Tag: #crohnsdisease

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All by myself

“This far away look. She is somewhere else. In another time and space, one devoid of any warmth and comfort. Who would ever venture back to that to collect themselves ? Isn’t it unnecessary ? If you want healthy love, you must be able to bring your whole self to the table. If you want healthy love the way I do anyway.”

It’s been a day. I’m just sitting here thinking about the difference between transparency and vulnerability.

I realized today I’ve been going through life preaching all about vulnerability, and I’ve never truly been vulnerable. I utilized transparency to battle the narcissist dynamics from whence I came. But true vulnerability is much more terrifying. I thought what I was doing was being vulnerable. It’s more than startling to realize that isn’t the case.

I spoke it but I wasn’t living it.

So I’m sitting with that. I’m sitting with lots of things right now. But they aren’t on top of me any longer. I can sift through them while safety is in place. Pick one thing up as I’m ready, turn it over in my hands, and put it down when I need. There’s no overwhelming frenzy. I am no longer held at gun point. Who will I be when I’m no longer there?

The unknown whispers at me, again no longer screams, only gentle whispers. And my software is trying to catch up.

When did the screaming stop? When did I stop being afraid?

I think the real answer is I didn’t. Wow, and that line brought more tears. It never stopped because it has all been locked up inside of me and carried along the whole time. I have never unpacked it with anyone truly, and I’m always surprised when people don’t put it together themselves by looking at me. It’s such a disconnect.

So recently I’ve been taking several journeys into vulnerability. I am doing EMDR with a therapist, I am seeing a trainer so I can simultaneously strengthen the house I live in while going through this hell, and I am RE-examining every inch of love. The way I love, why I love, what I need, who I am in my relationships.

The view in the mirror is interesting. It’s standing with all sorts of scars and imperfections and not cringing, walking away, but also not picking apart every flaw. I am looking at me lovingly as is: and it’s waves and waves of feelings. They crash over me and I try not to do anything with them, but feel them.

That’s vulnerability.

To feel something but not do anything with it is vulnerability. No flight, no freeze, no fawn, no fight. No intellectualizing. I’m on a battlefield and I’ve been stripped of all my weapons and armor. Now is when I close my eyes and see if the terrain was an illusion all along, and I’ll open them and the war will have been over so long, and I won’t have realized.

My song for my trauma All by myself

Because this is what I found while trying to describe my childhood. The loneliness was more profound than the chaos. I thought all this time it was the many fearful things having the deepest effect on me. But I think it was the loneliness.

And currently I’ve manifested a similar situation to simulate this while doing EMDR. So I am all by myself in this. I have support, lots of it actually. Genuine people who love me. But no one sits in those flames with me and currently there is no comfort after either.

There’s a kaleidoscope image of all the people who have ever held me and believed in who I am that scrolls through my mind, that gets me through lately. The good morning text that is consistent from a father like figure who I was blessed with. Whether I respond or not. That love is unconditional. I am hoping to cultivate it for myself and the experiences I have been through that no one else can see with me.

Right now however I have two new players who are my safest places. They are my therapist and my trainer. I knew during my session yesterday that my therapist would have to feel every inch of what she watched me re-experience and what emotions that opened in me. It did in fact work. I thought it wouldn’t work on me, but of course I did.

And by the time I got to my trainer for the day I was already shaking. I had to stop twice for nausea. Yesterday was injection day. And she was so warm and so kind to me. Every single one of these people fill the holes that parent roles never did. I just keep patching them up. It has felt like it will never amount to anything at times, all my work. But this time I have visions of the vessel staying afloat, and not being lost at sea.

It’s the rawest thing I have ever been through. “We cannot ask clients to travel further than we have ourselves”

I am on my knees and maybe now I’ll learn how to pray, and find something to believe in that isn’t just my capabilities. Ironic as the story my trauma left me was that I had none, that anyone else must be more capable than me; where is that adult that will show or tell me how to do this thing, but all I’ve been my whole life is more than capable of finding ways to meet my needs.

I’d like more from here on out. I’d like a clear picture of what my needs and wants are. And I’m not even sure how to find those things out.

For now it looks like 50 “I am” statements, weekly therapy, and facing the body I have avoided and neglected that I just expect to keep carrying me through.

For now it’s one day at a time in the fire….

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Intentions and the Cosmos

“I am not a stranger to the dark, hide away they say, because we don’t want your broken parts. I’ve learned to be ashamed of all my scars, run away they say, because no one will love you as you are.”

Lately a great many things are shaken up in my life, in ways I never imagined. I’m finding a self I didn’t know, yet again. It calls into question everything. And when everything in your foundation is shaky it’s unsteady. My stomach is rumbling like the tectonic plates of my very foundation.

I’m always so sure about my truth. It speaks so loudly to me, but what it can never know is what the next day will bring and the next. To have an adventurous life you must be willing to continuously face down your fears. For me this is necessary.

As necessary as oxygen.

I have always been a seeker. A seeker whose main objective is security is making for an interesting cocktail. Obtain security then seek, obtain security, then seek. What if I had security from the beginning? I want to know who that person was too! I need to know her. It’s not a choice.

What I am finding is a security in myself that will keep me grounded and authentic to me at all costs and this is not a path for the faint of heart. This is loving my unloved child inside more than anyone else, because she needs it the most.

This isn’t a journey most can understand. It’s cold and lonely in here and yet on the outside everyone thinks I have it all figured out. One of the largest incongruences of my life. I’m human too.

Spoiler alert. I don’t. Not at all. But I am committed to my heart and my truth and recovering that little girl who deserved a real life full of love and support. This is my recovery.

This is me!!!! I could listen to this song and watch the beautiful dancing in this video a thousand times. It’s my song for 2020.

I’ve been shamed a thousand times during my life for my wounds, shamed instead of understood. And that pain has turned me into 100 percent heart. It’s open and it’s raw and if you want to see it just sit with me for an hour I will show you.

And if you’re my friend I will hold your heart with mine. And this is me. I cannot only be loved for what I provide others. I need to be loved for the very center of me, everything that has made me the things others benefit from.

The thing that wakes you up?! That’s a product of my suffering. It did not come cheap.

So here I am at 4 am, battling my Crohn’s Disease and holding my hurting heart. Zofran, toast, ginger tea, my trusty laptop and journal by my side. I’ve lost 10 lbs since Christmas, there is nothing easy about this.

“I am brave, I am bruised, this is who I’m meant to be. I’m not scared to be seen I make no apologies, this is me.”

This last year in my 30’s is mine. I don’t want to heal at anyone else’s expense, but I’m also not willing to help someone heal at the expense of me. I’m not sure what that looks like yet, but here are my intentions.

I intend to write about trauma, in a way no one else has before….. in my way. I intend to be more connected to my children than I ever have, and give them my wide open heart and presence. I intend to be still for me when I need to figure that out. I don’t have it figured out yet, but I intend to work on it.

I intend to discover and honor the body that has carried me this far. I let it take the brunt of the world. It needs to stretch and move with joy. It needs to release years of shame and being stifled and huddled terrified. It deserves to be nourished and cherished.

I intend to love bigger and harder than I ever have, and to always include myself in that equation.

“Look out because here I come. And I’m marching on to the beat I drum. I’m not scared to be seen and I make no apologies this is me.”

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Childlike Enthusiasm

Despite my conflict about this medication how I am feeling on the regular is this crazy optimism for life. I wake up every single morning literally bounding with energy for what could happen throughout the day. What special thing? What human connection. What could happen today?

I have woken up (thawed out) to a childlike enthusiasm for living. And I’ll never go back to sleep from that. Now I just want to give from a place of abundance and fulfillment to anyone and everyone who feels as if they don’t belong in some way, are too much, are not enough, not worthy. I want to warm them up and thaw them out.

I realized yesterday it isn’t because I don’t have symptoms and lots of various health things anymore, it’s because I’m so well cared for.

Yesterday we watched my daughters soccer game. They beat their town rival for the first time in the history of JV soccer, both of them played wonderfully. It was cold out, and once the cold gets into me it’s very difficult to get out. My lips get purple, my hands and feet and nose are freezing and no amount of bundling typically helps. I used to become so afraid of this. It’s very unpleasant and it can’t be good right. My joints ache after. I’ve tried all sorts of things and had all sorts of testing.

Do you know what heals me the most?

Love.

Once I got into bed with my person she lovingly warms my hands and her touch brings me right back to life. I believe 100 percent if you allow yourself to receive from source (for me love and the earth) that you can heal. When I’m cold like that I also ache and all my muscles tighten up, and it can cause a migraine etc. Normally I go to such a fear space in my body and I’m in my head, and can’t get out.

She brings me right back to earth and safety.

My secret is you have to reach a place where you reduce down to the truly important things. Not getting caught up in whether your house looks nice, your body, various appearances. Whether you’re good enough (you’re good enough), make enough money, have enough time. There will never be “enough” of those things, but think of how much can be wasted with a skewed perspective.

As my fear melts away, there is just more and more beauty to bask in.

If you had seen my life you would absolutely wonder how. I truly believe like a stray that has found its forever home I live in constant gratitude for the tiniest things and it’s a constant ecstasy.

I never imagined you could have a relationship where you truly fall more in love every day. I dreamed of this, but then romanticized and become crushingly disappointed by continually picking the wrong fit because I couldn’t move slow enough to pay attention to the details.

Prior to this I chose partners who were no where near ready nor did they want to be responsible to a family unit. They fell in love the same way I did, with the idea of something and someone. Not truly knowing what they wanted out of their one precious life. It created love to be the battlefield from whence I came, and that pushed me toward illness, depression, fear, and longing even further.

When I met my wife I had already seen that she loved in partnership the way my value system works which is that love is prioritized above all things. The love itself is what continues to expand the dreams. Not resentment or playing out with each other the legacy of our family systems.

This love is bliss.

It’s interesting to watch others reactions to my shouting from the rooftops. Responses are often critical and judgmental such as “if you have to share it all the time on Facebook then…. and maybe you should be more private about it.” Or with skepticism or with behaving as if it’s corny to love this hard and talk about it. If this is your response you probably want to check in on your own unmet needs.

Well meaning advice from those who see their world quite differently. Also it means those people don’t understand me at all. How I work. That I delight in having permission to share my truths as often and as loudly as I like. That I was shushed often as a child and told that little girls are supposed to play quietly in the corner with their paper dolls, and that children are meant to be seen and not heard.

If they aren’t for you move along. I used to accept shame and judgment so easily. It used to make me crumble. I wanted so badly to belong and fit in, I did anything, sold my soul, again to people who weren’t ready to create a big life with me.

Keep your dreams at the forefront and your enthusiasm for living. I wonder how much I was born like this, and how much is my chosen perspective. I wake up wide awake at 6 am every morning with thousands of thoughts. I used to wake up with those being terror filled, and the day being a gauntlet of symptoms to survive and my own dark thinking of how badly everything could go. My mind can do dark things. I’ve lived in dark places.

The saving grace is my determination towards the light. I am fiercely protective of this life I am creating. I know that loss does not discriminate, and that I am not immune. And that I will feel the effects intensely. Which will only make the beautiful things that much more special.

I continue to keep warming my inner child and bringing her into myself and feeling whole.

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To Humira or not to Humira

So I’m trying to make a very big decision. Whether to come off of Humira or not. I’ve gone back and forth and back and forth for months, and here’s why. If you come off of a biologic it may never work for you again, and can throw you into a terrible flare. The burning question is however, did I even need it in the first place.

I’ve been taking Humira since around 2013. I was diagnosed with Crohns based on a scan suspecting appendicitis and a follow up colonoscopy. I still remember to this day my GI went back and forth with her diagnosis. The tissue sample came back acute not chronic, but she made the conclusion based on the films that I have Crohns.

I so willingly wanted an answer for my problems at that time. A variety of odd sensations in my body and a large level of discomfort and fatigue constantly. Heart palpitations, heavy periods, chest pains. I’ve had more heart tests than you can imagine. However, I was severely anxious and stressed, in the wrong relationship, and working way more than any human being should. I also wasn’t aware at this time or connected to the whole picture of my life. My traumas.

Now that I’m learning a much more holistic way to view pain in the body, especially through the lens of trauma I’m unconvinced that I should be on this sometimes deadly medication.

So one of the real questions is, did I forget ?! Did I forget how sick I was etc? I never had bleeding, or fistulas or major symptoms though mine was nearly all extra intestinal manifestations and completely anxiety which I didn’t want to be true or admit at that time. I wasn’t ready. I needed it to be “something real”, and now I know anxiety and trauma in the body are very real. It’s just when you seek medical help for anything they often only look through one lens.

So now that so many things in my life are more secure I have way less symptoms and when I do I take measures to heal my body naturally. I know I need to address how I eat for my body, and not just lean on Humira so I can eat what doesn’t serve me anyway.

I’ve been reading about many other approaches to medicine and my friend is also an acupuncturist and going to school for Chinese medicine, herbs and all that. And recently I came across this concept of “earthing”. www.earthing.com which came about from people looking at inflammation in the body and how it’s the primary source of this decades physical malady.

And then my skeptic and science brain, actually probably my Western medical natural background, says what if that’s all a bunch of crap. Which leads me to the big problem here.

Not knowing what to believe. I’m really challenged to fear I’m crazy by believing holistic versus the Dr in the shiny white coat who got her degree from Harvard. But then again is she truly just in it for the money? Have I been a victim of this drug? Or will I be?

I used to frequently wonder as a child how if there are so many religions which majorly different beliefs that you pick the right one. Since my perspective has become somewhat richer and more varied since then I know you can choose what you believe in. And I know as an existentialist I believe in the power that provides to each individual regardless of what belief they use.

But when it comes to East versus West in medicine, and philosophy versus skepticism, and faith versus facts; I’m a little lost. Do I get to just choose ? What if I choose wrong?

I’ve read and studied. I like this guy particularly https://drpompa.com/cellular-health/a-healthy-mindset-overcoming-crohns-and-colitis/ Dane Johnson. My amazing wife has bought the elemental shakes for me. And just like him my lifestyle is so busy that I eat worse and don’t stick to any of these things. He was on death’s doorstep and about to have his colon removed and then went to a naturopath.

Now I went to a naturopath once and she did the blood type diet, and the plan included lots of veggies that would have torn apart my gut. I was so lost. And no one in any of this took account the the trauma I have experienced in my life. The years it endured for, how I escaped from it, and the way all of that has significantly impacted the direction of my life in so many ways.

No one is looking at the whole picture here. But now I am. I’m just having trouble knowing what I have faith in. I do know that I have faith that you can heal your body with your mind, but for most in the throes of it this is so invalidating. Though it doesn’t have to be.

Enter, You Can Heal Your Life. www.healyourlife.com the brilliant work of Louise Hay, which I have had on my shelf from many a counseling conference and didn’t pay much mind (because it seemed to invalidate my disease) until recently. Recently I attended a workshop on energetic body types. https://blueheronhealing.blogspot.com/p/blog-page.html?m=1

And one of her sources was Louise Hay as well as Earthing.

Now back to this idea of not knowing what to believe. Of course I don’t. I had a mother and an aunt and a set of grandparents that all bounced me around like a ping pong ball using me in tactical warfare, information finding, and often for their own devices. And being overly mature for my age, willing and energetic I delighted in any form of attention.

I developed a strong outer shell geared to receive praise, with an inner self that was a molten center of wholly unmet needs. I subconsciously froze that part away for safe keeping.

My body and outside persona was carefully crafted armor.

So it makes sense now when I’m frantically uncertain and can’t figure out what to do, especially when these stakes are so high.

I know I never want to stick that pen of poison into my abdomen again. I feel it with every part of my soul. But my constitution is built up of so much obedience from one of the only systems that I ever grew up around truly paying kind and attentive notice to me. The Western medical system.

I had severe asthma growing up, and was often in and out of the hospital. Louise Hay says this corresponds to not wanting to be alive, fear of being here, which absolutely makes sense given my mothers pregnancy with an older man and out of wedlock. And the chaos I was born into.

So later in my life when feeling utterly alone and crippled with (what I didn’t know was anxiety) I would seek so much medical attention. I have so many pictures of my ex partner in ER waiting rooms. And each test and visit eventually only led me to less validation and even to be considered a drug seeker when I’m terribly anxious to even take a Tylenol.

I now realize I was subconsciously doing that to feel special, important, loved, safe, etc. and that I still did not. Not being a mother, or a graduate, or any of the accomplishments I had attempted to busy my mind had resulted in this. That unmet need core of me still radiated out into my whole body.

What else could make an energetic curious outgoing child later turn into an adult who couldn’t raise her hand in class without her heart thumping so wildly against her chest she thought she might die. Also notice when it gets very vulnerable I’ll slip into language that suggests someone else and not me? That’s a thing too.

I’m piecing it all together as I’m gently healing all of my parts back together rather than being rough with them and demanding we have it together. I have to invite and ask and nurture myself.

This is healing and this is my journey.

I imagine myself on a vision quest and meditating and the answer coming, and then my logical brain scoffs at that. My spiritual brain and my logical brain are at war.

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Healing, and Validating My Dark Passenger

Being a Clinician helps me validate my own trauma on a daily basis. It gives me a space where I can acknowledge it, along with carefully detecting others and helping them become self-supportive versus being their own authoritarian parent.

Every single time someone reveals themselves to me I get permission to reveal me to myself, and I grow.

I’ve come so far on my path that it’s time to peel back another layer of denial. My trauma still lives in my body and wreaks havoc on my ability to enjoy…..everything.

My body is the last part to address. I’ve been working on my mind basically my whole life. And I never seem to be able to find a Clinician who will see beneath my high functioning exterior and be able to help me hit that sweet spot between acknowledging and not being terrified as I do.

I need to fall in love with my body. I have never loved it much. It was drilled into me in a thousand ways I shouldn’t.

First, as a woman, as my mother’s daughter I was already capable at any moment of being the promiscuous temptress she was (at the ripe age of 10 or so), so it was drilled into me sex was bad, being around boys was bad, and even movement in my own body, bad. No dancing. No joy. Do not pass go, do not collect $200.00.

Second, I liked the boys section of clothing always. They had the cooler stuff. I never liked lace and bows and never liked to do my hair. Even when my own daughters came along, that wasn’t something I ever did. I didn’t know how really. And also had no desire to learn. I’ve never been girly. Call it hormones, tomboy, the urge to be more male like as a means to protect myself and anyone else. I was always shamed for that.

As adolescence and puberty came along I desperately tried to fit the bill and be like the other girls because I so wanted to be picked and chosen, probably by them, but I wouldn’t know that until much later. I was convinced by society and the standard that Prince Eric was the prize and Ariel was who I needed to look like. And if you have ever met me once I know what I need to do to adapt and be picked, I am an unstoppable force.

But none of it ever felt very natural and I couldn’t put my finger on why.

Sex never came very naturally either. Was this the thing I was supposed to enjoy so much? I made it work. I always make things work, but never under a confident hand that pressed for their own needs. Not until much later anyway. I could only choose those just as lost and confused as I was, but to me anyone looked like a well in the middle of the desert. Anyone who paid me 1/2 a second of attention… could have my whole heart.

I would have our wedding dreamt up. My imagination the sustaining force of my inside world. Naive and childlike this imagination; I have to give her credit, she has taken me on a Wild wild ride, and it did lead to my destiny. So to speak anyway.

And now that I’ve cracked the code on love, my sexuality, am becoming the best parent that was ever possible given my history, am a successful and sincere Clinician who loves her work. Now that so many of my dreams have come true it is time to work on a strong, proud, fluid, gentle, relaxed, healthy body.

Now how does one do this without getting overwhelmed by all the possibilities? I can do yoga, Pilates, exercise groups (terror for me), I want to find someone who can tell me more about how my brain compares to those who haven’t had my experiences. More validation. I never validated the C-PTSD. Helping others gets me just close enough to mine to look, but we haven’t quite tipped over the edge of owning this history yet.

Why if I am doing so well? Is a measure of denial not productive and healthy? I’m not sure. Strip away these layers and terror could lie beneath. I could crumble under the realizations. But Christina, “you have never crumbled before, cut that out.”

I don’t exercise primarily because every little extra fast beat of my heart makes me feel like I might drop dead any moment. The true reality of me if you want to know the truth is I am the imagineer of terrible scenarios. I do it everywhere, all of the time.

If I’m walking to he big E and we pass a bridge. And a woman with a baby walks over it. I imagine her or someone else, throwing it over. If I’m on a train to go do something fun, I begin to have scenarios of a gun man getting up, or of the train exploding, crashing. I’m sitting right there with my family about to enjoy a nice day. And so then the physical symptoms begin, the tingling and numbness, the chest discomfort, bad stomach time, will I find a bathroom in time. This was so much worse at a certain point. I’ve mostly conquered the physical, by not entertaining the thoughts, but they still are there.

This is just a tiny picture of what could go through my mind. We went to Hamilton this past year, one of the best days of my life. We were in orchestra and my children (teens) on top of the mezzanine, smiling down for a photo. And terrible images of them jumping, or when I’ve been up there, what would happen if I jumped.

I have no desire to kill myself, in fact quite the opposite I have a terrible fear of not completing my missions here in time,

Why is this such a part of me (I know why). Why even with all of my work can’t it be laid to rest. My body is as tight as anything you have ever imagined. Stiff as a board, not light as a feather. Every muscle is ready all of the time for battle, at any moment.

I would like to catch my body up with my mind. Would like it to feel as healthy, strong, capable, fit,.. as I’ve created my mind to be able to be. But I keep telling a story of tired. This is when I want to coast I say…and then the anger and resentment rises and there is no room for that in my life because it makes me irritable with my family when I don’t want to be.

So denial keeps everything where it needs to be so I can function just enough. Peel back denial and you are completely in the unknown. And imagine if I can picture such terrible scenarios in the known what I can do with the unknown.

Imagine…..

So recently I’ve finally been convinced to try CBD oil. Enough clients are finding success from it I really wanted to try. I have a complicated relationship with marijuana, and yes yes I know no thc in this, but if you have seen the things I have at the hands of your own mother and even the smell is a trigger. I hate the stuff. I know tons of people find relief, but also it’s a dark mistress as well. There is a dark side, it robs motivation and self efficacy and convinces you it is the only thing needed. It masks and hides as well.

Taking any new medication induces such hypochondria in me I begin having physical symptoms and can’t tell whether it’s anxiety or the medication being taken. A really fun time. I already don’t feel well in a variety of ways each day, from my Crohn’s Disease. So I am determined to get my self healthier.

So I tried oil from https://www.cbdmd.com

750 mg gummies and oil.

The result thus far after 3 tries at a gummy in the evening. I felt anxious about taking said thing and felt weird eye pressure and head pressure, though this has been bugging me awhile, so probably not that.

I realized that while I don’t feel anything in my head. I can’t tell what it’s doing. My body feels relaxed in a way it never has. My level of red alert constantly is a little more relaxed. I have never slept so good. And this morning I cried with the possible realization that my body could be this stressed for this much of my life. That this could be real and not a concoction of my mind to validate my experiences.

So my new mission is to lose weight, not leave my body last to absorb the brunt of everything, and to find natural mediums to heal myself. To be willing to devote that time and energy, and not just say I’m too busy or it comes last.

So I will be writing about this as I go. Each days attempt at body love and trauma work, and everything else in my world.

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Shame, Disease, and Dad: Grand Canyon Ponderings

I’m a little homesick this morning, so it makes sense that I am going to turn to my constant companion that is with me everywhere: my safe haven of the written word. Somehow I always feel better after I have bled my experience on the page, and someone hears it. I think we are all like that. I am sitting in a cute little coffee shop called Brewed Awakenings on Route 66 in Arizona, just a few minutes shy of the Grand Canyon. We are supposed to have a Pink Jeep Tour at 2:30 today, but on the Groupon it says “pending” and I am not sure what kind of weather these guys operate in. I am also not sure if we have the appropriate gear. We somehow assumed that Arizona would be warm. We rented a convertible car LOL! It just so happens that it is snowing this morning, and rainy and wet, and is supposed to be this way all day. “You can plan a pretty picnic, but you can’t predict the weather.

It is however a great day for the permission to write. I have several things on my mind this morning, it’s exciting to see what I will untangle from them. The most prominent thing, much to my frustration is my Crohn’s Disease, and it’s close companions are shame, a certain level of confusion about validating my own experience with it (and in general of course), and this brought up feelings of my Dad, and about how I “lost” him again. Though you can’t lose something you never had, and that isn’t the correct narrative. I chose to eliminate any source that would shame me without looking or investing in me.

So Courtney and I went to a little restaurant last night, it was an interesting experience. There was one cook, and one waitress and they became slammed. The Yelp information made it look like an established and popular establishment. Overall it wasn’t a bad experience, though I would not get food there again. The beer was delicious and probably because we didn’t eat much with it, I ended up squared up with my disease again.

Over the years I have really tailored any drinking because I can tell my body has a very hard time processing it. I essentially got to the point where if I have even a few drinks I get a very bad experience with heart palpitations and tachycardia, and sometimes even atrial fibrillation. However I have been rolling pretty smooth in the land of disease, until I got bronchitis over a month ago now, and had to skip an injection. I’ve been struggling since then, in ways that I haven’t in 6 years. I dread the possibility of another difficult round with this disease or having to change my medication and play that “game.” And at the same time what did I think was going to happen. That I would just take Humira and never have an issue again.

I struggle particularly after being at the International Women’s Summit, where there is lots of talk of sickness in our bodies being a symptom of repressed feelings, un-lived potential, etc. I have always struggled with feeling I’m injecting myself with poison, that is experimental, and doesn’t my body know what to do to heal itself. And on the other hand my GI tells me that this thinking is unrealistic, and that staying on top of this disease in a top down fashion can give me a much better quality of life. Confusion.

How do you know what is intuition and what is superstition?

This is a very important question. We human beings have very superstitious ways of thinking, the way we connect the dots in our experiences. And this isn’t limited to “unhealthy” things, most people think in these ways.

So anyway I woke up last night shortly after falling asleep with my heart beating so hard it felt like it was going to shake me out of the bed. My beats per minute on my Fitbit were over 100. TERROR. I could hear and feel my heart beating in my ears. Seven years ago when this would happen I would go to the emergency room, only to be told I had anxiety. So I gave up doing that long ago, though now I have to be nervous I won’t get help if I need it. I’ve worked that one through with a therapist as well. I’ve tried to cultivate a sense of faith in myself that if it continued to get worse in a variety of ways I would seek help. Except who knows what kind of medical care is available here. I mean people live here right, there must be something. But I’ve been spoiled living only 20 minutes from Yale Hospital. Where bad doctors can exist as well, arrogance can be as dangerous as anything. But that discussion will lead us off topic, as if I ever stay on topic, HA.

So my episode. I take .25 of Xanax to head off any panic attack this can cause, and because I am superstitious of course I believe it will lower my heart rate. I mean relaxing a little can’t hurt in that department right? And then the bathroom things happen, sweating, erratic heart rate bad bad things is what we will leave it at. When that is over I am left shaking and sweaty and cold and aching. Pain radiating up my back. So many symptoms that they tell you to watch out for in a heart attack, because that isn’t stressful. I sit up vigilant lest I pass away in my sleep. I don’t wake up my wife, because that makes it more real, if she gets afraid I’ll read her fear and then really get anxious. So I work my way through it. Eventually I get it down to 90 ish, and I’m doing deep breathing, and making my trips back and forth to the bathroom.

EXHAUSTED.

I wake up this morning feeling like I was hit by a truck, pain radiating up through my kidneys, bags under my eyes. Here I am at the Grand Canyon, and I want to BE fun. Notice what we do? I’m not worried about how I am feeling, and that I deserve to feel better. I am worried I will ruin someone else’s time. Because I know she will be disappointed if we stay in. I know the disease deserves our anger here, hers and mine. Not me. And I never know if I really have to or not. I never know when to push myself to just keep going, or when to validate this thing I don’t want in the first place. My dark passenger, Crohn’s Disease. When I put it like that I am grateful it is not the urge to murder anyone. This was a Dexter reference if you didn’t know.

So when I am grappling with shame and doubting my own experience, this time I am looking to the origin of it. When I got diagnosed with my disease I was so unseen in so many ways. It wasn’t anyone’s fault. After all I didn’t know what to do either. A dear friend of mine had rekindled a relationship with her father and I was wondering if that couldn’t be the same for me. My father stopped talking to me around the age of 12. There was no explanation he just disappeared. I suspect a complicated relationship with my mother and my grandparents, and a lot of confusion to blame, but it was never my fault, and yet I am the one who paid the ultimate price. He made a choice. There is still so much I’ll never know about that choice, so many unanswered questions.

So when I found my 1/2 brother on facebook and was able to look him up and we began corresponding via e-mail I was overjoyed. It felt like falling in love. He of course became romanticized even more so than the average parent in such a situation would because anything was better than the situation I grew up in. He always got the hero role by default almost. Because his energy felt more sane from what I remembered, it felt more normal than what I was going through at home. But as it turns out he was intellectual, and quite pragmatic to a fault. At first I appreciated these things, but as we moved further and further there was no empathy for my experience there. He stated he did not want to re-hash anything of the past only to move forward in relationship, this clearly had nothing to do with my needs, but then again it never did, did it? That was the first flag. But then I thought ok well I can work with that as long as I get to know him. I would do anything you know to have a relationship with a parent. Plus he was so smart and so worldly and doing such neat things. He was living in Xico Mexico at the time and writing a blog about life there.

We struck up a writing relationship. I was smitten. I couldn’t wait for an e-mail from him, and what was even better his take on me being gay was that evolutionarily this was the more intelligent thing to do. He said men were assholes mainly, so he was glad that I was with women. Another interesting perspective. Not one I expected, but I was so hungry for acceptance at this time. He even posted a picture of my daughters on his blog. We belonged! He was willing to own us as family is how it felt at that moment. I felt a taste of acceptance and belonging, one I had yearned my whole life for. He didn’t post a picture of my son, or of me, or anything else. I recall hearing about him that he was a womanizer etc, he appreciated beautiful things, cars, women etc. But I don’t know how much deeper his integrity or his heart went than that. He did stay with his wife (my step-mom when I was little) Anita, for the whole rest of his life. So that’s a sign of health one would think, but then again, people stay together all the time and are not necessarily healthy.

Here is what I do know. When I was lost and scared, riddled with physical symptoms and diagnosed with Crohn’s Disease, and in a relationship that didn’t feel particularly loving in the ways I was needing at the time (due to my behaviors as well)…. he said to me “daughter your posts as of late tend to exhibit some frightening mental states not unlike your mother”, and our relationship was over at that point. I cut it clean. I felt no warmth or empathy from him. I just thought I might find it there. It was like a mirage of an oasis in the middle of the desert, and to realize I was sucking in dry sand rather than water. My heart had to break again. The loss of him, or perhaps only the idea of him, to have a father, and then to lose him again. I then vented at him all the things that were hurting me. All the unanswered questions that burned at me my whole life, that I had to carry around. His responses were scathing and only burned more.

Then I got an e-mail from the brother I told you about that he died (this is 2 Decembers ago now). He was 72. I was only vaguely regarded with any information of his passing, even when I asked if perhaps I could attend the services for my own closure. I think his parents didn’t even know about me, and much of the rest of his family. I know I wasn’t given any empathy. There was only shame. SHAME SHAME SHAME.

This morning I saw a post from a friend reaching out on Facebook, and it made me think of people’s statements about whether people should or should not post about their lives on there. What an arrogant statement. Who is someone to know what another person needs. Perhaps in that moment facebook is all they have in terms of nurturance, and one person saying they are there for them may make the difference between life and death. How do you know? Is it really so shameful for someone to vent their sufferings in a public space? I think we need more of this, not less. We need less of the shaming.

Anyway I am going to add an additional post with my final letter to my father that he never read because I knew I was writing it for me, and I knew it wouldn’t be appreciated or received by him, and would only give another opportunity for me to be harmed. So I wrote it for me. It was a huge part in my growth. The decision, MY DECISION that I didn’t choose a relationship with him, rather than feeling abandoned or not chosen.

My letter on the next post….

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What ever happened to Lisa?

grief2

I’ve fashioned myself into the therapist, and left behind the survivor. I wanted to move past, beyond, ever away from my own trauma. It is only recently that I realize how much it is still with me today. I am reading the article “Touched by Trauma” in the most recent publication of Counseling Today.

I tend to move so quickly through life that I see the magazines on the desk, but rarely read them. Why wouldn’t I read what others are saying in my field? I wonder if I avoid it because of realizations like the one I have had just now? It can’t be that though, because I read many many books and articles on such topics, but I tend to ignore magazines, perhaps I regard them as more a waste of time like tabloids, People Magazine, and Entertainment Weekly.

Perhaps I am so hyper aroused all the time that I can’t focus for hardly a second. Perhaps this is not your garden variety ADHD, and something a lot more sinister. That requires a lot more attention that I have ever given it, because then it would become more real. And the fear is always that suddenly you will fall apart, or become swallowed by the associated feelings. They are too big, and there is no way to properly control how much of it you feel, when you are recalling. 

I never connected how much my Crohn’s Disease is probably an effect of my trauma. Instinctually I know, have read and seen how much cortisol, the stress hormone is bad for you. The article says, “Counselors also need to be mindful of the accumulative physical toll of long-term trauma. Research has shown that experiencing trauma- especially when it is prolonged and repetitive- rewires the nervous system in ways that cause hyperarousal and persistent anxiety. This continuous stress causes the body to release cortisol, which can cause chronic inflammation. Over time the inflammation leads to negative health effects. To help counteract this cascade of neurological and physical damage, practitioners can teach clients skills for calming their nervous systems. The treatment should be tailored to the individual client.” 

I’m still peeling back layers of my own abuse. 

When I read this I made an immediate connection. I have been inundated with physical health issues for the last 10 years of my life. I had problems as a child, asthma, and I’ve always identified as a hypochondriac. I was in and out of the hospital often. For awhile youth and enthusiasm to get away from my painful past kept me busy and disassociated from physical symptoms, but as soon as I realized I was not in the right marriage for how I was made and who I am I began to have a lot of problems.

It all began with heart palpitations. These sent me to the Emergency room several times, it actually took me years to realize, or have suggested to me that I could have anxiety, and it was not done kindly ever. It was more like I was too sensitive, making a big deal out of nothing. Anxiety was suggested to me as a personal flaw, not something that required further inquiry and comfort. 

Right now my family is out in the living room playing Trivial Pursuit. I can hear them and they are having fun, and to be fair so was I until my stomach began to bother me and I had to excuse myself. Once I read that and made a connection I went away to the place I so often reside, somewhere in my head trying to figure it all out. I’ve made the mistake of trying to figure it all out at once, because then the idea is perhaps I could be free of it. What it? I didn’t know what to call it. When we don’t know a language for something we tend to automatically internalize some fatal flaw within us. 

I just had a severe ringing in my ear, it happens sometimes, it came on suddenly. I have read more on symptoms and health than the average person probably ever will. My first thought as it happened was that my blood pressure is at some bad level and something is going to happen to me. I probably think about myself or someone I care about dying or suffering some terrible fate no less than 100 times a day. I can’t ride in a vehicle without jumping at any unforeseen occurrence. I am only now at 38 years old connecting so many of these dots.

I am able to do so because of this career as a counselor. 

I can still help people, in fact I am very good at helping people, AND it distracts me from my many anxious thoughts. This dispels the myth that you have to be fully healed in some capacity to be a healer. You just need to be healed enough to not unintentionally harm others. You have to be aware, and a good deal of the way towards acceptance of self and others, otherwise you can use someone else for your own needs. 

It has never occurred to me before this article and this point to be upset I have this disease, and a weakened immune system due to the trauma I have endured. I have worked so hard to keep myself separate from my beginning. I moved across the United States to get away. Another life and another me. I disconnected myself from it so much, that when I had a difficult time maintaining relationships all I experienced as a result was shame. There was no one to help me connect my triggers, behaviors, and anxiety related impulsivity, attachment fractured impulsivity. There was no one. Mostly I have lived marinating in shame and self-abuse as a means to shame myself into a new way of being. it never worked. 

I have so many thoughts to untangle about this. But the one this evening most prevalent is what in the hell happened to my mother and to her sisters to cause the type of toxic sibling rivalry that permeated my childhood. Who was the evil villain and how evil were they? Who is at the root of this, and how much damage has spread through the family tree? They worked so hard to look different than whatever hurt must have occurred, but my childhood felt terrifying in a variety of ways.

I have tried to minimize. I have tried to make myself responsible. I have tried to convince myself that it’s me who made all of this up. It’s unbelievable even to myself. I want to say I dramatized it. How can I trust any of those memories after all. But some of the memories I do know for sure. I know the gist. I know how I felt. And I know what I struggle with today…. and most importantly that this is not my fault. 

I can’t even say that and feel connected to it. It feels dramatic. My intense feelings have always been shamed. ALWAYS. By family, friends, and loved ones alike…. validation is not something I’ve had much of. I’ve often wondered why nobody saw me, why they didn’t notice a good heart, with behaviors that didn’t make any sense. So many people rarely look beneath the surface for answers. 

Where was that one person to come forward and help everyone make sense of it? 

People suffering from complex PTSD without being noticed are wounded warriors with no decoration. They have no percentage of disability, no purple hearts, and in fact are mostly invisible until they find their way into a Counselor’s office. Probably they will spend most of their life plagued by terrible thoughts that something bad will happen either to someone they love or to themselves. Running horrific scenarios through their heads. It will be difficult for them to travel or live any kind of a normal life unless they are disassociated enough to appear functional, but inside is a whole other story. 

My daughter came in to be snuggly and I was intense and in my head as usual. I want to erase this out of frustration. It will be seen as deep and dark, and no one wants to be seen like that. The kind view is no one should have had the experiences that cause them to feel this way on such a regular basis. With your kids you are supposed to be the parent, and present, and none of this is really something they can understand. So I only appear like I don’t care, or I am not present, then I feel guilty for being this way. Then I am shamed by my ex-husband, society, parents of the partners I dated before I connected any of these dots. Seen only for my behavior and my flaws. 

I want answers. I want to know what happened? I want to know if it’s fair to be estranged from my mother to protect my mental health, or if she too was a victim of some trauma I don’t know about and something could be done to heal it. The hope is always there that something could be done. With me healing was possible. What is the difference? Is it in the wiring? Could she have been wired from birth for narcissism, or was she so damaged a health self could never emerge, and if that is the case how can I make sense of any fairness behind all of my feelings towards her.

Where can I place this accountability if not always in myself? What if she never stood a chance? I never did either, but somehow I thrived and turned things around. Is the difference between us the severity of experience or the wiring?

I need to know. 

I don’t want to know.

I need to know.

I don’t want to know.

I distract by staying in the present, but we are never free from trauma that forged our entire nervous system.

I am a prisoner inside my own body is the dark side.

And I am a warrior of light and a protector.

If that isn’t confusing I don’t know what is.

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Hamilton: What will our play be called ?!

Thank you for seeing me in this way, for delighting in me and in us. It has literally saved our emotional lives. We had our physical lives before you, but our emotional ones are taking such beautiful shape now. And I want to write about it. I want the world to know your bright love. And I what we have created here. 

The image suggests perhaps a playful post about our experience in the city. Wouldn’t that be a more pleasant read ? Perhaps it would, but it wouldn’t be written by me then, at least not tonight. 😉

This blog post is a letter I wrote to my wife tonight. Whether or not all things are meant to be shared I think there is always a power in it for someone. This letter bled straight from my fingertips, it fell onto the page in waves of truth that couldn’t make their way out fast enough. A catharsis. Isn’t it always. If someone else has a different experience with those words who am I to stop them.

Clicking publish has always been an act of bravery…. one I never gave myself much credit for. Warning it begins with graphic Crohn’s Disease material exactly as I experienced it.

I had a stomach episode tonight unlike anything I’ve ever experienced. I thought I was going to have you have to call 911. I almost screamed for you. Literally. I had visions of me passing out and dying on the toilet. I woke up doubled over completely, and I mean completely. I hobbled to the toilet. I didn’t know if I would vomit or faint. I felt like all 3. I felt like I was going to have to poop but didn’t know what thing would come first. It felt like I was being ripped in half. My shirt was completely soaked, completely, and contrary to the scary fast heart rate I will have usually during an attack my heart felt like it couldn’t even beat, it was low 50’s. 

I just held on and tried to breathe deep as I could through the waves of pain and head swimming until finally I pooped literally probably 3 toilet bowls full. It wasn’t all at once. First was getting the hard part out, and then a ton came. 

By the time I was done I was left shaking and freezing and now I’m more wiped out than you can ever imagine. I just can’t even quite describe the pain.

A couple of things happened. One, I felt a tremendous wave of compassion for V and guilt at not feeling more present. It’s like I can’t weather watching her suffer and I must because I’m mom. What a confusing thing. And two, intense fear that having not taken my injection even for a week has thrown things into some terrible state with my health. What if?! And what if V is in for a lifetime of chronic suffering with her tummy that impedes so much of her adventurous self. My god that will break my heart. And then that I really do love my kids moment. Well of course I fucking do?! How could I ever be so unkind to myself, ?’ To not give myself this benefit of the doubt. 

And then I think of the good thing that I’ll make sure she is safe and supported forever. Never scared she won’t be able to support herself. And then the realization that I’m a steadfast supporter and provider and that I’m creating / have created that from scratch. 

And this is literally what a profound RE frame in thinking looks like. I’m strong and proud and safe and I’ll keep my family safe, not some impulsive person hanging by a thread.

I’m creating something beautiful in myself and for others and it’s my story. My legacy. What I want people to say about me, when they tell my story like Eliza did for Hamilton. What will they say?! We all wonder what people will say.

This makes me think of you: do you know all anybody says is nice things about you?! I always wanted to be that person, but I make too many waves, take too many risks, and don’t think enough about how I’ll make someone feel. You think too much, and I not enough. If you take us both you have the perfect person 😉 boastful? Perhaps. 

I make people uncomfortable, but do it with good intentions lol. Don’t they say the road to hell is paved with good intentions;) I make people uncomfortable by pointing out what is so readily visible to me, that for others it takes them a lifetime if at all to notice. A gift and a curse. 

I wonder if V felt a fraction of how I felt just now. If she did I feel terrible for her. I’m gonna root around in your magic bag of goodies, the bag leftover from our dead dreams (to be dramatic and truthful) and see if I can find some life giving electrolytes in the form of Gatorade to settle this tummy. It’s feeling like knives are raking it currently and I can’t be out of commission this long. 

If anything happens to me babe please tell my story. I need my story told. The need is getting fiercer now. I need people to know how hard I fought just to be ok on a daily basis and my kids to know how strong their love makes me. They are the fuel to my fire, and everything that makes me the person that I am.

Every person I’ve ever helped has them to thank. 

And I have you to thank. You’re such a source of comfort to me. Speaking of…. I’ll need to restock our sick supplies. We were so fortunate to have all these. Though the reason we do and they are unused is still excruciating. 

Babe I know your process is different but please know that if this didn’t happen I might not in some really profound way have truly known how much I want it. How I want to enjoy the tiny new life that we create rather than ever viewing him or her as a burden. And my life has already been so heavy so long, any small thing sometimes does feel this way. But in part due to experiencing this loss with you, I know even more profoundly how much each second even is worth. 

I do in a fucked up way feel it is meant to be this way. This sense that everything does happen for a reason, and not that that’s just something we say to make sense of things when they are too fucked up. It makes me believe in destiny and magic. 

Does that mean we couldn’t have done without this toll to our hearts, this wound, and these scars… of course not. 

But life would not hold as much meaning without the whole picture, the whole journey, and my life now is beyond filled with meaning. 

While I don’t plan on going anywhere soon, I am satisfied with my life right now. I need you to know that. I don’t regret for me or be sad for the rest of my unloved life ever, because I have lived it to my fullest already. I do want more of course, immense amounts more. But if it wasn’t in my cards I didn’t miss a thing. I knew exactly what I was doing. 

I want you to find the same feeling, but in whatever way Or path that’s meant for you. That’s my dream for you, never give in to self defeating thoughts, ones that lack compassion for your full journey. 

If you did ever lose me I want you to live on for me in the way I would have. Carry my legacy and be for my kids what I would have been for them. You are up to that task. No one is as well as you or I wouldn’t have picked you. They will need you forever. 

I don’t plan on going anywhere, but we never plan for that so I want these words down. I don’t care what laws or rules or fears or whatever. We have something very special here and blood relation has nothing to do with it. We must trust that. You are an irreplaceable part of the kids healing now. You’re already written into the story. And I would never want to let you be snuffed out in the event of my demise. And anyone who would try would do so out of ego or pride etc, finally able to have their kids back from my evil clutches you know 😉 but you know better. 

You’re the best thing that’s ever happened to us. Yes little ol you, it’s true. That’s a truth. And it couldn’t be without you being so much more than you see when you look in the mirror. That distorted perception is your only enemy, it kills more dreams than a semi-automatic with unlimited rounds. 

I hope my kids will delight in my letters someday when they are old enough to read how my mind worked. Find, keep, and appreciate them all, because they are who I always really was inside and kids know so little about that.

I’ll never know much about who my parents really were inside, so much is a mystery, especially my dads side, and my mother’s, a tragedy. So for them to have this insight. To know my mind intimately. Incredible.

Wow so all this feels like a product of a near death experience. Listen honestly. It may sound dramatic, but this episode was no joke. And all this sweating and gross (being on prednisone and scared) the past couple of weeks has been really humbling.

There is a level of acceptance I am at, that wasn’t there before. 

My disease has carried a large piece of denial for the longest. I wasn’t willing. I’ve been in as much denial of it as I have how damaging my childhood was to me. I am reaching a stage of acceptance now, and it’s making me so much stronger. So much more at peace and strong. Someone that you will feel proud and safe to have a baby with. Someone stable that will enjoy that adventure with, not resent it, or fear it, or feel guilty about it because I already have kids.

That is at least the take home I’m recognizing from this tragedy. 

I will get to move forward without a doubt in my mind, and for me, that’s like having rebuilt an entire nation after its downfall. I’ve been a shaky entity bordering on panic for as long as I can remember, to be emerging this strong, still, solid force of love and compassion is unbelievable even to myself. 

I am surprising myself a lot lately. The strong I always identified as prior was a sort of forced kind of strong, a necessary one. This strong now is the accumulation of weathering storms with a sense of grace rather than a frenzy or a panic. 

It’s a strong I am satisfied and proud of, not one thrust upon me without my consent. It’s a soft kind of strong, and I can’t wait to hold our baby in these new arms made of this.

Every time you grace me with your vision of seeing the loving child inside of me. I can see when you see her, I can see her too, and it brings powerful healing. You bring that to me. 

Thank you for seeing me in this way, for delighting in me and in us. It has literally saved our emotional lives. We had our physical lives before you, but our emotional ones are taking such beautiful shape now. And I want to write about it. I want the world to know your bright love. And I what we have created here. 

What if someone else could find this place (when they couldn’t before) because of our story? Or was able to believe in their dreams?! 

Bliss. 

My tummy has burning remnants of the suffering I just went through and I can’t even be bothered to focus on that. I’ve too much shit to do with my one life. Thank goodness because otherwise I’d crumble into a little ball of stress and worry and take days to recover. 

I don’t have days anymore to spend in that way, there’s too much work to be done.

Every word on every page for every day of my life…. are for you….

Now I am going to curl up as close to you as I can and let your breath lull me into a deep relaxation, and help the pain melt away. 

All the love in my heart 

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Bronchitis and Snowy Reflections

There’s a certain permission that comes with being sick that it seems you (I) can find no other way. The permission to sit even slightly more still, even for a second. Which has allowed me to reflect a lot.

I’m recovering from bronchitis and had no idea it could lay me up so much. But here I am.

The snow is finally cascading down today, it is almost a relief existentially; climate change as it is and all. The flakes are ice coated and making a tiny crunch sound as they topple and flit here and there.

I’m just sitting here marveling at how much has changed around me, and it really does seem like all I did was blink.

I’m sitting in the kitchen part of our finished in-law portion of the home. This has been a dear friend and roommates kitchen, when her and her son lived down here, and her second son was born in this home, about 4 years ago. It’s how I paid my mortgage, and also how we both stayed sane. I was less anxious living alone, and we have become a sort of family to one another. Seeing the other through bests and worsts.

It’s brisk down here, but I’m wrapped in a warm red blanket, and sitting in and oversized brown lazy boy recliner. It’s interesting to get this kind of perspective on the home. Not a space I would normally sit. I could pick apart its imperfections: the low ceiling, white tiled floor, the basement like feel of it all. But what I’ve been doing most today is marveling at how far I’ve come and how blessed we all are.

I don’t think I ever even set my sights high enough to home ownership. I think I had planned on a retail job (management if I was lucky), and a small clean apartment, the kind I sometimes saw my friends in when I lived in Oregon.

I’ve been moving through life so frantically, so panicked that simplicities are now what I long for. What comes when you enjoy what you have like it’s the best thing on earth. My ability to hear for example or to taste, to appreciate the finer details in any mundane thing.

My wife and I recently were deciding if perhaps we might move to Milford or Fairfield Ct, out of the valley, up into a different class (and tax bracket). Funny how the important things to me about this move are still in the small details.

I would like taller ceilings, the feeling of room and space, a wood burning fireplace for smell and ambience, and a very nice bathtub. I’d like to see some woods or nature out my window. Bookshelves, many many bookshelves. Mahogany and teakwood smells and feels. An office so my papers and documents are not constantly strewn about. And we have the means to get into this nicer home now, but only to be stressed or house poor again seems not the right way this time. So we may just refinance and fall in love with all we already have! For a couple more years at least anyway.

Perhaps poor the love into this home and choose to see it in a way that serves us, rather than trumping up dissatisfaction as a means to motivate us into an action that may not even end up with us any happier in the end.

Tomorrow we are all as a family going to see Hamilton on Broadway and stay overnight in the city. Another extravagance I never would have dreamed of before. Some of us are not feeling so hot, hopefully that can be mild so there’s nothing taken from our experience.

I have found myself ahead rather than behind, perhaps not as much as my dreams could imagine, but then my dreams always were very expansive anyway.

It’s interesting the creaks and sounds down here. Now a part of other’s memories who have occupied this space. It’s housed a woman post recovery and pre-discovery. Another who was fleeing a bad roommate situation and stayed over here. Our home is a space of comfort, warmth, shared meals and affection. How could I not have seen this before?!

It’s everything I ever set out to create, and so am I. Not a single thing lacking. What a delicious discovery to stumble upon as I am sitting here listening to a different angle of the home I’ve occupied for 7 years.

This chair is very comfy, yes it would look nice next to a roaring fire, but I can imagine one just as easily……

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Victim or survivor ? What is your story….

Things have been very difficult for me lately. And because of this I’ve lost so much good writing to the madness. (Victim statement eek) To getting caught up explaining myself to sources that have never sought to understand. (I can only choose to stop explaining to those who don’t see). Challenger versus victim.

Let’s put the Karpman Drama Triangle to work right here. The actual truth is that rather than taking my writing away from me, the difficult experiences humble me, and give my writing back to me in a more authentic way. But surrounded by the feeling it doesn’t seem that way.

I am a slave to my triggers right now. And as a mental health counselor RE-visiting this place feels such a threat. It feels like it could take everything away. And when I am in this place I am scared and rabid. I lash out and flood with texts based on the emotions I am feeling.

I don’t like this self. It is an old one. It is a self my critics would like me to be because it will validate their story about me, and for this as much as anything I’ll have the courage to dive into my own behavior and rescue myself out of the perils that are causing this version of myself to be more accessible right now.

I have complex PTSD. Wordy clinical article to distinguish some things

More reader friendly information on C-PTSD

This means that I am hyper vigilant and distrusting primarily when my character is challenged. Because that was the really big problem in my childhood. My grandparents used guilt as a means to try and control me, and so they often told me how I was behaving and why I shouldn’t. No one came along that understood what was going on in my home. This is why I am a fierce advocate in my counseling office of seeing the unseen and unspoken. It was nearly invisible and I suffered but didn’t know what to call it, so I internalized.

Invisible wounds are the most dangerous, both to the wounded, and to those they will unintentionally wound as a result of their pain.

Now as an adult my weapon of choice is awareness and speaking my truth loudly. And yes I too must realize when my perceived truth is clouded by painful Triggers and symptoms of C-PTSD. It is arduous work. And then when I am in it, because of it’s invisibility to others I am sized up very simply as being selfish. Because of who we see a parent should be.

It’s easy to sit in a glass castle and throw stones. Anyone can have an opinion. The internet is rampant with them. The persecutors are ashamed of their own privilege so they lash out at those already afflicted with wounds and wrong them further.

Thankfully I’ve never known and therefore liked easy, but also it has caused me to make things harder than they need to be. I clamp down furiously on my truth and hold on for dear life. I got better at being iron clad over my young years, not being soft and gentle.

Now I’m taking the responsibility to learn this late in life. It’s taken me surrounding myself by people who see the good in me, the true colors, but those too were mostly conditional, and again when my poor behaviors would escalate I would be criticized. But do you know what didn’t happen? No one came along and looked at the whole picture and said hey look at what’s going on here this sounds an awful lot like complex PTSD. Let’s look at your whole life and see what’s going on here. No one besides a few very brave mental health counselors who changed my life.

This is why it’s my greatest privilege in this life to take the heavy heavy burdens of misunderstanding of this nature off of people’s back. They leave them in my office and we hold them tenderly, unpack, RE-frame, develop strategies, and show the importance of the interaction between wiring and experience in shaping a person’s behavior.

We must take responsibility to educate ourselves, to see beneath a surface and try to understand. To see beyond our hurt feelings and stories to look for understanding.

We have two choices with witnessing or being effected by someone’s behavior. Persecution or understanding. If the behavior is absolutely destructive and unsafe then our only responsibility is a boundary and seeking help from a mental health professional.

But most of the time, almost always without fail, if we help someone see the best version of themselves (believe in that story) and accept the parts that hurt too, they become more of who we believe them to be.

Innate in being human is a struggle between our light and dark selves, we all possess the capability for both, and who we become depends on such a complicated variety of factors. But the ingredients for the best outcome include unconditional positive regard (Carl Rogers of course). The magic of counseling is believing in someone’s best self. Seeing the unseen in this way until there is enough encouragement for them to emerge.

I have emerged and yet the journey is never over. If you surround yourself or become bogged down with your critics and you have fragile attachments from the beginning you’re at a great risk.

I have never really wanted to own my whole story. I think that’s why my memoir won’t come. I want to be the strong, not the weak, but I am both. Both a hurt child and an advocate for others. I am a wounded healer, but at the start of my career I’ve been too afraid of being invalidated for my hurts, to allow myself to be whole.

I cut off my beginning and searched frantically to replace it with something that looked better. I might as well have cut off my limbs. My whole story matters here and I don’t tell it because it fills me with shame and self doubt, which threatens the stronger self I’ve built over the years. I don’t tell it because I’m afraid I’ll be viewed with pity or as a victim or accused of that, and that is what every abuse survivor is up against. This is why people don’t speak out.

We would rather not be uncomfortable with someone else’s discomfort, let’s just be honest here. So they shouldn’t really say anything because look at all the mess their speaking up causes. Then someone else will have to feel marginally as uncomfortable as them.

My selves will have to unite into a whole for me to write my memoir. And I’m so afraid it will all return, the nightmares, the insecurity, the foundation always feels like a thin plate of glass no matter how many layers I lay down.

The last time I was vulnerable with one of the two people who you hope will love you unconditionally, he accused me of being emotionally unstable like my mother, and then he died. This was our last interaction.

My children’s father believes me to be selfish and emotionally unstable, and I prove him right with my behavior lashing out in texts. In truth any parent in my position would be stressed and venting. Raising teenagers isn’t for the faint of heart, but when it’s me because of a belief system I’m emotionally unstable. Trigger. I instantly become the less calm and grounded self. This is why considering the source to trust for feedback about yourself is VITAL folks.

And anyone can go to someone for validation and tell them a story and get feedback based on that. Counseling is so much more than that. It’s beyond validation to challenger, and what is your part in this? My part is my triggers and how they cause me to behave and I will always find the courage to face and work on them.

My father, I’ll never know why he didn’t fight harder to protect me if he knew the dysfunction I was in, and why as an adult he wouldn’t be able to connect the dots. I had just been diagnosed with a disease. I was telling a story at that time that mine would be like my mother’s. Toilets filled with blood, multiple bowel resections, daily throwing up, fistulas, and many scary medications. I felt like it was a death sentence. I did feel sorry for myself and like a victim.

My ex husband of course was a replacement for my father. It doesn’t take a genius to see that, so it’s pretty simple to see how seeking his acceptance against all logic still feels important. And this is a beast only I can slay. On long walks, in books, in the counseling office, and in the arms of someone who sees the WHOLE STORY. And someday everyone will know my whole story…

My saving grace?! I can never stay there long. I can never stay in a victim role long because there’s no creativity in it. Through awakening my creative self I’ve found The Karpman Drama Triangle, and am using it constantly. Another tool for healing faulty, surface, thin perception that only leads to inaction and unhappiness.

The Karpman Drama Triangle and Relationships

I still deal with the struggles of Crohn’s Disease. It has made me more compassionate to myself and others. It has taught me to care for my body when it needs. I still struggle with Complex Post Traumatic Stress Disorder. It helps me see these behaviors in others and to help them find a secure grounding and create new behaviors.

What we all want is to be seen and understood for our whole best selves, to be accepted and encouraged. For someone to see why we act the way we do when we aren’t our best selves. To be understood wholly.

If you can create more of that in yourself for someone else then you will be reaching towards enlightenment. Kindness, compassion, understanding that is not conditional upon something. That is given because you have found it.

This is what I strive for….