasn’t, just to belong and to not be alone. So we lived together like a family, with the best aspects, without the tearing at one another with expectation. I didn’t need to because she just took care of anything and everything we could have wanted, the missing needs, without being asked. Because she enjoyed being loving and nurturing. However there were some unseen flaws in this model and it ended quiet abruptly and unexpectedly. The lack of her presence is felt, I wish we could have kept eachother in our warrior tribe of women. I think fondly of her. To the best of my knowledge she does not share that sentiment towards me. I took more abrupt actions in her leaving our home. It would be very hard to explain. But I still think we each took things we desperately needed from that situation, but that it didn’t have to end how it did, with the severed connection.

Throughout all this time I was mostly focused on school, my career, and internal processes, this left no room for home improvement. The only small scale experience I had is when the almost marriage partner moved out and I was devastated for a period of weeks. I repainted and changed my bedroom in attempt to pick my devastated self up off the floor. I also watched Under the Tuscan Sun every single day and night on repeat. I read Eat, Pray, Love, and a Year by The Sea by Joan Anderson. I walked, and read, and exercised. I even “saged” at one point I believe. I got massages and Reiki. But I never knew much about DIY home things, inside or outside of the house, and learning proves to be daunting, and leave a slight flavor of irritability as I would rather be writing. Maybe it just isn’t my thing, or maybe I just allow myself to become so overwhelmed I don’t do it. In any case it was time for a change…. so my person this time is partially the catalyst for this. In a home with so many memories of others lingering, as part of our process to make this feel like our story, we are painting. Also on a longer term plan we would like to relocate closer to both of our jobs. So either way the house will be ready for market etc,.  Initially I resisted this movement mostly due to all the effort it requires and financial resources it takes. But after a long while of having stated an intention and not doing anything about it, one day, in true me fashion, we just picked up and bought the supplies and began….

So far the guest bathroom has gone from this horridly abrasive yellow/brown color, to a smooth, creamy, and calming Avenue Tan. It’s very zen-like. Though the outlet covers are naked, as we haven’t found the right fit yet, the towel rack with one hook broken on it remains unreplaced, and the new espresso cabinet we got to go over the wall where the toliet is still remains in the box from Amazon. I abhor attempting to assemble and hang things. I have very little patience for such tasks. I often wish this were different, and I try to make up my mind a new adventure will be different. Alas, each new attempt just tries my patience, and makes me wish I never started. Also although I appreciate thoroughly the beautiful view of a finished product, and the ensuing sense of accomplishment, I often thought that I hope this is the last time I can’t just pay someone to labor for me. :p I always wanted to be one of those “do it yourself people”, I admire them. But I am thinking as I write that they find a joy during the act of such work and crafting, that is not the same for me. Maybe those type of people would just as soon have a root canal as put their most inner thoughts and feelings into words, let alone allow the world to view them?

Maybe there is a lot more to this “wiring” thing than we think sometimes. I always tended to think you could do anything you set your mind to. But then again I also thought if I set my mind not to be gay, that was also a possibility, as it turns out, it wasn’t. I think it is true that you can (try things way outside your comfort zone/capability). But to further extrapolate on this, I realize now that while you can “try on” anything, and have many adventures, some will speak to your soul and be enjoyable to you, and some will not. With regard to hard work it’s not that I don’t appreciate it. As a core value I really do actually. But anymore I get physically tired so much more easily. I give so much more of myself to the rest of the world. And since I do so sitting in a chair in a cozy office, on a schedule of my own-making, I often am unfair to myself in my perception of how much I give, and how hard I work. I also attempt to constantly deny the fact I have a Chronic Illness, because I can’t find balance on this. I either am dying from it, or choose to pretend I don’t have it at all. There is no in between. Historically I am not so good at balance, or regulation for that matter. It’s been a big task of mine. It is ever a work in progress in my life.

My daugher is making “bids” for my attention as I write this, and the thing is happening. Where I become frustrated at being plucked from my reverie, every few seconds as she asks me questions that could easily be figured out by herself. She wants my attention. She has wanted it often. She is still “younger” than her other siblings in a certain sense. She still wants to play. Bless her heart. The other twin (A) is probably thinking about her boyfriend and brooding about her phone and the complexities of life. My son is sleeping off his computer all nighter “hangover”, the bullodog encouraging him by joining. It serves me more to pull myself from the reverie to be present, it gives myself and my daughter something we both need, but again it is in ways so against my wiring. It is if I am wired for lots of peaceful quiet, books, cups of tea/coffee, being cozy or as the Danish call it Hygge (Hoo-Gah)… a post on that later. I am wired for contemplation and to ponder the mysteries of everyday society, unmet needs, and the complexities of the Universe. I could basically do that all day everday, and yet I dislike my mind tricking me into perceiving my children as a burden. This has been a battle of my existence for certain.

This morning’s writing was clearly all over the place, nothing that I expected that is for sure. I expected a summary I suppose of the current year. Some tender musings on hopes for this next one. The obligatory Resolutions. Today most importantly is the one year anniversary of initially reaching out to my beautiful person. We celebrated not with fancy dinner or fanfare, but with allowing ourselves to wake slowly and lounge in the comfort of one another this morning before she left for work again. It was the best feeling. Maybe the fact that my posts have less of a beginning and an end means its meant to be more of a book. My daughter has the hiccups and she is desperate for my attention from the next room. She has been asking someone to play a game with her constantly. So I am going to go be present and hope to write more soon. I did want to share some of my thoughts on Anne Lamott’s “Bird by Bird” that I started reading this morning. At first read of her I was a bit turned off by all the religion speak, and something about her disjointed style (hmmm pots and kettles), but as her language familiarizes itself to me… it’s a bit like falling in love. I guess that’s how it happens really anyway, right ?

Unchained Melody is on Pandora. I think of days of glamorizing Patrick Swayze and in Dirty Dancing, when these days I look back at tomboy Demi from the movie ghost and swoon. Life is funny.

<3

Hog Heaven and a pit bull named Iceman

So we (Courtney, Rian (twin A), and myself) are sitting here waiting for Tyler to have a therapy session. We are trying out the fit on a new family therapist. She has some big shoes to fill, Fran was one of a kind. We were all reading, but then I had a moment of inspiration.

Recently we had to have our furnace replaced and last night Courtney and I walked up to the home of the neighbor who did the job. We were taking him the second half of a very large payment, ouch. Anyway I often think how lucky one is to be able to be in a profession that they can benefit by cutting the costs in their own lives. So for example: a plumber’s family never has to worry about that aspect of home ownership. And then there are those real handy people (typically in my experience men) who seem to be able to fix anything in the home. Those are the ones I admire the most. I am in fact so interested in trying to be more efficient financially I would almost trade in my true sexuality for such a man. Just kidding sweetie. But seriously it seems so unfair that I can’t fix all of the hurts and issues that currently plague our home. Why can’t we take advantage of low cost, free really… in home therapy?

I mean I am sure we benefit from all the “family meetings” that my kids adore so much. They probably wish they had those normal parents that do what they are supposed to, but are careful not to venture into unknown territory. Afraid to shake up the system by having difficult conversations. Folks difficult conversations are the cornerstones of growth.

Things have been hard in our home lately. Resentments have been built between my children and currently they are holding onto anger in their hearts, and forgetting the true value in one another. And all the family meetings in the world don’t seem to be fixing it, because since I am Mom (and when I’m a therapist it’s annoying;)) I am rendered useless except when it comes to rides and money. Oh and cooking and cleaning.

I worry a little extra when this happens. This is because my Mom and my Aunt never grew up. They never evolved and I have watched their lives unfold; it appears quite unhappy from the great distance of safety I keep between us. Across that great divide I see lonely and sad women who spent their life hating one another. They never gave in. Never relented in holding the other in the absolute worst regard possible. My Mom was “the welfare bitch” who got everything handed to her, for what… having a child out of wedlock and tarnishing the family? And my Aunt was “a lonely cat lady who nobody wanted”. Every Christmas was the worst affair you can imagine. It has taken me a long time to create my own magic to holidays and leave the past behind.

I remember my grandparents having to carefully select just the right amount of gifts at the same value for each so no trouble occurred and they would still find something to fight about. My Aunt actually stayed living with my grandparents until her late 30’s at least I believe as a statement that if my Mom was going to get support she deserved it too. Would a person really stunt their own life’s growth as a means to stick it to “whomever”, their parents I guess or each other? She stayed and fought for her equal right to a place in the support of her parents.

These two used to take me off the shelf like a porcelain doll, except nobody was gentle with me. Random memory: My grandma collected porcelain dolls, they were creepy. Anyway if my Mom wanted to play Mom for a day she would entice me with some event making it sound fun, but it was always in her interest, it was not about spending time with me. If my aunt wanted to take me out, she was lonely and looking for companionship. She seemed to mean well and did try to take me to do nice things, but usually not without a few comments about my Mother along the way. And also without considering anything about what’s appropriate for a child. On one particular outing she took to see Silence of the Lambs, I was eleven. I also was highly sensitive (way before I knew what that was), and slept on my grandmas floor for months. Still to this day would probably never be able to help someone broken down on the side of the road.

This doesn’t mean I don’t have good memories of them, and this is the most confusing part. But for any nice or fun thing they did, their behavior along the way was so uncomfortable, and the way they treated each other so frustrating, the costs outweighed the benefits by far. I was a puppy begging to be loved, rambunctious and wild. I was outspoken and as soon as I found my own voice and stood up for myself, they didn’t like spending time with me much anymore. But not before my childhood was filled with uncertainty and chaos.

I lived above a bar called Hog Heaven once. The owner’s name was Paul, and he had a white pit bull named ice man. As a side note: I believe that relationship ended by her kicking him in the balls and throwing his engagement ring out into the grass (I’ve heard tell he’s still looking for it). They brought me Shirley temples and beef jerky for dinner. I thought it was great for a day or two, then I begged to be back in the safety of my grandparents arms. I was a novelty item, that nobody could quite figure out. But everyone was willing to lean on if I was willing to bare the brunt, and I usually am. I have always been strong. Sometimes I think it’s the best thing I know how to do, and some of the other important things like being soft and gentle, they don’t come as easily. Thankfully my partner now compliments me quite well in that way. And also I have learned we are not meant to be everything to everyone. We are a piece to fit together with other pieces to make the whole. Or at least with regard to taking on a gigantic task like parenting.

So here I sit in humble waiting in the therapist office as a woman we have just met replaces some of the nurturing parts for him that I couldn’t yet find in my youth, perhaps I never will. But the good news is I have found a way for that to be ok. As this woman helps my son know he no longer needs to be worried about his mother because I have travelled worlds away from whence I came. And because I heal daily alongside the other wounded and searching, and that is the best decision I ever made. My career constantly grows me and holds me accountable.

Journey on warriors, you never know what is around the next bend. There are always moments to appreciate, even when there is also much struggle. I still remember those delicious virgin drinks from “Hog Heaven” and Paul and iceman, and the way it felt to ride in my mom’s 84 Pontiac Firebird listening to loud rock music, the wind in our hair. A far cry from the grandparents church hymns. My mother was a mad woman, but to that little girl at that time she looked exciting and full of life. My childhood was eclectic and it carried lots and lots of lessons. I’m hoping to turn them into stories and to re-experience it in a new way as I do. I can write about it now because it no longer haunts me how it used to.

Anyway the hour is up, his therapy, and mine (writing) as well. Our reward is Bella Napoli Pizza and some much needed family relax time. Minus twin B who is studiously working on a project this evening and will be greatly missed.

Enjoy the little things…. every little thing…

P.s believe it or not these are not the twins! They look more like twins though 😉

My first Counselor….

One post unlocks more….. or so it seems.

My first mental health counselor was Dr. Bob Murray. I saw him in New London at The Coast Guard Academy. This is who the military sent me to. It was about 45 min from my home in Milford Connecticut at the time.

I arrived at counseling because I was stuck. Because I thought having a husband and three beautiful children, a good man who loved me… was supposed to be the key to happiness. I thought this because my mother was never happy and she always focused on the fact that if she had a man who stuck around and who was good she could have been. At least that is what I heard. So I took that and ran with it. I was eager to watch what was around me and to learn. I am a spongey human being who easily fits in, takes on, and becomes what is around her. That is my default mode because it pleases others and receives so much positive feedback which I was starving for. Having been raised by grandparents who were very displeased at the fact their daughter got pregnant by an older man out of wedlock at the age of 19.

My mother was not capable of raising a child. My mother was not capable of caring for herself even. She enjoyed the romantic aspects of being a mother, but seemed to be unable to stay with the difficulties. Now that I am later on in years I understand this as her literally not having the capacity. The first half of my life I experienced a range of emotions around this. I couldn’t understand why she wouldn’t choose ME, choose to be my mother. Confusion is probably the most appropriate word here, and that confusion resulted in a lot of discomfort for me. But as anyone who is determined to “change their stars” I was unwilling to give in to that. I got strong, or perhaps I was born strong, or maybe both? I suppose this is the reason I am so interested in how much of things is how we are wired, and how much is what we are subject to. I’ve been considering and wondering about nature and nurture for as long as I can remember.

My grandparents stepped in and took over care of me (after court involvement and a try with being with Mom when I was young). They have both passed away now. Grandma (Mom) died of Lou Gherig’s Disease in 2006 at the age of 79. Grandpa (Dad) died of duodenal cancer in 2013 at the age of 89, or of missing grandma as I like to think. One of those married couples that had so completely fused that one can’t be without the other for long. The emptiness just kills them after separation. He hung in there for my younger brother I believe. To try his best to get him to more self-sufficient adulthood before giving in.

What I remember most about me and being a child was that I was primarily received as being a pain in the ass. I was loud, outspoken, semi-aggressive, very physical and touchy, exhibited many attention seeking behaviors (not shockingly), a hypochondriac long before I knew what that was. I was a “chatter box”. My aunt and her boyfriend would try in the car to get me to play a game they referred to as “Monks and the Vow of Silence”, in this game I was to be quiet until a gong rang. They probably got a couple of rounds of this in of me really wanting to succeed and win before I was onto them. I was FULL of life in a situation where my life had not been wanted there, at that time, in that way. That is an unfortunate circumstance for all involved. I frequently recall my grandparents saying out loud they didn’t understand why I always had to be on the go or wanting to be doing something, that when they were young they played with paper dolls and were told they were “meant to be seen, and not heard.” I was often told “children are meant to be seen and not heard”. Being highly sensitive what I never knew was how completely and entirely I internalized every single one of these messages. I was wrong, bad, flawed… even in these subtle ways, this then greatly compounded by my behaviors increasing as I reacted to the stress in my direct environment. This also compounded by my being different than most of my peers. I was a tomboy, wanted to dress like a boy, and ultimately be like one. My theory on this is that represented a strength and stability so opposite to me. I also think at that young age without realizing it I knew I would have more power as a boy and would be treated different. They seemed to be somehow more legitimate and I wanted that.

I wanted to feel valued, and like I belonged somewhere. Unfortunately consistenly the message was different. There was a lot of chaos around me, and it slipped inside too. It slipped inside so much that I would find later in life I would need to continue to create it so I could feel comfortable enough to function. It is what I knew.

A confused, sad, scared, lost little girl who wanted to belong to one of those families who planned for you and got excited about new life. Not whose legacy was “their mother was a slut”, and we are now burdened with the care of a child we didn’t ask for. We were going to travel in our retirement. The words always rang in my  mind. I always knew what was going on. I couldn’t be blissfully ignorant about it, and sometimes I feel like I wish I could have been.

There is so much more to unravel that happend prior to me getting to counseling. I have no model for how to unravel this so I’ll just have to say what  comes when it comes for now, until a better system develops. I will summarize for now to: a very unstable beginning led to me being a tiny adult and thinking at the tender age of 18 that my priority was to find a good man and get the heck out of dodge. And that’s what I did. I married a good and lovely man who was in no way shape or form a good fit for a life long partner for me. And the fact I didn’t already know that, couldn’t have seen it, then gave me great conflict because as you may have guessed it breaking my promise to myself and the world that I would immediately at age 18 create a better family than the one I had been given was unthinkable.

Ending up in a counselor’s office would be the thing that I didn’t know would save my life. It began with validation. That was step 1, but then there were so many more to go….. I had so many pre-conceived notions about what Counseling was. I was struggling with my sexuality at the time, but at the very beginning I was looking for more palatable reasons that could be, like perhaps sexual abuse (that would have been preferable than being gay, you see that could be managed and I could have kept my dream of staying married to one person and having the “perfect” family)… but if you thought I was gonna tell a heterosexual middle-aged man who worked on the base of my husband’s profession that… you would be wrong. I had decided I would tell him about my family life and do that work and it would end there. As I unfolded tales of my beginnings the thing that sticks out the most that he said to me was “he didn’t know how I had made it here to this point”. Those words seemed so foreign to me. What do you mean I’m fine? What is he even talking about? My defenses were grand at that time. My being strong and likeable on the exterior protected me, and it held me back. Week after week he continued to ask how I had come so far? And I continued to think is this guy nuts? Come so far? Don’t you realize I’m way behind? Don’t you know I’ve found myself in Connecticut amongst only people on their way to dazzling careers (and most already there at that age)…. I was an alien at that point.

I would write him …. my Counselor… I would write him agonizing pain filled e-mails full of angst and confusion. In the position I am in now I wonder how much worry that caused him thinking if he was doing the right thing to allow the letters, or if I was ok or not, safe I suppose is the more operate term here. I often wondered if it was fair of me to use his time in that way. But I felt like I didn’t have a choice. I had all of these thoughts and feelings and they needed to go somewhere. I write more because I need to write, ever than I just wanted to. It is only now I am realizing the full breadth of how important and intricately connected to my healing this gift is. And now in this almost 37th year of my life. I need to find a way to share this journey even further so others can benefit from it, the way I have benefited from those who have shared before me. My life has been saved many times over by Counselors and Authors, and they lit a spark and modeled a template for healthy love, that I fiercely continued to study and pursue. So much so that I am making it my life’s work. No one really gave me permission to do this, and that’s why it has taken so long. I am giving myself permission now. Flaying myself raw for the world in hopes that perhaps it can turn into something with the right parts humor, polish, or of whatever it is meant to be… to then be delivered to those lives whom it most needs to touch. I want that more than anything.

My Authors along the way include Paulo Coelho (The Alchemist, The Pilgrimage, Veronika Decides to Die, The Valkryies, and so many more), then there was Elizabeth Gilbert’s Eat Pray Love and Joan Anderson’s A Year by The Sea. These came at at time when I had lost so much hope in love, when I needed strength to be on my own. Now there is Brene Brown,  Pema Chodron, Cheryl Strayed, Glennon Doyle-Wambach, Anne Lamott, Anne Patchett, …. I could go on forever. These are the ranks of the people I want to fit in with. I want to be one of these. Someone who guides and speaks openly their truth and who shares wisdom with others. With others who respect and can realize the price tag this wisdom came with.

I think now more than ever this will be a book, or become one. Because of what I learned just today, and over these past weeks about blogging and writing. Once I begin more just flows, when I turn away from it, it shuts off almost like a faucet. These probably won’t continue to be small essay’s. The book will probably unravel from this. The book that has haunted me… and taunted me…. just out of grasp (only because I believed that was so).

Lastly the most important thing (because I just apparently have to choose a place to end because I would write feverishly all day I think). Is I want to tell you guys why this field means so much to me. This man… this first  Counselor of mine…. I didn’t talk to him for years and years, and then literally in true Christina fashion, impulsively I contacted him a few days before graduating from my Master’s Degree…. and I asked him if he would come. I invited him. He lives far away I believe, over an hour at least. It was a 7 pm  December graduation. It was December 14, 2014 to be exact. This man who hadn’t heard from me in years came to my graduation. He is the first person who ever truly validated and helped me understand my painful parts, and he is the only person who knew a young me in that way who came to my graduation. I had the closest thing I could ever get to a real parent invested in me there. I also had my supervisor Dr. James Dipisa who I am eternally grateful to and his wife, my children and my partner at that time Kat. These are all people who have held a deeply meaningful place in my journey. For me it hasn’t always been the same people, in fact my core people have changed quite often, and some have been throughout. I always thought so much more of what I didn’t have and how my life should be or could be, and now I realize I missed out on so much joy seeing life in that way. There isn’t one right way to live a life. Our stories are meant to be unique and to stand out from the crowd and to be shared.

Thank you for reading another piece……

Restless with no rhyme or reason

*listening to Joshua Radin Radio on Pandora; His song “Only You” *

I am restless today. Very very restless. This can easily be confused with anxiety, the sensations are very similar, and misunderstood this could easily feel like not a good thing. However, today I am entertaining the idea that this restlessness could actually be excitement. I’m thinking that it must be because I have a lot to be excited about recently. One of the things is a secret, so you’ll just have to stay tuned and be curious. I am like a locked vault. *yeah right*. LOL. The idea that excitement without anxiety could actually have a place in my world is a little mind blowing currently.

What is my life going to be like without that constant companion of “feeling like the other shoe is always going to drop, or feeling like the rug will be pulled out from under me”. I am slowly coming to…. to the realization that I don’t feel that way anymore. It feels like being re-born. I say this because this sensation can only be described as so new that it is foreign and so foreign that it feels as if my body is trying to reject it.

I am happy, and safe, and confident. And how do a few words on a page make the reader’s heart squeeze the way mine is right now, and the tears begin to release. I need to tell my story, because it is starting to burst forth from my seams, to leak out into everything, and to reduce me to a puddle of emotion on nearly a constant basis. My gratitude is endless. My nerve endings are all alive. The sense of hope I always maintained was not without merit. This is real. This is real.

I’m physically restless, tapping my foot, moving around a lot, not able to sit still. I bit my cuticles a bit too (gross habit). All of my sensory systems feel sharpened. All of my emotional systems too.

I somehow made it through 2 pages of Morning writing, even with this distractibility. I become consumed with Facebook and a drama on there that later I would be hard on myself upon realizing it was a time suck, and generally left me feeling less grounded and pleasant than is my choice. Change begins with noticing. You must notice first, then you must take action. If you do those 2 things with anything that is important enough you can make the changes you desire. But you’ll have to be brave! 

Speaking of brave… I began my drive to work listening to …

Life Changing Book by Ms. Brave Herself. I want to be like her when I grow up!!

One gem so far is her describing how she has posted up in her office Oprah’s words: “Do not think you can be brave with your work and your life and never disappoint anyone, it doesn’t work that way.” One of my biggest misunderstandings in life was feeling disappointed in myself so often for everything, simply because I am sensitive and didn’t understand what that meant or why. The only template I had for it was one of shame and deep misunderstanding. What if most of us are only a few layers away from uncovering this type of treasure? I think that is true. And I am finding proof it is true in the lives of those I am able to touch now. My greatest privilege in this life is to be a counselor and walk with others on this journey. I walked alone for so long, and in so much more pain than I ever had to. If I knew then….. but scratch that because I KNOW NOW, and it is meant to be this way.

You see even this much writing, in a space that is rapidly becoming a second home to my heart… the restlessness has calmed. I have written my way through it. Just as I have written my way through most of my many unanswered questions and a heaping load of trauma and pain. My greatest hope is to write a story that others can access and feel the way I did this morning listening to Brene speak her truth.

It wasn’t really bravery that I’ve had a problem with. I developed that being a problem because I believed others with their should’s and should not’s. I watched other people in shame and thought I’d rather belong to the herd than to be cold out here alone. I’ve changed myself so many times to try and belong somewhere and to something. I didn’t realize at that time that the price would be my soul, and then on top when it turned out to not fit for me I blamed myself. So much pain. I’ve suffered immensely, mostly at my own hand. At the hand of my rapidly over-thinking mind. My mind is capable of being a great paradise or a terrible prison. I have known both, but I didn’t know that I had a choice, and now I do.

Thanks to feeding my mind with the brave and the many stories of people who came before me, my life has become a whole different kind of place. Now… I just want to share that journey with anyone who wants to listen. My heart is so open and raw lately. It is just out in the air beating for everyone to see, and the vulnerability of it all is often overwhelming. I wouldn’t change a thing.

As I listened to Brene this am and her story of belonging and her struggle I just could not stop crying. It touched me so deeply. And having those experiences help me unlock how to touch other’s lives in such a way. ….

Stay tuned …. I am on the brink of something special here.. .every second it is becoming…. just like how I “woke up” in this career where I belong that feeds my soul every day.

Parenthood is not for the faint of heart….

When I was a kid (I kind of chuckled at this, the joke is I never really was a kid) I used to love roller coaster’s and all thrill type rides. Later, probably after watching any of the Final Destination movies, it began to occur to me that these large machines were as capable of breaking as any, and I could be putting myself in danger. Let’s be honest I hit a point in my life where my imagination ran my world, and what it often told me is that death was somehow after me. So I recall after this occurred I would still try and push myself, but by the time that conglomeration of nuts and bolts reached it’s peak, inside I would want to scream “someone let me back down before something bad happens.” I would want to turn back and the only thing that usually prevented me from doing so (was probably my ego) was the fact that other people behind me were waiting and I would cause a scene. If it weren’t for fear of inconveniencing others I would have marched right back down the line and out to safety, never having plummeted.

*A present time update is that I do not ride those rides. I get dizzy, and also feel like the chiropractor is necessary after a single ride. I am officially “old” 😉

In my life currently with regard to parenthood I am going slowly up and up, imagining my impending doom, and feeling sometimes as if I want to scream, let me off this ride. When you’re a new parent you spend lots of time imagining what the heck people mean when they playfully warn you about the teenage years. I feel like I did not take those warnings seriously enough. What I have learned in my 16 years of parenting that IS comforting is that MOST everything (at least so far) is a phase, which means it does pass, you get a brief breath of fresh air, and then a new struggle will be laid out before you. Just as soon as you feel you have the parenting game figured out….. it changes. 

I used to get so scared and bewildered when caught in the moment that I could only intensely emotionally react to each part of the phase. When it was in its worst I thought I would never make it out alive, and when it resolved finally, I felt I would be safe forever. Both of those illusions can be very dangerous. The reality is that all things in life will ebb and flow, there will be good and bad moments throughout. It’s about making it through the difficult ones and how we manage that, and about enjoying the good while still knowing it will not be some constant state to try and grasp and keep forever. It’s like a flower that you can’t pluck and take with you for it will die. You appreciate that moment, take a snapshot in your mind, and buckle up for the next hurdles.

Currently my hurdles are compounded by my self-components : ADHD (this is a big one), being highly sensitive, Crohn’s Disease, Anxiety, running a full time practice doing a job that while very rewarding, can take a large tax on my available resources, which brings me to “being the type of person who constantly is spread too thin because of their sheer thirst for experience in life and inability to sit still, even for a second”, PTSD (also a big one), an ex-husband who does not really fall into the category of supportive (understatement), personal struggle with self-image including still feeling inside like I look like my 20 year old self and becoming terrified when I see my “nearing 40 self in the mirror”. I am sure there are more, but these serve the purpose for now.

At any given moment I burn at 1,000 KW hours (this probably doesn’t even make sense and I’m not going to fact check it, because if I do my thought train will leave the tracks, and my inspiration may be lost). I burn bright ok, strong and bright and I go and go UNTIL I drop. When I have dropped you WILL KNOW. If you see my drop you are most likely to be my partner or my kids. The drop can appear as ugly snoring on the couch curled up with Sig, but more often the drop appears with me being able to hardly focus on anything, and being very SHORT. Here I sit knowing I can show up day in and day out warm and friendly, an ALLY for my clients, and knowing that my children get what appears to be “the shit end of the stick”, the very worst parts of me. Writing this line even almost brought me to tears. They get me running on fumes, and we all scratch and claw and bite at one another at the end of the day.

And here is the epiphany fellow parent travelers who come across this: The great trick here is this is also what I get, “the very worst parts of them”. I said to my partner the other day in an adult temper tantrum moment, “but I don’t want to be the mom”. I came across a lovely woman on my travels to Texas. She is from Iowa and has a beautiful family that sounds like a dream. When I shared some vulnerabilities with her she said something to me, that I will keep, treasure, and now share with others. She essentially told me that our kids are for other people and not ourselves. We are home base, they come home and refuel, and pack up and go out into the world to others. I think I didn’t know, that I didn’t know, if I was ready to be home base yet or not.

When we feel safe and loved really well, our full selves are able to be present. This means also our selfish and mean selves, selves we have to learn to manage. I want to show up for my kids journey with this. *disclaimer this is not an excuse for blatant poor behavior and if you come up with some code for how to know exact lines around this please share it with me. Discerning how much wiggle room to give, and when being a parent takes priority over being a friend is a costant battle.

Children when they are young are very gratifying, they love the daylights out of ya. They give and give and give, and would fix everything if they could. Their warm light brightened the path for me to come back from years of a neglectful  and confusing childhood. My children saved me. I’ve struggled with, is this ok?, should I be guilty for this? Are they too parentified? So many things. The reality is though they are my greatest motivator, for which I would never have traveled this far. I need to keep this in perspective as I journey these treacherous paths.

So now I talk to myself as much as I talk to anyone reading…. now is my time to fully bloom into adulthood (my path with this has been affected by my personal story, and does not appear on a traditional timeline, if anybody’s really does) and to be their harbor and be patient with them while they go through the phase of selfish discovery, the phase I went through very latently. I went through it while they were young. This happened because I didn’t have the space they do with me. I have to always remember that fact. When I am lost I have to always remember that fact.

I need to find a way to reconnect with my 13 year old daughter. Some of that journey has begun by reconnecting with what my 13 year old self may have left unresolved. Some of it has a life of it’s own I can’t control. Some components I believe are genetic and temperament and some things are beyond the scope of being able to figure out. But I’ll be here keeping on… trying. Because it is what I know how to do. I don’t know how to give up. That is my one true gift. I didn’t give up on becoming a parent. I continue to become one every single day. There are always new lessons and growth to be had. The most I have ever learned in life is from being a parent.

 

Next time something bad happens, ask yourself “what is the best thing that could come of this”?

I seem to produce my best work whether it be in a therapy session or on the page when I am at my most vulnerable. I am also at my most uncomfortable during this time so it is extra challening to get my feelings out if I am judging myself or shutting down.

I was on a roll with the blog posts and then they slowed down, and of course the harpy critic was close nearby telling me this would be just like before, just like all the other times. Times I would get excited about something beyond my means to fulfill those goals and inevitably crash and burn. What I have learned about this these past few weeks is if you don’t give up when it gets hard, you get overwhelmed, when your self-talk isn’t kind, when you repeatedly do the thing you swear you won’t do in a moment of strength, that the payoff of that in the end is much greater than if you were to stop trying altogether. I have learned that little steps in the right direction are what gets us to our goals, rather than grand perfectly executed plans. We plan our lives that way right? On timelines, using flow maps and charts, having watched people we admire and hoping for our lives to be like theirs, and then the CURVEBALLS (the thing I wrote about several posts back). I used to be so sensitive to the curveballs and so fragile I would fall apart when things didn’t go as I expected or MY WAY. At this point I have learned that this very thing is not only inevitable, it also contains great mysterious GIFTS, that are almost impossible to recognize as such. So next time you are tempted to feel it can’t get any worse, as yourself this strange question. What’s the best thing that could come out of this?

I had a therapist do this bizarre exercise with me, and boy was I ready at the start to be resistant. You mean what is the best part about my unexpected $4000.00 vet bill? Are you serious lady? It turns out the best part was while it’s still on my radar and stressful, and a serious setback…. it allowed me the opportunity to see how many people cared for me, would have my back and show up, and how well my partner and I navigated it together (when in the past in my relationship we would have just taken out stress on one another). The best thing about that vet bill is that my life was not over. I am still able to pay my bills. I realized that in the past I would have taken the bill as evidence that my life and the large financial demands of 3 children alone, let alone student loans etc. was a burden on anyone I could possibly date, I would continue to behave as if I operated alone and inevitably push that person out of my life for good. I knew this time when we dealt with it gracefully and I allowed myself to be helped and to conquer those “being a burden fears”, that I was truly ready for all that love demands. A cheaper lesson might have been preferred here. I am hoping my next one will not cost $4000.00, however I am grateful nevertheless.

I didn’t intend to write that, it wasn’t how my mind started out. Maybe I needed the reminder myself, and sharing it with all of you helps with that. I am still learning how long I want each post to be. I have a tendency to go on and on. I have more to write, but I am tempted to leave this lesson in more of a nugget fashion versus a novel, and to continue my many thoughts on the next post.

 

<3