Tag: #rawprocessor

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Spring cleaning of the house, the heart, the soul….

I’m not doing so well with my pages this morning. The season has shifted and the feeling is almost immediate. Last night we randomly, with no planning whatsoever, began to pull out the lawn mower, and get some new yard tools. My yard looks like the Secret Garden before it’s magical transformation. It has been 6 years of neglect of having an owner whose last primary focus was it. The yard that time forgot. I’d be ashamed, but how can I rightly do so when I’ve opened a successful counseling practice, learned how to do billing, become a better parent, learned to manage Crohn’s Disease and all that comes with it, gotten a much better handle on my anxiety, and found a love that makes me a better person every single day.

So I guess now it’s the yard’s time for a little attention. To hopefully help me slow down as I learn to tend to it’s needs. To take the effort to do something that doesn’t yield an immediate gratification and to enjoy task for the sake of being tender and nurturing, without requirement from the task. It seems daunting at first this under-taking. How do I even attach this blade to this long handled saw? Am I qualified to prune trees? I’ll probably kill them. I’ll probably cut off a finger, and then I won’t be able to write. I’ve always had a black thumb. Honest. I used to tell people that if you truly cared about that plant to give it a different home. But perhaps over time I’ve become more able to attend and nurture and maybe I could be a gardener now. We can try on a new self anytime we want. Did you know that? I sure have and boy have I learned a lot along the way. It’s what I have learned the most from.

Could I be the environmentally conscious person with a compost pile and dirt under my finger nails? Ok I couldn’t do the dirt under my finger nails, that strikes fear into my highly sensitive heart. That’s why I can’t keep finger nails. I would obsess about the dirty nail until I had to take it off immediately with or without the tools to do so.

I would also like to try out being the person with an exercise routine. And maybe even one who runs a 5 k. Also could I be someone who has the edgy fun short hair cut without worrying that my weight gain would make it unflattering or someone won’t take me seriously in my career with the hair. Why do we give ourselves such little permission for the things we really want? Conditioned and trained with so much outside commentary about who we should be and what we should do. Lately I am feeling like rebelling against this in every way possible. I recognize the pain caused to self from shame and feeling not enough or too much in some way. I’m spending lots of time thinking about this.

Guess what person I am though? I realized this after my post and this is an edit actually to the original. I remembered how good it felt last night. We played and worked outside together. I was the house in the neighborhood that kids wanted to be at. They played four square in the court that someone who isn’t in our lives anymore, but loved us at an important time we needed it built. We have been loved and supported, so we can also give love and support and a space to others. This is how it looks. The more we receive the more we have to give. And I realize in this moment I’ve never been short on receiving. I just had a lot of expectations about where I was supposed to get things from, and what they were supposed to look like.

I am in love with my life. Truly, madly, and deeply. I complain and get cranky sometimes and my kids probably think I’m the strictest mother ever. But I am seeing us all becoming more compassionate of one another and conscientious people, and that’s always been important to me. And I have moments where everyone is laughing and playing and I’m surrounded by love and being love. Those moments are my gold.

I’m less in the mood to think and write as I am to DO this morning. To be present with people I love and to share the joy I’ve found in myself. The only thing nagging at me is all the supposed to’s of my Sunday expectations of self. Cleaning, shopping, and most importantly to my heart right now. Preparing myself for Martha Beck’s Light Writing Course. I am going to be a Light Writer! I am already one is the conclusion I’ve come to from listening to the initial materials on the psychology of light writing. Basically it’s how to access our higher selves, the compassionate less reactive ones. I am relieved to notice that this is my life’s work already. I just didn’t have the language for it she does. So I’ve found my place. That’s one of the best feelings.

Another new feeling of belonging. Belonging has been on my mind a lot lately. It’s been one of my biggest battles in life on so many different fields. I never feel like I belong even when I could. And now I’m trying to give myself fierce permission to belong to myself so I’ll never have to fear the sting of taking personally that I don’t belong somewhere for some reason outside of myself. Belonging, like love, is an inside job. It’s whether we feel worthy to belong, and in the face of much information towards the opposite it feels impossible.

I am a light writer and I am a being who who accesses her higher self a good portion of the time. And when I don’t I am committed to looking at my part in things and learning to be humble and take the lesson. I think this writing course will also be humbling for me, it will show my painful parts to me and I know I need to be up to the task. I admit I’m a little nervous.

So I will be here guys tending to my internal garden and the external one and writing about everything along the way. Thank you for supporting me. You are the kerosene, the candle, the electric current, and the sun to my shine. I’ve never been alone. I believed I was for so long, and that belief held me back. All my supports were just waiting for me to reach out and find them. For me to love myself enough to ask and to teach, those willing to learn how to love me.

💜

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They need us to rise…

Ask people what they need and how we can love them better!

I am having an inspired morning and want to share a couple of things. A realization I had just this morning is that we need to learn how to love one another beyond loving in just the ways we know how. What I knew about love for a long time left me not behaving very well. I didn’t create space or have room to let love grow. I had deep and crushing insecurities and at the drop of a hat (or more appropriately the pull of a trigger), they would explode like shrapnel tearing apart my relationships and then my life. I would have to rebuild again, and I did this under the weight of crushing shame. I had friends even stop hanging out with me, because I had a new partner, they didn’t like that change. Did they think I did? Did they think that my relationships didn’t work because I didn’t desperately want them to? We need to stop shaming others people. We need to learn how, and when, and why we do this so we can stop.

I had to learn my way out of this space and way of existing, and the cost of that learning has not been cheap. I’ve lived bathed in anxiety. I have a chronic illness now, whether you say it’s genetics or extreme stress most of my life has been exhausting. Lots caused by my thinking as much as my circumstances. This is why we need to be educated on these matters, and the time and encouragement to fully explore our own thoughts and minds without being called selfish, or crazy, or somehow wrong! Without being told how to live and love based on one perspective.

Parents tell their children how to live all the time, and don’t realize they are showing them by modeling, not with their words. We are sometimes accidentally angry with our children for not being who we want them to be, even when they may be being courageous. We can accidentally crush their tiny spirits with all of our fear of failure as parents, and we need to be aware of this.

It isn’t just natural knowing how to live we need to be taught, and these days we are taught by the extreme opposite of thinking about who we are and what we want of life and how we want to be loved, and if we are loving others well. These days our teachers are YouTube videos and scrolling Instagram, and my kids are left alone on those platforms as well, while I’m busy. Now I’ve given out some great recommendations to clients and friends about fantastic YouTube videos, it isn’t all bad. But when kids are just left to learn from whatever they come across with little guidance or presence because it has been replaced, then we are heading to a scary place.

Do you know that our children are scared to death right now? They are in my office all the time. All they hear about is that the sea is rising, and that you can be shot while in class, and that they won’t have any financial future. Where is the hope? We have to teach them how they can rise to any occasion, because it’s what humanity is famous for. Someone will rise and they will lead, and it can’t all be bad. Our children are stressed, and anxious, and depressed, and lonely. They need us to rise. THEY NEED US TO RISE.

This means we are the teachers of compassion, empathy, understanding, and hope. The teachers of how small changes can make a difference, rather than doing nothing because of overwhelm. This has been one of my biggest battles. As an HSP I feel so much I become crushed under the weight, leading to my main focus being how to comfort myself. I’ve had to learn my way out of this cycle. We need to make the change from bogged down hopeLESS to hopeFULL.

Our children watch every action we make and every word we say. So spend some time thinking what they are seeing you do, because ultimately that is the cycle they will repeat until they resolve their personal tasks. We can make that an easier or a more difficult process for them. The number one thing they want is to see you interested in who they are as a person, not who you wish they would be. We must see our children, and our lovers, and our friends and neighbors, and the stranger on the corner through generous eyes.

We must do this whether or not it is deserved in a moment. We must do this because of who we are, and not because of any inauthentic reason. Because a person who is believed in and encouraged is a thousand times more likely to be successful at becoming who they are.

This does not mean we allow ourselves to be treated badly by subjecting ourselves to poor treatment. That isn’t what I’m suggesting. Always exercise and be aware of your personal boundaries, that is loving of self. When you’re confident in your boundaries it becomes easier to love with your whole self and heart, that healing variety of love, because you’ll trust in your ability to know where your energy is productive and where it isn’t.

Our children need us people… WE MUST RISE. We must educate and love harder and with more of a depth to our understanding. So kids have permission to understand themselves and to grow. So kids have permission to expand, and we aren’t unintentionally asking them to shrink to fit our expectations.

Even good intentions must be examined, because many things we do are not conscious.

 

❤️❤️❤️

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The Seven Deadly Sins…. Sloth and Gluttony

*Everything in moderation. Unless you are ADHD, then it is everything all at once immediately as soon as you want it, and deal with the consequences later. With a force and a fury that feels impossible to get a handle on.

It’s blog post Sunday. The girls are blasting Hamilton, playing Jenga (which is really cute), and also playing with Siggy and his new toy. There is a pot of chicken soup with veggies and potatoes simmering on the stove. These are the warm and comforting things of family that I have created and now have the privilege of basking in, for moments at a time at least. Directly before this calm one teen was yelling at me, and then at the other. It felt like a grenade had gone off in the kitchen, but I am noticing that as quickly as the waves of anger and frustration come, they can become diffused and calmed, or turned into a nuclear explosion. I am constantly working on myself to learn which choices create the best outcome, and then having to undo my wiring and humanity to force myself to behave differently than I feel in a moment. It takes a lot of awareness, practice, and patience with self and others.

In my “pages” this morning I named my gremlin. For those just catching onto my blog, “gremlins” are the name I ascribe to the tiny little havoc creating beings of malice that tell me messages of self-doubt and attempt to undermine my attempts at creating and being my truest self. I named the leader or a particularly bad one Besmirch. I was being playful and creative, and it gave me pause and wonder. I had a quick moment of clear vision where I saw me as DOING what I have set out to, versus just talking about it, and always feeling not enough. When we are in the midst of actual changes we can rarely see them as they are happening. It is only in hindsight and reflection. Really these days my whole life has become reading and writing, it is always what I do in free moments. I am BECOMING exactly who I want to be.

We went to Courtney’s cousin’s wedding last night. It was at the Union League in New Haven. The kind of affair where frantic employees dressed to the nine’s, flit about with small silver trays containing a single shrimp in a shotglass of cocktail sauce. I had some realizations about myself one that I liked and one that I didn’t. The one I liked is that I feel like I may have been the only person who when alone with the service staff asked them how their evening was going. They seemed genuinely surprised that I would think to do that, and perked right up. Even a quick kind smile and polite word to them seemed to be received not unlike a man who has been in the desert for 2 days with no water and who just has the first sip. I notice things like this. Perhaps because I feel more comfortable on the worker’s side of things serving the rich. I was always on that side. On the side of the actual guest I felt out of place and at times undeserving. Hmmm.

The thing I didn’t like: I am a CONSUM-ER. Not one who purchases things. Ok, wait I think I should have said it this way. When I am nervous particularly, I think that I hyper focus on food and drink. Let’s be honest I don’t need to be nervous for this to happen either. I watched those hors d’oeuvres like a hawk. Fun fact about me when I was young I read things way above my level, and I would pronounce the word for these delightful little treats whore-DO-VOORS. lol. For the purpose of this tale I wish I could remember the exact moment that it dawned on me how much I had butchered that word, and how many times I’d said it aloud. Anyway an issue for me currently is gluttony. It as if I need to experience ALL of the Seven Deadly Sins just for good measure. That by doing so I will more readily be able to relate with all of humanity, not just the portion of whom I aspire to be like. If we are looking at this from a clinical model (because why not) I have a terrible terrible time with impulse control in many areas of my life. And lately I have absolutely no self-control when it comes to eating and drinking.

If I am not being obsessive about something… well I might not know, because I think I am always obsessive about one thing or another. Now that I’ve found love, and a career that is fulfilling, and my life feels really nice it seems my last self-destructive vice that could very realistically put my life on the line (at some point) is eating and drinking. Eat drink and be merry. Since I have the merry part down so well, most of my mind is occupied with when and what I am going to eat or drink next. I will begin to think about how that particular thing tastes, what it smells like, what it’s served on, and then am relentless in it’s pursuit until I am satiated. Then guess what happens. I don’t just have one, I have two or three. My pants begin to fit less, and I currently have an entire closet of clothes that are for someone who is a size 6, 8, or 10. When I am rapidly approaching a size 16. I am loathe to be honest about this on here, because part of me feels I’m betraying young women everywhere, especially my daughters by obsessing over this. You see though it isn’t attached to my self-worth any longer, so I thought I could just live, but what I am realizing is something else is happening.

 I love that I don’t hate myself enough anymore to torture myself into losing weight. But what is happening is that as a Highly Sensitive Person the sensory experience of pants being tight on my waist is driving me nuts. When I feel as if I am going to burst out of my clothing at any second it drives me nearly mad. It isn’t because someone will have an opinion of me that will be less than favorable, it is because physically I feel like I am about to burst out of my skin. There are many more symptoms to this. There is the swelling of the hands and feet with very much salt for me. There is the terrible bloating with my Crohn’s Disease that makes me look immediately 5 months along in a pregnancy. I am dreading the day that someone mistakes and thinks I must be carrying and comments as such. I already have a difficult history with feeling comfortable in my clothing for an entire variety of reasons. Gender neutrality and fluidity were not a think of my generation. I preferred to shop in the boys section and always have, but then I began to realize what people wanted from me to be accepted into the herd. I tried and tried to feel comfortable in those clothes, but if I am in something I don’t feel comfortable in I obsess about it, and can’t think about anything else. I am aware of the fact that I look like a hobbit in women’s traditional thin and demure dress shoes. I desperately want to be one of the beautiful women in heels, but I just can’t hate myself enough for that kind of torture. And mostly again for others it might just be uncomfortable, but manageable, for me I can’t think about anything else.

So the only solution here is to begin to make healthier choices and get more consistent about it. The barriers to this? EVERYTHING IN MY LIFE, or that’s how it feels. Long unpredictable schedules that can change on a dime, life with teenagers, my wife’s schedule to balance, and mostly my own angst and emotional psyche. I think the angle I am going to try and take with it is that when I am comatose with food or beverage my mind is not sharp in the ways that I enjoy most. It is the opposite of creative, it is escapism.

It’s going to be hard to pick this back up since I got distracted with the kiddos hours ago and am now not in the same thought train. So I guess we can just sum this up as I am trying to do some self-work on fitness and wellness in general, which makes me consider my incredible impulsivity and wonder how I can curb it without ADHD meds working for me. I am doing research and using myself as a guinea pig.

Ok this is now Monday so going to post for now. Stay Tuned….

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Coffee Shops and “College Bound Son” Musings

*I love that I am in a relationship that I choose to drive 30 minutes in the opposite direction just to be with her for a few hours between clients and then all the way back to Fairfield. It’s already coming up on one year of marriage and I still feel this way.

An impromptu afternoon. The more that I sit and intend/attend to writing, the more comes. Surprise surprise. 😉 I am sitting at Safari Kaffeine across from the most beautiful woman. She is fiddling with her new toy (a Sketchbox), watching a tutorial on how to use special blending pens to draw a sketch of an attractive looking gentleman. She just paused to show me how the KOH-I-NOOR kneaded rubber eraser and the magical lifting effect it has on charcoal.  The coffee shop was buzzing with various conversations from local valley inhabitants. Nothing could possibly interest me more. Except for maybe my attention being stolen for the purpose of sorting out car insurance for my firstborn son. That process arduous and frustrating as it may be.

Tyler as a character. Could I write him? Having read Anne Lamott this a.m. and having a nice dose of her as daily vitamin/medicine I am thinking about character development. Speaking of character development let’s talk about arguing for a minute. The purpose of it…. my ex-husband argues for the sake of doing so. Some internal ego battle being played out on the co-parenting field, wreaking havoc amongst the ranks, sigh. I can hear my grandmother delightfully chirping that song “if you can’t say something nice…. say nothing”. Interesting because she had an invisible way of being mean by the way of shame. When the person isn’t even aware of what they are doing or do, what use is it to try and make sense of it or point it out. You can really only try to do better yourself. This is what I have made most of my life into. I have unknowingly embarked upon a mission of being committed to knowing myself above all things. Mostly in my early years this resulted in a way to emotionally terrorize myself, as what I was most aware of were my many shortcomings. Natural behaviors of youth and immaturity became material to analyze for threat and I “worse case scenario’d myself” about myself for a long time. Finding no calm for this anxiety, and a variety of others as I discovered many things about myself including my many blind spots.

As I wonder about Tyler as a character I sift through what I know about young male characters. Let’s see we have Holden Caufield and a young David Foster Wallace…. wondering how he will be alike and different from them. How his unique experiences will shape the landscape of his life. I was thinking this morning about how to encourage him as far as college. Part of me wants to keep him as close as possible and of course reduce costs by encouraging practicality, and the other part is screaming screw practicality get on the other Coast or another country even and see new things, and DO STUFF. In the end these choices will be his, but I know I have a tremendous influence on him as well. You don’t realize when your child is first placed into your arms that someday they will be a real life “almost adult”, and that you will be vulnerable to any suffering they experience without your consent. To love as deeply as I do is a divine suffering. To not love like this; impossible. The choice was never really mine. I didn’t know I loved like this when I first decided to have children. I didn’t know a great many things then. Knowing them now doesn’t make the feelings any different.

It’s time to head back to the office soon. I don’t want this time to end. I am sitting here thinking about how a coffee shop barista is not unlike a mental health counselor in many ways. People are looking to share their experiences and what is going on in their lives with others. A musician that plays with one of my favorites, Lee-Ann Lovelace who sings with her whole soul (they play Monday nights at Crave) came in for coffee, he is talking about how he brought his cat to the vet today. He ordered a large coffee with a little mocha. Never heard it ordered like that before. I like his hat. It reminds me of a hat of my wife’s that she wore on our most recent date to the casino. It’s very St. Patrick’s like… very Irish I suppose I mean.

Ok back to reading Every Love Story is a Ghost Story, basking in the glow of my love, and then my office and clients.

 

 

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Chicken Soup and the Written Word…. for the Soul

*When I was a kid I devoured as many Chicken Soup for the Soul books that I could get my hands on. I remember they stirred something in my empathic soul. I can still remember some of the stories to this day. I kind of wonder how much of my value system was formed in those, always telling tales of people who would go above and beyond and then the effect that had. 

Let’s see what kind of Sunday thoughts I can organize (or not organize) with a house full of eight girls. Am I having a birthday party you might ask? I am not. My daughters are very social and love to host their friends. With such a great group of friends how can a mother argue. It’s such a wonderful thing to hear their laughter and to watch them all experimenting with who they are and coming into their own. This is one of those moments where I am at the top of the parenting mountain and able to catch my breath for a few moments and take in the breath taking view. These moments will quickly blur into the rearview and the next challenge will be on the horizon, but it’s incredibly important to soak them up and log them into the long term memories folder. The issues I was speaking about in previous posts with twin A have subsided for now. We finally came to an understanding, a partway meeting of sorts. Her attitude has been better ever since.

Today’s blog title began with me buying ingredients after I dropped my son and my adopted son (emotionally not literally) off for a day of work at Trader Joes. They are sixteen and part of the my first work program, and I couldn’t be more proud. It’s a great company to begin learning from, and a job that was able to carry me financially and personally in ways I only am able to see now through a painful divorce and many transitions in my life. My Trader Joes family will always be an important piece of my personal history. It is so good for my son to be out in the world learning about new things and people, rather than just holed up in his room playing video games. I am proud of the balance I have encouraged in his life. Granted it is not always easy to know how much to intervene and how much to let him have his own lessons and conclusions. I am putting a lot of work into that recently as a parent. A Client session recently and the movie I love Simon, brought to my awareness that I can be a little overly intrusive into my kids lives. You know trying to pry them open like using a knife to open a can of tuna, for their every feeling. I mean I know the value and necessity of having a space for that, but with my own children I just may not be that space. It’s heart breaking to acknowledge that. But seriously where is the magic formula for when to make sure you are involved, and for when to give them space? If I ever find one I’ll let you know.

So my trip to Trader Joes was for ingredients to make chicken soup. They are chilling on the counter right now, waiting for the teenage girls to depart the kitchen. The reason I am making a pot of chicken soup (not that I need one, it’s delicious and becoming a staple in our home) is because I am really struggling with my Crohn’s Disease right now. It’s flaring it’s ugly head. My typical MO is to try and deny or ignore, or reduce it. In the past I have told my self that I was sick, and therefore felt even more sick, believed I was sick. I believe in the power of the mind. This is a good thing except when that belief reduces the validity of my very real experience with this disease. It’s coming up on five years now since my diagnosis. The testing and my own knowledge suggests I had it for long before it was known though. I guess the theme of today is balance as my trouble here is trying to strike a balance between acknowledging and validating my disease, and yet not letting it take over my life. How do I know then when I am really sick … (ok the teenagers have asked me to play computer video games with them, and I’m actually really thrilled at this age I would even be asked, so I’ll have to come back to this).

This turned out to be a lot later. I just finished separating the bones from the chicken and the soup is nearly done. Turns out it is the perfect thing, because twin B has a sore throat and hardly slept. I got sidetracked and ended up trying to delete some of the 18,000 pictures/videos on my laptop. That task, much like cleaning out my e-mail feels insurmountable, and probably is. I wanted to sit and read for a good solid hour. It’s gorgeous outside so perhaps I will try for out there. It is still chilly though. I started reading Every Love Story is a Ghost Story, a book about the life of David Foster Wallace (author of The Infinite Jest). Something about it was calling to me. I have yet to figure out whether this reading ADHD is pure genius and exactly as it is meant to be or whether I could definitely be doing better.

Here are the books I am currently reading: Lisey’s Story by Stephen King (thought its been months since I picked this one up). Bird by Bird Anne Lamott (I don’t want it to be over). Carry on Warrior by Glennon Doyle Melton (Wambach). 3 or 4 books on brain and behavior wiring etc that are all WILDLY interesting. The whole series of Julia Cameron’s the Artist’s Way. The 3rd installment in the Ripley series (Ripley’s Game I think)  (the book series that the movie The Talented Mr. Ripley was derived from, by Patricia Highsmith.) I am also trying to read magazine articles, because lately I am wondering if a way to begin with a smaller goal of getting my writing out there, would be to try to do articles first. I just started listening to 11-22-64 I think it is? by Stephen King on audiobook. It hasn’t captured me the way The Dead Zone did, but I also have been doing different things with my time.

On the home-front my first born son, (and only son I will ever give birth to) just passed his driver’s license exam, and pending some insurance sorting will be making his maiden voyage of a first solo car ride shortly. I am proud, astounded, nervous, awed, reflective, contemplative… and so many things about this. I told him this morning that if he isn’t careful and something happens to him I would stop breathing on the spot. Too much pressure? Seriously though I would. I feel simultaneously like still my 20 year old self, and also this foreign entity that has a 16 year old boy with a driver’s license. I am both selves, rich with everything in between.

The thing that is happening the most lately is the writing piece. If I look back over the past couple of years my reading and writing has grown exponentially. If I can avoid the gremlins who say things like: yes BUT you aren’t published, and who really reads what you’re writing anyway, and couldn’t you be doing something more productive to make money during that time, and it’s frivolous, and it’s already been said, and on and on and on. If I avoid those guys and just take an objective look at the facts. This is my 41st blog post, and even as I am writing it I feel it is just disjointed, and who would get something out of reading it, and my ADHD and Crohn’s is trying to sabotage my existence.

Speaking of Crohn’s to bring this post full circle. I am really struggling right now. The migraine’s have spiked up again, which likely means inflammation is wreaking havoc in my body. Last week I thought I was going to pass out while a new client sat across from me, I felt heavy and far away from my own body, and for a second I almost warned them. It passed, but the memory of the feeling and the fear it would soon return did not. I have been having ringing in my ears followed by rushing and pressure in my head often throughout the day, my hands and legs and fingers etc have been going completely numb or unpleasantly tingly during the night. I’ll wake up with a swollen hand, severe nausea, terrible stomach pain until I use the bathroom. My temperature regulator feels broken, I can be freezing and not able to get warm or too hot and puffy and swollen. My abdomen without warning will swell to a 5 month pregnant status. I can hear my stomach running and it feels like my food tries to call back out of my esophagus. At night I have been “flushing”, red hot feverish episodes that come on without any warning and leave people asking if I am ok. The only remedy is to lay down and rest. I don’t want to lay down and rest. My body is sabotaging my natural enthusiasm and joy for life, and it’s so hard not to be angry about this, to deal with it with grace and to not fear the worst. The possibility of surgeries etc. But even that is a distraction from the very real fact that each day having some unpleasant physical symptom that I am attempting to ignore, banish, push through etc, adds a gigantic extra layer of exhaustion to my life. More overwhelm, and lately this is the thing that feels the biggest threat to the breakthrough of me writing. 🙁

One of the worst aspects is the having 0 idea of when it will strike. Another terrible aspect is trying to look for ways that I have caused it by being unhealthy etc. From my understanding while certainly you can make it worse by being excessive in certain behaviors etc, for the most part you can’t really do anything when you have a disease to control whether you have symptoms or not. I mean you can try to be as healthy as possible, but it may or may not stop the symptoms, and unless you want to live in a bubble and not enjoy anything. I mean there needs to be what’s this b word again? BALANCE as with everything. But even then. It is hit or miss. I can eat something one time and be fine, and eat the same thing another time and be miserable for hours.

There have been times when I have had a few “bad tummy days” that I was afraid that I was coming out of remission, but I recognized that to be just fear. However I think this is different this time. Whether it is or isn’t the process is completely draining and sends me pummeling the air with my fists until I break into a fit of tears. I don’t want to give one ounce of my life up to Crohn’s. I refuse. My will is not enough here, and I have never come up against something where this was true. Somtimes when you write yourself all the way to the spot you needed to reach the emotions just end up flowing. This always happens for me, the dead center of the fear or the helplessness when touched with the tip of the needle bursts. I am at the mercy of this disease. Not since I was a child have a felt so helpless, and that was not a place that was very pleasant for me, so being brought back in this way evokes strong emotions from my core.

Back to David Foster Wallace for now. Oh a quick thought about that. I am still always more interested in reading about the creator, than what they created themselves. People will always be the most interesting thing… the why, the how, the when, the where of their lives. Endless fascination….

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PTSD, Stephen King, aspiring writer, and FEAR(S) running wild….

I think I’m getting sick. Ugh. My head is all fuzzy and fluffy and I just feel a genuine sense of being ill at ease in my body. There is a lot of pressure in my head and my ears keep popping. Yesterday between Clients I battled a migraine all day that finally won by the time my time was my own. I couldn’t get comfortable and hardly slept. Remnants of the migraine have threatened to come back today. I am not sure which is more responsible for my nervousness about something feeling “off” in my body; my Crohn’s Disease or my PTSD. Often my thoughts tend to find themselves preoccupied with thoughts of death. The better my life gets, the more at peace I am, the more these little monsters gnaw. My theory is that the writer in me as Anne Lamott says;

“The climax is that major event, usually toward the end, that brings all the tunes you have been playing so far into one major chord, after which at least one of your people is profoundly changed. If someone isn’t changed, then what is the point of your story? For the climax, there must be a killing, a murder, or it can be a killing of the spirit, or of something terrible inside one’s soul, or it can be a killing of a deadness within, after which the person becomes alive again. The healing may be about union, reclamation, the rescue of a fragile prize. But whatever happens, we need to feel that it was inevitable, that even though we may be amazed, it feels absolutely right, that of course things would come to this, of course they would shake down this way.”

is always trying to come up with a dramatic and unexpected ending. I mean isn’t there another way to do this without my immenent demise. Come on brain get on my side already.

Perhaps it is the inevitable part I mean. Why am I always trying to write a tragedy or the emotion I want the reader to feel is what coincides with the heroin’s end just as life get’s easier for her, just as she can have peace. It is as if peace was that unreachable, as if it was never hers no matter how hard she worked. She struggled her whole life to reach her dreams and bask in them for just a brief second before her end. Why is this the ending I keep seeing for myself? Why does anxiety rule so much of my land? It is exhausting. If I am the creator then why does the story feel like it’s trying to take a life of it’s own. I have a hunch that it is my existential roots rearing their pragmatic heads. I know, have always known that there are no guarantees and that “life can change on a dime”. This last line being in my head I can quote to having begun to listen to 11-22-63 by Stephen King. I am about 36 minutes in.

It’s an interesting tale of how I came about to be reading Stephen King in the first place. Let’s see my first knowing of him at all was when I worked in video stores (circa 1996) and would see movie covers for Carrie, Pet Cemetery, and KujoActually to this day I have never read or seen those movies. I think I read the Tommy Knockers during my young traveling days when I moved from Medford Oregon, to Moses Lake Washington (where I would give birth to my first born). I never even saw the original IT movie, while most of everyone I knew had. Several years ago to the movie Stuck in Love was recommended to me (I am trying to remember my whom, it was Ash I think ironically enough, that is a whole other story). Anyway in the movie one of the characters gives his girlfriend the book, and they share an intimate exchange where he says that she will cry in the end. Cry I thought? I thought this was a horror novel. It was enough to pique my curiosity. However due to my appetite for life and my many varied interests I still have not finished that on audiobook or paperback, yet I have finished The Dead Zone, Bag of Bones, am about 1/2 way through Lisey’s Story… and I have seen the new version of IT. Later someone I am a big fan of, brought Stephen King’s Memoir On Writing to my attention. It has one of those jacket’s that is soft and buttery to the touch. Of course now it is all worn from carrying it everywhere. I blew through the first half all about him specifically, but I couldn’t bring myself to finish it. This unfinished book is because it was so dear to me and so good I couldn’t bear to have that feeling of loss when it was over. So it remains unfinished. I don’t know if there really is a mystical meaning to this madness of reading a little of this and a  little of that, and the timing of when things cross my path, or if I just need to get my ADHD in check a little better. As I am writing a thought just crossed my mind, mine is a lot of acronyms for anybody to live with; ADHD, PTSD, HSP (highly sensitive person), IBD (inflammatory bowel disease)…. hmmm. Being sick scares me extra because of taking Humira and having a compromised immune system. I am waiting as usual for the story to take a turn that somehow feels due (again why I don’t know) where I end up having a real and true scare with a hospital visit and an infection I can’t seem to fight, like they warn in the fine print of the brochure. Why do I feel like a ticking time bomb? Why does it feel like I am due for a bad bout of things, and all the stories about these possibilities are regularly run pieces in my mind?

Some information about PTSD and feeling dread that the future may be shortened.

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4166378/

Sig is driving me crazy. He’s in tasmanian devil mode and it feels personal, as if my attempt at writing while already not feeling well is being utterly sabotaged. As I roll my neck and close my strained eyes, taking in a deep breath and attempting to block it out. Just as I do he ramps up and barks as loud as possible and smashes into my laptop. One of my least favorite parts of not feeling well is the irritability that goes so against my natural enthusiasm for life. I can’t stand feeling on edge to the point I grit my teeth hard just to maintain control. All of my muscles tighten. My already high priced small window of attention sits like a train that has been de-railed. Frustration sets in. Heartburn blazing through my esophagus threatening to burn right through. Sometimes I feel like I might go up in flames. No one is home right now which amps up this anxious feeling. If someone was home then they could at least find me if my now 2 day long stint of a head filled with pressure turns out to be more serious. What is the acronym for hypochondriac ? Add it to the list.

Well this took an unexpected turn. Tomorrow is a badly needed day off, though as of late taking care of the dogs is actually as bad as two toddlers, and the kids actually help with this a lot. I think it’s time for a vacation. Sounds like it eh?

Something always seems to prevent me from the well intentioned writing that I just keep getting closer to. I refuse to give up on this dream, no matter how difficult finding the space to nurture it may be. This past couple of days though it’s been physical aspects that stand in my way. In those moments I feel robbed unfairly of something that is supposed to rightfully be mine. Something I’ve worked incredibly hard for.

These are some of the scattered, painful, frenzied up close things. When I step back for perspective, what I see is someone who only spoke wistfully of writing (as if she dreamed of being someone else) now about to complete her 40th blog post. I see someone who couldn’t sit still long enough to read one book, having finished about 5 already this year and well on her way to several more. I see someone who while running a thriving private practice and learning about business ownership is still making daily steps to nurture her dream. This is how I battle the not feeling well. I keep my focus on my dreams. I dream of my first novel in print, what it will look and feel like. I dream of having a Stella with Elizabeth Gilbert and that she will endorse my book. I dream of being able to afford a life that is even more my own so that I have time to go to a cabin by a lake and be with my thoughts and allow them space. If you could literally see the dogs going nuts right now and how hard I am working to get the rest of this out, it would be comical really, or sad. For now I am going to curl up with Eat, Pray, Love the movie and try and rest my weary body. Try to beg for it to heal and let me have an energy filled day tomorrow so I can pursue my artist’s date and walk, and so I can find magic among the mundane.

I wanted to write a post about the debate I am having with myself over whether or not to take Martha Beck’s Write into Light course. I think I am running out of steam (patience), and will have to save that one for tomorrow hopefully. For now here is some information on the course.

http://www.writeintolight.com

Brilliant light and love to all….

Christina

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“Not enough” is a filthy liar …

I’ve been lost in the trenches lately. The high of finally finding a healthy love has waned into the realities of blending a family, and helping teens navigate the murky waters of adolescence. And that is ok, it’s part of the process. Wouldn’t we like to stay in the good feelings forever? Why must we also wait and feel through the hard times? For perspective of course. To wake us up to all that becomes invisible in the rush.

I’ve been riddled with ADHD lately. I am really suffering with it. As I vibrate with an almost visceral certainty that my story will be written and shared with others, the closer I get, the further I feel. What an illusion! The Universe is a great trickster, and I’m taking the joke overly seriously all the time.

I seek something to fix this pain all the time. Chocolate, food, happy hours, snuggles…. some healthier than others. My frenzied mind that constantly is telling me I’m running out of time. Always miles ahead in awareness. I can’t even hide from existential truths long enough to allow more joy. One of my greatest tasks right now.

This morning I’m thinking back to a time when I worked 40 hours, had internship and full time school. When I didn’t breathe, and I somehow managed, and now I have way more time… and yet it seems always not enough. I’m thinking this not enough bs is a filthy filthy liar. Why are we like this? Is it an innate drive meant to help us survive ? Then why is it killing us in droves? It’s killing spirits and dividing families, and it’s simply not true. We are enough, we have enough. We are usually more than we realize, and have more than we realize.

I have relationships with Clients that are valuable and I have one fully present hour a week, and even later move to every 2 or 3 weeks as they fly out of the nest more often. These are meaningful relationships and they are just one piece of the puzzle. So why do I always see mine with my children as I can never connect or do enough? It’s deeply painful. Maybe that’s also why they feel it’s not enough? I’m afraid sometimes that my kids get even less than that one present hour weekly even. Often my love is shown to them in acts of service in between things. We can’t always see a transition as it’s happening, and after are left reeling to figure out how to adjust. That’s what I am going through right now.

I stumbled across a show the other night on Netflix. It’s called Atypical. One of the best things that ever happened. First, it’s depicts so wonderfully some of the challenges children and parents with autism experience. I love that! But the part I really identify with is how as the teens grow and face growing up, the parents are also facing who they are, and what their roles are now? They are up against feeling less needed, and being pushed away. I identify so much. My last tiny one who has begged and begged for time with me is now bristly and defiant. The breaking of my heart is audible. Mostly because I realize how many times she asked for just a moment of my presence, and I didn’t know the value. I had free front row seats to Hamilton for one of the best experiences in life, and I was lost in my head worrying about providing, and my health, and figuring out how to run a business. If I had just lifted up my head out of that fog a little more. What if I screwed up? And see even now I’m doing this thing…. because weren’t there still moments of beauty in between? But my hurried mind is always trying to skip ahead, it can’t settle down enough to just be in a moment. I know I am not alone in this.

It can never just be that I am meant to be this way. It always has to be what’s wrong with me, and how can I do better. One of those questions helps, and the other hurts. I work so hard to ask my mind to just take it one moment at a time, but it wants to bite off ten. It’s painful really. We have to work with what we have though, and find outlets, and places and people who understand our brand of crazy. And we have to work harder to see enough versus not enough. It’s our only choice.

So many hard working beautiful people suffer at the hands of perception and misunderstanding, and our own innate nature as human beings. One of my greatest missions is to be a part of alleviating this. One of the best ways to do this realistically and fairly with life’s demands is simply to realize: your story as is has tremendous value!!

Hopefully in an upcoming post I’ll be talking about how wounded people, wound people, and that there is hope for this. Listening and seeing when we hurt someone, being willing to look at our own part is the key to change. It’s messy work, but on the other side it’s so worthwhile.

My life’s work has been on healing fractured attachments. I had to begin with my own, understanding my own behavior and actions, and fight to make changes. On the other side … this space where I am healing I can see where I have been, and it makes me able to help understand when others have found themselves there. A wounded healer, and an earned secure. This work is not for the faint of heart, and it’s also not impossible. Are you ready for your life to feel better ?

💜

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Lobstah pants and accidents…

The aftermath... icing my knee, note burnt hair particles in water...

It’s been way too long since I’ve made a blog post. It hurts my soul, as if I was longing for a loved one gone. Like a magnetic force I am always drawn back to my roots, my grounding force, my solace. My own mind has always been where I have found my comfort, I realized that while on this trip. My wife and I have traveled to Maine, the car ride here was about 4 hours, minus a couple of stops. We finally have a chance to be away with our thoughts, feelings, and each other. Thank God… I can breathe again. And yet as quickly as I’m ready to be away I am also pulled toward home and my beautiful children. They never cease to amaze me and the growth and evolution of our relationships are a whopper of a tale. Speaking of that: memoir is what is on my mind the most this morning. The working title is still “And Then She Danced”…

When I was around 12 years old I found a new best friend. Her name is Gena. We have since grown into our own lives and don’t keep in touch, but Facebook indicates we are both living full lives of our own design with some of the most important goals we each set out for being reflected. To make a long story short (for now, you’ll have to read my book…), I’ll say that when we met she was hip and cool. She was up with the times, knew all the MTV songs, wore make-up, stole her brothers clothes and made her own style always. I learned a lot from her confidence. She was short and cute, a voracious reader. And of course my long time crush fell immediately in love with her, and they dated… I was devastated. If I knew what it was to be gay at that time, I would have realized I was jealous of him 😉

But anyway let me continue. She danced and I didn’t. I was always taught dancing was bad (strict Seventh-Day Adventist roots), and I also had lots of trauma making my body totally locked tight. I still do. It’s still a mission, on my mind a lot more lately. Body work I mean. Opening my hips and my chest, letting the demons that are stored within free, so my body can catch up with all the work my mind has done.

I always admired people who danced with confidence, and Gena was one of them. She had the movie Dirty Dancing at her house, and we watched it. My life was changed forever. Thrill and intrigue and I immediately wanted to have adventures and take risks and be like Jennifer Grey. Boy was I more like her character in many ways than I realized, albeit much more awkward. I asked Gena if I could borrow the movie, she let me, and what proceeded is a funny story I often tell whenever the movie comes up. I faked sick from school the next day and watched that movie over and over, pausing all of the love scenes and rewinding them, and of course any of the dancing scenes. This was my forbidden fruit. I was remote-ready for anyone to walk in, lest it be taken, or I would have been accused of terrible things.

To this day I could probably recite that movie from beginning to end by heart. Sometimes we don’t realize until we look back how much something had to do with the shaping of our mindset about life. Perhaps my sense of adventure and spirit was, to this day, to thank for coming across that movie at that time. I know that it was changed tremendously from knowing Gena and her family. So the beginning of my memoir might begin with a scene about me skipping school to watch this movie and all of my thoughts at that time…

Thinking as usual this post should have been titled “and I’ve had the time of my life”, or something of the sort. Through blogging I’m hoping to see on paper my styles and road blocks to organizing my thoughts into something enjoyably readable. This is what I am working through partly on here. You get to view content and process.

So here in Maine I’ve managed to add an item to my bucket list I never even realized was there. Thinking perhaps we all should have a “dark bucket list”, with things we wouldn’t necessarily add by choice, but by definition they end up being also an important part of our life. Something like seasoning in a soup, the flavor, making it the best part.

My dark bucket list item: “Accidentally setting my hair on fire”, while away on mini holiday. This catchy title would probably have people definitely wanting to read more.

When I go away my priority is usually ambience, coziness, and water. These are my elements. Actually, funny I should add fire to this mixture, kind of appropriate. I mean I usually like a fire place. I don’t think I’m quite adventurous enough to want to actually be on 🔥. This clearly the product of too much multi-tasking. I had lit a candle on the side of the spa tub. I’ve never been good at gauging distance, in fact I’m remarkably poor at it. I had my hair up in a bun-like conglomeration. I had gotten lost in talking to my person and just the relaxation of it all. A couple of times we heard an odd noise that seemed like it was coming from the other room. We both looked at one another quizzically, but carried on. Turns out that strange crackling, rustling sound was my hair burning away behind my head. Her eyes widened as she saw what was happening before words could exit her mouth. I began to try and pat my head (like a true genius, at least my hands were wet…), and she finally shrieked put your head in the water, quick! I flailed about, slamming my knee into the faucet, hard enough to see stars, and also my head as I dunked under water. What followed was a hideous odor of burnt hair, and tons of tiny particles of it all over the water and in the air. Thrilling, let me just tell you…

My writers mind raced to worst case scenarios, like my scalp was actually burned in places and I would require medical attention, thus ruining our trip. This last part is what I’m always concerned with. Not my safety, but that I could make someone else uncomfortable or have made a time that was supposed to be relaxing worse for them. This has deep roots in core beliefs about being a burden. It is deeply ingrained.

Anyway the competing elements of the worst case of this scenario ended up being my battered knee and my bruised ego. My hair seems alright. Of course I haven’t dried and straightened it. In its wild, wavy state… it appears to be “manely” in tact. Ha, see what I did there? 😉 I’m lucky for many reasons, I have a lot of hair, and now I can include this one.

We managed to calm our frazzled nerves, and my frazzled ends, with homemade blueberry pancakes that were the fluffiest gall-darn things I’ve ever had. The bacon was cooked perfectly and the fruit medley with papaya was like manna from heaven. I don’t know why I would make a Bible reference when things have been so tough for us lately in the name of religion, but that’s another blog post altogether. This place is beyond amazing. The couple has owned the Inn for years and they bring fresh homemade breakfast to the room each morning at 10:00 am, it’s only a few more minutes now until today’s delight will be revealed and experienced.

We spent the rest of our day yesterday exploring the kitschy little shops, the ones that are open anyway, much of this town is shut down for the winter season. That’s how you obtain cheap Groupon rates, and how I am able to do this. We ate at a place called Federal Jack’s rich with the history of beer brewing. Had lobster rolls and havarti with dill and crabmeat sandwich. For dessert a homemade Boston Creme pie, with an Irish Whiskey whipped cream. Ridiculous. We have made somewhat of a tradition of playing cards at bars while away and asked for a deck. It was a Red Socks Deck, and Courtney said “make sure and wash your hands after touching these”, they were sticky, but nevertheless … it was a lovely time.

Afterwards we went through some more stores and procured the cutest damn lobster pants you have ever seen, a matching set of course… and an outfit for the baby…. the one that will hopefully come more into reality around March…. we will see. The outfit has lobsters on it and says “butter me up”. It’s insanely cute. I can’t believe I am 37 and going to begin this adventure again…. even more unbelievable is how I can’t find a shred of doubt…. I thought the selfish writer was my most prominent self. It actually may turn out that nurturing mother was possible all along, and not just some attempt at having a family I never really grew into. But really of my choosing before I ever even realized how much.

All our love,

From Maine….

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I came in like a wrecking ball….

For as long as I’ve remembered I’ve been deeply concerned with what kind of person I was. Even as a child my constant focus of movie watching (even Disney) was making sure I felt like “the good guy”. I have had an over-sized conscience always. I remember often wanting to rid myself of it, so I could partake in normative teenage experiences. But I would over-think/ deeply think about everything. Nothing could just be done. Which is an interesting compliment to my natural ADHD blessing of impulsivity. Later in life after I had decided to choose to rid myself of religion as my reason for “trying constantly to do everything right by someone else’s standard of right”. When I finally started to allow myself my own life, which created tons of inner conflict, then impulsivity took me far out of balance in the other direction. Then I had to face the most egregious of all wars, knowing full well when I had made an action that was unfair to someone else. They say ignorance is bliss. “The mysterious they, whoever they are.” They in this case would be more correct than they even know. Ignorance is a bliss I have never been afforded. I was gifted with a keen awareness of self and others. I can make connections in an instant that others have kept carefully out of their awareness for years.

I cause pain. This gives me great conflict. But then pain opens up the possibility for healing. I don’t just rip off the band-aid. I apply salve and anti-biotics as well. I am saying this to myself for the first time. Realizing I am not sinister, even though the feelings of the actions suggest it to my “Jimminy Cricket.” Being unwittingly tasked with being a person who reveals painful truths for a living, I am only now coming into the full realization of how this mixes with my shit, and creates a dangerous cocktail. I am proud and it is an honor to do this work, and it also takes a toll. It takes a toll more when it is personal, as it is for me right now. When I am inside the pain, not an ally and observer.

I shake up systems. Family systems that have operated on unspoken rules for years and been “just fine”. The thing is those unspoken rules often create great invisible pain for those that are silently expected to repress in the name of someone else’s comfort. Do the others not realize the discomfort of the person asked to adjust? Do they literally shield themselves from painful truth that much? Or does some part of them know and refuse to look?

Part of my coming out process included me learning to introduce myself as gay and not wince. It took awhile, but I recognized early on that if I seemed ashamed people will hop right on that bus. I knew the feeling of repression before I knew how to name it, as most of us do. It’s a silent and slow death by poisoning. It saps just a tiny bit of your soul in each interaction. And since it can slide by so unknown the damage resides on the inside. A beautiful smiling husk that keeps others happy while the inside is rotten and burning with pain. The holder of the families pain, struggles under their burden sometimes named depression, all the whole elaborate defense mechanisms as intricate as scaffolding’s you see on skyscrapers in New York City. They deem themselves the weaker of the flock, when really they are the strongest.

I seem to always be the common denominator in the equation of relationship that demands truth to be fully seen and listened to. I have never been able to stay quiet about truth; my gift and my curse.

Today I sit in extraordinary pain as the love of my life and I experience what it feels like to be seen as different, somehow less valid. I am tasked suddenly, like being faced with an oncoming accident in progress, with navigating this treacherous terrain. Of behaving with grace and compassion in the face of invisible and subconscious judgment. It’s innocent enough. My partner being asked by a sibling to not make their father uncomfortable on his birthday by me coming to dinner. That’s in the name of justice right ? It’s his birthday after all. So my beloved is expected to take a seat at the table, hold back her tears, and her self. She is asked to present the husk, the representative only, her true self is not welcome to the table. “Forgive them because they know not what they do”, it is ironic isn’t it that religion should come to mind right now. The pain is searing. I wonder if they know that? I suppose they also take for granted their permission to get married, be a couple, and to show up at events not making anyone uncomfortable with their presence. She is “asked” to only talk about things that won’t make anyone uncomfortable. Keep it light you know, work, whatever can be accessed without revealing too much. Exhausting. I wonder if they know how exhausting to be asked that?

I am in a raw state of pain right now. So I turn to my writing and my speaking truth out loud. It is salve. It is bandage and medication. I am angry and hurting, and I promise to turn all of this emotion into something that helps others and not into the pain that caused it. That is my promise. My place at the table of warriors who protects those who don’t know words for their feelings, and who have been silenced by lethal expectations, sometimes unspoken: the ones the highly sensitive notice and take on themselves. Too heavy a burden for anyone, but their heart will try nevertheless.

I don’t trust myself right now to write any further without being unkind. I have learned to stop short of that and process and synthesize my feelings until how I express them is of my choosing. Using wisdom rather than weapon.

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The all consuming nature of chronic illness

It’s been a weird couple of weeks. I wonder if it’s something in the Universe and others have felt this way as well, or if it’s just unique to me? I feel like when I haven’t written (on here) in awhile, I need to find my way back to my writer self. The muscles groan and protest, as if they are saying “you can’t just come and go as you please and expect us to function, this is a commitment. That’s how it feels anyway.

I’ve been consumed in not feeling well lately, and exploring the emotions that arise here. Lots and lots of anxious thoughts, and worst case scenarios. Probably not helped by the fact that I recently saw a campaign to raise money for a woman with stage 4 lymphoma. The woman was someone who traveled in circles of friends of mine at a significant time in my life. During my newly being “out” as a gay woman phase. I knew people who dated her. I hadn’t thought about her since. And here she is with a wife, two adorable children, and cancer.

As humans we protect ourselves in a variety of ways. One of those ways is a powerful, fully operational form of denial. It is constantly present. This idea that could never be you. The less degrees of separation bordering you from a truer realization or your fragility, enter more anxiety. I often function by thinking thank goodness that isn’t me, and quickly busying myself with a protective layer of every day life that holds no room for morbid thoughts. But I am the type of person who possesses a keen awareness of the whole truth and nothing but the truth, as much as my human mind can comprehend. Often I wish I wasn’t, because then my mind would not be able to drive me as crazy with its frenzied thoughts of madness. To live fully is also to be mad I think. Mad with desire and mad with fear. Because if you know how much true beauty there is to be had in even the simplest of moments, you also know how fleeting those are. Always outracing an invisible force, that only I seem aware of. Or only I appear willing to acknowledge, and when I talk about it frankly I know the darkness in my thoughts frightens others. It’s like we know but don’t say it. You’ll jinx it. What superstitious creatures we are.

The first of the not feeling well began with some odd pain in my upper back, and extreme fatigue. I remember laying with my partner and feeling the first 2 fingers on both my hands be sort of numb and tingly. This driving me crazy of course, firing all my alarms there’s something wrong here, and the story tells if worse horrors then a flare up. It always does. I couldn’t get warm to save my life. I’m often cold. As all the weird feelings took their turn on my body I steadied myself in her arms. A safe space. Thank God for my safe space these days. It’s the only reconciliation I can find for knowing that my days are numbered. All of ours are, and someday maybe, like my grandparents, we will be resigned to checking the obituaries page daily and reading aloud to one another about the latest friend who has passed away.

The episodes include flushing. A delightful thing that is triggered by being over-tired, alcohol such as red wine, and sometimes stress. It feels like you’re on fire, mostly just your face. Hot, head achy, and dizzying. All you can do is lay down, maybe and ice pack and wait to it to pass. Often this is followed by a bad stomach and then elimination that leaves you shaking and freezing in an exhausted heap after. Either too hot or too cold always, the days you feel good being remarkable in their noticeability due to rareness. During times like this it’s a guessing game of what yuck Unidentified symptom will be the flavor of the day, and how you will keep the silver linings ever present as protective cloak. After only so many days you feel your spirit being eroded away at, and the irritability sets in.

Being overwhelmed happens so easily when you’re trying inside your head to manage your invisible symptoms so no one worries or feels sorry for you. Trying to feel normal. If you fall into the trap of thinking about them too much, or too much validation you run the risk of letting it take over your spirit. I refuse to do that ever. But then I think of how draining this is, and cannot imagine fighting cancer to keep my life. It’s hard now. I fear I would not be up to that task.

After the couple of draining days follows a moment of hope, a good day. I bask in it, soaking it up to carry me through the rest. And then the back injury, ironically it happened when I wrote my last blog post. Sat too many hours in a tall kitchen chair without lumbar support (apparently). Because when I got up my back was sore and I couldn’t figure out why. But with as many ailments I thought par for the course and carried about my day. What was supposed to be a quick trip to The grocery store to drive my son to work, became a nail in the tire and 3 hours at a shop with bored twin teenagers. We ate McDonalds, gross no wonder I’m sick 😉 it was 16 degrees and the only walkable distance to bide our time. By the time I sat and got up a few dozen more times into that evening I was nearly paralyzed. Could not walk without agonizing pain. Since I’ve also been down this road I called a physical therapist I know and trust and got in right away. This story could become so long… so let’s just say I finally won the round for much needed pain medication. I may have won the round, but it feels like I lost the game. Going on two weeks of limited everything. Co-pays, heating pads, one wrong move and spasm again after so much hard work… the back let’s up and I get 1/2 a good day and the migraine strikes. Pulsating, furious, making me nauseous. I take the migraine medication and feel weird like I may not actually be breathing, like my heart may have stopped altogether, like if I go to sleep I may not wake up. All this has been in between work and life and dogs and snow and ice and teenagers.

So here I am today at the beginning of two much needed days off, and I’m so afraid they will need to be spent resting, because the migraine remnants have left nausea and a sapped spirit in their wake.

Amidst all of this writing is my breath of fresh air. This is me when I can find hardly the will to do anything still fighting for what I love. I have wanted so badly to write, and yet my mind has been consumed with pain. It’s nearly impossible to think when your body is racked with one symptom or another and you’re just trying to catch your breath in between. This is my way of honoring my experience. When I see it on the page I judge myself. I sound so dramatic, it’s not as if I have stage 4 cancer. This perspective becomes a slow dance with denial, so I can live as fully as I want to. I was blessed with an iron clad will. My gift from the Universe. It must have known I would need it. I choose my reality regardless of my circumstances. I have chosen for it to always be this way.

This is an experience I am having currently with chronic illness. Right now it refuses to be ignored, and constantly sucks at my writer’s soul. Stay tuned because I refuse to give in. Stay tuned because between the night sweats, pain medication roller coaster, confusion of “the correct approach at healing”…there is wisdom between the lines, and between the symptoms.