Tag: #rawprocessor

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My Journey with Crohn’s Disease

I write this first and foremost for those who can relate. My fellow IBD warriors, and I write it for myself so I may find some catharsis.

-To Deny my Own Experience was a Part of my Survival-

I have Crohn’s Disease. I was diagnosed in August of 2013, one year before I graduated with my Master’s Degree from Southern Connecticut State University. The journey leading up to my diagnosis is a memorable one. I was constantly going to the hospital for heart palpitations and chest pains. Sharp sharp chest pains that felt like the ending of my life must be immenent. If I walked short distances or even began mowing the lawn my heart would beat so hard I could hear it in my ears. The other thing I remember was the extreme fatigue. I felt like a lead block, and that even moving across a room or getting up from a seating position felt like a huge task. I had attacks where my face would get very red and hot and feel like it was on fire. My hands and feet would often tingle or go numb. My head would also throb and I would just feel absolutely awful. My heart would race and I would turn clammy and feel panicky. I thought these were panic attacks until I realized after I went to the bathroom the attack would soon after calm and I would be left freezing cold, lips purple, and shaking like a leaf… barely able to hold my body up. I would have night sweats and migraines. What I would later realize was a depletion of B-12 would create an anxiety like you cannot imagine. I wouldn’t even go somewhere if I didn’t think there was good medical care nearby. I got to the place where I almost wasn’t even living anymore. I had an important therapeutic journey that I hope to make a post about, that helped with this.

Now is any of this sounding like Crohn’s Disease to you? I did not have frequent bouts of diarrhea. Though I will say the way it does effect me is when I am flaring and often with no rhyme or reason things “go straight through” if I don’t get to a bathroom immediately I definitely will not make it. There is no “holding it”. And in fact much to my great embarrassment I didn’t make it last week at my office during my last client of the day. I literally had to say I had to go to the bathroom 10 min before the ending of the session and I had been putting it off thinking it was almost done. Needless to say this situation ended up extremely uncomfortable. Mercifully there was not another person afterwards. It isn’t only my ego that is wounded during an episode such as this, these attacks come with extreme abdominal pain and exhaustion afterwards.

I had gone to every doctor imagineable: Neurologists, Cardiologists, Orthopedics (oh I didn’t mention the extreme joint pain), Naturopaths, General Practioners. By this time I was beginning to question my sanity, and was often treated like a hypochondriac. One of the worst aspects was is in my natural make-up it is very important to me to not be a burden and to “tough things out” so I denied my experience even to myself, and I still do this. I am in deep denial of my disease. This may be the most difficult aspect. And up until this point it has been easy to deny because after many nasty medications (including steroids), Humira put me into remission in 2014….. until now. The beast is rearing its ugly head again, and this will be an entire journey of emotions to manage it I feel. You see I have a relationship with this disease.

Let’s think about this word for a moment DIS-EASE. Whoever coined this term is absolutely brilliant there is no better way to describe. Feeling all of these odd little symptoms, even if it isn’t an issue of some extreme suffering every second, is distracting. This is probably one of the most painful parts for me. Someone who already has a hard time focusing then has this on her mind as well. It feels like it immobilizes me, taking over my mind space as if an alien has invaded and I am no longer my own. THIS is the most painful part for me. I become distracted and lost inside my head and my pain. Trying to be strong for everyone, not wanting them to worry about me. Trying to stay positive and have a good attitude, because that is the only choice. And when I crumple with exhaustion…. I have the awareness of how unpleasant I become. It is heart breaking.

Today I am writing about this because slowly, ever so slowly, the symptoms are creeping back up. Now since I was diagnosed I went through a whole wave of emotions. Relief I wasn’t crazy was quickly replaced by terror of the true reality. My mother has Crohn’s Disease and I watched her bleed constantly, have surgeries, vacillate between heavy and so thin you could see her spine. I watched her blow up like a balloon on steroids, and then shrink like a skeleton. I watched her suffer. And this whole situation becomes the most confusing because it was always her reason to never become a mother. She never became a mother. I think at this point in my life I know that she wanted to if she could have. I do not think she was capable. But for so long I thought it was the disease doing this and I felt so strongly that I wanted to care for her and fix her. Thus a lifetime of confusion of learning how to be cared for, and that I deserved that, and sorting out where Crohn’s Disease and mental illness collided and divided. Sorting through the mess.

So my relationship with Crohn’s Disease is a tricky one because it is also an emotional trigger for me. This being another one of the most difficult aspects. 

So today I sit and write about this topic close to my heart as this will thrust me into another period of growth. I will be tasked with handling the emotions and the physical aspects of this. A benefit of this coming back the way that it is is that I can finally know it wasn’t just stress, I couldn’t probably just fix it naturally (though I debate this a lot), it isn’t something I have caused myself or somehow my fault, and it is VERY REAL. There was some confusion with my diagnosis. I was in my Treatment class, one of my last in my program at Southern, and having the sharp pains. I ended up going to my doctor who pushed on my stomach and I nearly jumped off the table. She thought I had appendicitis and sent me to Advanced Radiology. Already feeling sick I had to drink 2 large bottles of barium 🙁 ICK. I walked around for an hour trying to distract myself: listened to Tina Fey Bossy Pants on audiobook. I can still remember every single thing about that day. Each moment. I remember the sounds, sights, and smells. I remember everything floating through my head as I walked around and around the building outside to keep fresh air and keep from throwing up the solution. I got a call a couple of hours after the test and they said that they couldn’t be sure but they think that I have Crohn’s Disease. I had 7 centimeters of blocked and inflamed terminal illeum. This is where my DIS-ease resides, right where I absorb my nutrients.

My GI later called me back and said that all of my tests came back acute and not chronic so that perhaps it wasn’t Crohn’s afterall. I was so relieved. She later reneged this and said that given my history and results of my colonscopy I definitely had it. This small piece is very important because once I was feeling better I tended to be concerned that I was taking a medication that could kill me, and cause all sorts of other things, and what if I didn’t have it? I still can say I have been unsure. At the time I was having a lot of stress in a relationship, a lot of stress with trying to balance school, work, and internship. A lot of stress as a parent. A lot of stress financially. A lot of stress overall. So I was SURE that my stomach issues were caused by stress and once I got healther mentally that perhaps that was the main key. It obviously is highly correlated with Crohn’s.

So here in the present after 4 hears on Humira (which terrifies me) I am beginning to flare. I have little symptoms still. Sometimes I’ll wake up with nausea or be extra tired. I used to be afraid they would become a flare, but then I realized, or now I realize for sure they were not. Because present moment finds me knowing in my body that I am flaring. I went and saw a movie with my person a couple of days ago and had an attack. My heart rate nearly 100 bpm while sitting in the theater, just sitting. My face red and hot and painful. I tried to hold ice on it for relief. It was not very easy to concentrate on the movie. There is no warning on these attacks they just come, and they suck the life out of any activity.

I woke up this morning feeling totally wiped out, every single part of me. My joints feeling swollen and in pain, my head throbbing behind my eyes, and just icky overall. It is so disheartening to a determined spirit. However I am a fighter. I have always been a fighter. And the second I become engaged in a session in my office doing what I was made to do… for those hours of the day I forget how badly I feel. I am so very fortunate for this. I have created a career for myself that so naturally commands my spirit and presence to attention that everything else becomes smaller. Even my DIS-ease. I refuse to be defined by this monster that rages behind every activity and dream of my life. I REFUSE.

So here I am today on the brink of what could be a very exhausting journey to relief again. Though I am delighted to have a career that does this, by the time I come home I crumple. My life does not have room for this. I don’t want to be irritable and cranky with those I love the most. So then comes the next aspect of the fight. Figuring out the best treatment. There are so many overwhelming questions, and the stakes are high. Do I go up on my Humira to weekly (this terrifies me)? Do I start steroids (also not something I want). Do I attempt to kick this as naturally as possible? This is romantic and I like the idea, but the effort it takes is unimaginable, and my GI would argue. My inclination is natural and holisitic, but my natural background is Western Medicine and it tends to be what I lean to trust. While you can read beautiful articles about how people have healed themselves (see Dane Johnson I’ve been admiring him lots lately and my person did get me all the ingredients for the elemental shake), my GI warns she has seen many of those appear as if they are doing really well for a long time, and then end up with a colostomy bag. A deepest darkest fear…. so I have to make big adult decisions, ones that effect my entire family, and ones that can leave my life hanging in the balance.

All of this is primarily invisible to the average witness of my life. This is why folks to be careful the things we say to others, or the judgements that we make. I am quite sure I am the mom who is talked about for taking more resources than I give within the PTA and in the soccer clubs. When I lose lots of weight due to being sick, well meaning folk congratulate me, having no idea of the daily battle I am fighting. Note: I no longer pay someone a compliment on their physical appearance, unless perhaps it’s you have beautiful hair or something. Never about their weight though. There are million other compliments you could find about their personality.

Having a disease like this changes the way that you live your entire life. I already felt like I was trying to outrun the clock on my available years to produce work that touches the lives of others. Now this process is just accelerated. So in my personal world I have little time to keep up appearances in any way possible. I am already exhausted I cannot be further exhausted by concerning myself with surface level interactions, or being concerned with what others think. And yet…. as a highly sensitive person I will always be aware of each of these things, be aware I live very differently (or it seems so) than others. I am aware, but I literally run out of the resources to give to anything that saps my energy that is not terribly important. So I live in a different and new way. In this way I am thankful for my DIS-ease, because it allows my life to be more rich in genuine interaction.

I live to turn my pain into my passion, and to share with others who are seeking this how to work towards it. Here is another piece of my story. I hope that you get something out of it.

My greatest strength is those that love me so well. It is during this time I think often of my friend Danielle, who came with me to many of my tests, and who was a rock during my time of intense FEAR. She is always close to my heart even far away. Her love for those close to her practically seeps out of her pores, and during this time it was a warm blanket for my soul. I can’t imagine having gotten through that time without her.  It is my wonderful person and my family that keeps me above water, when the weight in my heart feels like it will sink me. I am grateful every single day.

Oh and practical helps are long epsom salt baths with aroma therapy, ginger tea, hooded sweatshirts and comfortable clothing, and snuggles. <3

Christina

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Blogger revealed: parenting struggles and vulnerability

One of my greatest struggles with making a blog is what to include and what not to include. How personal to get when I know that clients especially can read my blog. The stance I think I will always take with this is that if I cannot show someone how to be a raw and real human being, in the number one way that we all teach (by example), then what am I really doing here anyway.

I don’t think that my style will ever be well polished articles (though I usually dream of being like “those other people”, whoever they are ;)), because those fail to show the process of becoming. My life has been a process of becoming, and I have so much that I could share with the world about this. The number one thing that possibly prevents this is the light speed at which I move onto the next adventure and onto the next. I move in my life at a dizzying pace. This alone is terrifying to most I feel, and difficult to understand. And the most important aspect (you’re not supposed to begin a sentence with and are you? I so need to brush up on my grammar etc, but again it keeps me away from my point and my truths, and I refuse to let anything do that) that has been affected in my life by this is my children. Due to the fact that I am propelled foward by an almost alien drive, that even I do not understand at times, I drag my children through life at my pace. I am sitting here this morning as I bask in some of the consequences of this and reflecting.

I have hit a point with one of my 13 year old twin girls where we are very disconnected. This has been the number one thing on my mind. It short circuits all other processes. I cannot just be out in the world experiencing adventures and writing about them if one of my most core connections is suffering. I have felt as if I am banging my head against a wall trying to untangle “the answers” to this puzzle. How much space is the right amount? It is normal for children to branch off into privacy (in fancy therapy speak, individuation). But then also how do we keep them safe in this day of age when technology makes everything beyond their maturity level available.

Trying to crack this code on “the right way to parent” is like trying to decode Mandarin. There is a truth in here that is important. There is not one right way to parent (or do anything for that matter), there is only what works for an individual, taking into consideration their unique path and wiring. This is what we most often do not do. With all of the should’s, templates, and everyone’s well meaning advice on a life well lived. I think some of the truths about this are revealed in the letter I wrote to her. I think I will share it later, when I am not trying to squeeze this in during this magical window of inspiration. Which means I am forgoing getting ready for my day full of clients and will as usual look “comfortable” today 😉

So this morning I woke with my mind so abuzz that the only thing I knew how to do, the one thing I have always been able to do, is to write. I ended up writing her a 7 page letter in long hand. The words poured as if from my soul straight to the page, my most satisfying brand of writing. A brand that once you experience, you become almost unwilling to accept any other kind. This is so rare in my life though. The stars aligned this morning. Which basically means in my world that the dogs after their morning walk chose to nap quietly this am rather than play and make all sorts of noise. It means that the rest of the house was still asleep. I spent a good two hours this morning writing my daughter. I am sitting in here in some self-judgment about that. Thoughts like: “if anyone were to read this they would think it’s way too advanced for the understanding of a 13 year old”, and “why can’t I just be normal”. I said this to my partner the other day. “Why can’t I just be one of those parents who bake the fondant cakes and decorate for every holiday, and their entire focus is their children.” I so badly want to be “those parents”. The ones who do all the external supposed to’s that make their children feel treasured and loved. I am ever envious of those parents. The fact that I am not naturally made this way makes me constantly have my parenting in question. Not that I already didn’t…..

The space I seem to need to keep landing with this is that everyone’s path is uniquely their’s. There is good and bad in everything and we all have choices. One of the toughest is to see our mistakes as they are unfolding and be willing to face them. I look at my mistakes. I used to be so hard on myself that I couldn’t bear to see a mistake, which means that I couldn’t work on anything. I was fragile in my make-up. Since then I have cultivated some Velveteen Rabbit esque values that have helped me to learn to sit in discomfort and own my story, especially with it’s flaws and failures. Flaws and failures are an essential part of our personal map, so why do we do anything to avoid them? Woven within my writing will probably be lots on this.

I guess in this blog you will watch my process of becoming a writer who is able to clearly lay out her truths, the gems she has found in life. I am not there yet. You are going to see poor writing, and grammar mistakes. You are going to have to sift through the confusion and the disjoint for magical nuggets of truth. However I do believe they will be within here, and that you may learn something in the process of reading. I believe this because it is my greatest passion. Sharing knowledge with others. Staying connected in a land of a great disconnect. Looking at our unique types of suffering and finding what alleviates it. The whole process is so beautiful.

As always I wish I could have gotten onto the page more eloquently this rush of inspiration from this morning. As I said I think I will share the letter later, if nothing else so you can see an example of raw vulnerability in it’s process state. One of my favorite things.

Warmly,

Christina

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A Heart so Raw: Remembering Michelle Vo and Honoring Kody Robertson

This morning while I was having my coffee I came across an article about one of the victim’s of the Las Vegas Massacre. Two Strangers Bond over Country Music and Beer. Then the Gunshots Started.

*I am waiting for people from a tag sale site to come and pick up some items that they purchased. This is a most unreliable event to be sure. I am in the process of purging many lingering items that have been collected over the years. I am wanting to re-make a space that holds many memories, with some fresh energy of the self I am now, and of the journey in partnership that I am currently taking. A blog post on this soon. For now I cannot seem to unburden myself from this current pain.

I have an interesting relationship with trauma. I have the ability to stay focused, calm, and to be a protector… a healer…. I can do this very well when called to arms or faced with extreme need. However, when I am by myself, in my processing, it can bring me to my knees with pain. Since I attended school for psychology it has always been a learning game to figure out how much to delve into the news of these events. You see the news is just a headline, often about almost unbelievable events. Things you can easily imagine happened in some far off planet that may never touch you. But when I read the true accounts of people’s personal experiences that is when it truly comes to life for me. So this morning, quite accidentally…. I am raw with pain.

I have clients most of the day today. In my earlier days of being a therapist I would be concerned that I would be too drained from my own heavy feelings to do the work as well. My more experienced self knows that when I am at my most raw and vulnerable I do my best work. The trick is to stay with the meaning of the feeling, but be careful about the stories that we tell to make sense of it all. For example: if we decide to believe the world is a place with danger lurking around every corner it can become difficult to be in large social events without anxiety. If we delve too far into thinking that the world is filled with more bad than it is good then there is real trouble. I can never allow myself to believe this, despite the increasing amount of evidence. In my mind, even if it just a foolish belief: good will still always outweigh evil. This is the only way I can process through such events and stay upright and continue the fight.

As an empath and a highly sensitive person this event this time is like a weighted blanket constantly sitting on me. I actually have kept myself not dwelling or even peeking at the news too much for fear that it entirely crushes all the air out. This morning however, I had to read this article and let a little of the pain burst forth. With my writer’s imagination a story from a personal account like the one I posted above makes the entire event come to life in staggering technicolor. This story brought me right there to the scene.

There is no sense to be made of such a tragedy. There is only the increased need for immense love to be spread. My always mission is to keep myself in such a way that I can continue to do that. My dear friend Chip who has his own struggles often writes me e-mails about small acts of kindness that have been bestowed upon him, that he then pays forward. These always brighten my day. Anyone can be a hero. This man in the article was the Vo family guardian angel. I hope in such an event I would be like him.

My challenge to you is what act of kindness will you do today? Know that it can be as simple as a smile.

 

 

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Untangling my emotions about senseless violence…

There are a great many things I have been inspired to write about since my last post. Certainly there were more events during my getaway that were worth recalling and sharing. Also there have been many hurdles in the parenting arena for me to scale as of late. However, the thing I absolutely cannot just brush past to be able to access any of those, is this mornings newest episode of senseless MASS violence. My heart is aching audibly this morning. As I scan past the many different reactions from people on my social media platforms I am spending some time sorting through my emotions.

You see we have to make a choice about where we want to land with all our feelings and thoughts. I always say it isn’t the lengths or depths of where our mind takes us, but the choices about which thoughts to hold close and encourage, and  which to hold and comfort perhaps, but also let pass on. Which do we breathe life into, and which do we create space for but not want to hold too tightly or make a part of ourselves. Our thoughts can very easily become beliefs, and core beliefs are very powerful operants in our lives. Our ego can even subconsciously expend much energy in an attempt to fulfill these beliefs.

Quietly reverent I am here trying to sort through this mess. As an empath for me the easiest thing to do would be to separate myself from this altogether. To just remain far removed as emotionally, as I am physically from the event itself. This just seems unfair to those who are not afforded the ability to do so. As if my solidarity can be lent in the time I give of myself to imagine the suffering in the hearts of those directly and those of us indirectly affected. The truth is that this could have been any of us this is happening to. An even bigger question is how not to lump this in with the current political climate and become even more embittered.

There was a period of time in my personal life that I actually traumatized myself by “going too far into the shoes of those experiencing such events”. I was persuing my Bachelor’s Degree in Psychology at the time of the Colorado Movie Theater Shooting. I was trying to experience the full spectrum of humanity and it felt disingenous to my degree to not explore the dark sides as thoroughly as the light. I poured over headlines and devoured anything on the topic I could find, My mind sought understanding around these events. In an attempt to walk myself through them I began to imagine what it might have felt like to think you were just going to a showing of a movie and suddenly someone get’s up and begins to shoot. What would I feel like? How terrified? Would I be brave or would I be a chicken? What might it feel like for a bullet to burn through my skin. I imagine even worse the anticipation that at any moment this could happen. I allowed my mind to play with all possibility, and as a result I couldn’t see a movie without having a panic attack for a very long time. I also couldn’t attend a fun loving event like a St. Patrick’s Day parade with my children in tow, without wondering if perhaps this time we would be the unlucky ones. What I ended up finding is that if you let yourself identify too much you can easily run the risk of never leaving your home.

So the question here is what does one do with events like these? How do we make sense of them? How do we offer up our care and concern, while also protecting ourselves? If we become too disheartened we cannot be helpful. My Grandpa always used to say “if you aren’t part of the solution then you are part of the problem”. I didn’t love hearing it then, but I often use it in my practice now.

It feels unfair that I can sit and contemplate my fitness journey and the fact that I made it to the gym this morning. It feels like it somehow pales in comparison. There are several hundred people (minimum) who woke up this morning with their lives deeply affected by tragedy.

As I sit with my feelings on this the answer the floats most closely to the surface seems to be focusing on the courage of people. At a more micro level for example, a session with a client who is celebrating the anniversary of a child’s death. Someone taken long before they should have been. I have a deep appreciation for the courage in human beings. Their brave hearts beat a decibel above the throbbing pain, somehow keeping it just manageable. We get but a series of profound moments in our lives, a collection if you will. My heart is deeply saddened that the people affected by this tragedy have added such dark ones to their’s.

Edit: And of course directly after this 2 important things happened. One: Courtney came for lunch with me and we laughed and played with Sig (my frenchbulldog). It got me out of my head. I am grateful. Two: The first thing I pulled up after our lunch date were lovely words from Brene Brown (one of my 2 main spirit animals). She says “1. Prayer + civic action are not mutually exclusive. Join me in both. 2. Step away from social media coverage and toward real people for support, action, conversation, and being with each other in collective pain. Keep informed, bud don’t stay glued. Our Secondary trauma will not make us better helpers – it shuts us down and sends us into self-protection and blame-finding.”

Absolutely lovely. This is basically what I was trying to say through my process.  Elizabeth Gilbert posted her words. In this way I am able to feel collective in my pain. My spirit animals are out there also in the trenches of this tragedy with me. My heart is comforted.

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Writer Overwhelmed…

Writer OverWhelmed by Sarah Lentz

*Writer Overwhelmed by Sarah Lentz is the book that I am currently reading. It is simple and practical and the author self publishes. She seems to hit quite many nails on the head with regard to what can hold us back from getting out  our most treasured sentences, metaphors, thoughts… words. I may put little passages and quote her throughout. She also likes to design book covers.

My writing feels all balled up in my throat. It leaves a sad taste in my mouth everywhere that I go.

I’m having a Highly Sensitive Person (HSP) moment, day, er week maybe. I was dangling on a Vyvanse string of hope and the frustrating result of that experiment has thrown me into a funk. 🙁 Hope is an understatement. I was excited beyond words that I have the willingness to explore this new possibility, primarily because I hoped it would help me be able to focus so I could organize my thoughts better to be able to write. Also as a recovering hypochondriac I was thinking that perhaps if my belief about medication has been adjusted then perhaps I really was just hyper-sensitive to every nuance, and now that I have grown around this that it could work. It’s very disappointing that it didn’t. I am not sure whether to try a lower dost of Vyvanse (or another type of the medication), or to take this as another piece of evidence that my inclination toward natural treatment is honestly my reality, and to embrace it. Where HSP comes in to play with this is that even if I find a medication that doesn’t give me a severe migraine, I am well aware of the high/sense of euphoria that this medication created. As an HSP the high’s feel higher, and the lows feel lower.  So for me personally it seems easier to stay balanced by managing this with coping mechanisms and self-knowledge versus with pharmacology. It’s always the hard way with me, or it feels that way anyway. I am working currently as seeing that not as a bad thing, and recognizing the gifts in it.

I began this post a couple of days ago and what happens is that when I am not in my magical cloud of inspiration, I seem to not be able to pick up and continue. I will read what I wrote over and over and stare blankly into space. Then during a session today the person said something about doing well at something because it came from their heart. This statement was a reminder of something that I hold sacred as a part of my belief system. People don’t care about how much you know, they care about how much you care. I can’t think of a single thing I have read where you can actually feel the author’s experience that hasn’t proved to be powerful for me in some way. I certainly did not want to stop reading it. So if this is the key then maybe I don’t need to be all figured out with my writing. What it seems like I need to do is write about things close to my heart, let that speak for itself, and allow my work to take shape. In other words “Rome wasn’t built in a day”, so I need to adjust my expectations and just keep going.

So for now I have 3 books I am looking at about ADHD and I will just continue on with my self-work, and with my writing….

Thanks for reading…

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Pharmaceuticals are Not My Friend

One of my biggest battles in life is trusting the system of Western Medicine and going against my urge toward Naturopathic medicine. This became of particular interest when I was very sick prior to my diagnosis of Crohn’s Disease. I was put on medications such as steroids (Entocort) and 6mp (death). I had terrible migraines and all kinds of other systems. So it should come as not surprise that when I got put on Humira for my Crohn’s I was terrified. The fact that it put me into remission and while it does have some undesirable effects, it has changed my life for the better makes this battle extra confusing. During the time I got diagnosed I was extremely stressed and unhappy in all other areas of my life, so it has been tempting to want to not put any “chemical” into my body. And yet… if it ain’t broke don’t fix it. Humira is tricky because if you come off of it, it may never work the same for you.

I have a long history of medication being something I seek when I want the road to feel a little less rocky. Not wanting to always tough things out on my own. There is something about my system personally with regard to hormones and neurochemicals in my brain. This is absolutely to do with being a Highly Sensitive Person. Doctor’s would treat me like I was crazy that I couldn’t be feeling this or that on a medication, but I know how I felt. Two different attempts at birth control and they turned me into a lunatic, and I had to come off right away. Also after having my son I went to a Doctor because I felt sad, and came home with Paxil, and at one other place in my journey it was Lexapro. Both had horrific effects for me. I couldn’t feel either thing happy or sad, and I had all sorts of weird symptoms, the worst for me was not sleeping for 2 weeks with severe racing thoughts.

Since I am a Clinician organizing my thoughts around this is extra important. People often seek me out for information on whether they should try a medication or not. Everyone’s body is different so I keep my experience aside and just share both sides of the education. The potential side effects and how to be cautious and that for some people they report they work quite well. In my personal mind I often try to sort through landing on a belief system. Perhaps the reason I cannot do this is because it is different for each individual. I think I would be more comfortable personally at least if I had one solid belief. We human beings certainly do try to minimize our discomfort at all costs.

Anyway as you may have read I decided after all this time to give a medication a chance again. I thought maybe because I am not a hypochondriac anymore, or because I have been able to be on Humira and it works that perhaps I could find some relief for my ADHD in Vyvanse. I took my first pill yesterday. It was a Saturday and I had a day full of Client’s and my son’s birthday party later so I was very apprehensive, but I also didn’t want to be unrealistically scared. People take this all the time right. Well during the day I felt amazing, a clarity I have never felt before. I was absolutely focused and my mind was quiet from all the chatter. I could have cried. I did I think.

However, later on I began to notice some weird symptoms. My ears popping and ringing especially from going to standing after a sitting position. I tried to just ignore it thinking I’m making things up (I often attempt to invalidate my experience, this is a deeply rooted battle for me). Then later on I began to develop a really bad headache. I have done all my reading so I drank plenty of water (a ton actually), didn’t have caffeine, did all the “right” things… you know. I took tylenol for the headache and proceeded forward. I also had some pretty awful heartburn that isn’t a usual thing for me and a lot of nausea. I was thinking that I would be willing to suffer some side effects and keep giving it a shot at this point, but I was pretty discouraged. Until I woke up Sunday morning with the worst migraine I have ever had in my entire life (and I’ve had some pretty bad ones).

I battled it all day yesterday. It got to the point where I almost went to the hospital. The waves of discomfort were almost unbearable. I was only getting tiny moments of relief here and there. The emotional aspect of this was crushing to me. Part of being Highly Sensitive is that you feel everything in full technicolor. I had been so excited at this hope, that I was able to follow through with the appointments and keep pursuing this, and then the feeling of the medication. The migraine was so severe I will probably never touch that medication again, even if someone attempted to convince me that the side effects would pass. The other problem with this if you try to ride through them is that if it stays bad you always have to wean off the stuff. 🙁 If you lift me very high, the comedown is equally if not more low. That is a thing about me. This is why even with my family history etc I am not in danger of abusing any substance because I am so keenly aware of every nuance in my body. I can’t even smoke pot, and sometimes the joy people seem to report on the stuff makes me wish that I could. But even the handful of times I have done that in my life it just makes me feel off in a way that is unpleasant.

So the result for me is that I do not like my mental state to be altered whatsoever. I have such a completely sensitive system and thus far finding natural things, and doing the cognitive and behavioral work to change things seems to work for me. I often wish there was an easier answer or a little more relief, because I do “white knuckle” it a lot with these things. Then there is also the piece of second guessing myself on if I actually have something or don’t. It’s really a lot to try and figure out, but I am learning more each day. And one of my greatest strengths is that even after the hardest situations I’m typically ready to jump right back up and try something else if one thing hasn’t worked.

So back to the drawing board on my approach to ADHD. Some people would try another med. Whether it is that I just know myself so intimately, or because I am already exhausted from that process with Crohn’s, I think ultimately my path is this way for a reason. In the past I am tempted to feel sorry for myself or say things like why are things so hard for me every step of the way. But at this point that all just seems silly. I am made to come up against these challenges so I can learn and then be able to share that knowledge.

Stay tuned…