Tag: #passionandafamily

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Hamilton: What will our play be called ?!

Thank you for seeing me in this way, for delighting in me and in us. It has literally saved our emotional lives. We had our physical lives before you, but our emotional ones are taking such beautiful shape now. And I want to write about it. I want the world to know your bright love. And I what we have created here. 

The image suggests perhaps a playful post about our experience in the city. Wouldn’t that be a more pleasant read ? Perhaps it would, but it wouldn’t be written by me then, at least not tonight. 😉

This blog post is a letter I wrote to my wife tonight. Whether or not all things are meant to be shared I think there is always a power in it for someone. This letter bled straight from my fingertips, it fell onto the page in waves of truth that couldn’t make their way out fast enough. A catharsis. Isn’t it always. If someone else has a different experience with those words who am I to stop them.

Clicking publish has always been an act of bravery…. one I never gave myself much credit for. Warning it begins with graphic Crohn’s Disease material exactly as I experienced it.

I had a stomach episode tonight unlike anything I’ve ever experienced. I thought I was going to have you have to call 911. I almost screamed for you. Literally. I had visions of me passing out and dying on the toilet. I woke up doubled over completely, and I mean completely. I hobbled to the toilet. I didn’t know if I would vomit or faint. I felt like all 3. I felt like I was going to have to poop but didn’t know what thing would come first. It felt like I was being ripped in half. My shirt was completely soaked, completely, and contrary to the scary fast heart rate I will have usually during an attack my heart felt like it couldn’t even beat, it was low 50’s. 

I just held on and tried to breathe deep as I could through the waves of pain and head swimming until finally I pooped literally probably 3 toilet bowls full. It wasn’t all at once. First was getting the hard part out, and then a ton came. 

By the time I was done I was left shaking and freezing and now I’m more wiped out than you can ever imagine. I just can’t even quite describe the pain.

A couple of things happened. One, I felt a tremendous wave of compassion for V and guilt at not feeling more present. It’s like I can’t weather watching her suffer and I must because I’m mom. What a confusing thing. And two, intense fear that having not taken my injection even for a week has thrown things into some terrible state with my health. What if?! And what if V is in for a lifetime of chronic suffering with her tummy that impedes so much of her adventurous self. My god that will break my heart. And then that I really do love my kids moment. Well of course I fucking do?! How could I ever be so unkind to myself, ?’ To not give myself this benefit of the doubt. 

And then I think of the good thing that I’ll make sure she is safe and supported forever. Never scared she won’t be able to support herself. And then the realization that I’m a steadfast supporter and provider and that I’m creating / have created that from scratch. 

And this is literally what a profound RE frame in thinking looks like. I’m strong and proud and safe and I’ll keep my family safe, not some impulsive person hanging by a thread.

I’m creating something beautiful in myself and for others and it’s my story. My legacy. What I want people to say about me, when they tell my story like Eliza did for Hamilton. What will they say?! We all wonder what people will say.

This makes me think of you: do you know all anybody says is nice things about you?! I always wanted to be that person, but I make too many waves, take too many risks, and don’t think enough about how I’ll make someone feel. You think too much, and I not enough. If you take us both you have the perfect person 😉 boastful? Perhaps. 

I make people uncomfortable, but do it with good intentions lol. Don’t they say the road to hell is paved with good intentions;) I make people uncomfortable by pointing out what is so readily visible to me, that for others it takes them a lifetime if at all to notice. A gift and a curse. 

I wonder if V felt a fraction of how I felt just now. If she did I feel terrible for her. I’m gonna root around in your magic bag of goodies, the bag leftover from our dead dreams (to be dramatic and truthful) and see if I can find some life giving electrolytes in the form of Gatorade to settle this tummy. It’s feeling like knives are raking it currently and I can’t be out of commission this long. 

If anything happens to me babe please tell my story. I need my story told. The need is getting fiercer now. I need people to know how hard I fought just to be ok on a daily basis and my kids to know how strong their love makes me. They are the fuel to my fire, and everything that makes me the person that I am.

Every person I’ve ever helped has them to thank. 

And I have you to thank. You’re such a source of comfort to me. Speaking of…. I’ll need to restock our sick supplies. We were so fortunate to have all these. Though the reason we do and they are unused is still excruciating. 

Babe I know your process is different but please know that if this didn’t happen I might not in some really profound way have truly known how much I want it. How I want to enjoy the tiny new life that we create rather than ever viewing him or her as a burden. And my life has already been so heavy so long, any small thing sometimes does feel this way. But in part due to experiencing this loss with you, I know even more profoundly how much each second even is worth. 

I do in a fucked up way feel it is meant to be this way. This sense that everything does happen for a reason, and not that that’s just something we say to make sense of things when they are too fucked up. It makes me believe in destiny and magic. 

Does that mean we couldn’t have done without this toll to our hearts, this wound, and these scars… of course not. 

But life would not hold as much meaning without the whole picture, the whole journey, and my life now is beyond filled with meaning. 

While I don’t plan on going anywhere soon, I am satisfied with my life right now. I need you to know that. I don’t regret for me or be sad for the rest of my unloved life ever, because I have lived it to my fullest already. I do want more of course, immense amounts more. But if it wasn’t in my cards I didn’t miss a thing. I knew exactly what I was doing. 

I want you to find the same feeling, but in whatever way Or path that’s meant for you. That’s my dream for you, never give in to self defeating thoughts, ones that lack compassion for your full journey. 

If you did ever lose me I want you to live on for me in the way I would have. Carry my legacy and be for my kids what I would have been for them. You are up to that task. No one is as well as you or I wouldn’t have picked you. They will need you forever. 

I don’t plan on going anywhere, but we never plan for that so I want these words down. I don’t care what laws or rules or fears or whatever. We have something very special here and blood relation has nothing to do with it. We must trust that. You are an irreplaceable part of the kids healing now. You’re already written into the story. And I would never want to let you be snuffed out in the event of my demise. And anyone who would try would do so out of ego or pride etc, finally able to have their kids back from my evil clutches you know 😉 but you know better. 

You’re the best thing that’s ever happened to us. Yes little ol you, it’s true. That’s a truth. And it couldn’t be without you being so much more than you see when you look in the mirror. That distorted perception is your only enemy, it kills more dreams than a semi-automatic with unlimited rounds. 

I hope my kids will delight in my letters someday when they are old enough to read how my mind worked. Find, keep, and appreciate them all, because they are who I always really was inside and kids know so little about that.

I’ll never know much about who my parents really were inside, so much is a mystery, especially my dads side, and my mother’s, a tragedy. So for them to have this insight. To know my mind intimately. Incredible.

Wow so all this feels like a product of a near death experience. Listen honestly. It may sound dramatic, but this episode was no joke. And all this sweating and gross (being on prednisone and scared) the past couple of weeks has been really humbling.

There is a level of acceptance I am at, that wasn’t there before. 

My disease has carried a large piece of denial for the longest. I wasn’t willing. I’ve been in as much denial of it as I have how damaging my childhood was to me. I am reaching a stage of acceptance now, and it’s making me so much stronger. So much more at peace and strong. Someone that you will feel proud and safe to have a baby with. Someone stable that will enjoy that adventure with, not resent it, or fear it, or feel guilty about it because I already have kids.

That is at least the take home I’m recognizing from this tragedy. 

I will get to move forward without a doubt in my mind, and for me, that’s like having rebuilt an entire nation after its downfall. I’ve been a shaky entity bordering on panic for as long as I can remember, to be emerging this strong, still, solid force of love and compassion is unbelievable even to myself. 

I am surprising myself a lot lately. The strong I always identified as prior was a sort of forced kind of strong, a necessary one. This strong now is the accumulation of weathering storms with a sense of grace rather than a frenzy or a panic. 

It’s a strong I am satisfied and proud of, not one thrust upon me without my consent. It’s a soft kind of strong, and I can’t wait to hold our baby in these new arms made of this.

Every time you grace me with your vision of seeing the loving child inside of me. I can see when you see her, I can see her too, and it brings powerful healing. You bring that to me. 

Thank you for seeing me in this way, for delighting in me and in us. It has literally saved our emotional lives. We had our physical lives before you, but our emotional ones are taking such beautiful shape now. And I want to write about it. I want the world to know your bright love. And I what we have created here. 

What if someone else could find this place (when they couldn’t before) because of our story? Or was able to believe in their dreams?! 

Bliss. 

My tummy has burning remnants of the suffering I just went through and I can’t even be bothered to focus on that. I’ve too much shit to do with my one life. Thank goodness because otherwise I’d crumble into a little ball of stress and worry and take days to recover. 

I don’t have days anymore to spend in that way, there’s too much work to be done.

Every word on every page for every day of my life…. are for you….

Now I am going to curl up as close to you as I can and let your breath lull me into a deep relaxation, and help the pain melt away. 

All the love in my heart 

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A birthday tribute to my wife …

It’s my fourth favorite person in the worlds extra special born day tomorrow. Who’s keeping count right?! But I’ve learned over the years I need to be my number one, closely followed by my children, and have now been blessed enough that now we are 5. Still soon to be 6…. that dream floats evermore back into the picture daily. Thank god for our natural innate resilience.

Just 5 humans trying to navigate a painful and divisive world with the biggest of hearts and fullest of enthusiasms.

So I just want to take some time to honor this new addition to our family. She’s new old. We have a new love everyday, that feels like it could/should have been there my whole life. The depth goes that far.

My dearest Courtney you walked softly into our lives, as if on a bed of Snow White powder, silently, and yet the foundation we are laying together is molten lava stream of concrete that has hardened into the kind of solid ground healthy families thrive on. We created this out of a place of deep love for love itself, and for the creation of the family we always dreamed of.

I’m so proud of us. You’re a mighty, quiet, thoughtful, kind, soul, who lights up a room with her smile. People just love to be around you, and I consider it a constant gift that I get to be the benefactor of a large amount of these moments.

Whether you are generously rubbing my back at the end of the day because you know how heavy my walk in the world has been, or cooking a meal that risks you great criticism for my ever changing teenage children’s tastes….. you do it with loving kindness.

You see yourself so often as less than what you are, and I’ll spend the rest of my life trying to show you your powers. Great healing powers, they are immense.

No matter what else you do with your life from here on out, please know you have saved us. This is not dramatic, rather it is true. You’re gentle with our hearts, when much of life for the kids and I has felt intense.

Your gentle love is an intense space of healing, and I’ll love you like the grateful stray dog I have always felt like, that’s found her forever home.

And finally now this is all ok. It was never supposed to be different. I was never supposed to be more than what I was when I was, and neither are you. We just are.

And this life with you in it is bliss to me.

So I hope your 35th year lends to you feeling as special as you make us feel everyday.

It is fitting we get to experience Hamilton in Broadway together to celebrate. I remember watching you see Wicked and it was one of the most ground moving moments of my life. I knew you felt with your whole self, and I knew that’s what I wanted and deserved.

Thank you in a million little ways….

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Bronchitis and Snowy Reflections

There’s a certain permission that comes with being sick that it seems you (I) can find no other way. The permission to sit even slightly more still, even for a second. Which has allowed me to reflect a lot.

I’m recovering from bronchitis and had no idea it could lay me up so much. But here I am.

The snow is finally cascading down today, it is almost a relief existentially; climate change as it is and all. The flakes are ice coated and making a tiny crunch sound as they topple and flit here and there.

I’m just sitting here marveling at how much has changed around me, and it really does seem like all I did was blink.

I’m sitting in the kitchen part of our finished in-law portion of the home. This has been a dear friend and roommates kitchen, when her and her son lived down here, and her second son was born in this home, about 4 years ago. It’s how I paid my mortgage, and also how we both stayed sane. I was less anxious living alone, and we have become a sort of family to one another. Seeing the other through bests and worsts.

It’s brisk down here, but I’m wrapped in a warm red blanket, and sitting in and oversized brown lazy boy recliner. It’s interesting to get this kind of perspective on the home. Not a space I would normally sit. I could pick apart its imperfections: the low ceiling, white tiled floor, the basement like feel of it all. But what I’ve been doing most today is marveling at how far I’ve come and how blessed we all are.

I don’t think I ever even set my sights high enough to home ownership. I think I had planned on a retail job (management if I was lucky), and a small clean apartment, the kind I sometimes saw my friends in when I lived in Oregon.

I’ve been moving through life so frantically, so panicked that simplicities are now what I long for. What comes when you enjoy what you have like it’s the best thing on earth. My ability to hear for example or to taste, to appreciate the finer details in any mundane thing.

My wife and I recently were deciding if perhaps we might move to Milford or Fairfield Ct, out of the valley, up into a different class (and tax bracket). Funny how the important things to me about this move are still in the small details.

I would like taller ceilings, the feeling of room and space, a wood burning fireplace for smell and ambience, and a very nice bathtub. I’d like to see some woods or nature out my window. Bookshelves, many many bookshelves. Mahogany and teakwood smells and feels. An office so my papers and documents are not constantly strewn about. And we have the means to get into this nicer home now, but only to be stressed or house poor again seems not the right way this time. So we may just refinance and fall in love with all we already have! For a couple more years at least anyway.

Perhaps poor the love into this home and choose to see it in a way that serves us, rather than trumping up dissatisfaction as a means to motivate us into an action that may not even end up with us any happier in the end.

Tomorrow we are all as a family going to see Hamilton on Broadway and stay overnight in the city. Another extravagance I never would have dreamed of before. Some of us are not feeling so hot, hopefully that can be mild so there’s nothing taken from our experience.

I have found myself ahead rather than behind, perhaps not as much as my dreams could imagine, but then my dreams always were very expansive anyway.

It’s interesting the creaks and sounds down here. Now a part of other’s memories who have occupied this space. It’s housed a woman post recovery and pre-discovery. Another who was fleeing a bad roommate situation and stayed over here. Our home is a space of comfort, warmth, shared meals and affection. How could I not have seen this before?!

It’s everything I ever set out to create, and so am I. Not a single thing lacking. What a delicious discovery to stumble upon as I am sitting here listening to a different angle of the home I’ve occupied for 7 years.

This chair is very comfy, yes it would look nice next to a roaring fire, but I can imagine one just as easily……

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Let’s talk numbers

So recently I’ve been having all sorts of sales numbers rushing through my brain. I must admit they take up a lot of space and I’ve asked myself a lot if I belong here (Vivint Solar). Then recently I attended their annual conference and things made a lot more sense to me about why I am doing this.

Originally I did it to face my anxieties, exposing myself to knocking on people’s doors seemed a good test to see if I could get used to that, without my heart hammering away in my chest. I also did it with a goal in mind of buying a beloved cottage which seemed a key to writing my memoirs. These were my two main motivators.

Then the unthinkable happened and we experienced the devastating loss of our identical twin pregnancy that we had spent a year working towards. This was a month long road paved with nails, and we are only now in the recovering stages.

I found myself having a dark and stormy attitude, and as a very influential person I knew this was not me, but I couldn’t find the light. It’s actually the spirit of the Whalers (another story), my New England descendants that brought me a little bit closer to myself again.

New Englanders being the first to have such a crazy person to suggest that we could change our stars around by getting into a tiny boat with a sharp stick and bringing down a whale. It is no surprise we have such sharp edges. I say we like I’m from here originally and not from the land of hippie tree huggers in Oregon 😉

Rather than seeing this whole business as sales and not who I am as a person I chose to see myself as having the privilege to be a part of something special. Helping our community to convert to clean energy, being a pioneer, a warrior, a whaler! Going out with my harpoon and stick and believing I can single handedly change my stars and protect my people and my planet. Not being skeptical, but positive and full of the live I always have been.

The power had been down on my panels, and it was time to fix my system.

I possess this grit, this sense of urgency. The ability to press the gas harder over a bumpy road, which actually works better than going slow. I’ve been this way my whole life. And in the midst of these people who are brave and overcoming their own personal limitations I kept thinking oh look I’m home. So there has to be something to this whole solar thing.

And this is where I have landed for now. So for this morning I’m going to share a post one of the top sellers posted, full of life advice I wish I’d had years ago, and what I wrote to my children about when I shared it.

Credit Thiago Barros from Vivint Solar

This is one of the big sellers for Vivint.

It’s interesting because what I like best is being amongst other very driven people. I’m not sure where or if I fit here. I’m afraid of working too much and missing you guys…. I have dreams of owning a bed and breakfast together and or a coffee shop together and working all of us around each other. And not sure without some capital how to make that happen. My dreams always were bigger than my wallet. I’m just sitting here appreciating all of you each for what you bring to my life.

Kids I’ve been pondering over your Letters and you and they make me a better person always. To learn to create space for your feelings. To have the space to give. It’s all new to me. Like being reborn 1,000 times.

I put the cart before the horse so many times in my life that now I want to teach you from my mistakes how to dream big but like this guy says above to not buy the thing til you have earned it.

I want to be home and cook more and hustle more and and and. Always driven. In the Vivint conference we were just at the guy was talking about how successful people have this sense of urgency, almost like they are distracted, they get weird he says. And I identified with that a lot. It never was a matter of not loving you, but a product of having so many dreams in this life.

It’s actually not a very easy existence in certain ways. My mind tortures me and calm is very hard to find. Peace of mind. When I look at you I see it, but sometimes it feels so far away to touch.

You guys are always my why, why I work so hard, and why I push myself past my fears, and why I get out of bed when I’m tired, scared or don’t feel well.

I want to thank you for being patient with Courtney and I as we have been so consumed with trying to bring this family a baby and with the pain when that dream didn’t go as planned. I know it’s been a little dark for awhile. A little (lot) less present. I’ve been coping with Vivint I guess, and learning a new thing. I realize we have heard very little about how you guys feel about the disappointment. Probably trying to shield you from our pain and not let it effect you, but it does anyway I see.

When a dream that has become a framework, and you think it’s on its way to success comes crashing down around you, it takes awhile to see and find the light and energy again. You will experience this at some point in your lives and I will be right there for it. I’m going to do my damnedest to be by your side for everything you want me to. Every important moment. I hope to use my analysis less 😉 and my heart more. For someone with a history of trauma this is very difficult, some might argue impossible. You become wired differently. And I’ll fight even wiring and my genetics for you. You inspire me everyday and please always tell us how you’re feeling. Even if it’s not received perfectly in a moment, we hear you and see you…..

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Love heals all wounds

Slowly very slowly I am becoming myself again. Grief takes you away from everything you are and everything you know. That’s what I have learned recently. As the storm clears however, what I am finding is a new appreciation for all that I have and all that I am.

This year I do feel as if January was the lost month. And that’s a lot of time to lose for someone who doesn’t want to miss a second. But was it really lost? Or did we only stand to gain?

Gain?! How can I possibly suggest watching our dreams crumble could result in a gain? I can hardly believe what I’m typing! But yes you gain something. Perspective and Presence with capital P’s.

Now I am here finally able to wipe the tears that kept smudging the blueprint of our lives and begin to draft again. This 2 months has felt like a single lifetime.

Recently I had my kids write me a letter (to lift their grounding from the dog peeing on the couch). They were to write an essay on their experience with me as a mother. At some point I may share them in their entirety, but to summarize for now. They love me, they really love me. It’s unthinkable they wouldn’t right?!

But often times I don’t feel loved like the humans do, it’s part of what I come with.

Recently someone told me at the end of the day we are who we are. Seemingly simple advice right ? Why is it that it’s the most simple of advice executed at the proper time that is the most profound?!

I’ve spent a lifetime fighting what I thought I could become, because of the things I saw and experienced when I was little. If there was any chance I could be that, I wasn’t going to take it. I was a vicious slave master over myself, and I did not use kindness to meet my goals.

I found as a mother I could keep the same viciousness I treated myself with away from my children, but that meant I had to keep a large portion of me distant as well. I replaced me with more warm and safe characters. Until later in life I began to realize they had their own dark sides as well, and maybe I wasn’t so terrible after all. I grew and I grew.

I have always done it backwards. Their love saved me, when it was “supposed” (such a nasty word) to be my love nurturing them. I loved better and more than my memory allows me. Again that terrible slave master who was constantly whipping me when I would come even close to the behavior of my mother. It was exhausting to be that vigilant over myself and much of their young lives they have seen me tired and stressed.

Until finally I put the whip down and began to give myself nurturing and affection.

Again seemingly selfish in the world of society’s view of the mother. But society never knew my beginning, and kindness was the medicine I required all along. I could never be warm, gentle, and kind with my children when I couldn’t be with my own child. It was always incongruous and disconnected. And I was always aware that I was. Not a fun combination. That shit needs to stay in your subconscious so you can survive. I’m an odd breed. Always aware when I constantly wished not to be. My gift and my curse.

Thoughts like, “it’s too late”, or “you did this the wrong way”, only harm my soft new self. Like a baby from the womb my new self isn’t ready to take care of itself yet. I needed nurturing, and I found that in my love in my 36th year, and the rest as they say is history.

Not co-dependent love, despite my sometimes fear of bordering on that 😉 not all consuming love, not burning love, not scathing or scarring love,

Generous love. Benefit of the doubt love, trusting love, gentle love, infinite love, graceful love, warm and available at all times love. Patient, oh so patient love.

Love heals all wounds. And I hope to love my children and family with this healed self for the rest of my days, and I hope to tell my story so they can know how hard I had to work to be available to them. So that they know I fashioned a self out of scraps. And what it takes to do that in the way that I did.

My gratitude continues to grow by leaps and bounds and perhaps this new self that is growing and being raised with all this love will have the courage to write books and talk you the world about her experiences.

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The couch of mixed emotions….

I’ve been going through the ringer lately. Personally. Professionally. Motherly. Wifely.

Is there some kind of unwritten rule after your 100th post you fall apart?

How does one come back from a dream over a year in the making, financially and emotionally expensive, crashing down around them? I guess I’m figuring that out right now.

Breaking and trying to rebuild only to be so fragile the whole structure just breaks again, and you get even more discouraged and start having a tantrum.

I’ll grasp at any other dream right now to try and calm the pain. That’s how I work. I move forward while suffering, and the forward movement becomes my saving grace somehow, even when I can’t see it or feel it yet.

A dear friend of mine was recently talking about presence. So not surprisingly it has come up for me this morning. My wife and I had an argument yesterday. A fight really and honestly in two years we haven’t had much of one. We got into that space where neither of us could hear the other over our own feelings, and both felt justified, but all the while missing each other and wanting to find our way back. But every time we would try to come back, it would flare again. My wife is much softer on the outside than I am. When any kind of intense or overwhelming situation occurs for me I can go to a very cold and dark place, and I’m not accessible or pleasant when I’m in there. I am seeing that I will not escape talking about trauma as my legacy. I’ve tried for a long time. After all I’d like to be one of the “normal” people, that does not become filled with terror at the slightest hint of someone’s upset with me. It feels wriggly to admit that 🙁 even in this sage space with those who love me. They are deep inside feelings.

Anyway more in trauma later I promise. For now a quick summary of the argument includes the couch story. Have I ever told you guys this story? Well Courtney (my wife) came with this god forsaken piece of her history. Her and her ex partner had purchased a very very expensive designer, custom made couch. It is fabric and had plush down cushions and should only be washed by the hands of the Gods. Basset furniture professionals.

Anyway we saw a therapist for a few sessions to transition and blend her into our family. One thing I remember distinctly this woman saying was do not bring that couch into your home with kids and dogs. We kind of knew she was right. However the problem is she had just used a giant chunk of her savings to pay the thing off and we couldn’t have gotten 1/4 of the cost of it. What a loss! We decided we would rather have this nice piece of furniture while agreeing we understood the risks. Never in the history of the world has a therapist been more correct.

My Frenchie Sigmund Freud has a bad habit of peeing on anything fabric if he isn’t taking out just about every hour of the day. We have tried everything about this. Sprays, trainings, quarantine. Another problem is he is such a love bug that if he’s not on you at all times he will cry. He’s extremely high maintenance.

So he has christened the couch no less than several too many times, and trying to fix the problem is a whole production. To the point I am nervous that damn couch will become my children’s trauma. As any good mother knows washable pleather is the only reasonable choice for one’s sanity in the realm of children. This is why we can’t have nice things is a phrase often tossed around in our home.

Teens will be teens, and I think if they wandered around anxiously terrified something will become dirty I would be so much more concerned than them being careless. Is this bad ?! I see what pressure does. I see what people who can’t relax end up like, body wise and heart wise. Given the choice more mess, less stress would always be my credo. But the average person who has never lived with children, never mind navigating the complications of cohabitation in general, likes to have order and cleanliness. And don’t get me wrong I like those too. But for me it came down to that or my sanity. Sanity won out and I had to battle what everyone would think, the possibility of feeling like bad mom, etc.

So this is what happens. My wife and I try to go away to get some time to revive an us, to not get lost in the shuffle and our current grief pit. But whenever we do all hell breaks loose at home. The kids are too old to need a babysitter for one night, when the neighbor across the street is there and vigilant, and too young to be expected to have the weight of the world on their shoulders while trying to do well in school, and have their own things going on.

So we got to Vivint’s annual conference in MA, and whilst there get a barrage of texts about the state of affairs at home. The bulldog has claimed the couch his with his signature marking, a gift to us I’m guessing he thinks. And the kids are scrambling in terror to blame whoever is responsible, and we are a state away and now our presence is taken from the conference and stress ensues. The kids are stressed, we are stressed, and that boils over into a few trauma triggers for me. This will be continued as I said because I think it’s really important to speak openly about.

After a few hours of anxious albeit blessed rest I have to clean up the mess I caused the day before any a fury. Threatening to get rid of our dogs, almost sleeping on the couch, and this is a land I haven’t lived in for oh so long. And clearly not helping the kids figure out how to be better while also letting them know they are always loved and safe. I withdraw because I don’t know I’m loved and safe so often. My mind goes elsewhere seemingly no matter how hard I try. It swims to me being a burden, and I cause a partner stress, and all of this chaos.

Anyway this morning. Argument resolved with my wife, though both drained and sad by the interaction, and me trying not to blame myself for being so intense about such things…. and now will come clean up with the kids. So much shrapnel can be left from only a minor interaction such as this. 🙁

So my takeaway was this: I ended up looking at the bulldog this morning and thinking how much I love him and could never give him up, and then stop and picture my kids and how proud and grateful I am, and my life. I am present fully awake, not frenzied by this or that fear or thought, and I feel love and compassion for all of us on this crazy adventure that is my creation. When you create a big life and have big dreams, it’s also a big responsibility, and mine is never to resent it, and always to cherish it, and to continue to learn to stay in my heart.

I want to stay in my heart. I want to be nurturing and not just furiously driven. I beg for the strength to calm my wounds and do this.

I want my wife to know this couch is something we are grateful for. We have had amazing memories on it. The teenagers hang with their friends, we snuggle on it. It isn’t perfect but it means so much to us to be loved, and for her to take a risk on coming so much out of her comfort zones. Does she know she has saved several lives, and is our personal hero? I hope so!

So this was what I wrote this am regarding this:

You know the kids and the dogs are the same concept. Pause and look at them and slow down to take care of them and appreciate what they bring to life (that isn’t just stress) and you’ll smile and feel happy thoughts. Rush through things in a frenzy, don’t stop and look, be running on a healthy dose of stress, and want them to just function independently

and well without any nurturing, and you’re in for a nightmare !

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Suffering and Parenting Consciously

Anyone who reads this without a transcription has the patience of a God, lol. But somehow it seems more authentic.

Sometimes I think who writes like this to their kids. And the shame gremlins chime in about how perhaps “children” (though they are not anymore) should maybe not be meant to understand such adult matters. Others two cents have stated that they would have given anything to know what was going through a parent’s mind. There’s a lot of different ways to do things out there. That is for sure.

Given that we lost identical twins and my wife had a D and C five days before Christmas and two before my birthday, the year is off to a slow start enthusiasm wise. We are just navigating this perilous terrain of grief, and I wanted to share something I just realized.

A day deep in grief can seem as endless as a lifetime. Each one day spent seems like a year. Time stands still as if the beating of our hearts just stopped as well…. as if they couldn’t go on. Then for awhile your hollow chest realizes the thump is still there, and the rest of you will have to acquiesce eventually. You know you’re alive, but you can’t feel things the same way.

Everything is different and you never even gave permission for that to be so.

So here we are at the beginning of week two of 2019. Wandering numbly through the mine fields of the memories of our whole experience thus far trying to conceive. Who would ever go back for a second tour I think. But then one day I imagine we will find ourselves smiling at tiny new babies again and our dreams will re-shape themselves from the nightmares they became.

Moments of relief are where we are at now, peppered with lots and lots of sadness shrapnel. As we figure out our new expectations of ourselves, each other, and even consider a plan to move forward.

Daunting or exciting ? Do the emotions set that tone based on where we are at on our grief terrain? Or do we decide we want to be excited, AND accept the moments of suffering that just can’t be avoided as a human being?

We can only outrun or block out the inherent being of suffering for so long, it will get all of us eventually.

A dear friend is reading Eckhart Tolle’s, A New Earth. She shared with me a passage about suffering consciously. Sitting with the feelings and learning from them. That this is the only solace and way to transcend the pits of despair as it were. And even then I shall say from this experience when you’re IN suffering it seems like you’ll never get out. But somehow the resilience of the human spirit can’t help but cut through the dark. We are just made like that.

As a lighter side emerges that Chumba Wumba song, I get knocked down, but I get up again comes to mind… and all it’s silly lines.

I’m just here trying to figure it out. Trying to catch the next wave of joy, even as it seems we are swimming with sharks right now. I refuse to get out of the ocean even if I could get eaten. It’s a strange and marvelous thing this humanity.

I think of Elizabeth Gilbert often. She doesn’t even know who I am, but to me she’s a mother I never had, a best friend, a kindred spirit. I think of her grief of the loss of her partner Reyya. The other day she posted her delight at her Uber driver on the way to the airport, and that you can find joy anywhere. She is so right!

Speaking of her being a mother I never had. It’s funny how she never had children, and that was such a big deal to her at one point, other’s judgments and opinions and her own of that process. And yet I wonder how many spiritual children she has. I am certainly one. She has been a teacher, a warm shelter in the storm, and a friend in times of need. All through her beautiful words she is these. What is a parent if not these things?

Perhaps she chose to sacrifice certain aspects of individual meaning for the whole good of humanity? I wonder if she ever looked at it like that? Rather than selfish …. etc…?

Anyway yesterday my wife and I were in the car and trying to count how long it had been since surgery. We both literally estimated a month or more. We were shocked to find only a little over two weeks. I’m still thinking about this.

Time is irrelevant when it comes to the matters of the heart. I have always believed this to be true.

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How sales is changing me or how is sales changing me.

The new insights that are coming from solar slaying are fascinating. It’s learning people from a whole other angle. In their homes and directly in their lives. A couple is making cream of chicken soup over a beautiful stove, they share warmth and hospitality with me. A man who smokes Newport’s and drinks Budweiser in his pajamas during the day, shares with me that his wife has been cranky lately because he has lung cancer.

New couples trying to afford to live and make it in this world, financially and emotionally. Being out on the doors as we call it and talking to people is also much like doing therapy. But I can see even more of their lives, and therefore learn more is the idea there maybe. But then I am only with them a brief time and the temptation to drop by with flowers or to stop in for a coffee is always present. I closed a deal last night and the woman seemed so sad I wanted to reach out and comfort her. I can still see her grief filled eyes and I want to do something.

Should I, shouldn’t I!? The answer is you always should when you can. Perhaps I’ll bring her flowers. The resilience of people astounds me. Recently I am included once again in this category but in a new way. We have suffered a great loss and are currently waiting for a new equilibrium as a result.

I’ve had many blog posts bouncing around in my brain like many a brightly colored rubber ball, but then the energy dwindles as fast as it comes and my pursuits are demanded elsewhere.

Some things I’ve noticed so far on the doors is that my brain moves even more frantically and settles in to write less. Produce produce produce. There is always some incentive and always the want for more. I already know ahead of the curve that once the money starts coming in, the desire for more will pique. What was once unheard of will become normalized and you’ll need more to be excited.

Life normalizes invisibly and we don’t realize it until often our behaviors have caused us issue. Many a change we never saw coming. My gift is seeing ahead by the way if intuition and much life experience to draw off of, and a deep understanding of human behavior.

This is yet again when I have to put some work on knowing my boundaries and what my priorities are, otherwise I will be swept up in the hustle. The glitz and glamor of it all. The streets that are paved with cheese. Notice I said cheese and not gold. Any small sentence can give you a clue into a human beings deepest desires.

The promise of more… there can always be more. But more is not always more of what you really want. So it’s sort of ironic that I’m working more and more on (not to be confused with moron;) ), to get to a peace filled existence of writing, reading, and being present with those I love. Is it the way? Or is this just another learning curve on the way to the way. As if there was just one way.

Will this cabin on this sacred space be an answer to my writer’s heart? A spiritual healing. Will the idea turn out as I imagine it to be ? Or will it be sinking a 50,000 (ish) ship and that being yet another lesson. Oh the woes of being a whimsical risk taking dreamer, versus a pragmatic, careful, financially minded planner.

Could I become a “salesman” that becomes more and more hungry and just keep telling myself it’s for my family. So many do you know ?! Probably the smartest course of direction would be to pay off my student loans and invest. Who else can pay off their student loans in the span of one year? That is the promise here. That’s always the smartest course of action. In the real dream scenario I will be able to do both, but that will require time and sacrifice.

If you asked my kids they would probably tell you they just want even five minutes of true presence from me over all the riches in the world. If only I had ever loved myself enough to know that when they needed it even more. But that as usual is the harshest possible version. The truth usually lies somewhere in the middle. And I forgot the long ago truths such as how I didn’t have to balance work and motherhood in the early years.

It was me who held them every single time and I looked down on them with a love burning with the power of a thousand suns. I remember that in moments, but the trick is they can’t. Their logical memories can’t anyway, perhaps their feeling ones can. Perhaps that’s why they do so well now, but because I pushed them so hard, but because I loved them better than I give myself credit for.

There are many ways to love. For me as a mother my love was shown primarily by working on my self so carefully so I didn’t cause them some of the damage that was bestowed upon me. Somethings with that plan worked really well, and others left something to be desired for.

But either way my every though in every breathing moment of my life all comes down to them. It doesn’t matter how caught up in dreams of love I was and then they crashed and burned. What I saw as my motivation and my dreams always had them in mind. This is something I rarely gave myself credit for when I listened too much to the critic(s).

Isn’t it interesting how different the idea of what I will write is compared to what I actually do? The post I thought I had inside was much reflection on the past year, and how I want to use that in this new one. It will probably still come, but this is what was on the presses today.

Hot off the presses of my mind. A life lived quite uniquely, or perhaps not at all. I just am not privy to the many other minds like mine out there.

Happy New Year everyone! I can’t wait to see what adventures 2019 brings all of us!

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Connected

*I guess we are all one phone call from our knees. *

I don’t think I could have bargained for all the gratitude this experience is bringing me. I can’t feel it too much yet, everything is just so painful. But I know that it’s there, and growing, and that this experience has already profoundly changed me.

If I do it right it’s going to make me realize all the things I take for granted each day. It’s going to make me realize what a gift and blessing my kids are in a new way.

We need to hit the refresh button on life often folks! Not just when bad things happen, but consistently. Not just once a year. Refresh, open your eyes, and look around at the landscape of your life.

My God I could have never imagined this. I never believed I would trust or love myself as much as I do now.

I would have never believed I’d be here living out my dreams. Here I am.

It’s interesting to choose a person early on because of a hunch and an intuition and then watch them unfold and get to know them with faith and trust the rest of your lives together. Love grows as you go through things. We have been through a lot this short time together.

Prior to this I moved quickly into love also, this was a need based approach it wreaked if desperation and seeking a buoy in the ocean with sharks swimming around. I’ve finally climbed onto an island and am relaxing. I did not purposely use those people. I didn’t even know my own bs as most of us don’t, until hindsight affords clarity. Hurt people hurt people. It isn’t nearly the intentional process believe I don’t think.

Now if you realize this is what’s happening and you don’t do something about it that’s a different matter.

Love now:

We know one another’s soul, and yet we learn new small things about the other each day. We become more and more familiar as time moves on. A confirmation of the original hypothesis. The other times were disproving and they were as devastating a loss as any for both parties.

Life is a learning playground is it not? I’ve rarely seen people set out to harm another, that’s a different category all together. But I’ll tell you what I still scan myself often and thoroughly for signs of being what I came from. I still take any feedback that could be construed as negative about me and make sure it’s twisted into that either way. This is one of my greatest areas of work.

Am I taking up too much space with my big feelings? Am I selfish? Am I like them? Do I make people uncomfortable with my rawness, and is that the same As the chaotic discomfort of my beginning. It is not the same. Thank God!

As I work for Vivint I’ve been meeting lots of people who lost their loved one recently or within the last few years, and my empathy as a person grows. After having something like this I get it. I’m already aware of the depth of suffering I’ll have when I lose it. I’ve never been able to cruise along in blissful ignorance, though I’ve often envied (probably falsely) those who have.

If you had told me two years ago that this year I’d be spending trying to get pregnant with the love of my life, I would have thought you were crazy. If you would have told me I would get so close to this dream after so much hard work, and then lose it suddenly and have to push it back again significantly, I would have told you I wouldn’t make it through something like that.

And yet here we are.

The courage of my wife astounds me. Her grace and kindness and gentle soul. Some people are just made angels from the very beginning, and others have lives that make them need one. We are the perfect match. Blissfully she seems to feel it’s the other way around. I’m still trying to figure out how that’s possible.

I am able to know I can be kind and unselfish when things are hard because she believes me to be that person.

I am trying to put this into practice with my children. Coming from a life of hyper vigilance and a huge lack of trust this has been very difficult. I’ve been RE wiring myself as long as I can remember and it’s difficult for anyone who doesn’t know what this work is like to understand the profound exhaustion that comes with it.

I am not exhausted from my children. They are my reason for getting this far. But over the years if you looked at my life you might have thought that, or that I valued my romantic relationships above them. Something I’ve long been accused of. I knew I needed a certain kind of love to heal parts of me, so those parts didn’t damage them. I had the foresight to know this.

And foresight is serving me again with this tragedy we are currently experiencing, because I can already see how the awareness it brings is challenging me to love better.

To my kids: I know it has taken my entire life to become a whole loving person that you deserve. I know this journey hasn’t been easy for you. I think the only redeeming part is that your lives will be better for it in ways you may only ever see when you’re my age. Distance brings clarity. I hope your lives end up as full as mine has been. Full of adventure, challenges, new experiences, real feeling, and the love I worked so hard to find, and to help you connect to it.

I’ve worked to connect with others and myself despite incredible connection difficulties.

And now here I am a connected and real person and boy does it feel different.

During times like this for a small moment I wish I could still be safely disconnected from my real feelings. But that never worked I always felt separate from the humans like that. It was terribly lonely.

I am connected to my self and currently my suffering too, and to the Universe, and to everything.

I am grateful for that. Thats what the smile below is about. It’s a different approach at times to this grief. For me great grief also brings great gratitude I have any of this at all. That I have someone to be sad with and lose something so important with. And we can try again for this, but this love is a once in a lifetime love. It’s the kind that always helps me love myself more, and I needed a lot of that.

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Yale Schmale: Ivf Horror Story

If something doesn’t feel right it probably isn’t. Bottom line. We have had a terrible experience with Yale Reproductive Center. I don’t even want to walk back through those doors. And despite what this will be chalked up to this is not just an emotional meltdown grasping for something to blame in grief. I know all about that. I’m a mental health counselor. This is about trust. You trust a doctor because you think they know more than you, but what was missing here is that they did not care nearly (if any) about us. I’ve felt this way for a long time, but since I wanted to keep my eye on the prize and “stay positive”, like everyone tells you…. I stayed quiet. I stayed quiet through the many alarms going off in my head. My hunch is even our IUI’s could have been planned better and paid more attention to.

I think if they communicated and paid attention then we would have a baby right now. I believe that with my whole heart because of the many evidences of them not knowing what was going on with anything.

And I already know what they can and will do. They will cover up for negligence by the fact we are clearly just emotional. That’s what will happen here. That’s how large medical practices get away with things all the time.

So here is our story:

Worst experience I’ve ever had with a medical institution. You are a number. You see a different “fellow” every time, and your “doctor” one or two times. In my opinion we would have been pregnant long before if anyone in this place communicated with one another. I’m sure you could and then will chalk this up to being in a painful emotion. But that’s minimizing what actually happened here. How many irresponsible things happening with our time, our money, and our hearts.

From not knowing our correct protocol, and if I wasn’t on top of it we would have started taking incorrect medicine. To the fact that the offices terrible communication led to a decision about frozen or fresh transfer to be made immediately while I was seeing clients back to back. The woman called back and asked my wife (I’m a woman we are gay) if she wanted to talk to her husband. We have been patients of yours for over a year, you’re handling the future of our baby and our joy here, and you don’t know who we are?

Then let’s get into the back and forth over frozen or fresh transfer. It’s appearing now that we should have done frozen and we think someone set it up because that was best, but another person said it was borderline. In the end the morning of it took a long time for everyone to get on the same page. We never spoke to our actual doctor at all about this, again a melange of 1st, 2nd, and 3rd year fellows.

I am not a doctor and I was concerned about the high thyroid levels that spiked with the fertility medications, the ones that we tried so hard to get down prior to trying to conceive. Our thyroid checks were not stayed on top of throughout, because no one speaks to each other.

We get a report in the beginning of mono diamniotic twin pregnancy, we are cautious as it’s early. And nervous because it’s higher risk and we know that. We go back in and it appears there is one sac and a hematoma on the other side of the membrane, we are possibly a twin down and we went in for heavy bleeding. At this time we see a tiny heartbeat and are given hope, sent home with a picture of our baby. No one said what I was thinking the whole time. If one twin goes because of a chromosome abnormality and they are identical the other is going. Was it too early to know these things. Sure. Should we have been fully spoken to by our doctor, a full experienced doctor about the risks. The heartbeat was 110, the bottom of the scale, it was on its way out too and yet we went home excited and the staff encouraged that. No one said be cautious and specifics about the mono di.

In fact no other resident even mentioned the twin situation. An actual doctor dr Pal, did the first ultrasound and gave us real info, including how early to tell. We aren’t stupid, but it’s the most questions I had answered the whole time. She did not check on us when we had bleeding, she did not check on us at all.

At this time we were told to come back 3 days later on a Monday to check things. My wife called to make the appointment and they said they didn’t have anything til Thursday. Again if we were told to come for bleeding where is the follow through.

This fertility clinic is the do it yourself variety. This is the target self checkout and if there is an error you better know how to fix it yourself. I have so many questions, so many anxieties, my wife and this baby we want to have are my world. I’m not a number. I’m a human.

So the set up was one baby was ok with a heartbeat and the bleeding stopped fully and we got excited again. And when she went to the ultrasound I was on FaceTime because I’m trying to provide and it’s just an early one. I had been at every other appointment no matter how small. But this one my wife’s twin went with her and I was on FaceTime. I got to hear our baby has no heart beat and probably hasn’t in a week from another different doctor over a screen before my 3 pm client. Again no word from dr Pal. We should have stopped progesterone a week ago so my wife and I could get on with our grief, and we would have known that if they talked to each other and prioritized our Monday appointment. We had just had bleeding. No one cared whatsoever.

Yale gets picked for its name. And I think they have forgotten real human values. It’s a machine, and contrary to their words to dismiss my many concerns they are not “a well oiled machine.” I will never affiliate myself with this group again.

My wife was sent home with a hat to collect our dead baby in and a specimen cup, and a two sided pamphlet about support groups. No word any of the way through our miscarriage from the actual experienced doctor.

The only comfort there are the few gems of nurses we will remember fondly in our hearts. The ones who get it. Doctors became arrogant and lost, and I just plan to learn from that. That I’m not too important to sit with a human and talk to them fully about what they are feeling and going through.

We will be just a statistic to them, an angry customer clearly clouded by grief, but they have a legacy with us.

We will be seeking out a space to share our very intimate fertility journey with people who genuinely show us the attention we deserve when they are getting thousands of our dollars, and holding our hope in their hands. There is a way you treat people and this was not it.

We will not be walking back through the doors of Yale fertility! There is a reason their reviews are terrible. I am so disappointed and hurt with the lack of care we have received.

I will never again put our care in the hands of someone who is an expert in medicine that isn’t also an expert in caring about the individual.