Tag: #lifeinyourownway

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Hamilton: What will our play be called ?!

Thank you for seeing me in this way, for delighting in me and in us. It has literally saved our emotional lives. We had our physical lives before you, but our emotional ones are taking such beautiful shape now. And I want to write about it. I want the world to know your bright love. And I what we have created here. 

The image suggests perhaps a playful post about our experience in the city. Wouldn’t that be a more pleasant read ? Perhaps it would, but it wouldn’t be written by me then, at least not tonight. 😉

This blog post is a letter I wrote to my wife tonight. Whether or not all things are meant to be shared I think there is always a power in it for someone. This letter bled straight from my fingertips, it fell onto the page in waves of truth that couldn’t make their way out fast enough. A catharsis. Isn’t it always. If someone else has a different experience with those words who am I to stop them.

Clicking publish has always been an act of bravery…. one I never gave myself much credit for. Warning it begins with graphic Crohn’s Disease material exactly as I experienced it.

I had a stomach episode tonight unlike anything I’ve ever experienced. I thought I was going to have you have to call 911. I almost screamed for you. Literally. I had visions of me passing out and dying on the toilet. I woke up doubled over completely, and I mean completely. I hobbled to the toilet. I didn’t know if I would vomit or faint. I felt like all 3. I felt like I was going to have to poop but didn’t know what thing would come first. It felt like I was being ripped in half. My shirt was completely soaked, completely, and contrary to the scary fast heart rate I will have usually during an attack my heart felt like it couldn’t even beat, it was low 50’s. 

I just held on and tried to breathe deep as I could through the waves of pain and head swimming until finally I pooped literally probably 3 toilet bowls full. It wasn’t all at once. First was getting the hard part out, and then a ton came. 

By the time I was done I was left shaking and freezing and now I’m more wiped out than you can ever imagine. I just can’t even quite describe the pain.

A couple of things happened. One, I felt a tremendous wave of compassion for V and guilt at not feeling more present. It’s like I can’t weather watching her suffer and I must because I’m mom. What a confusing thing. And two, intense fear that having not taken my injection even for a week has thrown things into some terrible state with my health. What if?! And what if V is in for a lifetime of chronic suffering with her tummy that impedes so much of her adventurous self. My god that will break my heart. And then that I really do love my kids moment. Well of course I fucking do?! How could I ever be so unkind to myself, ?’ To not give myself this benefit of the doubt. 

And then I think of the good thing that I’ll make sure she is safe and supported forever. Never scared she won’t be able to support herself. And then the realization that I’m a steadfast supporter and provider and that I’m creating / have created that from scratch. 

And this is literally what a profound RE frame in thinking looks like. I’m strong and proud and safe and I’ll keep my family safe, not some impulsive person hanging by a thread.

I’m creating something beautiful in myself and for others and it’s my story. My legacy. What I want people to say about me, when they tell my story like Eliza did for Hamilton. What will they say?! We all wonder what people will say.

This makes me think of you: do you know all anybody says is nice things about you?! I always wanted to be that person, but I make too many waves, take too many risks, and don’t think enough about how I’ll make someone feel. You think too much, and I not enough. If you take us both you have the perfect person 😉 boastful? Perhaps. 

I make people uncomfortable, but do it with good intentions lol. Don’t they say the road to hell is paved with good intentions;) I make people uncomfortable by pointing out what is so readily visible to me, that for others it takes them a lifetime if at all to notice. A gift and a curse. 

I wonder if V felt a fraction of how I felt just now. If she did I feel terrible for her. I’m gonna root around in your magic bag of goodies, the bag leftover from our dead dreams (to be dramatic and truthful) and see if I can find some life giving electrolytes in the form of Gatorade to settle this tummy. It’s feeling like knives are raking it currently and I can’t be out of commission this long. 

If anything happens to me babe please tell my story. I need my story told. The need is getting fiercer now. I need people to know how hard I fought just to be ok on a daily basis and my kids to know how strong their love makes me. They are the fuel to my fire, and everything that makes me the person that I am.

Every person I’ve ever helped has them to thank. 

And I have you to thank. You’re such a source of comfort to me. Speaking of…. I’ll need to restock our sick supplies. We were so fortunate to have all these. Though the reason we do and they are unused is still excruciating. 

Babe I know your process is different but please know that if this didn’t happen I might not in some really profound way have truly known how much I want it. How I want to enjoy the tiny new life that we create rather than ever viewing him or her as a burden. And my life has already been so heavy so long, any small thing sometimes does feel this way. But in part due to experiencing this loss with you, I know even more profoundly how much each second even is worth. 

I do in a fucked up way feel it is meant to be this way. This sense that everything does happen for a reason, and not that that’s just something we say to make sense of things when they are too fucked up. It makes me believe in destiny and magic. 

Does that mean we couldn’t have done without this toll to our hearts, this wound, and these scars… of course not. 

But life would not hold as much meaning without the whole picture, the whole journey, and my life now is beyond filled with meaning. 

While I don’t plan on going anywhere soon, I am satisfied with my life right now. I need you to know that. I don’t regret for me or be sad for the rest of my unloved life ever, because I have lived it to my fullest already. I do want more of course, immense amounts more. But if it wasn’t in my cards I didn’t miss a thing. I knew exactly what I was doing. 

I want you to find the same feeling, but in whatever way Or path that’s meant for you. That’s my dream for you, never give in to self defeating thoughts, ones that lack compassion for your full journey. 

If you did ever lose me I want you to live on for me in the way I would have. Carry my legacy and be for my kids what I would have been for them. You are up to that task. No one is as well as you or I wouldn’t have picked you. They will need you forever. 

I don’t plan on going anywhere, but we never plan for that so I want these words down. I don’t care what laws or rules or fears or whatever. We have something very special here and blood relation has nothing to do with it. We must trust that. You are an irreplaceable part of the kids healing now. You’re already written into the story. And I would never want to let you be snuffed out in the event of my demise. And anyone who would try would do so out of ego or pride etc, finally able to have their kids back from my evil clutches you know 😉 but you know better. 

You’re the best thing that’s ever happened to us. Yes little ol you, it’s true. That’s a truth. And it couldn’t be without you being so much more than you see when you look in the mirror. That distorted perception is your only enemy, it kills more dreams than a semi-automatic with unlimited rounds. 

I hope my kids will delight in my letters someday when they are old enough to read how my mind worked. Find, keep, and appreciate them all, because they are who I always really was inside and kids know so little about that.

I’ll never know much about who my parents really were inside, so much is a mystery, especially my dads side, and my mother’s, a tragedy. So for them to have this insight. To know my mind intimately. Incredible.

Wow so all this feels like a product of a near death experience. Listen honestly. It may sound dramatic, but this episode was no joke. And all this sweating and gross (being on prednisone and scared) the past couple of weeks has been really humbling.

There is a level of acceptance I am at, that wasn’t there before. 

My disease has carried a large piece of denial for the longest. I wasn’t willing. I’ve been in as much denial of it as I have how damaging my childhood was to me. I am reaching a stage of acceptance now, and it’s making me so much stronger. So much more at peace and strong. Someone that you will feel proud and safe to have a baby with. Someone stable that will enjoy that adventure with, not resent it, or fear it, or feel guilty about it because I already have kids.

That is at least the take home I’m recognizing from this tragedy. 

I will get to move forward without a doubt in my mind, and for me, that’s like having rebuilt an entire nation after its downfall. I’ve been a shaky entity bordering on panic for as long as I can remember, to be emerging this strong, still, solid force of love and compassion is unbelievable even to myself. 

I am surprising myself a lot lately. The strong I always identified as prior was a sort of forced kind of strong, a necessary one. This strong now is the accumulation of weathering storms with a sense of grace rather than a frenzy or a panic. 

It’s a strong I am satisfied and proud of, not one thrust upon me without my consent. It’s a soft kind of strong, and I can’t wait to hold our baby in these new arms made of this.

Every time you grace me with your vision of seeing the loving child inside of me. I can see when you see her, I can see her too, and it brings powerful healing. You bring that to me. 

Thank you for seeing me in this way, for delighting in me and in us. It has literally saved our emotional lives. We had our physical lives before you, but our emotional ones are taking such beautiful shape now. And I want to write about it. I want the world to know your bright love. And I what we have created here. 

What if someone else could find this place (when they couldn’t before) because of our story? Or was able to believe in their dreams?! 

Bliss. 

My tummy has burning remnants of the suffering I just went through and I can’t even be bothered to focus on that. I’ve too much shit to do with my one life. Thank goodness because otherwise I’d crumble into a little ball of stress and worry and take days to recover. 

I don’t have days anymore to spend in that way, there’s too much work to be done.

Every word on every page for every day of my life…. are for you….

Now I am going to curl up as close to you as I can and let your breath lull me into a deep relaxation, and help the pain melt away. 

All the love in my heart 

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A birthday tribute to my wife …

It’s my fourth favorite person in the worlds extra special born day tomorrow. Who’s keeping count right?! But I’ve learned over the years I need to be my number one, closely followed by my children, and have now been blessed enough that now we are 5. Still soon to be 6…. that dream floats evermore back into the picture daily. Thank god for our natural innate resilience.

Just 5 humans trying to navigate a painful and divisive world with the biggest of hearts and fullest of enthusiasms.

So I just want to take some time to honor this new addition to our family. She’s new old. We have a new love everyday, that feels like it could/should have been there my whole life. The depth goes that far.

My dearest Courtney you walked softly into our lives, as if on a bed of Snow White powder, silently, and yet the foundation we are laying together is molten lava stream of concrete that has hardened into the kind of solid ground healthy families thrive on. We created this out of a place of deep love for love itself, and for the creation of the family we always dreamed of.

I’m so proud of us. You’re a mighty, quiet, thoughtful, kind, soul, who lights up a room with her smile. People just love to be around you, and I consider it a constant gift that I get to be the benefactor of a large amount of these moments.

Whether you are generously rubbing my back at the end of the day because you know how heavy my walk in the world has been, or cooking a meal that risks you great criticism for my ever changing teenage children’s tastes….. you do it with loving kindness.

You see yourself so often as less than what you are, and I’ll spend the rest of my life trying to show you your powers. Great healing powers, they are immense.

No matter what else you do with your life from here on out, please know you have saved us. This is not dramatic, rather it is true. You’re gentle with our hearts, when much of life for the kids and I has felt intense.

Your gentle love is an intense space of healing, and I’ll love you like the grateful stray dog I have always felt like, that’s found her forever home.

And finally now this is all ok. It was never supposed to be different. I was never supposed to be more than what I was when I was, and neither are you. We just are.

And this life with you in it is bliss to me.

So I hope your 35th year lends to you feeling as special as you make us feel everyday.

It is fitting we get to experience Hamilton in Broadway together to celebrate. I remember watching you see Wicked and it was one of the most ground moving moments of my life. I knew you felt with your whole self, and I knew that’s what I wanted and deserved.

Thank you in a million little ways….

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Bronchitis and Snowy Reflections

There’s a certain permission that comes with being sick that it seems you (I) can find no other way. The permission to sit even slightly more still, even for a second. Which has allowed me to reflect a lot.

I’m recovering from bronchitis and had no idea it could lay me up so much. But here I am.

The snow is finally cascading down today, it is almost a relief existentially; climate change as it is and all. The flakes are ice coated and making a tiny crunch sound as they topple and flit here and there.

I’m just sitting here marveling at how much has changed around me, and it really does seem like all I did was blink.

I’m sitting in the kitchen part of our finished in-law portion of the home. This has been a dear friend and roommates kitchen, when her and her son lived down here, and her second son was born in this home, about 4 years ago. It’s how I paid my mortgage, and also how we both stayed sane. I was less anxious living alone, and we have become a sort of family to one another. Seeing the other through bests and worsts.

It’s brisk down here, but I’m wrapped in a warm red blanket, and sitting in and oversized brown lazy boy recliner. It’s interesting to get this kind of perspective on the home. Not a space I would normally sit. I could pick apart its imperfections: the low ceiling, white tiled floor, the basement like feel of it all. But what I’ve been doing most today is marveling at how far I’ve come and how blessed we all are.

I don’t think I ever even set my sights high enough to home ownership. I think I had planned on a retail job (management if I was lucky), and a small clean apartment, the kind I sometimes saw my friends in when I lived in Oregon.

I’ve been moving through life so frantically, so panicked that simplicities are now what I long for. What comes when you enjoy what you have like it’s the best thing on earth. My ability to hear for example or to taste, to appreciate the finer details in any mundane thing.

My wife and I recently were deciding if perhaps we might move to Milford or Fairfield Ct, out of the valley, up into a different class (and tax bracket). Funny how the important things to me about this move are still in the small details.

I would like taller ceilings, the feeling of room and space, a wood burning fireplace for smell and ambience, and a very nice bathtub. I’d like to see some woods or nature out my window. Bookshelves, many many bookshelves. Mahogany and teakwood smells and feels. An office so my papers and documents are not constantly strewn about. And we have the means to get into this nicer home now, but only to be stressed or house poor again seems not the right way this time. So we may just refinance and fall in love with all we already have! For a couple more years at least anyway.

Perhaps poor the love into this home and choose to see it in a way that serves us, rather than trumping up dissatisfaction as a means to motivate us into an action that may not even end up with us any happier in the end.

Tomorrow we are all as a family going to see Hamilton on Broadway and stay overnight in the city. Another extravagance I never would have dreamed of before. Some of us are not feeling so hot, hopefully that can be mild so there’s nothing taken from our experience.

I have found myself ahead rather than behind, perhaps not as much as my dreams could imagine, but then my dreams always were very expansive anyway.

It’s interesting the creaks and sounds down here. Now a part of other’s memories who have occupied this space. It’s housed a woman post recovery and pre-discovery. Another who was fleeing a bad roommate situation and stayed over here. Our home is a space of comfort, warmth, shared meals and affection. How could I not have seen this before?!

It’s everything I ever set out to create, and so am I. Not a single thing lacking. What a delicious discovery to stumble upon as I am sitting here listening to a different angle of the home I’ve occupied for 7 years.

This chair is very comfy, yes it would look nice next to a roaring fire, but I can imagine one just as easily……

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Love heals all wounds

Slowly very slowly I am becoming myself again. Grief takes you away from everything you are and everything you know. That’s what I have learned recently. As the storm clears however, what I am finding is a new appreciation for all that I have and all that I am.

This year I do feel as if January was the lost month. And that’s a lot of time to lose for someone who doesn’t want to miss a second. But was it really lost? Or did we only stand to gain?

Gain?! How can I possibly suggest watching our dreams crumble could result in a gain? I can hardly believe what I’m typing! But yes you gain something. Perspective and Presence with capital P’s.

Now I am here finally able to wipe the tears that kept smudging the blueprint of our lives and begin to draft again. This 2 months has felt like a single lifetime.

Recently I had my kids write me a letter (to lift their grounding from the dog peeing on the couch). They were to write an essay on their experience with me as a mother. At some point I may share them in their entirety, but to summarize for now. They love me, they really love me. It’s unthinkable they wouldn’t right?!

But often times I don’t feel loved like the humans do, it’s part of what I come with.

Recently someone told me at the end of the day we are who we are. Seemingly simple advice right ? Why is it that it’s the most simple of advice executed at the proper time that is the most profound?!

I’ve spent a lifetime fighting what I thought I could become, because of the things I saw and experienced when I was little. If there was any chance I could be that, I wasn’t going to take it. I was a vicious slave master over myself, and I did not use kindness to meet my goals.

I found as a mother I could keep the same viciousness I treated myself with away from my children, but that meant I had to keep a large portion of me distant as well. I replaced me with more warm and safe characters. Until later in life I began to realize they had their own dark sides as well, and maybe I wasn’t so terrible after all. I grew and I grew.

I have always done it backwards. Their love saved me, when it was “supposed” (such a nasty word) to be my love nurturing them. I loved better and more than my memory allows me. Again that terrible slave master who was constantly whipping me when I would come even close to the behavior of my mother. It was exhausting to be that vigilant over myself and much of their young lives they have seen me tired and stressed.

Until finally I put the whip down and began to give myself nurturing and affection.

Again seemingly selfish in the world of society’s view of the mother. But society never knew my beginning, and kindness was the medicine I required all along. I could never be warm, gentle, and kind with my children when I couldn’t be with my own child. It was always incongruous and disconnected. And I was always aware that I was. Not a fun combination. That shit needs to stay in your subconscious so you can survive. I’m an odd breed. Always aware when I constantly wished not to be. My gift and my curse.

Thoughts like, “it’s too late”, or “you did this the wrong way”, only harm my soft new self. Like a baby from the womb my new self isn’t ready to take care of itself yet. I needed nurturing, and I found that in my love in my 36th year, and the rest as they say is history.

Not co-dependent love, despite my sometimes fear of bordering on that 😉 not all consuming love, not burning love, not scathing or scarring love,

Generous love. Benefit of the doubt love, trusting love, gentle love, infinite love, graceful love, warm and available at all times love. Patient, oh so patient love.

Love heals all wounds. And I hope to love my children and family with this healed self for the rest of my days, and I hope to tell my story so they can know how hard I had to work to be available to them. So that they know I fashioned a self out of scraps. And what it takes to do that in the way that I did.

My gratitude continues to grow by leaps and bounds and perhaps this new self that is growing and being raised with all this love will have the courage to write books and talk you the world about her experiences.

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There is no recipe for this

I’m all thrown out of whack, and I am trying to figure out what to do. I used to thrive on chaos so well. I used to separate myself from my feelings in order to survive and it became a way of living that served me for so long. I am finding through this that I’m not wired like that anymore and it has me completely thrown off. My heart is all thawed out which means that currently I am immobilized by grief in so many moments. And when I am not I am helping my wife who is having her moments.

Even when I am numb it is because my heart feels it almost can’t feel such suffering for one more second, it is no longer a disconnected numb. It’s a feeling numb, a raw one.

I was off to such a great start with working for Vivint and now I feel like I’ve lost my mojo. I was enthusiastic and excited and a self that loves to talk to people and right now I am just raw hamburger. I think if I see a baby right now I will just crumble into tears, if it catches me at the right moment and outside of my careful boundaries as a counselor.

I think I feel worried that I didn’t know how much I cared about this whole thing, not really fully knowing, until this happened and now it hurts. Hurting is an easier model for me than safely having faith everything will turn out ok. Or maybe I did have faith because if I didn’t I wouldn’t have been so on top of the world with excitement, an energy that seeped into everything that I did. Now I just have sad energy. And that doesn’t mean I’m not hopeful about the future, but right now I am just neck deep in these feelings and I can’t do anything to speed up this process or control it in any way.

There it is, the problem right there. The truth. I can’t just work hard and make this different. I even convinced myself that it was my steel mind that prevented me from losing my twins all those times I almost did. I’ve been in control of my own destiny for so long I’ve been living under the illusion that I have more control over things than I really do.

I couldn’t stop this.

And the tears come.

I couldn’t stop the bleeding or the things my wife is feeling right now. I just have to sit here and feel things and wait. So many fears are biting at my ankles like many a rabid dog, tearing at the corners of my mind. I can’t stop the war between feeling and knowing we already have so much to be grateful for, and truly acknowledging how this feels in its entirety for us right now. The desire to minimize and just keep moving foward quickly as a means to avoid suffering. It’s what I have always done.

I can’t outrun things anymore. No amount of staying busy will fix this. No amount of financial success etc. No cottage or new thing, or any other kind of comfort. There is nothing to do but just feel the feelings until they get less sad.

Will that happen?

The things I normally love aren’t able to bring me comfort right now either. My writing, my reading and my bounding enthusiasm all seem tasteless right now. I am eating food to satiate a bottomless well of pain. I am not eating to taste the food. I know this because I can’t taste anything. This is why I’m eating worse things lately because it has to be deliciously sweet or painfully salty to feel anything at all. And even then it’s just a temporary distraction and then right back to the darkness.

Any next step feels so completely daunting. And taking the next step even when it’s hard or I don’t know if my foot will have something secure under it… well that’s what I do. And right now even that isn’t working. I’m a doer and even picking up the phone to call a new clinic and figuring out how to have our eggs transferred etc feels too difficult. Sometimes getting dressed feels too difficult. And it definitely feels too difficult to do anything about all of this, and that’s all I got. I’m a one trick pony.

Moving foward through suffering is my trick. I’m afraid right now it will swallow me.

I think I really had convinced myself that I’m a robot incapable of the kind of suffering that has taken me over right now. The evil voice says “yes you still are”, of course your’re upset about this you didn’t get your way. And all sorts of other things that criminalize my intentions and my heart. The thing that threatens me to think badly about myself, one of my only main constants. That process to make sure I do no bad thing, the kinds that were done to me. To make sure that I watch myself carefully for flaws and ill intentions and at any single sign of one I pull the kill switch.

I’m supposed to think about what I’m supposed to think and feel and to decide, and this process falls so far outside of that I am lost in the dark wood right now.

Except this is a whole new dark wood, one I have never experienced before.

This is why defense mechanims are such powerful forces, because some of the depths of suffering we are just not meant to feel. I see they are definitely there for a reason. Everything is there for a reason, and so they say it happens that way as well. And I’m supposed to believe my suffering right now has another purpose right? Everything happens for a reason just isn’t cutting it for me to give me any sense of comfort. I am not there yet.

Why can’t I just skip to acceptance? Why do I have to feel every fucking thing so fucking much?

I’ve been in control even of my grief it has felt for all these years. I have stayed ahead of it. Can’t catch me! But this time and this thing has me in quick sand. Even my will cannot carry me through right now.

Is this where I am meant to find faith?

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Yale Schmale: Ivf Horror Story

If something doesn’t feel right it probably isn’t. Bottom line. We have had a terrible experience with Yale Reproductive Center. I don’t even want to walk back through those doors. And despite what this will be chalked up to this is not just an emotional meltdown grasping for something to blame in grief. I know all about that. I’m a mental health counselor. This is about trust. You trust a doctor because you think they know more than you, but what was missing here is that they did not care nearly (if any) about us. I’ve felt this way for a long time, but since I wanted to keep my eye on the prize and “stay positive”, like everyone tells you…. I stayed quiet. I stayed quiet through the many alarms going off in my head. My hunch is even our IUI’s could have been planned better and paid more attention to.

I think if they communicated and paid attention then we would have a baby right now. I believe that with my whole heart because of the many evidences of them not knowing what was going on with anything.

And I already know what they can and will do. They will cover up for negligence by the fact we are clearly just emotional. That’s what will happen here. That’s how large medical practices get away with things all the time.

So here is our story:

Worst experience I’ve ever had with a medical institution. You are a number. You see a different “fellow” every time, and your “doctor” one or two times. In my opinion we would have been pregnant long before if anyone in this place communicated with one another. I’m sure you could and then will chalk this up to being in a painful emotion. But that’s minimizing what actually happened here. How many irresponsible things happening with our time, our money, and our hearts.

From not knowing our correct protocol, and if I wasn’t on top of it we would have started taking incorrect medicine. To the fact that the offices terrible communication led to a decision about frozen or fresh transfer to be made immediately while I was seeing clients back to back. The woman called back and asked my wife (I’m a woman we are gay) if she wanted to talk to her husband. We have been patients of yours for over a year, you’re handling the future of our baby and our joy here, and you don’t know who we are?

Then let’s get into the back and forth over frozen or fresh transfer. It’s appearing now that we should have done frozen and we think someone set it up because that was best, but another person said it was borderline. In the end the morning of it took a long time for everyone to get on the same page. We never spoke to our actual doctor at all about this, again a melange of 1st, 2nd, and 3rd year fellows.

I am not a doctor and I was concerned about the high thyroid levels that spiked with the fertility medications, the ones that we tried so hard to get down prior to trying to conceive. Our thyroid checks were not stayed on top of throughout, because no one speaks to each other.

We get a report in the beginning of mono diamniotic twin pregnancy, we are cautious as it’s early. And nervous because it’s higher risk and we know that. We go back in and it appears there is one sac and a hematoma on the other side of the membrane, we are possibly a twin down and we went in for heavy bleeding. At this time we see a tiny heartbeat and are given hope, sent home with a picture of our baby. No one said what I was thinking the whole time. If one twin goes because of a chromosome abnormality and they are identical the other is going. Was it too early to know these things. Sure. Should we have been fully spoken to by our doctor, a full experienced doctor about the risks. The heartbeat was 110, the bottom of the scale, it was on its way out too and yet we went home excited and the staff encouraged that. No one said be cautious and specifics about the mono di.

In fact no other resident even mentioned the twin situation. An actual doctor dr Pal, did the first ultrasound and gave us real info, including how early to tell. We aren’t stupid, but it’s the most questions I had answered the whole time. She did not check on us when we had bleeding, she did not check on us at all.

At this time we were told to come back 3 days later on a Monday to check things. My wife called to make the appointment and they said they didn’t have anything til Thursday. Again if we were told to come for bleeding where is the follow through.

This fertility clinic is the do it yourself variety. This is the target self checkout and if there is an error you better know how to fix it yourself. I have so many questions, so many anxieties, my wife and this baby we want to have are my world. I’m not a number. I’m a human.

So the set up was one baby was ok with a heartbeat and the bleeding stopped fully and we got excited again. And when she went to the ultrasound I was on FaceTime because I’m trying to provide and it’s just an early one. I had been at every other appointment no matter how small. But this one my wife’s twin went with her and I was on FaceTime. I got to hear our baby has no heart beat and probably hasn’t in a week from another different doctor over a screen before my 3 pm client. Again no word from dr Pal. We should have stopped progesterone a week ago so my wife and I could get on with our grief, and we would have known that if they talked to each other and prioritized our Monday appointment. We had just had bleeding. No one cared whatsoever.

Yale gets picked for its name. And I think they have forgotten real human values. It’s a machine, and contrary to their words to dismiss my many concerns they are not “a well oiled machine.” I will never affiliate myself with this group again.

My wife was sent home with a hat to collect our dead baby in and a specimen cup, and a two sided pamphlet about support groups. No word any of the way through our miscarriage from the actual experienced doctor.

The only comfort there are the few gems of nurses we will remember fondly in our hearts. The ones who get it. Doctors became arrogant and lost, and I just plan to learn from that. That I’m not too important to sit with a human and talk to them fully about what they are feeling and going through.

We will be just a statistic to them, an angry customer clearly clouded by grief, but they have a legacy with us.

We will be seeking out a space to share our very intimate fertility journey with people who genuinely show us the attention we deserve when they are getting thousands of our dollars, and holding our hope in their hands. There is a way you treat people and this was not it.

We will not be walking back through the doors of Yale fertility! There is a reason their reviews are terrible. I am so disappointed and hurt with the lack of care we have received.

I will never again put our care in the hands of someone who is an expert in medicine that isn’t also an expert in caring about the individual.

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New is scary…. everything is so fucking scary

I’m thinking back to Elizabeth Gilbert’s book Big Magic, and how much it helped me to change my perspective on fear.

I am in a space right now where things are scary again. I am learning many new skills with understanding the business of solar and how to present numbers and designs to clients. I am so not a numbers gal. This is really intimidating for me. You come out of the gate needing to understand how to present information to people. And I am so literal and it is so important to me to be honest. I am finding if I don’t fully understand something and am trying to explain it as if I do it feels incongruent in such a way that I completely freeze up. So lately I am doubting my ability to close the deals so to speak. This is called a Welcome Call in my world. I mean I know that the District Managers can’t close my deals forever.

So here is what I am trying to do. I am trying to think back to my level of fear before I knocked my first door. The very first day that I tried I sat in my car driving around for hours trying to get enough courage. I texted Courtney lots of times of how afraid I was, and how I couldn’t do it. And she just kept telling me I was so brave, until I was forced to believe it myself. When someone believes in you so thoroughly you have no choice but to rise up to that blessing. She is my blessing. So I knocked. It ended terribly. The woman was beyond rude. And yet I went skipping down the steps with glee at the fact I had mustered enough courage to even knock this first door.

It did not get easier as soon as you would have thought. The next day I got up enough courage to knock three doors and by the time I was done I needed a serious nap. In between each one it probably took an hour to muster the courage. My heart pounded in my chest when I knocked and I hoped they wouldn’t come to the door. When they did I stuttered and stumbled. These nights when bed time came I passed out fully clothed on the outside of my bed. I was too tired to even undress. Now that I am reflecting on this I am thinking in one perspective I could wonder what is wrong that this isn’t easier. I could be nasty to myself. But when I am looking right now I feel like a warrior. Because this is my real experience with this and I am still going. That is the only thing that matters is that you still try. With parenting, with relationships, with learning something new. The only thing that matters is you keep squaring up with your fears. You don’t let them drive the car, they have to come along to keep you safe and aware, but they don’t call the shots.

So 20 days into my 60 day trial period where I have to prove myself I have 4 out of 10 welcome calls. One more and I get to attend a cruise to the Bahamas, and if I get all 10 then Courtney gets to come with me. I love a good challenge so this is fun for me and keeps me feeling alive and engaged. Why not?! It’s the challenge, and the small incentive challenges within the challenge that makes it fun for me. I have always enjoyed being challenged. That is kind of comical if you knew my life, because if I am not challenged from an outside source I will create my own, setting them up like a track of hurdles at a meet. I make pole vault sized hurdles, and then expect myself to get over them as if they were just jumps.

And because I believe I can I do.

The fears nipping at my heels the entire time. You aren’t made to do this. You don’t understand ALL the info you aren’t an expert yet, so you’re going to look stupid at a closing alone. You will stumble and get nervous because these people are intimidating, and think you’re out to screw them over, and if you’re afraid that’s what you’re doing without knowing it, you’ll fear being insincere. If you don’t put everything into one thing then the rest of anything will fall apart. I’ve cut back on my hours of the stable employment that I LOVE to grow myself.

But did you hear that? I did it to grow myself. If I am going to help others grow, my continual self-growth is crucial. Staying fresh and engaged. Again I will think of my hero Elizabeth Gilbert and her style of writing. The fact that before she writes a book she will spend 3-5 years immersed in researching everything about the topic, and then like training for a marathon she quarantines herself with her love, a delicious tryst versus being caged. She shows up dressed and ready early in the morning to commune with her writer’s gift and she creates works that her reader’s love. I want to find my groove with writing, and to do that I need to buy some time, and to buy some time I’m going to need some more money and a space that I feel as if I can commune in.

Our baby is the size of a raspberry this week. 7 weeks and 2 days (ish), it has a tiny heartbeat and looks like a little hunched over tad pole. We get to see it again at the end of this week, and I am wondering when we “graduate” to the normal OB, and who we will pick for that special special task of helping us deliver our baby in a way that feels best for us, and keeping him/her safe until that point.

I have so many questions. I always have so many questions. It used to be annoying to others and I always knew that. Now more and more I see it for the gift it is. To stay curious and open is to be engaged in our lives. I want always to be this way in my life.

There is a work truck outside that has interrupted my morning commune with myself, and I am none too thrilled about it. I’ve tried to do what I can to drown it out. I want my Nature and quiet at the colony in Woodstock. I am still trying to figure that out, as I stash the cash to be able to purchase it. Will I be able to take THAT RISK. When I have that kind of money. Should I not put it to my student loans or a down payment on a different home? So many things need to come before that.

Shouldn’t I be able to write anywhere? But that just isn’t true. Right now I write in the bath tub to drown out all other enough, and in certain ways as you might imagine it isn’t ideal. I want to walk in the woods and have that unique meditation. I think I will have to make friends with the space I am in. Know it well enough that nothing new is spiking my interest before my attention will relax itself enough to produce writing. I need a spiritual space where I feel accepted and alive. I felt that way there. I also felt that way at Omega. I must answer this dream. I must.

So to be able to answer people’s questions and know what I am doing this will require some studying and learning and rehearsing. So I am not frozen in the moment. Truth be told I am probably more interested in all the human aspects of people once i am in the door. So many of them are widows and recently lost a loved one, or new and starting out.

That is what I am interested in, not if I can close the deal.

Such a large portion of life is discovering who we are and who we are not. We can do a great many things that can be taught, but do we want to is the question? For me I have no other choice but to strive for tasks that light me up and make me present. Counseling does that, and yet I still need to stay fresh and learning new things. And I never liked that to be only one thing. I am learning so many things about people from being in their homes and having the challenge of challenging them about a new and scary concept. A new way to source their energy. Tired and overwhelmed people who just don’t want to bother with something new whether it’s a better idea or not.

Anyway that’s another blog post I think. So I’m just here learning new things each day, preparing to turn 38, wondering what I’ll be like as a mom this go round, being in awe and radical gratitude of my capabilities….

Learning is life..

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We don’t love like the humans do….

This experience is leveling me to the ground. And whilst I am laying here I can see perfectly clearly using my lenses of hindsight.

I never noticed what a true miracle the three kids I have already created are. They are miracles. They made it through pregnancy, through my immature phases, through so many changes. They love hard still. They are wide open and warm. And I have hardly had the vision to notice this. I think if I had I would have spent day and night afraid I would lose them also.

My children have had to wait for me to come back to life from traumas so severe my only choice was to become numb and survive. The mechanics that make you that way do not lend to calm and gentle seeing presence.

“You cannot be everything you want to be before your time.” I have always wanted to be everything for them.

I love them more than I am able to convey in ways that feel like presence to them. Some people I’m guessing are able to choose to abandon any other thing to choose one. Their kids are their entire meaning. My kids are also, but if I didn’t make my own growth and healing a priority I would have only ever been able to love them at 50 percent capacity of my being.

They would have seen pain behind my eyes. You cannot hide things from children. You can lie to yourself that they don’t see, but children see the world much more clearly than us jaded adults do. They are much more capable of magical thinking and beliefs and therefore likely to be able to be happy, creative, and kind.

I know no matter how I look back I will always see the things I missed, some of them quite profound. I was there, but I wasn’t. If I couldn’t be fully present with myself, if I abandoned her too because that’s what I knew, of course I would be too afraid to accept their love and endless faith in me.

I am often envious of the partners I have given my children too out of desperation. Financial desperation, anxiety desperation, fear of myself as a mother desperation. It has often felt like I would be swallowed by my feelings. So I saw these happy people who were functioning and I wanted them to always have that. I could be more of what I was around. I was just trying to choose the right thing to model myself after.

So many times what looked warm and safe turned out to be much different underneath. An in tact family is not the only criteria for a good situation. It took me years to learn that. To see through the very alluring most attractive parts to me.

When you have subsisted on crumbs for so long, half a moldy cookie on a table looks like a Thanksgiving feast. And this is an expression of my path and pain. No person I have ever shared my heart with was a moldy cookie. The health of the relationship for various reasons (many due to my attachment fractured beginning), was the rotten part.

Some family of any kind is better than none right ?! So why wouldn’t I have stayed? Stayed for the kids, stayed for me. Perhaps many of the kinks would have worked themselves out over time, or perhaps I knew beyond my consciousness in some way what was best for us. This thinking seems correct based on where we are now.

But what have I caused up til this point?

And you see there it is. Taking responsibility for everyone and everything.

This is a product of trauma. The person is forced to become self-sufficient to a level beyond them, and this is a side effect. And later in life they suffer immensely trying to be an island, needing to be one, but also wanting to belong and connect. The obfuscation is immense. The dark wood feels seemingly endless.

Until that one person, or many along the way, see something in them they can’t yet. Hence the reason I am a counselor, it wasn’t a choice, it was written in the muddled beginning.

I needed people to see the good in me. I needed it so much that was the only factor it took for acceptance into the fold of our family. It fed me to be seen. I have been accused of feeding off of others to meet my needs. And I accepted that fate again as the bad guy, but finally I am able to see there is so much more to that story.

We watched Cheaper by The Dozen last night. A comfort. It was making me think of all the movies that have resonated with me over the years, made me get goosebumps, and how I would watch them over and over, and listen to songs over and over. People would tease me about my love for sappy movies or my behavior of repeatedly watching them. But these were me comforting my heart and shaping my dreams. Watching stories of people’s lives drafted in artist interpretation. Trying to find something to model after.

It would take me a long time to differentiate the romantic portrayal of movies and the grit it actually takes in real life to create a healthy and thriving family.

I wanted my story to be something more than it felt the first half of my life. I’ve fought tirelessly for that. And the fight has left me so exhausted in my soul, that often times regularly expected trials and tribulations of life now feel too much to bear. And it doesn’t take much invalidation, even and especially accidental, to wound me. Just think positive, well yes but that takes for granted every way that has wired me as far as my experiences. “You’re too introspective, you’re exhibiting frightening mental states like your mother.”

For me I just need to vent my feelings. To know they are there. To pinch myself to make sure I’m still capable of feeling. To lay my hand across my chest to make sure it still rises and falls.

The love of my life understands this about me. This line brought more tears to my eyes. There have been many the past two days.

I’m trying to accuse myself of wanting more than I already have right now. Worst case scenario-ing my character at every turn. It’s what I am best at. My very own valid feelings end up becoming some fatal flaw. And this is what I am working on in myself right now.

I have to make sure this life I have often rushed to create now takes into account the feelings of all participants and not just mine, I wasn’t so good at that in the past.

But I see I didn’t just force this onto my family, this is all of our dream now. We have always wanted another child to share our love with. I have known that from the time one of my best friends rented our downstairs and gave birth to her son in this home. As I often kidnapped him for snuggles and a bottle.

I have accused myself of wanting children for selfish reasons, and not because I have all that is required inside of me to properly nurture them. I will always be hyper vigilant that I may not. If you saw what I came from you would understand.

I have long wished I could just play some scenes from my childhood back on a tape so that the people knowing me could know. I’m torn between not wanting them to feel sorry for me, see me differently, and between desperately seeking understanding for the differences in me that feel like the separate me from the humans.

Thankfully I am loved by someone now who can see it without having me show them, and they love me harder for it. And that extra love that was missing has filled in all the gaping holes.

I am healing. I am still healing.

It’s no co-dependence, it’s not taking advantage, it’s not pathology, it’s not selfishness. It is healing. It’s taken this much. I could have turned out so many ways. But what I need for those I love to know the most is I’ve worked so hard on myself so I can belong with them. So I can feel my heartbeat near theirs, and not shrivel away for fear of damaging them with my damage.

We want to bring a child into the world to share all of what we have learned in our new story together. The kids want this baby too, and the transition from “babies” to baby is utterly painful right now. Seeing my wife’s pajama bottoms with the blood soaked through on the floor still because we were too exhausted yesterday to do anything about it is devastating. Not knowing whether the rest of the pregnancy will make it through this turbulence or not is gut wrenching. And that’s all ok. I still love my first kids that much too.

I still know it was early and blah blah. I feel things this much. So fucking what! This is who I am. It’s how I’ve been made, and I can’t help a thing about it. Except to do this (write) to cope, and to allow my story to be shared, whether or not anyone reads it.

So here I am wide awake with all my feelings always at the crack of dawn. In my morning watery womb of my own creation RE-birthing myself daily into the person I know I can be.

Here I am wondering with faith in one hand and science in the other, and what the universe has in store for our family.

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These Dreams Go on When I Close my Eyes….

So this morning I am scheming and dreaming. I’m at the vision board and I’m designing.

The goal: my wife and I want as much time together as humanly possible. We found each other late in life. I understand with extreme clarity the fragility of our time together, and I don’t want to spend it in an ordinary way. What I mean by this is toiling and only having a free few moments together. I don’t want to be rich in money, I want to be rich in time. And it would seem though that money can buy time, and as long as you don’t spend ahead of the making, and get above your means, I think this can be achieved.

This is what I’m thinking about most of the time lately. Originally I had hoped to do this by writing a book. However as I learn myself more and more, I realize that to sit quietly I need time, and to get quiet time I need money. And with twins on the way I’ll never have that hehe 😉 but I still think I can do it. I always think I can do it. It is this naïve enthusiasm that has powered me this far.

Couldn’t we all have more naïve enthusiasm?

The problem: My wife is a 911 dispatcher and 7 years invested in a pension. And she holds our amazing health benefits that keep my Crohn’s securely cared for and has funded our IVF. Her schedule is terrible. She works 7-3 one week then 2 days off and then 3-11 the next week and 3 off after. We can never get into a schedule and I cannot imagine how she will do this with twin babies. Her commute is an hour plus filled with traffic. And her job is a lot of sitting to which her body feels as if it’s falling apart. It has gotten us this far, but we have added so many other elements to the story we are going to need a change.

Needs: good benefits for us 4, the big kids have Tricare insurance through their father. A flexible schedule to be able to take care of the kids. Less commute, more time together. Yes these are needs, not wants. So this is a tall order right ?! But how can you say it doesn’t exist if we don’t look? At this point we could have a reality tv show 😉

So we need to find her ideally a part time job with good benefits that she can enjoy, but have most of her time at home crafting and being a mom like she wants and loves. Something she can be active and engaged doing what brings joy to her.

So if you want something different you have to lay blueprints to those dreams. Then you have to ask, look, research, and not stop until you’ve found a solution. There are always many solutions it just never feels like it because our minds are wired to see potential danger. We don’t see possibility nearly as often as we see the potential for a harmful outcome. Fear rules the roost.

Our dreams: time together raising our family, having the means for a vacation together and to see Hamilton as a family, having a family cottage we can create memories in and mom can write a book, our little identical twins make it safely into the world, Tyler gets into the college he wants and transitions as smoothly as possible, our family will love and accept us and want to be engaged in our lives, writing and sharing our story, and there are many more! Oh and paying off student loans and financial freedom to buy time together.

To enjoy life. To really taste food. To get goosebumps more often. To art. To cry regularly. To love gently. To encourage and nurture humanity in humans. To be kind. To learn new things.

In other news I have been enjoying talking to people, walking in neighborhoods, fresh air and perspectives. I am enjoying the newness of it all. I’ve also begun to feel the heat a beat of less relaxation and more my mind spinning towards one task or another. And scheduling has been hell! Trying to fit dr appointments, knocking time, trainings, meetings, baby appointments, kid appointments, client appointments, and the list goes on.

I have long known that this level of chaos feels at home for me, but also parts of me have changed in that regard without really knowing. When I am busy and engaged I am happy. It’s no longer trying to outrun something, but more an energy fueled be enthusiasm. Yes that’s it! I’m not running away, I am running toward. And I feel good about myself in the world.

If you would have seen me 5 years ago, my struggles, my behaviors, my outlook…. you wouldn’t even recognize me. Life is all a matter of perspective, self-acceptance versus critical abuse, and finding connections that energize your soul.

I had to pick this post up later, and I’ve been very scattered. I would guess it reads that way. Life is a jumble when you’re in the midst of change, and it’s difficult for most to tolerate that feeling. I’ve lived on a healthy dose of it my whole life, and have found the payoff to be quite grand.

Write a new blueprint anytime you want to make a chance, you are after all the lead architect of your life, and you don’t want fear getting a heavy hand in your project.

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A Very Thankful Thanksgiving….

As all these big feelings wash over me (they used to crash, now they cascade), I can tell it’s time to bring my heart to the blog and weave.

I am bursting at the seams with gratitude this Thanksgiving. Holidays as a rule are difficult for me, and that’s an understatement. I am always a guest in someone else’s Family Stone Family, the one whispered about when I leave the room. Thankfully nothing like Sara Jessica Parker in the actual movie. I was the Claire Danes, but still….

I was always liked that was never the problem. The problem was I chose my partner for the kids and for safety and love. I was at such a deficit. And don’t get me wrong all the people I’ve shared my time with are special and I learned so much from them. I really have no horror stories in my love life. Sometimes however I fear I became theirs. A taste of love and belonging and then yanked away. I experienced those losses too though, whether they were my decision or not. Another family, another warm heart beat pulled away, excruciating.

They weren’t a fit because their hearts were as unsure as mine if we could pull the whole thing off. I wonder at times if I had more faith in life and myself if it would have been different. But then how could it be when I am this happy now, and they are in their journeys towards happiness as well.

I figure those who take the actual time to read through this whole thing deserve to know our IVF has worked. We are 5 weeks today I believe. And once we hit 2000 HCG (we are at 1100), blood level then we will begin ultrasounds. We won’t make any official announcements until it progresses a bit further, but that whole thing is so superstitious and sort of the opposite of faith. I hate the whole privacy idea in a way. Sure it might be exhausting to share bad news with your loved ones, but you will need them right ?!

We need each other, all of us beautiful fragile human beings. Why isn’t that allowed.

We are so fucking careful and so private. I’ve never liked that, but since my life isn’t just me anymore I have to walk that line a bit more carefully. I do not want to live scared of anything ever again. I’ve spent most of my life anxious. Anxious I won’t be loved or even liked for that matter, and often I wasn’t. Anxious I wasn’t enough. Anxious I wasn’t smart like other people. Anxious about my health. Anxious about how everyone around me feels, if I have somehow hurt or bothered them. Anxious about money. Anxious at any minute something terrible could happen. And it always could.

On fucking eggshells most of my life. Profound exhaustion. And now I’m stepping out into the light and loving myself enough to stop stressing my body and my heart with these anxieties. I am practicing enough self love that when someone else doesn’t see me how I’d like to be seen I can weather that storm.

Rian just popped in the bathroom and said, “you should watch Courtney butter this turkey, it’s making me uncomfortable” bwhahahahhaah! I told her to butter that bird up with love and she’s doing just that. There is actually a video, but I’m not allowed to post it 😉 sorry guys!!

My latest self-inflicted therapy is of the exposure variety. I am going to get over my profound nervousness of if people like me or not, by exposing myself to the highest possible annoyance. Arriving on their doorstep to tell them about how solar can save them money and the environment.

Last night a lady told her adorable children who came to the door to tell me to get away. The house was so cool too and I was warm and friendly. Scolded like a bad dog, and instead of reacting I simply smiled and thought of a time I would have done the same because I was overwhelmed, and thought I needed to protect myself from someone trying to take advantage of me. So I get it lady. You keep paying your giant electric bill and teaching your kids to be rude. Ok so I’m as enlightened as I can be, but still human 😉

But these interactions don’t up end my world anymore, reaffirming a long held belief that I’m bad, wrong, and unworthy. I’m learning to let them roll off my back, that they have nothing to do with me.

And sure enough I landed a nice couple with a giant electric bill, amazing sun on their roof, and it warmed me right up. They also had a 6 month old baby who adored me and laughed the cutest and it made me so excited to be a mom again soon enough !!

“There will always be light and dark in life, and often we never know which we will find behind the door we knock. We must knock anyway, even if it’s mostly dark, because eventually you’ll land the right door, and things can change in an instant.”

The dark is always more seductive, it gives us permission to blame and to throw our hands in the air. We had a deep rejection this holiday, and I’m surprised to find myself watching this one from the outside. It’s been so long since it felt like my sexuality was a shameful thing. I should say since someone else shared they thought our sexuality was a shameful thing. It cuts like a knife to the heart, we will feel the sting and the loss today.

But it will never be as bad as the pain of living a life inauthentic. I always know that truth. Sad, scared, and unhappy people will always spread those feelings, the best we can do is to love them anyway. From a distance. I’m proud we won’t let this be a dark cloud on our happy time. It hurts, but it won’t block out our sun. See what I did there 😉

I’ve created my own solar panels for how I receive energy in my life, and it’s clean energy. I’ve chosen the kind of want to focus on and absorb and learning to protect myself from pollution.

This Thanksgiving is the first one where I feel like I belong. I am about to be 38 years old. It seems like that story would be a sad one, but I assure you it is anything but.

I belong here and am not a guest. I am grateful beyond measure for my kids who believe in a mother who has made herself from scratch. I am grateful they let me make mistakes and love me anyway. I am grateful for my beautiful wife who is the glue of this whole operation. I always thought I had to be the glue and fell into resentment at times, but it turns out she is. She is the constant warmth that keeps me glowing. She made this house a home in so many ways.

I am in radical gratitude this year!!!

My life gets better and better with time. Thank you to all who follow my journey. You are definitely a dedicated reader, and you are part of me being able to believe I am not too much.

A toast to family, red wine, and turkey basters to all of you 😉