Tag: #parenthood

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Trauma never dies…learning to walk again

It only fades further into the rear view as the years roll on, but it’s legacy lasts forever in the wiring, in the very bones of the survivor.

Let’s talk about trauma for a minute (let’s not and say we did my brain yells). By the way “let’s not and say we did”, is a phrase my mom often said. Not surprising that upon the immediate mention of trauma she comes to mind even subconsciously in the phrase I used. The opposite of that phrase as she continued on was, “let’s do and say we didn’t.” This one more her credo in life I’d say.

Let’s talk about other people’s trauma like I’m the expert my brain tells me, because I’ve worked on mine. I am the healer and the healed is much more comfortable than I am the quivering curled up ball on the floor crying because a trigger happened.

Do you want to know what I think has been holding me back from writing my memoir? Shame, yes of course. And also as long as I can be the therapist and use what I can recognize so effortlessly to help others, then maybe I can just keep moving forward and not realizing and recognizing what an intense effect trauma has had on my life.

It is in all of me, and yet I walk around so assured and so confident. People praise me for this all the time. Only the very closest to me see the physical ailments I often struggle with, the bouts of insecurity and intense anxiety ridden discomfort. The lashing out and responses that are way more than necessary when “disagreed with.” My ex husband will attest to that.

Though it’s not about me not being able to handle someone not agreeing with me. It is always always the suggestion I may be some hideously selfish breed of person or emotionally unstable. That’s my hot button and anyone that’s ever been close enough to me to know it, and disappointed in our outcome, seems to use it. Against all their other knowledge of my many positive attributes and giant soft parts, this will take over.

Ego really is larger than awareness almost always.

We become what we were bathed in, no matter how hard we try, unless we are hyper vigilant to not become it, all the days of our lives.

Do you know how hard I’ve worked to beat my crazy? The things I saw and lived through. I deny that they were even true. Even as a child I took all the responsibility into myself for all the goings on.

I was never a child, there was never a childhood.

I think tenderly of Dexter here. Yes of Dexter, the boy born in blood who wants to be a good person, the one who struggles with his dark passenger because of something he never asked for. Because someone saw the human inside of him he had found a channel to work out his feelings with, that was the most right he could get to given his circumstances. “I’m a very neat monster”, he says. Only later to realize through the power of loving and being loved that he was more human than he ever gave himself credit for. Only to lose his wife and step kids, then his sister, a woman he later fell in love with, and his very own son. The season ends with him having condemned himself in a purgatory of physical labor and isolation. Not the stuff of Disney movies is it?

Thankfully feeling dead inside or the urge to harm anyone was never my burden. Interesting that should even have to cross my mind to be grateful about, but it does and I am. Others are not so lucky as to have whatever this fierce enthusiasm to believe endlessly in the good of human beings, even in the face of such the opposite.

A way I have been unkind to myself is to believe that I suffer from anxiety and chronic illness. Pain, migraines, stomach issues, flushing, extreme fatigue, etc, separately from the trauma that created that.

My spirit fights my body every step of the way. I’ve been fighting for life/light for as long as I can remember. So when a setback touches me, it feels like the entire world I have built will come shattering down. I can know logically this isn’t how it works, and I’ve been my own electrician attempting to re-wire, and build a safe and secure home in my body.

But I’ve been trying to do this largely myself using my will. My will was no longer enough anymore. I needed to find how to allow myself to be loved. I needed to thaw. And now I might need some of my own help with some of this trauma wiring, but I am seeing first hand how difficult it is to find someone to have a full spectrum of knowledge on the topic.

I need trauma body work and yoga and relaxation therapy probably often and probably for the rest of my life. I deserve those things. I deserve to speak about my experience without worrying about wrath coming down on me, not being loyal, or that it will kill me to RE experience this in full color without the careful separation I’ve created for myself from those experiences.

But when we separate ourselves into fragments to survive, piecing the whole thing back together while trying to also do life in the ways it demands is its own purgatory. And these wounds aren’t visible to anyone, but a rare rare chosen few, if ever.

And what if I don’t want to write about trauma? Well there goes my memoir. What if I can’t figure out that careful balance of giving attention to the reader versus feeling sorry for myself. No one wants pity, especially a trauma survivor, it only creates more shame.

How is one to proceed from here?

This is my 100th blog post, it has taken 100 delvings into myself to get to this next peak. Where to from here ? I don’t yet know. But I do know that I will keep going, I have to keep going. But I don’t want to run anymore. I am tired.

I think I’ll need to learn how to walk without fearing being eaten or chased.

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Suffering and Parenting Consciously

Anyone who reads this without a transcription has the patience of a God, lol. But somehow it seems more authentic.

Sometimes I think who writes like this to their kids. And the shame gremlins chime in about how perhaps “children” (though they are not anymore) should maybe not be meant to understand such adult matters. Others two cents have stated that they would have given anything to know what was going through a parent’s mind. There’s a lot of different ways to do things out there. That is for sure.

Given that we lost identical twins and my wife had a D and C five days before Christmas and two before my birthday, the year is off to a slow start enthusiasm wise. We are just navigating this perilous terrain of grief, and I wanted to share something I just realized.

A day deep in grief can seem as endless as a lifetime. Each one day spent seems like a year. Time stands still as if the beating of our hearts just stopped as well…. as if they couldn’t go on. Then for awhile your hollow chest realizes the thump is still there, and the rest of you will have to acquiesce eventually. You know you’re alive, but you can’t feel things the same way.

Everything is different and you never even gave permission for that to be so.

So here we are at the beginning of week two of 2019. Wandering numbly through the mine fields of the memories of our whole experience thus far trying to conceive. Who would ever go back for a second tour I think. But then one day I imagine we will find ourselves smiling at tiny new babies again and our dreams will re-shape themselves from the nightmares they became.

Moments of relief are where we are at now, peppered with lots and lots of sadness shrapnel. As we figure out our new expectations of ourselves, each other, and even consider a plan to move forward.

Daunting or exciting ? Do the emotions set that tone based on where we are at on our grief terrain? Or do we decide we want to be excited, AND accept the moments of suffering that just can’t be avoided as a human being?

We can only outrun or block out the inherent being of suffering for so long, it will get all of us eventually.

A dear friend is reading Eckhart Tolle’s, A New Earth. She shared with me a passage about suffering consciously. Sitting with the feelings and learning from them. That this is the only solace and way to transcend the pits of despair as it were. And even then I shall say from this experience when you’re IN suffering it seems like you’ll never get out. But somehow the resilience of the human spirit can’t help but cut through the dark. We are just made like that.

As a lighter side emerges that Chumba Wumba song, I get knocked down, but I get up again comes to mind… and all it’s silly lines.

I’m just here trying to figure it out. Trying to catch the next wave of joy, even as it seems we are swimming with sharks right now. I refuse to get out of the ocean even if I could get eaten. It’s a strange and marvelous thing this humanity.

I think of Elizabeth Gilbert often. She doesn’t even know who I am, but to me she’s a mother I never had, a best friend, a kindred spirit. I think of her grief of the loss of her partner Reyya. The other day she posted her delight at her Uber driver on the way to the airport, and that you can find joy anywhere. She is so right!

Speaking of her being a mother I never had. It’s funny how she never had children, and that was such a big deal to her at one point, other’s judgments and opinions and her own of that process. And yet I wonder how many spiritual children she has. I am certainly one. She has been a teacher, a warm shelter in the storm, and a friend in times of need. All through her beautiful words she is these. What is a parent if not these things?

Perhaps she chose to sacrifice certain aspects of individual meaning for the whole good of humanity? I wonder if she ever looked at it like that? Rather than selfish …. etc…?

Anyway yesterday my wife and I were in the car and trying to count how long it had been since surgery. We both literally estimated a month or more. We were shocked to find only a little over two weeks. I’m still thinking about this.

Time is irrelevant when it comes to the matters of the heart. I have always believed this to be true.

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How sales is changing me or how is sales changing me.

The new insights that are coming from solar slaying are fascinating. It’s learning people from a whole other angle. In their homes and directly in their lives. A couple is making cream of chicken soup over a beautiful stove, they share warmth and hospitality with me. A man who smokes Newport’s and drinks Budweiser in his pajamas during the day, shares with me that his wife has been cranky lately because he has lung cancer.

New couples trying to afford to live and make it in this world, financially and emotionally. Being out on the doors as we call it and talking to people is also much like doing therapy. But I can see even more of their lives, and therefore learn more is the idea there maybe. But then I am only with them a brief time and the temptation to drop by with flowers or to stop in for a coffee is always present. I closed a deal last night and the woman seemed so sad I wanted to reach out and comfort her. I can still see her grief filled eyes and I want to do something.

Should I, shouldn’t I!? The answer is you always should when you can. Perhaps I’ll bring her flowers. The resilience of people astounds me. Recently I am included once again in this category but in a new way. We have suffered a great loss and are currently waiting for a new equilibrium as a result.

I’ve had many blog posts bouncing around in my brain like many a brightly colored rubber ball, but then the energy dwindles as fast as it comes and my pursuits are demanded elsewhere.

Some things I’ve noticed so far on the doors is that my brain moves even more frantically and settles in to write less. Produce produce produce. There is always some incentive and always the want for more. I already know ahead of the curve that once the money starts coming in, the desire for more will pique. What was once unheard of will become normalized and you’ll need more to be excited.

Life normalizes invisibly and we don’t realize it until often our behaviors have caused us issue. Many a change we never saw coming. My gift is seeing ahead by the way if intuition and much life experience to draw off of, and a deep understanding of human behavior.

This is yet again when I have to put some work on knowing my boundaries and what my priorities are, otherwise I will be swept up in the hustle. The glitz and glamor of it all. The streets that are paved with cheese. Notice I said cheese and not gold. Any small sentence can give you a clue into a human beings deepest desires.

The promise of more… there can always be more. But more is not always more of what you really want. So it’s sort of ironic that I’m working more and more on (not to be confused with moron;) ), to get to a peace filled existence of writing, reading, and being present with those I love. Is it the way? Or is this just another learning curve on the way to the way. As if there was just one way.

Will this cabin on this sacred space be an answer to my writer’s heart? A spiritual healing. Will the idea turn out as I imagine it to be ? Or will it be sinking a 50,000 (ish) ship and that being yet another lesson. Oh the woes of being a whimsical risk taking dreamer, versus a pragmatic, careful, financially minded planner.

Could I become a “salesman” that becomes more and more hungry and just keep telling myself it’s for my family. So many do you know ?! Probably the smartest course of direction would be to pay off my student loans and invest. Who else can pay off their student loans in the span of one year? That is the promise here. That’s always the smartest course of action. In the real dream scenario I will be able to do both, but that will require time and sacrifice.

If you asked my kids they would probably tell you they just want even five minutes of true presence from me over all the riches in the world. If only I had ever loved myself enough to know that when they needed it even more. But that as usual is the harshest possible version. The truth usually lies somewhere in the middle. And I forgot the long ago truths such as how I didn’t have to balance work and motherhood in the early years.

It was me who held them every single time and I looked down on them with a love burning with the power of a thousand suns. I remember that in moments, but the trick is they can’t. Their logical memories can’t anyway, perhaps their feeling ones can. Perhaps that’s why they do so well now, but because I pushed them so hard, but because I loved them better than I give myself credit for.

There are many ways to love. For me as a mother my love was shown primarily by working on my self so carefully so I didn’t cause them some of the damage that was bestowed upon me. Somethings with that plan worked really well, and others left something to be desired for.

But either way my every though in every breathing moment of my life all comes down to them. It doesn’t matter how caught up in dreams of love I was and then they crashed and burned. What I saw as my motivation and my dreams always had them in mind. This is something I rarely gave myself credit for when I listened too much to the critic(s).

Isn’t it interesting how different the idea of what I will write is compared to what I actually do? The post I thought I had inside was much reflection on the past year, and how I want to use that in this new one. It will probably still come, but this is what was on the presses today.

Hot off the presses of my mind. A life lived quite uniquely, or perhaps not at all. I just am not privy to the many other minds like mine out there.

Happy New Year everyone! I can’t wait to see what adventures 2019 brings all of us!

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Connected

*I guess we are all one phone call from our knees. *

I don’t think I could have bargained for all the gratitude this experience is bringing me. I can’t feel it too much yet, everything is just so painful. But I know that it’s there, and growing, and that this experience has already profoundly changed me.

If I do it right it’s going to make me realize all the things I take for granted each day. It’s going to make me realize what a gift and blessing my kids are in a new way.

We need to hit the refresh button on life often folks! Not just when bad things happen, but consistently. Not just once a year. Refresh, open your eyes, and look around at the landscape of your life.

My God I could have never imagined this. I never believed I would trust or love myself as much as I do now.

I would have never believed I’d be here living out my dreams. Here I am.

It’s interesting to choose a person early on because of a hunch and an intuition and then watch them unfold and get to know them with faith and trust the rest of your lives together. Love grows as you go through things. We have been through a lot this short time together.

Prior to this I moved quickly into love also, this was a need based approach it wreaked if desperation and seeking a buoy in the ocean with sharks swimming around. I’ve finally climbed onto an island and am relaxing. I did not purposely use those people. I didn’t even know my own bs as most of us don’t, until hindsight affords clarity. Hurt people hurt people. It isn’t nearly the intentional process believe I don’t think.

Now if you realize this is what’s happening and you don’t do something about it that’s a different matter.

Love now:

We know one another’s soul, and yet we learn new small things about the other each day. We become more and more familiar as time moves on. A confirmation of the original hypothesis. The other times were disproving and they were as devastating a loss as any for both parties.

Life is a learning playground is it not? I’ve rarely seen people set out to harm another, that’s a different category all together. But I’ll tell you what I still scan myself often and thoroughly for signs of being what I came from. I still take any feedback that could be construed as negative about me and make sure it’s twisted into that either way. This is one of my greatest areas of work.

Am I taking up too much space with my big feelings? Am I selfish? Am I like them? Do I make people uncomfortable with my rawness, and is that the same As the chaotic discomfort of my beginning. It is not the same. Thank God!

As I work for Vivint I’ve been meeting lots of people who lost their loved one recently or within the last few years, and my empathy as a person grows. After having something like this I get it. I’m already aware of the depth of suffering I’ll have when I lose it. I’ve never been able to cruise along in blissful ignorance, though I’ve often envied (probably falsely) those who have.

If you had told me two years ago that this year I’d be spending trying to get pregnant with the love of my life, I would have thought you were crazy. If you would have told me I would get so close to this dream after so much hard work, and then lose it suddenly and have to push it back again significantly, I would have told you I wouldn’t make it through something like that.

And yet here we are.

The courage of my wife astounds me. Her grace and kindness and gentle soul. Some people are just made angels from the very beginning, and others have lives that make them need one. We are the perfect match. Blissfully she seems to feel it’s the other way around. I’m still trying to figure out how that’s possible.

I am able to know I can be kind and unselfish when things are hard because she believes me to be that person.

I am trying to put this into practice with my children. Coming from a life of hyper vigilance and a huge lack of trust this has been very difficult. I’ve been RE wiring myself as long as I can remember and it’s difficult for anyone who doesn’t know what this work is like to understand the profound exhaustion that comes with it.

I am not exhausted from my children. They are my reason for getting this far. But over the years if you looked at my life you might have thought that, or that I valued my romantic relationships above them. Something I’ve long been accused of. I knew I needed a certain kind of love to heal parts of me, so those parts didn’t damage them. I had the foresight to know this.

And foresight is serving me again with this tragedy we are currently experiencing, because I can already see how the awareness it brings is challenging me to love better.

To my kids: I know it has taken my entire life to become a whole loving person that you deserve. I know this journey hasn’t been easy for you. I think the only redeeming part is that your lives will be better for it in ways you may only ever see when you’re my age. Distance brings clarity. I hope your lives end up as full as mine has been. Full of adventure, challenges, new experiences, real feeling, and the love I worked so hard to find, and to help you connect to it.

I’ve worked to connect with others and myself despite incredible connection difficulties.

And now here I am a connected and real person and boy does it feel different.

During times like this for a small moment I wish I could still be safely disconnected from my real feelings. But that never worked I always felt separate from the humans like that. It was terribly lonely.

I am connected to my self and currently my suffering too, and to the Universe, and to everything.

I am grateful for that. Thats what the smile below is about. It’s a different approach at times to this grief. For me great grief also brings great gratitude I have any of this at all. That I have someone to be sad with and lose something so important with. And we can try again for this, but this love is a once in a lifetime love. It’s the kind that always helps me love myself more, and I needed a lot of that.

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Waiting: Darkness to light. Floundering to faith.

Waiting. We are heavy with it. Heavy with an irritability and sadness that is uncharacteristic of our lives together. Both breaking and numbing at different times. Both on our own journeys; separate yet together.

Humira injection day, plus PMS day, plus emotional devastation slowly settling in and also crashing down: its more than feels bearable.

I want to eat bad things and be numb. I know it makes it worse, but sometimes the inertia is too powerful. I try and get up but it feels like I have on lead boots, and a heavy lead plate across my chest. It seems to take a gigantic amount of effort to do anything but stare off into space. I wish I could just sleep for the next few months. Hibernate and recover and wake up ok, skip the inevitable steps.

We are fucking waiting to expel our dead dreams and it is excruciating. When is it going to begin? How painful will it be? Will we see it? Should we capture it in a tiny cup for testing.

People may go through this all the time it may be common etc etc; but I guarantee you for each one of those people that didn’t change their own personal experience. The way they made sense of it, or couldn’t.

I want this extensive time alone away from the world to understand this, and to hold my wife and keep her sheltered through each wave. Except that isn’t an option. You just keep going. Sure you take moments, but you just have to keep going. Or I do anyway.

I also couldn’t have bargained or known the anxious thoughts that would plague me. The nightmares, the wakefulness when I need to rest. My mind spinning into outer space like an astronaut that’s been lost in space.

Speaking of space and my mind I can’t seem to grasp onto any clear thinking.

We ended up watching Bruce Almighty. I’ve referenced this movie hundreds of times. Somehow Courtney has never fully seen it. And watching her laugh and watch it tonight was such a pleasure. She makes my whole world better.

It’s only with a raw and open wound that we can sometimes see things we didn’t before. I loved this movie for years, it helped me learn not to feel sorry for myself. It helped me learn how to get outside my stories of tragedy and truly see the world with gratitude.

We are just sitting here caring for one another and making it to the next moment filled with joy. We truly are in a love that will weather for better or for worse, and this is what I’ve always asked for.

The rest I have to just keep having faith through. Faith in myself, faith in more good than bad at the end of the day. Faith over fear. To find my way back from my experiences seems unthinkable, but here I am…..

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Yale Schmale: Ivf Horror Story

If something doesn’t feel right it probably isn’t. Bottom line. We have had a terrible experience with Yale Reproductive Center. I don’t even want to walk back through those doors. And despite what this will be chalked up to this is not just an emotional meltdown grasping for something to blame in grief. I know all about that. I’m a mental health counselor. This is about trust. You trust a doctor because you think they know more than you, but what was missing here is that they did not care nearly (if any) about us. I’ve felt this way for a long time, but since I wanted to keep my eye on the prize and “stay positive”, like everyone tells you…. I stayed quiet. I stayed quiet through the many alarms going off in my head. My hunch is even our IUI’s could have been planned better and paid more attention to.

I think if they communicated and paid attention then we would have a baby right now. I believe that with my whole heart because of the many evidences of them not knowing what was going on with anything.

And I already know what they can and will do. They will cover up for negligence by the fact we are clearly just emotional. That’s what will happen here. That’s how large medical practices get away with things all the time.

So here is our story:

Worst experience I’ve ever had with a medical institution. You are a number. You see a different “fellow” every time, and your “doctor” one or two times. In my opinion we would have been pregnant long before if anyone in this place communicated with one another. I’m sure you could and then will chalk this up to being in a painful emotion. But that’s minimizing what actually happened here. How many irresponsible things happening with our time, our money, and our hearts.

From not knowing our correct protocol, and if I wasn’t on top of it we would have started taking incorrect medicine. To the fact that the offices terrible communication led to a decision about frozen or fresh transfer to be made immediately while I was seeing clients back to back. The woman called back and asked my wife (I’m a woman we are gay) if she wanted to talk to her husband. We have been patients of yours for over a year, you’re handling the future of our baby and our joy here, and you don’t know who we are?

Then let’s get into the back and forth over frozen or fresh transfer. It’s appearing now that we should have done frozen and we think someone set it up because that was best, but another person said it was borderline. In the end the morning of it took a long time for everyone to get on the same page. We never spoke to our actual doctor at all about this, again a melange of 1st, 2nd, and 3rd year fellows.

I am not a doctor and I was concerned about the high thyroid levels that spiked with the fertility medications, the ones that we tried so hard to get down prior to trying to conceive. Our thyroid checks were not stayed on top of throughout, because no one speaks to each other.

We get a report in the beginning of mono diamniotic twin pregnancy, we are cautious as it’s early. And nervous because it’s higher risk and we know that. We go back in and it appears there is one sac and a hematoma on the other side of the membrane, we are possibly a twin down and we went in for heavy bleeding. At this time we see a tiny heartbeat and are given hope, sent home with a picture of our baby. No one said what I was thinking the whole time. If one twin goes because of a chromosome abnormality and they are identical the other is going. Was it too early to know these things. Sure. Should we have been fully spoken to by our doctor, a full experienced doctor about the risks. The heartbeat was 110, the bottom of the scale, it was on its way out too and yet we went home excited and the staff encouraged that. No one said be cautious and specifics about the mono di.

In fact no other resident even mentioned the twin situation. An actual doctor dr Pal, did the first ultrasound and gave us real info, including how early to tell. We aren’t stupid, but it’s the most questions I had answered the whole time. She did not check on us when we had bleeding, she did not check on us at all.

At this time we were told to come back 3 days later on a Monday to check things. My wife called to make the appointment and they said they didn’t have anything til Thursday. Again if we were told to come for bleeding where is the follow through.

This fertility clinic is the do it yourself variety. This is the target self checkout and if there is an error you better know how to fix it yourself. I have so many questions, so many anxieties, my wife and this baby we want to have are my world. I’m not a number. I’m a human.

So the set up was one baby was ok with a heartbeat and the bleeding stopped fully and we got excited again. And when she went to the ultrasound I was on FaceTime because I’m trying to provide and it’s just an early one. I had been at every other appointment no matter how small. But this one my wife’s twin went with her and I was on FaceTime. I got to hear our baby has no heart beat and probably hasn’t in a week from another different doctor over a screen before my 3 pm client. Again no word from dr Pal. We should have stopped progesterone a week ago so my wife and I could get on with our grief, and we would have known that if they talked to each other and prioritized our Monday appointment. We had just had bleeding. No one cared whatsoever.

Yale gets picked for its name. And I think they have forgotten real human values. It’s a machine, and contrary to their words to dismiss my many concerns they are not “a well oiled machine.” I will never affiliate myself with this group again.

My wife was sent home with a hat to collect our dead baby in and a specimen cup, and a two sided pamphlet about support groups. No word any of the way through our miscarriage from the actual experienced doctor.

The only comfort there are the few gems of nurses we will remember fondly in our hearts. The ones who get it. Doctors became arrogant and lost, and I just plan to learn from that. That I’m not too important to sit with a human and talk to them fully about what they are feeling and going through.

We will be just a statistic to them, an angry customer clearly clouded by grief, but they have a legacy with us.

We will be seeking out a space to share our very intimate fertility journey with people who genuinely show us the attention we deserve when they are getting thousands of our dollars, and holding our hope in their hands. There is a way you treat people and this was not it.

We will not be walking back through the doors of Yale fertility! There is a reason their reviews are terrible. I am so disappointed and hurt with the lack of care we have received.

I will never again put our care in the hands of someone who is an expert in medicine that isn’t also an expert in caring about the individual.

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The unthinkable

*also please don’t tell us it was early or it will all be ok, tell us it’s ok to express our journey as we see fit, and that you will hold us through our pain.*

What they fail to tell you when you’re a survivor of trauma, huge life transitions, and vicious ongoing self-development; is that you won’t hit a place where human suffering becomes less. Unknowing of this you will keep searching. Maybe the beauty is that you search anyway.

There is a certain amount of entitlement that a survivor has. They almost expect that if and when they have worked hard to turn their stars around that life will grant them a time to sail peacefully. Perhaps I am not capable of sailing peacefully, because I’m too determined to fill every page. I fill in the margins, and the back, and the top, and then I make notes around that too.

My best friend calls it defying gravity.

We thought we could defy gravity with science and this time again is not the one for us. Again.

It has however allowed me the opportunity to view with extreme clarity the many changes in myself that have occurred over the last two years. It has allowed me to know I won’t shatter into a million pieces. It’s allowing this unique look at my sensitivity. I thought I was Teflon before, and that was all wrong. You are not Teflon until you have experienced unspeakable loss. And even then soft can never be Teflon, you may think you are, but you are not.

I thought I experienced suffering before, but this is an entirely different ball game. This time I’m attached to all my feelings. This helps me understand why the body has such elaborate defense mechanisms in place, because we humans have soft skin and tender hearts for a reason. We are meant to connect with others and to commune with our innermost voices, and yet so many of us become so different as a result of the world we live in. It is not a place for soft skin and warm smiles.

This inevitable contradiction blinds me with pain on a daily basis.

I was working so hard to be able to have time to relax with family, and now again crisis takes precedence and our time off together becomes grieving. This is one of the worst parts. Thinking of getting back into the swing of work, or talking about it without crying.

Watching her is the worst part. Watching her wonder if she could have done something differently. Watching her wracked with sobs. It cuts through me. And now we wait to see if her body will expel is naturally or if we go for a D & C. Wondering if our donor and her are in some way incompatible and thousands of dollars are wasted. Wondering if we can’t have one at all. If we will. If I even think I could make it through this again.

This isn’t just one loss, and “it’s early”, and you have more frozen embryos. This is a year of waiting to exhale. Focusing, surrendering, sacrificing all our time to relax and play together for appointments, needles, injections, tests, poking and prodding and at the end all that hard work is supposed to pay off.

Except that isn’t how the world works. Also while I know I’m angry right now the word Yale means nothing to me. Perhaps I’ll write out experience in the next blog post because I need to get it documented anyway. Just because a couple of nurses are kind does not make it comprehensive or a good experience. After the bleeding we were told to go back on Monday for an ultrasound, they didn’t have an apt Monday (even though we were told). No communication that this was a necessary appointment, that if one twin was lost the other might follow.

Except we were elated by that tiny heartbeat on the screen. Ok good we have one. Not at one point did anyone even know what was happening in there. With our chart or file. No one has checked on her. Our Dr does not care, we have ten doctors.

We had to decide frozen or fresh transfer at 5 pm when I had clients all evening and then no one knew what was happening. A lady called my wife and said you’ll need to discuss this with your husband. This is a fertility clinic for crying out loud. They aren’t used to same sex couples? We had been attending a year and you don’t know us? It was so frustrating, but we let ourselves block it and so many other things out because eye on the prize.

A doctor who was seasoned and knew what they were doing would have warned that mono di twins might be different, the heart rate was in the lowest end of the spectrum. Yet we came home with an ultrasound picture and hope in our hearts. I think they could have known at that time if someone was paying attention. Yale is a fertility farm and we were cattle. I’m furious. I kept chalking up my frustrations to normal things on my end, but looking now at all the dropped balls.

We are going to take our 4 remaining babysicles somewhere else. Norwalk I think. I’m done. I wonder if they see too much extreme hope and extreme suffering and have had to desensitize themselves completely?

And before that we need a vacation. I’ve missed my wife for a year. We need to give some tlc to us and our relationship, and find a new normal. This dream is just too painful right now.

We have other things to focus on for awhile.

At least I get to know I wouldn’t want anyone else to go through something like this with. Rather than tearing at one another we are careful and kind. The other is sacred to us, and that is an irreplaceable gift in this world.

Back to square one…. again..

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We don’t love like the humans do….

This experience is leveling me to the ground. And whilst I am laying here I can see perfectly clearly using my lenses of hindsight.

I never noticed what a true miracle the three kids I have already created are. They are miracles. They made it through pregnancy, through my immature phases, through so many changes. They love hard still. They are wide open and warm. And I have hardly had the vision to notice this. I think if I had I would have spent day and night afraid I would lose them also.

My children have had to wait for me to come back to life from traumas so severe my only choice was to become numb and survive. The mechanics that make you that way do not lend to calm and gentle seeing presence.

“You cannot be everything you want to be before your time.” I have always wanted to be everything for them.

I love them more than I am able to convey in ways that feel like presence to them. Some people I’m guessing are able to choose to abandon any other thing to choose one. Their kids are their entire meaning. My kids are also, but if I didn’t make my own growth and healing a priority I would have only ever been able to love them at 50 percent capacity of my being.

They would have seen pain behind my eyes. You cannot hide things from children. You can lie to yourself that they don’t see, but children see the world much more clearly than us jaded adults do. They are much more capable of magical thinking and beliefs and therefore likely to be able to be happy, creative, and kind.

I know no matter how I look back I will always see the things I missed, some of them quite profound. I was there, but I wasn’t. If I couldn’t be fully present with myself, if I abandoned her too because that’s what I knew, of course I would be too afraid to accept their love and endless faith in me.

I am often envious of the partners I have given my children too out of desperation. Financial desperation, anxiety desperation, fear of myself as a mother desperation. It has often felt like I would be swallowed by my feelings. So I saw these happy people who were functioning and I wanted them to always have that. I could be more of what I was around. I was just trying to choose the right thing to model myself after.

So many times what looked warm and safe turned out to be much different underneath. An in tact family is not the only criteria for a good situation. It took me years to learn that. To see through the very alluring most attractive parts to me.

When you have subsisted on crumbs for so long, half a moldy cookie on a table looks like a Thanksgiving feast. And this is an expression of my path and pain. No person I have ever shared my heart with was a moldy cookie. The health of the relationship for various reasons (many due to my attachment fractured beginning), was the rotten part.

Some family of any kind is better than none right ?! So why wouldn’t I have stayed? Stayed for the kids, stayed for me. Perhaps many of the kinks would have worked themselves out over time, or perhaps I knew beyond my consciousness in some way what was best for us. This thinking seems correct based on where we are now.

But what have I caused up til this point?

And you see there it is. Taking responsibility for everyone and everything.

This is a product of trauma. The person is forced to become self-sufficient to a level beyond them, and this is a side effect. And later in life they suffer immensely trying to be an island, needing to be one, but also wanting to belong and connect. The obfuscation is immense. The dark wood feels seemingly endless.

Until that one person, or many along the way, see something in them they can’t yet. Hence the reason I am a counselor, it wasn’t a choice, it was written in the muddled beginning.

I needed people to see the good in me. I needed it so much that was the only factor it took for acceptance into the fold of our family. It fed me to be seen. I have been accused of feeding off of others to meet my needs. And I accepted that fate again as the bad guy, but finally I am able to see there is so much more to that story.

We watched Cheaper by The Dozen last night. A comfort. It was making me think of all the movies that have resonated with me over the years, made me get goosebumps, and how I would watch them over and over, and listen to songs over and over. People would tease me about my love for sappy movies or my behavior of repeatedly watching them. But these were me comforting my heart and shaping my dreams. Watching stories of people’s lives drafted in artist interpretation. Trying to find something to model after.

It would take me a long time to differentiate the romantic portrayal of movies and the grit it actually takes in real life to create a healthy and thriving family.

I wanted my story to be something more than it felt the first half of my life. I’ve fought tirelessly for that. And the fight has left me so exhausted in my soul, that often times regularly expected trials and tribulations of life now feel too much to bear. And it doesn’t take much invalidation, even and especially accidental, to wound me. Just think positive, well yes but that takes for granted every way that has wired me as far as my experiences. “You’re too introspective, you’re exhibiting frightening mental states like your mother.”

For me I just need to vent my feelings. To know they are there. To pinch myself to make sure I’m still capable of feeling. To lay my hand across my chest to make sure it still rises and falls.

The love of my life understands this about me. This line brought more tears to my eyes. There have been many the past two days.

I’m trying to accuse myself of wanting more than I already have right now. Worst case scenario-ing my character at every turn. It’s what I am best at. My very own valid feelings end up becoming some fatal flaw. And this is what I am working on in myself right now.

I have to make sure this life I have often rushed to create now takes into account the feelings of all participants and not just mine, I wasn’t so good at that in the past.

But I see I didn’t just force this onto my family, this is all of our dream now. We have always wanted another child to share our love with. I have known that from the time one of my best friends rented our downstairs and gave birth to her son in this home. As I often kidnapped him for snuggles and a bottle.

I have accused myself of wanting children for selfish reasons, and not because I have all that is required inside of me to properly nurture them. I will always be hyper vigilant that I may not. If you saw what I came from you would understand.

I have long wished I could just play some scenes from my childhood back on a tape so that the people knowing me could know. I’m torn between not wanting them to feel sorry for me, see me differently, and between desperately seeking understanding for the differences in me that feel like the separate me from the humans.

Thankfully I am loved by someone now who can see it without having me show them, and they love me harder for it. And that extra love that was missing has filled in all the gaping holes.

I am healing. I am still healing.

It’s no co-dependence, it’s not taking advantage, it’s not pathology, it’s not selfishness. It is healing. It’s taken this much. I could have turned out so many ways. But what I need for those I love to know the most is I’ve worked so hard on myself so I can belong with them. So I can feel my heartbeat near theirs, and not shrivel away for fear of damaging them with my damage.

We want to bring a child into the world to share all of what we have learned in our new story together. The kids want this baby too, and the transition from “babies” to baby is utterly painful right now. Seeing my wife’s pajama bottoms with the blood soaked through on the floor still because we were too exhausted yesterday to do anything about it is devastating. Not knowing whether the rest of the pregnancy will make it through this turbulence or not is gut wrenching. And that’s all ok. I still love my first kids that much too.

I still know it was early and blah blah. I feel things this much. So fucking what! This is who I am. It’s how I’ve been made, and I can’t help a thing about it. Except to do this (write) to cope, and to allow my story to be shared, whether or not anyone reads it.

So here I am wide awake with all my feelings always at the crack of dawn. In my morning watery womb of my own creation RE-birthing myself daily into the person I know I can be.

Here I am wondering with faith in one hand and science in the other, and what the universe has in store for our family.

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These Dreams Go on When I Close my Eyes….

So this morning I am scheming and dreaming. I’m at the vision board and I’m designing.

The goal: my wife and I want as much time together as humanly possible. We found each other late in life. I understand with extreme clarity the fragility of our time together, and I don’t want to spend it in an ordinary way. What I mean by this is toiling and only having a free few moments together. I don’t want to be rich in money, I want to be rich in time. And it would seem though that money can buy time, and as long as you don’t spend ahead of the making, and get above your means, I think this can be achieved.

This is what I’m thinking about most of the time lately. Originally I had hoped to do this by writing a book. However as I learn myself more and more, I realize that to sit quietly I need time, and to get quiet time I need money. And with twins on the way I’ll never have that hehe 😉 but I still think I can do it. I always think I can do it. It is this naïve enthusiasm that has powered me this far.

Couldn’t we all have more naïve enthusiasm?

The problem: My wife is a 911 dispatcher and 7 years invested in a pension. And she holds our amazing health benefits that keep my Crohn’s securely cared for and has funded our IVF. Her schedule is terrible. She works 7-3 one week then 2 days off and then 3-11 the next week and 3 off after. We can never get into a schedule and I cannot imagine how she will do this with twin babies. Her commute is an hour plus filled with traffic. And her job is a lot of sitting to which her body feels as if it’s falling apart. It has gotten us this far, but we have added so many other elements to the story we are going to need a change.

Needs: good benefits for us 4, the big kids have Tricare insurance through their father. A flexible schedule to be able to take care of the kids. Less commute, more time together. Yes these are needs, not wants. So this is a tall order right ?! But how can you say it doesn’t exist if we don’t look? At this point we could have a reality tv show 😉

So we need to find her ideally a part time job with good benefits that she can enjoy, but have most of her time at home crafting and being a mom like she wants and loves. Something she can be active and engaged doing what brings joy to her.

So if you want something different you have to lay blueprints to those dreams. Then you have to ask, look, research, and not stop until you’ve found a solution. There are always many solutions it just never feels like it because our minds are wired to see potential danger. We don’t see possibility nearly as often as we see the potential for a harmful outcome. Fear rules the roost.

Our dreams: time together raising our family, having the means for a vacation together and to see Hamilton as a family, having a family cottage we can create memories in and mom can write a book, our little identical twins make it safely into the world, Tyler gets into the college he wants and transitions as smoothly as possible, our family will love and accept us and want to be engaged in our lives, writing and sharing our story, and there are many more! Oh and paying off student loans and financial freedom to buy time together.

To enjoy life. To really taste food. To get goosebumps more often. To art. To cry regularly. To love gently. To encourage and nurture humanity in humans. To be kind. To learn new things.

In other news I have been enjoying talking to people, walking in neighborhoods, fresh air and perspectives. I am enjoying the newness of it all. I’ve also begun to feel the heat a beat of less relaxation and more my mind spinning towards one task or another. And scheduling has been hell! Trying to fit dr appointments, knocking time, trainings, meetings, baby appointments, kid appointments, client appointments, and the list goes on.

I have long known that this level of chaos feels at home for me, but also parts of me have changed in that regard without really knowing. When I am busy and engaged I am happy. It’s no longer trying to outrun something, but more an energy fueled be enthusiasm. Yes that’s it! I’m not running away, I am running toward. And I feel good about myself in the world.

If you would have seen me 5 years ago, my struggles, my behaviors, my outlook…. you wouldn’t even recognize me. Life is all a matter of perspective, self-acceptance versus critical abuse, and finding connections that energize your soul.

I had to pick this post up later, and I’ve been very scattered. I would guess it reads that way. Life is a jumble when you’re in the midst of change, and it’s difficult for most to tolerate that feeling. I’ve lived on a healthy dose of it my whole life, and have found the payoff to be quite grand.

Write a new blueprint anytime you want to make a chance, you are after all the lead architect of your life, and you don’t want fear getting a heavy hand in your project.

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Big Dreams growing even Bigger

*I was pleasantly surprised to find this morning that even though I’ve prioritized some different matters lately, I am still a writer. This is an actual text I wrote to my wife this morning. “Babe I’m not out here separate on my own creating dreams and you asleep in bed. I’m out here trying to reach dreams because of how tenderly you wrap me in every fold of your heart. No one has ever loved me like you do. Not even a parent ever. Don’t you know what that means.”

I love a good blogging on a Sunday.

I was thinking this morning how amazing a thing it is in humanity that we can try on new ways of being in each new day. I think sometimes we forget we can give ourselves this special permission. It’s so exciting to try something you haven’t done before. Upset about your sex life? Do something about it! Go buy an outfit or read a book by someone blessed with the ability to have found openness in that department. Ps they never look how you think do they? We picture kinky sex goddesses and then see the author and surprise it’s just a normal person of average height and size.

Funny before I wrote this sex wasn’t close to my mind, ha. It’s odd how life and the mind work, and these days I am loving not having it figured out. But seriously take anything you’ve wanted to try or be more of. Want to be more adventurous, plan an adventure. Don’t think about it just pack enough stuff in a bag for the night drive away and stay somewhere. Stay in an air bnb, meet new people, eat at a new place. Actually taste your food, rather than eating on the go.

Have kids and think adventures like that are no longer yours? Make whatever you’re doing an adventure. A trip to the grocery store can be an adventure. Try a new sample, pay a person a compliment, drive a different route there and take a walk.

Anything can be an adventure!

A dose of mindfulness can bring magic to the mundane. Anytime, anywhere, anyhow. It’s all in your mind and your story.

Want to try a different kind of job? Do it! Where there is a will there is a way and if we plant an intention and water it with curiosity and exploration, anything can happen.

Many of my important a ha moments and inspiration for dreams have been brought about by movies. Which is really watching someone’s creative endeavor about a story right? So in my quest for love there have been some key movies. Julie and Julia helped me know how I wanted to treat and be treated in relationship. Watching Stanley Tucci and Meryl Streep delight in one another. That movie was more me than I was at that time, and it gave me a road map to my dreams.

A roadmap to my dreams was carefully wrapped in a 90 minute film that many might consider corny or not worth their time, but for me it resonated. A roadmap to our dreams can be anywhere. It can be hidden in the most obvious place. All you have to do is look with the magical gaze of childlike enthusiasm. Somehow I never lost mine. I thought I had, but when I met the love of my life it opened like a dam.

I’ve been blooming with creativity ever since and the courage to accept my dreams that have been laid here before me all along.

Another one of these movies was Cheaper by the Dozen. My favorite line was Steve Martin and Bonnie Hunt looking over their high school yearbook and that one of them wrote to the other, “I finally found someone whose dreams are as big as mine.” I think of that line all the time in my current love. And of course my mind that was afraid to accept my own greatness thought well that’s just a movie, and of course in the movies people always have enough money etc. and that was just another way I told myself I wasn’t worth my big dreams. And I held myself back.

So not too long back I wrote about a dream about a cottage on a nudist colony in Woodstock Connecticut. One where I can write naked a jay bird and in my most authentic. A place that is free from all varieties of shame. My shangrila if you will.

But how would I do that? I was behind as usual, which is why my constant inner fairy godmother led me to solar, and here I am. I refuse to give up. So now I am banking the funds for my cottage in the woods. I mean look at this place?!!

Cottage is a bit of an understatement eh?!

Anyway so let’s do a dream checklist? Though I’m thinking of an art project that involves a dream map, and all the places the my roads diverged, and then when I have arrived so far….

Feeling like I belong: check

A healthy, respect filled, glowing love: check

Financial stability: while I often still have fears around this: check

Kids healthy, safe, and know they are loved: check

Education on a career that I adore and am passionate about: check

Writing: check

Self-love: so so much further towards this check than I ever was… in progress as always

Life still being filled with adventure: check

Big family: double check. Double being the operative word here.

Anyone see what’s going on in here ?! It’s very early to be completely sure, and can we ever be completely sure of anything ? But it looks like we are going to be having identical twins. We know they are identical because we only transferred one embryo from our IVF cycle.

So please sign us up for family of 7 reservation to our colony cottage. Mini-van and sanity checks necessary. 😉

Now just to wait and see if they are boys or girls….

And a fond shout out to the one who makes all these dreams possible my lovely wife. My wife who has endured hormones, injections, and poking and prodding over the last year that I’m quite sure she never anticipated in her life. An egg retrieval procedure, and then an embryo transfer. My wife who is battling through fatigue, 3 x daily progesterone insertions, nervous anticipation, nausea, new aversions and smells, bloating, and all the while enduring a horrific commute and protecting our streets by day and night.

My wife and my kids are my heroes and my biggest inspiration! They are holding down the fort and cooking meals, while I am knocking doors day and night to fuel our many giant dreams.

I am blessed beyond explanation, but par for the course, that doesn’t mean I’ll stop trying.