Tag: #spreadkindness

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It’s the stories that we tell

*I’m just here doing my favorite thing. Well one of many favorite things. Blogging in the bath. It’s 6 am on a Sunday. This is a very special Sunday. I just called Jill the “sperm lady” to thaw our donor D18310. I’ll never forget that number, just like I still know my (and many of my friends actually) childhood phone number. 541-772-7541.

Last night we did the trigger shot at 9 pm and toasted with champagne that my wife had bought for our first try. The bottle is adorable, and she brought me flowers. I am truly blessed.

This blog post was inspired by me reflecting on our journey during the first iui (intrauterine insemination), and our reconnecting in the days following the negative pregnancy test. My wife was so sure this first time she was pregnant. I have come to believe her intuition to a fault, because this love is truly magic. Her particular magic is kindness and a joy for living. She is never negative, unkind, or sarcastic. She’s still human and we were crushed on the morning of her sister’s wedding, when she began to bleed.

Every step of the way of your first iui is new and therefore commands every ounce of presence. It was as if we sat and stared at her stomach long enough and did nothing else we could conjure the baby into life no matter what. And that is how I could describe our attention for the first round.

I remember reading the tutorial for her ovidrel injection (trigger shot that makes you ovulate right when they need). We got a tiny bit snappy with one another which is so rare. I was all business and commanding left and right, she had been begging for my attention all night, and I had missed the signs. I have come to recognize when we do get a little short with one another as a flag for a need, rather than a threat. That in and of itself is a beautiful thing. I slowed down, apologized, and arrived by her side.

It turns out we were nervous because we care so much. Go figure. Because this all matters so much to both of us. Which is a great place to find yourself. “I haven’t doubted things for even one moment”, she said to me on our one year anniversary just a few days ago. Our getting married quickly, and in the way that felt best for us, and blending into a ready made family. She was able to admit all along she was nervous. She had never even done babysitting when she was young she would say. Two tours in Iraq with the United States Army had nothing on this adventure.

My wife is by nature incredibly shy, and often she gets that trait confused with a lack of bravery. It is my moral imperative to show her everyday how wrong she is on this. And she is rarely wrong. My wife is one of the bravest women I know. I don’t think I could do it. Go into a whole family, with all their scars and as an empath, not take on their stress rather than holding it warmly until it all melts into love. She has melted all of my painful parts into warm molten love.

Safe love is healing. Generous love is healing. Our love is healing me every single day. And the love of my children always encouraging me to become a better parent, it’s beauty inspired me always, is the reason we are all here taking this journey now.

Our family has safe and healthy love to share with as many as we can, and especially with this new little life that will hopefully be conceived today/tomorrow.

So the past couple of days my wife and I reconnected in our love. We picked our heads up from the daily grindstone and found one another’s gaze like we did so much more often in those beginning days. And I swear our love grew 10,000 times in a single moment, AGAIN! How big can it get? My heart might explode.

And this left me reflecting on two very important things on this very important day.

First, I ended up writing in my morning pages that I think the first failed iui was a blessing. Yes a blessing. How to succeed by failing is a writing assignment in my write into light course, and now I do this by habit. What I found is that it gave us even more clarity on several things, mainly of which is how much we want this baby. It gave us the opportunity to be graceful in the face of some powerful emotions, it made our love stronger, not more strained as everything warns about this process. And I know that if it takes years, and much more of an invasive process that it can be harder, but I also know we will love each other well through the whole thing, which is what we are on this earth for. To experience a love like this…

Second. We want this baby, and the ones we already have more than any other choice of how to spend a life. We are both on that page. We are not having a baby to save a marriage, to distract from something, to create something we never had. We are having a baby because of safe and healthy love. I was brought into this world so differently. The anticipation of me was the polar opposite of this. And perhaps only because of that awareness, I am able to feel every beat of the heart of this love now.

I am grateful every second. Speaking of being grateful, the bathroom cabinet fell off the wall and just scared the wits out of me. A blog post and pics to follow, but we are all so lucky no one was sitting on the toilet when this happened. I laughed (probably shock) that something like this would happen just as I was having such emotional clarity and peace. Curveballs my friend. I guess the bathroom did need another good remodeling :/

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Mary Lambert a Champion of Women.

Do yourself a favor before reading this:

Body Love Mary Lambert

Also this is blog post #50!!!!!!

We watched this beautiful soul at Daryl’s House in Pawling New York. I am tearing up just thinking about it. I’ve never been like this before. Openly emotional and all heart outside my chest beating for all to see. Her first few words made the tears come immediately, something I never thought was possible for me.

Which helps me also acknowledge how hard my life has been and allow that. Allow it without worrying that I feel I’m special, or in comparison with someone else, or betraying another. I am realizing journeying out of PTSD is a lifelong pursuit, it cycles over and over, until enough security is built to let safety and peace take over.

And now that I am standing here (a little), I am feeling all my feelings I minimized before. My whole body shakes with them at times. I am feeling them with a new story. The work is exhausting. I am ragged lately. I dress comfortably and often don’t even wear make-up. At face value many things could be said, but since I go deeper, and I’m loved deeper, it doesn’t matter anymore.

Trying to live to be seen and loved has lost all its power, and in this new place I am finding all of mine.

I found something in Mary Lambert last night. I said to my wife that “she must have suffered a lot/suffer a lot”, and that “she does music the way I do therapy.” I could feel every word of her music wrapping my heart and soul in support and love. I could feel her giving to others with passionate truth.

The tears just kept running down my face. I didn’t wipe them away, or smile awkwardly in shame. They are mine and they are important. I want to live Bold like her. I do on the outside, but my insides still scan my self for wrong and bad things. Hyper-vigilant to my core.

Watching Mary Lambert move her body proudly, unbridled, and with great joy; makes me know I have to love mine as fiercely.

I’ve spent most of my life desperately insecure about how others would see me, squirming with it. Trying to sell myself, and so often feeling rejected and less than. Uncomfortable in my clothes, and my very skin. Always looking to others for answers.

Mary helps this great hurt. Her voice goes straight to my soul. She is a healer also. And again I catch myself wishing I could be enjoyed like that. She gives comfort and often times I remove it in favor of growth. People watch her and enjoy themselves. People come to sit with me and ache and bleed.

I give permission to feel feelings also, but there’s no sweet background music. Maybe there should be 😉 I’ll have to think about that.

I still don’t have all the words for my feelings right now. What I can tell you is I am a person who has dedicated her life to healing, and I am only now realizing the full extent of my wounds, and the time and medicine it takes. I am hoping to do some important work for others with this.

Love,

Christina 💪🏼💜

Ps wanted to share my Facebook post that came out in the raw last night.

Music gives us permission to fully feel our feelings. Tonight the music of Mary Lambert opened up my heart and emptied it, and filled it, again and again. It was a spiritual experience. This past year I feel like I’m walking around with no skin on. Everything is raw. It’s beautifully painful.

This past year I’ve come back from the dead. My body was present and I could give, but my emotions were so far away from my reach. As a result I’ve feared myself, questioned my character, and been drenched in immense doubt for most of my life.

I ran hard and fast from myself. I had huge feelings I didn’t know what to do with. I held them on top of me. I couldn’t breathe. I haven’t breathed a true sigh of relief most of my life. So now when I do it could blow down a building. I’m a tidal wave force of emotions. The choice of the powers always to decide for good or evil. I was always good. I had the hardest time believing that story. My feelings are valid.

I refuse to ever let myself believe again like I am not worthy of every one of them, and Allowed to express them. I used to write songs, but then I forgot. I forgot my joy and my beauty. I packed them away in many a suitcase. I padlocked them, wrapped them in chains, and let them sink to the bottom of the Ocean. The current took them to extreme temperature depths ,and they froze there.

I just tried to find the template for living after that. I looked around, and then said, “I guess I’ll try that.” And that and that and that. A great enthusiasm on the outside, and endless pit of doubt on the in.

Now I have the permission to create. I gave it to myself. And this brave brave woman tonight, has given me more than I can express in this moment. Simply by fiercely loving herself, so I could see how beautiful that looks on someone, and know I could be beautiful too.

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Don’t turn away….PTSD hurts, and finding what heals….

I had a difficult night last night. My son is having a hard time as a highly sensitive person in an overstimulating world. As a family system when this is hard on one, because we love each other so much, it’s hard on all. And the most readily accessible emotion is anger. It’s the most seductive, the most comforting. We had expectations about the way our day would go. After all we were cutting down our first Christmas tree together as this whole family. I myself have never cut down a tree for Christmas before. This event went differently than planned in every sense of the word. I always say “you can plan a pretty picnic but you can’t predict the weather”…. that isn’t original in fact I am pretty sure a Ludacris song lyric gets the original credit, but I’ve made it an important lesson in counseling over the years 😉 I also got a terrible stomach just at the moment we were cutting with no bathroom in sight and had been fighting a migraine all day. The stress and guilt and frustration at thinking I wouldn’t make it, to the outhouse blech, threw the migraine into full force. The anger thoughts are so tempting…. the why me’s, the I deserve’s….. the it’s not fairs of it all. I needed comfort and warmth, but instead was forced to be strong for my family. I wanted to show up. I always want to show up.

Strong seems to yield hard on self and others for me. So when my teenage son wouldn’t participate in photos I was anything but patient. He having just come off of being distressed the night before because his sisters were fighting over ice cream. The true result of the ice cream was hurt feelings. One feeling the other didn’t believe the best about her and being shamed etc. Hurt all around. He absorbed and internalized and it stayed with him that next day. And heaven forbid my dreams of a peaceful day be interrupted in such a manner. I wasn’t as patient as I would have liked.

All I can think here is that we need to help each other with this hurt. Shaming does not work. Blaming does not work. Anger does not work. Disconnecting does not work. Warm, open, gentle, understanding, kindness, effort, dialogue, patience…. these things work. If we don’t first give it to ourselves we cannot show others how to do the same. The model where we put ourselves to the side in an effort to give all to someone else doesn’t work either, because our unmet needs turn into anger and frustration that must find a way out somewhere.

If I did not feel so guilty for leaving during an important moment, due to something I couldn’t control, perhaps I would have been more patient. If I said to myself it’s ok Christina they all understand, maybe I could have been more understanding for my son. And then later would have been less likely to have an adult temper tantrum when I was afraid, and instead of showing up in warmth …. I froze in terror. I let my teenage son feel like he was responsible for ruining our day, with some words I allowed myself to say out loud.

The truth, my truth is that when it comes to observing intense suffering especially with my children (unthinkable) I freeze in terror. I have felt not nurturing because of this. I have felt like some important part is missing in me. I have had such a difficult time understanding why I can show up so well as a Counselor, but this aspect of motherhood always held places of deep fear for me. This is what PTSD does, it grips and holds and freezes.

As a Counselor I care deeply for my Clients, however the relationship has boundaries and I am an onlooker to their lives. I can stay and be present, and offer support and I mean it genuinely. In my relationship with my children it’s an entirely different ballgame. But I do sit and try and sort through these things. I believe that PTSD changes your wiring. And that you need to learn to work around your unique self. The self that matches your WHOLE story, not the parts that are more palatable. That you need to embrace and work with the parts that have been hurt, versus rejecting them. And that is the most difficult thing because who wants the injured parts? We want to rid ourselves. When you choose a puppy you choose the lively one that is energetic and happy, you don’t choose the sad one in the corner who looks as if it may be ill. But probably most of the time you give that puppy what it needs and it will likely perk right up and thrive like the rest. But if needs go unmet it will continue to suffer.

I had an interesting morning. I decided after a very draining experience last night in my family to rally and continue forward. I wrote an email and I called the school counselor, and I got up and helped my son wake up and I cared for him in the best ways I know how. I helped him get to school and drove him. He usually takes the bus. I pulled up and saw a woman sitting on a bench outside the school breaking down into tears. I looked once and thought you know what I don’t want to butt in, what if I make her more uncomfortable. What if it isn’t my place? So I went to leave…. something stopped me and I thought I can’t let that woman sit on that bench crying and not do a thing, when I know I can do something. Also the part of me that connected to my own pain thought, oh thank goodness I’m not alone, let me try and connect. I needed her as much as she needed me.

I approached gently and asked if I could sit with her. She stated she had just been fired from her job, and that her son who has behavior troubles was about to be arrested, he wouldn’t get out of her car so she was sitting on that bench. We realized that our children know one another in a significant way and I embraced her and sat with her. The school managed to help and her son went to school and she later told me her boss listened and let her keep her job. There’s still a lot that she needs, but this morning neither of us had to face the things on our plate alone.

If you see someone or something that has a need and you get that inclination to reach out…. turn toward it. Don’t turn away. You never know who you may be affecting, but you can guarantee that you will be impacted as well. It takes a village and we all need to be connected to each other.

If you have found love…. spread it as much as you can 💜💜💜

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My Journey with Crohn’s Disease

I write this first and foremost for those who can relate. My fellow IBD warriors, and I write it for myself so I may find some catharsis.

-To Deny my Own Experience was a Part of my Survival-

I have Crohn’s Disease. I was diagnosed in August of 2013, one year before I graduated with my Master’s Degree from Southern Connecticut State University. The journey leading up to my diagnosis is a memorable one. I was constantly going to the hospital for heart palpitations and chest pains. Sharp sharp chest pains that felt like the ending of my life must be immenent. If I walked short distances or even began mowing the lawn my heart would beat so hard I could hear it in my ears. The other thing I remember was the extreme fatigue. I felt like a lead block, and that even moving across a room or getting up from a seating position felt like a huge task. I had attacks where my face would get very red and hot and feel like it was on fire. My hands and feet would often tingle or go numb. My head would also throb and I would just feel absolutely awful. My heart would race and I would turn clammy and feel panicky. I thought these were panic attacks until I realized after I went to the bathroom the attack would soon after calm and I would be left freezing cold, lips purple, and shaking like a leaf… barely able to hold my body up. I would have night sweats and migraines. What I would later realize was a depletion of B-12 would create an anxiety like you cannot imagine. I wouldn’t even go somewhere if I didn’t think there was good medical care nearby. I got to the place where I almost wasn’t even living anymore. I had an important therapeutic journey that I hope to make a post about, that helped with this.

Now is any of this sounding like Crohn’s Disease to you? I did not have frequent bouts of diarrhea. Though I will say the way it does effect me is when I am flaring and often with no rhyme or reason things “go straight through” if I don’t get to a bathroom immediately I definitely will not make it. There is no “holding it”. And in fact much to my great embarrassment I didn’t make it last week at my office during my last client of the day. I literally had to say I had to go to the bathroom 10 min before the ending of the session and I had been putting it off thinking it was almost done. Needless to say this situation ended up extremely uncomfortable. Mercifully there was not another person afterwards. It isn’t only my ego that is wounded during an episode such as this, these attacks come with extreme abdominal pain and exhaustion afterwards.

I had gone to every doctor imagineable: Neurologists, Cardiologists, Orthopedics (oh I didn’t mention the extreme joint pain), Naturopaths, General Practioners. By this time I was beginning to question my sanity, and was often treated like a hypochondriac. One of the worst aspects was is in my natural make-up it is very important to me to not be a burden and to “tough things out” so I denied my experience even to myself, and I still do this. I am in deep denial of my disease. This may be the most difficult aspect. And up until this point it has been easy to deny because after many nasty medications (including steroids), Humira put me into remission in 2014….. until now. The beast is rearing its ugly head again, and this will be an entire journey of emotions to manage it I feel. You see I have a relationship with this disease.

Let’s think about this word for a moment DIS-EASE. Whoever coined this term is absolutely brilliant there is no better way to describe. Feeling all of these odd little symptoms, even if it isn’t an issue of some extreme suffering every second, is distracting. This is probably one of the most painful parts for me. Someone who already has a hard time focusing then has this on her mind as well. It feels like it immobilizes me, taking over my mind space as if an alien has invaded and I am no longer my own. THIS is the most painful part for me. I become distracted and lost inside my head and my pain. Trying to be strong for everyone, not wanting them to worry about me. Trying to stay positive and have a good attitude, because that is the only choice. And when I crumple with exhaustion…. I have the awareness of how unpleasant I become. It is heart breaking.

Today I am writing about this because slowly, ever so slowly, the symptoms are creeping back up. Now since I was diagnosed I went through a whole wave of emotions. Relief I wasn’t crazy was quickly replaced by terror of the true reality. My mother has Crohn’s Disease and I watched her bleed constantly, have surgeries, vacillate between heavy and so thin you could see her spine. I watched her blow up like a balloon on steroids, and then shrink like a skeleton. I watched her suffer. And this whole situation becomes the most confusing because it was always her reason to never become a mother. She never became a mother. I think at this point in my life I know that she wanted to if she could have. I do not think she was capable. But for so long I thought it was the disease doing this and I felt so strongly that I wanted to care for her and fix her. Thus a lifetime of confusion of learning how to be cared for, and that I deserved that, and sorting out where Crohn’s Disease and mental illness collided and divided. Sorting through the mess.

So my relationship with Crohn’s Disease is a tricky one because it is also an emotional trigger for me. This being another one of the most difficult aspects. 

So today I sit and write about this topic close to my heart as this will thrust me into another period of growth. I will be tasked with handling the emotions and the physical aspects of this. A benefit of this coming back the way that it is is that I can finally know it wasn’t just stress, I couldn’t probably just fix it naturally (though I debate this a lot), it isn’t something I have caused myself or somehow my fault, and it is VERY REAL. There was some confusion with my diagnosis. I was in my Treatment class, one of my last in my program at Southern, and having the sharp pains. I ended up going to my doctor who pushed on my stomach and I nearly jumped off the table. She thought I had appendicitis and sent me to Advanced Radiology. Already feeling sick I had to drink 2 large bottles of barium 🙁 ICK. I walked around for an hour trying to distract myself: listened to Tina Fey Bossy Pants on audiobook. I can still remember every single thing about that day. Each moment. I remember the sounds, sights, and smells. I remember everything floating through my head as I walked around and around the building outside to keep fresh air and keep from throwing up the solution. I got a call a couple of hours after the test and they said that they couldn’t be sure but they think that I have Crohn’s Disease. I had 7 centimeters of blocked and inflamed terminal illeum. This is where my DIS-ease resides, right where I absorb my nutrients.

My GI later called me back and said that all of my tests came back acute and not chronic so that perhaps it wasn’t Crohn’s afterall. I was so relieved. She later reneged this and said that given my history and results of my colonscopy I definitely had it. This small piece is very important because once I was feeling better I tended to be concerned that I was taking a medication that could kill me, and cause all sorts of other things, and what if I didn’t have it? I still can say I have been unsure. At the time I was having a lot of stress in a relationship, a lot of stress with trying to balance school, work, and internship. A lot of stress as a parent. A lot of stress financially. A lot of stress overall. So I was SURE that my stomach issues were caused by stress and once I got healther mentally that perhaps that was the main key. It obviously is highly correlated with Crohn’s.

So here in the present after 4 hears on Humira (which terrifies me) I am beginning to flare. I have little symptoms still. Sometimes I’ll wake up with nausea or be extra tired. I used to be afraid they would become a flare, but then I realized, or now I realize for sure they were not. Because present moment finds me knowing in my body that I am flaring. I went and saw a movie with my person a couple of days ago and had an attack. My heart rate nearly 100 bpm while sitting in the theater, just sitting. My face red and hot and painful. I tried to hold ice on it for relief. It was not very easy to concentrate on the movie. There is no warning on these attacks they just come, and they suck the life out of any activity.

I woke up this morning feeling totally wiped out, every single part of me. My joints feeling swollen and in pain, my head throbbing behind my eyes, and just icky overall. It is so disheartening to a determined spirit. However I am a fighter. I have always been a fighter. And the second I become engaged in a session in my office doing what I was made to do… for those hours of the day I forget how badly I feel. I am so very fortunate for this. I have created a career for myself that so naturally commands my spirit and presence to attention that everything else becomes smaller. Even my DIS-ease. I refuse to be defined by this monster that rages behind every activity and dream of my life. I REFUSE.

So here I am today on the brink of what could be a very exhausting journey to relief again. Though I am delighted to have a career that does this, by the time I come home I crumple. My life does not have room for this. I don’t want to be irritable and cranky with those I love the most. So then comes the next aspect of the fight. Figuring out the best treatment. There are so many overwhelming questions, and the stakes are high. Do I go up on my Humira to weekly (this terrifies me)? Do I start steroids (also not something I want). Do I attempt to kick this as naturally as possible? This is romantic and I like the idea, but the effort it takes is unimaginable, and my GI would argue. My inclination is natural and holisitic, but my natural background is Western Medicine and it tends to be what I lean to trust. While you can read beautiful articles about how people have healed themselves (see Dane Johnson I’ve been admiring him lots lately and my person did get me all the ingredients for the elemental shake), my GI warns she has seen many of those appear as if they are doing really well for a long time, and then end up with a colostomy bag. A deepest darkest fear…. so I have to make big adult decisions, ones that effect my entire family, and ones that can leave my life hanging in the balance.

All of this is primarily invisible to the average witness of my life. This is why folks to be careful the things we say to others, or the judgements that we make. I am quite sure I am the mom who is talked about for taking more resources than I give within the PTA and in the soccer clubs. When I lose lots of weight due to being sick, well meaning folk congratulate me, having no idea of the daily battle I am fighting. Note: I no longer pay someone a compliment on their physical appearance, unless perhaps it’s you have beautiful hair or something. Never about their weight though. There are million other compliments you could find about their personality.

Having a disease like this changes the way that you live your entire life. I already felt like I was trying to outrun the clock on my available years to produce work that touches the lives of others. Now this process is just accelerated. So in my personal world I have little time to keep up appearances in any way possible. I am already exhausted I cannot be further exhausted by concerning myself with surface level interactions, or being concerned with what others think. And yet…. as a highly sensitive person I will always be aware of each of these things, be aware I live very differently (or it seems so) than others. I am aware, but I literally run out of the resources to give to anything that saps my energy that is not terribly important. So I live in a different and new way. In this way I am thankful for my DIS-ease, because it allows my life to be more rich in genuine interaction.

I live to turn my pain into my passion, and to share with others who are seeking this how to work towards it. Here is another piece of my story. I hope that you get something out of it.

My greatest strength is those that love me so well. It is during this time I think often of my friend Danielle, who came with me to many of my tests, and who was a rock during my time of intense FEAR. She is always close to my heart even far away. Her love for those close to her practically seeps out of her pores, and during this time it was a warm blanket for my soul. I can’t imagine having gotten through that time without her.  It is my wonderful person and my family that keeps me above water, when the weight in my heart feels like it will sink me. I am grateful every single day.

Oh and practical helps are long epsom salt baths with aroma therapy, ginger tea, hooded sweatshirts and comfortable clothing, and snuggles. <3

Christina