Tag: #cptsd

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To Humira or not to Humira

So I’m trying to make a very big decision. Whether to come off of Humira or not. I’ve gone back and forth and back and forth for months, and here’s why. If you come off of a biologic it may never work for you again, and can throw you into a terrible flare. The burning question is however, did I even need it in the first place.

I’ve been taking Humira since around 2013. I was diagnosed with Crohns based on a scan suspecting appendicitis and a follow up colonoscopy. I still remember to this day my GI went back and forth with her diagnosis. The tissue sample came back acute not chronic, but she made the conclusion based on the films that I have Crohns.

I so willingly wanted an answer for my problems at that time. A variety of odd sensations in my body and a large level of discomfort and fatigue constantly. Heart palpitations, heavy periods, chest pains. I’ve had more heart tests than you can imagine. However, I was severely anxious and stressed, in the wrong relationship, and working way more than any human being should. I also wasn’t aware at this time or connected to the whole picture of my life. My traumas.

Now that I’m learning a much more holistic way to view pain in the body, especially through the lens of trauma I’m unconvinced that I should be on this sometimes deadly medication.

So one of the real questions is, did I forget ?! Did I forget how sick I was etc? I never had bleeding, or fistulas or major symptoms though mine was nearly all extra intestinal manifestations and completely anxiety which I didn’t want to be true or admit at that time. I wasn’t ready. I needed it to be “something real”, and now I know anxiety and trauma in the body are very real. It’s just when you seek medical help for anything they often only look through one lens.

So now that so many things in my life are more secure I have way less symptoms and when I do I take measures to heal my body naturally. I know I need to address how I eat for my body, and not just lean on Humira so I can eat what doesn’t serve me anyway.

I’ve been reading about many other approaches to medicine and my friend is also an acupuncturist and going to school for Chinese medicine, herbs and all that. And recently I came across this concept of “earthing”. www.earthing.com which came about from people looking at inflammation in the body and how it’s the primary source of this decades physical malady.

And then my skeptic and science brain, actually probably my Western medical natural background, says what if that’s all a bunch of crap. Which leads me to the big problem here.

Not knowing what to believe. I’m really challenged to fear I’m crazy by believing holistic versus the Dr in the shiny white coat who got her degree from Harvard. But then again is she truly just in it for the money? Have I been a victim of this drug? Or will I be?

I used to frequently wonder as a child how if there are so many religions which majorly different beliefs that you pick the right one. Since my perspective has become somewhat richer and more varied since then I know you can choose what you believe in. And I know as an existentialist I believe in the power that provides to each individual regardless of what belief they use.

But when it comes to East versus West in medicine, and philosophy versus skepticism, and faith versus facts; I’m a little lost. Do I get to just choose ? What if I choose wrong?

I’ve read and studied. I like this guy particularly https://drpompa.com/cellular-health/a-healthy-mindset-overcoming-crohns-and-colitis/ Dane Johnson. My amazing wife has bought the elemental shakes for me. And just like him my lifestyle is so busy that I eat worse and don’t stick to any of these things. He was on death’s doorstep and about to have his colon removed and then went to a naturopath.

Now I went to a naturopath once and she did the blood type diet, and the plan included lots of veggies that would have torn apart my gut. I was so lost. And no one in any of this took account the the trauma I have experienced in my life. The years it endured for, how I escaped from it, and the way all of that has significantly impacted the direction of my life in so many ways.

No one is looking at the whole picture here. But now I am. I’m just having trouble knowing what I have faith in. I do know that I have faith that you can heal your body with your mind, but for most in the throes of it this is so invalidating. Though it doesn’t have to be.

Enter, You Can Heal Your Life. www.healyourlife.com the brilliant work of Louise Hay, which I have had on my shelf from many a counseling conference and didn’t pay much mind (because it seemed to invalidate my disease) until recently. Recently I attended a workshop on energetic body types. https://blueheronhealing.blogspot.com/p/blog-page.html?m=1

And one of her sources was Louise Hay as well as Earthing.

Now back to this idea of not knowing what to believe. Of course I don’t. I had a mother and an aunt and a set of grandparents that all bounced me around like a ping pong ball using me in tactical warfare, information finding, and often for their own devices. And being overly mature for my age, willing and energetic I delighted in any form of attention.

I developed a strong outer shell geared to receive praise, with an inner self that was a molten center of wholly unmet needs. I subconsciously froze that part away for safe keeping.

My body and outside persona was carefully crafted armor.

So it makes sense now when I’m frantically uncertain and can’t figure out what to do, especially when these stakes are so high.

I know I never want to stick that pen of poison into my abdomen again. I feel it with every part of my soul. But my constitution is built up of so much obedience from one of the only systems that I ever grew up around truly paying kind and attentive notice to me. The Western medical system.

I had severe asthma growing up, and was often in and out of the hospital. Louise Hay says this corresponds to not wanting to be alive, fear of being here, which absolutely makes sense given my mothers pregnancy with an older man and out of wedlock. And the chaos I was born into.

So later in my life when feeling utterly alone and crippled with (what I didn’t know was anxiety) I would seek so much medical attention. I have so many pictures of my ex partner in ER waiting rooms. And each test and visit eventually only led me to less validation and even to be considered a drug seeker when I’m terribly anxious to even take a Tylenol.

I now realize I was subconsciously doing that to feel special, important, loved, safe, etc. and that I still did not. Not being a mother, or a graduate, or any of the accomplishments I had attempted to busy my mind had resulted in this. That unmet need core of me still radiated out into my whole body.

What else could make an energetic curious outgoing child later turn into an adult who couldn’t raise her hand in class without her heart thumping so wildly against her chest she thought she might die. Also notice when it gets very vulnerable I’ll slip into language that suggests someone else and not me? That’s a thing too.

I’m piecing it all together as I’m gently healing all of my parts back together rather than being rough with them and demanding we have it together. I have to invite and ask and nurture myself.

This is healing and this is my journey.

I imagine myself on a vision quest and meditating and the answer coming, and then my logical brain scoffs at that. My spiritual brain and my logical brain are at war.

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Anything is possible

I was introduced to Maslow’s Hierarchy of needs when I was a student. This would be the very first time it occurred to me as to why I felt so undeveloped in certain areas. That there could be a reason for this that was not a short-coming or fault.

For the last several years I often say that theory and practice are very different things. But what I never realized as I was preaching this to others, is that I was really telling myself that I have become someone else than I ever thought myself to be.

As I counselor I often tell people they need to update their software, just like on the I-phone. As soon as they become aware of their “bugs” and have engaged in the process of correcting those (therapy). Ever so slight shifts happen, that often go unrecognized by the self. People from the outside will often be the first to make them aware, by commenting about these shifts, but even then… it’s hard to imagine themselves as different than the story they have formulated with the “help” of media, society, comparison, etc.

Self-doubt fueled narratives abound, especially in women as their tender nurturings are often seen as far less valuable than they truly are.

A nurturing mother is often times the difference between a fulfilling life and one of incredible struggle.

Much to my great surprise I found myself to be one. How am I here right now? I spent the first half of my life in a chaotic blather of creating before I knew what I was doing, doubting myself all the way along, and so so susceptible to the opinions of others.

I spent years self-flagellating, and I’m not even Catholic. At the time the only thing I knew how to do was beat myself into making sure I would not be the things I came from. Little did I know that behavior would be the very thing that could have turned me into that.

So here I sit…. a totally different self than I ever hoped to be. Not only did I turn out different, but I turned out better than my wildest dreams. And now I am just trying to update my software to stand in this grace and this power that I deserve and have labored incredibly hard for.

I can know I’m touching on something sacred because the tears come. Glorious tears from a spigot that was dry and dusty for so many years. My emotional self housed carefully on ice, deep deep within the innermost caverns of my soul.

I am blessed enough to have been able to preserve my child safely until I could parent her better. I’ve figured out how to do this, even under the demands of parenthood, partnership, and career.

I used to think I could only have one. Judge myself for wanting to much. More flagellation. I mean I was so good at it.

And here I stand in the realization that one feeds into the other, and that anything is possible with faith and friends. I have built my new sturdy foundation on the grace and mercy of friends who saw me for more than I was behaving like at the time. They didn’t feel the need to “call me out” or condemn me. They saw something else, so I could see it too.

Even friends who I have parted ways with under pretenses of terrible stories, have contributed such gifts to my life.

Lately I’ve been wondering if my dreams are too big. And still trying to pathologize myself as chaotic, rushed, crazy; etc.

I’m terrified of the possibility I could be safe as a foster parent. I’m guilty I think as well, that I will appear a better parent in the eyes of my children this time around. There it is. You see how when you write openly you unearth the deepest truths. This is what I do. There it is. I’m afraid to be a good parent now, because of how long I struggled and how much they endured with me.

Is it a justification to say that they are better people for having had to be part of that struggle? It feels it. But I can’t do that to myself. It doesn’t honor all of my parts and all of my story.

Family: I can only do better now with what I’m willing to create and how arduously I’ve been willing to work. I am my best self when I am of service to others. I become creative in ways I never imagined when I am in the trenches of someone else’s suffering. I am humbled daily. I want to serve the wounded souls that I feel most at home with. I want to be humbled by that experience and have it test my limits and feel terrified enough that I know I’m alive and trying at something.

I want to be broken open over and over until I am my soft child like self. So I can be gentle and warm. I want to be that calm in their storm, the calm I always starved for.

I don’t want to limit myself with fears. I want to expand myself with courage.

Anything IS possible….

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A human wedding

I think what is preventing my regular writing currently is being in awe. Yes that word hits the nail I believe. Often, just to make really sure, I’ll look up a definition to see if it fully captures what I’m trying to convey. So let’s do that.

Awe: A feeling of reverential respect filled with fear or wonder.

Yep, nailed it.

Not only have I found, but I am also creating my forever family. In so many ways it’s off the beaten path that I can’t even register or recognize how special, and often my mind tries to tell me it’s inferior to something else, and it will all come crashing to a halt. Like a huge “just kidding” moment. Back to what you know was always your lot.

And when I stand outside and look at how hard it is for me to feel this good and great life is real, I now have compassion for myself. It really was that bad. I didn’t make it up. I really do have C-PTSD, it isn’t me being dramatic. I shake with fear at times, and yet I keep going.

Now I badly want to figure out how to put into words how I achieved these transformations. So others can know this level of healing is possible. So others can know the way they express emotions and the timing of them isn’t something wrong with them, it came out of deep surviving. Living in emotional wastelands barren and devoid of their most essential needs.

And not having a narrative or understanding about this makes it all that more confusing.

Last night we witnessed my wife’s brother’s wedding. It was exquisite. I’m almost human during those events now. I still feel eerily somewhere else inside and hoping no one will notice. The place I go is to wondering if I belong among the people who belong. And my beautiful wife sees me and never calls me out, she just invites me back to earth with her warmth and smile. I am able to ground and my thoughts don’t need to go to the foreign nature and the sadness that I’ll never have a father daughter dance, or a mother daughter anything.

I do sit at events like this and wonder what it might have been like if I had parents, even a parent. If I didn’t grow up in an emotional war zone. Someone who loves you so much they are moved to tears watching you take this momentous step in your life. So many of my tears are still frozen. I wait carefully to decide how to feel, which is something prior to this point I faulted myself for. Awareness can also be a sword.

I think of a time I felt so much that I cried like that. When I got hugged by my hero, Elizabeth Gilbert. When she read a few words I wrote. I dream of her reading my story and seeing me, and yet she already has.

Another time I cried that way is when I married my wife. When she cries I cry, and I never could do that very well before. I felt it, but it all stayed choked up inside. What I realize now is I have to be safe enough to feel anything. And no one should ever have to be emotionally harmed to that degree. Ever.

But since life can be rough and hurt people can hurt people the second best thing is that we can heal. This is where my passion lies. I will sit with you while you uncover your truths, while you hurt, and while you heal. It heals me too.

The fact I am strong and capable on the outside and can be so put together and yet I carry an immense lack of safety every single day that I was wired with. I can do all the work in the world and yet my mind will still travel to terrible scenarios so I can keep myself safe.

Safety isn’t a logical process it’s actually an emotional one. It can seem like you would be safe, but inside can tell you you aren’t. And that battle is exhausting. To try and live like the humans do.

Where do I belong at a human wedding and at all the other special human events. Will I be able to dance with my children at their weddings with a feeling of belonging and safety? Or will I be somewhere else in my head. In my own painful past.

I fight for presence and I am thawing and I am healing. So I can feel every ounce of life in real time. And most of all so my kids can feel how I love them. At the deepest part of my wounding I could never feel the presence of a parent. There it is. And so my deepest darkest fear (that’s actually a very real one) is that they won’t feel mine. And I know how often they don’t. I am almost always some place else.

But what I have found now and what I want them to know is that I’m finding my way back to them. I’m doing the undoable. Breaking my very wiring. I am forgiving myself for what I can’t control and what came before me. And that breaks my heart open enough to learn connection. But it’s raw and shaking and takes all the energy I have each time. Then I must rest.

I burn myself up and out and then rest in this battle for presence. It isn’t logical it is emotional. And if you’ve been in a war zone as long as I have you would understand. And if you read my book someday you’ll understand too.

I just have to get safe enough, and I have to prioritize my family connections with the humans and that takes all of my energy and then some, because I wasn’t wired this way.

I’m just standing here most of the time in awe this is my life. And this awe is still and quiet. It doesn’t spill over with all the emotion that churns inside, because I still need to make sure I’m safe before an emotion comes naturally to the surface. And it should never have needed to be this way. A child should be loved and protected and ENJOYED!

And I intend to enjoy mine and the safety I create for other children, bringing my own healing full circle. So stay tuned as we get registered to foster care, Courtney goes to school, and we breathe some life into our many dreams, and as I play with the humans.

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Healing, and Validating My Dark Passenger

Being a Clinician helps me validate my own trauma on a daily basis. It gives me a space where I can acknowledge it, along with carefully detecting others and helping them become self-supportive versus being their own authoritarian parent.

Every single time someone reveals themselves to me I get permission to reveal me to myself, and I grow.

I’ve come so far on my path that it’s time to peel back another layer of denial. My trauma still lives in my body and wreaks havoc on my ability to enjoy…..everything.

My body is the last part to address. I’ve been working on my mind basically my whole life. And I never seem to be able to find a Clinician who will see beneath my high functioning exterior and be able to help me hit that sweet spot between acknowledging and not being terrified as I do.

I need to fall in love with my body. I have never loved it much. It was drilled into me in a thousand ways I shouldn’t.

First, as a woman, as my mother’s daughter I was already capable at any moment of being the promiscuous temptress she was (at the ripe age of 10 or so), so it was drilled into me sex was bad, being around boys was bad, and even movement in my own body, bad. No dancing. No joy. Do not pass go, do not collect $200.00.

Second, I liked the boys section of clothing always. They had the cooler stuff. I never liked lace and bows and never liked to do my hair. Even when my own daughters came along, that wasn’t something I ever did. I didn’t know how really. And also had no desire to learn. I’ve never been girly. Call it hormones, tomboy, the urge to be more male like as a means to protect myself and anyone else. I was always shamed for that.

As adolescence and puberty came along I desperately tried to fit the bill and be like the other girls because I so wanted to be picked and chosen, probably by them, but I wouldn’t know that until much later. I was convinced by society and the standard that Prince Eric was the prize and Ariel was who I needed to look like. And if you have ever met me once I know what I need to do to adapt and be picked, I am an unstoppable force.

But none of it ever felt very natural and I couldn’t put my finger on why.

Sex never came very naturally either. Was this the thing I was supposed to enjoy so much? I made it work. I always make things work, but never under a confident hand that pressed for their own needs. Not until much later anyway. I could only choose those just as lost and confused as I was, but to me anyone looked like a well in the middle of the desert. Anyone who paid me 1/2 a second of attention… could have my whole heart.

I would have our wedding dreamt up. My imagination the sustaining force of my inside world. Naive and childlike this imagination; I have to give her credit, she has taken me on a Wild wild ride, and it did lead to my destiny. So to speak anyway.

And now that I’ve cracked the code on love, my sexuality, am becoming the best parent that was ever possible given my history, am a successful and sincere Clinician who loves her work. Now that so many of my dreams have come true it is time to work on a strong, proud, fluid, gentle, relaxed, healthy body.

Now how does one do this without getting overwhelmed by all the possibilities? I can do yoga, Pilates, exercise groups (terror for me), I want to find someone who can tell me more about how my brain compares to those who haven’t had my experiences. More validation. I never validated the C-PTSD. Helping others gets me just close enough to mine to look, but we haven’t quite tipped over the edge of owning this history yet.

Why if I am doing so well? Is a measure of denial not productive and healthy? I’m not sure. Strip away these layers and terror could lie beneath. I could crumble under the realizations. But Christina, “you have never crumbled before, cut that out.”

I don’t exercise primarily because every little extra fast beat of my heart makes me feel like I might drop dead any moment. The true reality of me if you want to know the truth is I am the imagineer of terrible scenarios. I do it everywhere, all of the time.

If I’m walking to he big E and we pass a bridge. And a woman with a baby walks over it. I imagine her or someone else, throwing it over. If I’m on a train to go do something fun, I begin to have scenarios of a gun man getting up, or of the train exploding, crashing. I’m sitting right there with my family about to enjoy a nice day. And so then the physical symptoms begin, the tingling and numbness, the chest discomfort, bad stomach time, will I find a bathroom in time. This was so much worse at a certain point. I’ve mostly conquered the physical, by not entertaining the thoughts, but they still are there.

This is just a tiny picture of what could go through my mind. We went to Hamilton this past year, one of the best days of my life. We were in orchestra and my children (teens) on top of the mezzanine, smiling down for a photo. And terrible images of them jumping, or when I’ve been up there, what would happen if I jumped.

I have no desire to kill myself, in fact quite the opposite I have a terrible fear of not completing my missions here in time,

Why is this such a part of me (I know why). Why even with all of my work can’t it be laid to rest. My body is as tight as anything you have ever imagined. Stiff as a board, not light as a feather. Every muscle is ready all of the time for battle, at any moment.

I would like to catch my body up with my mind. Would like it to feel as healthy, strong, capable, fit,.. as I’ve created my mind to be able to be. But I keep telling a story of tired. This is when I want to coast I say…and then the anger and resentment rises and there is no room for that in my life because it makes me irritable with my family when I don’t want to be.

So denial keeps everything where it needs to be so I can function just enough. Peel back denial and you are completely in the unknown. And imagine if I can picture such terrible scenarios in the known what I can do with the unknown.

Imagine…..

So recently I’ve finally been convinced to try CBD oil. Enough clients are finding success from it I really wanted to try. I have a complicated relationship with marijuana, and yes yes I know no thc in this, but if you have seen the things I have at the hands of your own mother and even the smell is a trigger. I hate the stuff. I know tons of people find relief, but also it’s a dark mistress as well. There is a dark side, it robs motivation and self efficacy and convinces you it is the only thing needed. It masks and hides as well.

Taking any new medication induces such hypochondria in me I begin having physical symptoms and can’t tell whether it’s anxiety or the medication being taken. A really fun time. I already don’t feel well in a variety of ways each day, from my Crohn’s Disease. So I am determined to get my self healthier.

So I tried oil from https://www.cbdmd.com

750 mg gummies and oil.

The result thus far after 3 tries at a gummy in the evening. I felt anxious about taking said thing and felt weird eye pressure and head pressure, though this has been bugging me awhile, so probably not that.

I realized that while I don’t feel anything in my head. I can’t tell what it’s doing. My body feels relaxed in a way it never has. My level of red alert constantly is a little more relaxed. I have never slept so good. And this morning I cried with the possible realization that my body could be this stressed for this much of my life. That this could be real and not a concoction of my mind to validate my experiences.

So my new mission is to lose weight, not leave my body last to absorb the brunt of everything, and to find natural mediums to heal myself. To be willing to devote that time and energy, and not just say I’m too busy or it comes last.

So I will be writing about this as I go. Each days attempt at body love and trauma work, and everything else in my world.

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An open letter about experiencing trauma in everyday life.

I haven’t been writing lately, and I have figured out why. The closer I come to what one might consider a “normal” life, the more shame I feel when I put big feelings out into the world. Somehow even a kind comment of how brave I am seems to indicate that this just isn’t how things are done. This is of course the deepest most intense version.

The regular one is that I have been busy and present for myself and my family amidst the many changes we are currently in the eye of the storm of.

This right here is the trigger: for most of my life any large decision was made primarily emotionally and with little regard to the outcome, Ie very disconnected from my own emotions. Just close your eyes and jump and hope you’ll be ok is the kind of courage I’ve had to muster to even take basic steps into the world.

Anything had to be better than the beginning.

So that model is what is making me afraid even now in my present. In a present where I am careful, wise, more gentle than I’ve ever found thus far, and not making impulsive decisions. But that fear of that chaotic self, a potentially destructive one, all the bad things I could possibly be is still nipping at my heals and it makes me feel slimy and broken when I know I’m not.

That realization put to paper brings the tears. Why should someone who has worked so hard for their healing still be mired in such shame? It seems so fucking unfair that it doesn’t just go away with the vast improvements and hard work. Why can’t I enjoy the hard work? My psyche threatens to keep me terrified my whole life. It’s a daily battle. Even as things are working out amazing for me my mind tells me as soon as I get all of this doing so much better I’ll get diagnosed with cancer, be that healthy person that drops dead from the heart attack.

I see on a daily basis how life can change on a dime and what’s worse is….

The bad guy is always coming for me.

And saying this out loud feels like it could threaten my credibility as a person, even as it has been the thing that has driven me to get to the place where I have any credibility as a person. What is credibility anyway if not people’s often false assumptions about another based on their position in the world. Look at anything from another angle and you’ll see another side. We are all multi-dimensional selves.

So much pressure to be a wholly integrated, well balanced human being. What the fuck is that anyway? If you find one send them to me so I can analyze and replicate. Are the ones who claim to be the really scary ones?

A traumatized mind is never at peace, and trauma is always with us, inside our cells. We never consented to that. Innocent children never consented to the things they were subjected to and as adults they are responsible for their actions and choices, when some of the time they never stood a chance.

This post looks dark, yesterday it would have been light. Trauma is a rollercoaster ride that you’re forever strapped into.

When you realize how deep the roots are how can you not resent the fact you had to go through that. When all the praise of how strong you are just doesn’t ease the wound anymore. You never wanted to be strong anyway, you didn’t ask for that.

Every single day what I live with is looking strong, capable, compassionate on the outside, with a terrified little girl inside. I am the first of those things and I am the latter. I am both. And I want to stand here unashamed of that.

So why does it feel so gross.?

What the mind suppresses, the body expresses.

I know that trauma we aren’t aware of can harm our loved ones and especially my clients. Don’t worry I’m always aware, a gift and a curse. If I say these things out loud someone else can come along in their fear and say I have frightening mental states. You’re absolutely right I do, and that’s why I am the best at being comforting for others who find themselves there. And we can heal together as long as good boundaries are in place. I have those now. I fashioned a secure self for me, and I can function that way, but the really unfair part is the fear of …

if it will ever feel consistently secure for me.

In this way like in my childhood I can be good for everyone else, while my inner self who that person really is constantly wriggles in discomfort. I’ve peeled back so many layers of this and each time I hope to see the beautiful original gleaming hard wood floor that just needs some TLC, and each time it’s another moldy pissed on layer of old carpet.

Hahaha of course I’m using home metaphors.

Did you know that stress extremely aggravates underlying trauma? It’s like a beast that can lay quite, and now the dragons are awake laying ruin to everything. That’s what living with trauma is like. The constant awareness you’ll need to tame the dragon again, peel back the carpet again, disappointment, rage. And then seeking ways to find relief that are healthy all the while having 0 to no energy to do so.

And then an aware person knows how little room they have for another’s feelings when theirs are so constantly overwhelming and more guilt and shame, and fight your way back out again.

It is no wonder that I am tired. Soul tired. But I also can’t seem ever to lose my enthusiasm and for that I am so grateful. If I fall down I’ll get right back out there and try again. Pure grit always.

The grit itself is exhausting. The unfair reality that no matter how hard I come I still jump at the slightest disturbance in my world, and that still makes me feel broken. That I find myself without my permission or even knowing with my knuckles burning white on the steering wheel. My body hangs on as if it were dangling over a cliff every single day.

No matter how many times I hear myself tell other people they can heal. What a fraud. Except I’m not a fraud. I am the real deal trauma survivor who let it open her heart rather than close it.

Openly wounded and letting others see myself bleed. What if they don’t trust me as a result ? Well then at least I will have honored my journey and my story. Shame keeps us quiet so I refuse to do that. When we are loud sometimes we make mistakes. I make a lot of mistakes, thank goodness because being perfect is another level of work that life didn’t leave me the energy for.

My writing will come from my pain, my shame shuts down those parts of me. I get close and then busy myself with something prettier. I can work hard and make my life look pretty on the outside. I am more than capable. What is outside beauty if inside is rotting?? So I must do it all. I get tired and that used to make me angry, now I sit in it and try and grow.

To be comforting I must learn to be comforted. To be comforted people must know what hurts and that they deserve that comfort. To be comfortable one must feel safe. A trauma survivor never feels safe. Never. No matter how the circumstances have changed. Their brain finds a way to signal danger even in the most benign circumstances, and the news reinforces this. Now you can be at school or in a place of worship or the movie theater and be shot. Trauma has a hey day with that!

The worst part is people with cancer or a devastating visible illness get support and love and attention. Trauma survivors have had to create such intense selves to survive that people run from them, they don’t get comfort they get shame. Loads and loads of it. They are dramatic, difficult to be with, prickly, and yes we are all those things, therefore reinforcing that we can’t be loved and save. See how I wanted to separate myself? They and then had to write WE.

To the people who comfort me with their words and belief in me, simple acts of kindness, know that you have changed a life. One small gesture can change a life. A good aspect of trauma is the survivor learns to turn a crumb into a banquet. I’ve been subsisting on crumbs for so long everything I’ve put on my banquet table feels as if it could be poisoned. If trauma lets loose the chains on me I’ll wrap myself back in them, because now it’s how I know to exist.

PTSD lives in the person forever. They can heal a lot and become functioning but their lives will always be effected by it. And there’s only disability or support or relief if it can be recognized and legitimized, yet most trauma survivors have needed to believe they are fine to even take a breath.

It is those with invisible illness that truly suffer the most. So I make myself visible and hope it helps someone else. But visibility is vulnerability and how often are our vulnerabilities used against us? And shame is an eager bed fellow always at the ready to become activated.

I battle every single day. It isn’t dramatic it’s true. But to the average on looker I appear to have it together and be successful even.

Someday I hope to feel the things I’ve created for myself, that I belong to them and with them, and that my creation is a safe home.

What is a safe home anyway?

I try to answer my own questions. A safe home is the one we are about to buy and saying goodbye to the first one. This time is real and raw, and a trauma survivor wishes it could be like it seems for the normal people. The ones who don’t have constant automatic thoughts of how things could fall apart.

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The winds of change are blowing….

11 B road

A picture of the front of our first real home together as a family.

It’s been way too long. When I don’t write it feels like I am underwater. When I do it feels like taking that first breath, or that first day you feel better after you have been sick. Everything burns brighter particularly gratitude. I would describe the way I have been lately as present and in a euphoric state of gratitude, while also being plagued by feelings of discomfort that such fast and profound changes elicit. Yeah that pretty much puts it exactly. I love that I am able to do that. It is such a gift. Thank goodness for my gifts. Thank goodness that I am a gift. Who would have ever thought.

If you know me very well you will know that most of my life has been plagued by fears of who I am as a person. Narcissist, selfish, too loud, too much, awkward, not feminine, not pretty, chaotic, poisoned by association of my genetics, too intense, weird, and the worst of these: a bad mother. It took me until about 2013 or so and a very good therapist for me to even entertain the idea I could love my kids in a traditional way (whatever that is), and I remember the times I allowed myself to refer to myself as a good mother. It felt like a foreign language and when the words accidentally spilled out so did a river of tears.

My morning pages has been hard to write lately, and I have worried that this means my relationship with my self is slipping a bit, when I won’t give myself that much time for my thoughts. This new dawn I have decided this is not the case, much like many of the things my brain tries to put a negative spin on. I have been present. This is what it feels like to be present. I am coming out of my shell, which is not a play on introversion, it means I’m coming out of my head, out of my mind palace (dungeon). I am living and breathing like the humans do. I have emerged owning my many titles with fierce love and pride.

Trauma survivor. Not just any trauma a special kind, the kind that is more difficult to notice. So having a strong personality lended itself to me denying those parts in favor of feeling strong and capable. Which was good while it worked, but then turned against me when I couldn’t validate my own experience or understand why such anxiety began to plague me as I began to thaw out. I spent most of my life trying to parent myself into something that I didn’t even have the slightest idea of. Making up the rules as I went because I was an adventurer with creating my self. I didn’t begin with a model, so I looked to everything that seemed like something I wanted to model myself after and got to work. This isn’t how it’s supposed to be so I often worried I was some awful thing. If you could actually see what that struggle was like, witness it….. I wish there was a way that people could see me. I’ve always felt that way, and I guess this is the way, that’s why it feels so important. At the same time I am still plagued by shame in some of my deepest layers. You can know things logically, and they can still be trapped in your body. This is something I want to do work on.

Fabulous and sexy gay woman who is a tomboy and would be caught dead in heels, but really appreciates seeing them on women 😉 Allowing my sexuality to be a beautiful thing has been a lifelong process for me. I may seem so out and proud and strong, but loathing is often internal thorn filled winding vines of darkness penetrating every corner of the self. Allowing my gender expression to be allowed. It is such a shame filled journey. I was always othered in such uncomfortable ways in my “family” of origin. Religion added another layer of wrong, and as I write I don’t know sometimes how I ever stood a chance.

Anyway I have many other titles, mother, counselor, advocate, friend… I could go on… and these days I am embracing and enjoying them all.

See even my writing trails off because I favor presence lately. I get in that beautiful zone or flow and then something moves in my home, and the wave of inspiration just sort of passes. The words seem to either tumble out of me like a waterfall or not at all. I wonder if I will be able to find a steady rhythm and go in and out of it as I please without losing the flow ever? Or if this is just how this works in my writer’s process.

So what’s funny is I actually got on here to update about the many changes that are about to happen in our lives and how I am in such an odd position in them as I change myself. A set of Russian Nesting dolls, except tornadoes instead of dolls. A storm inside a storm inside a storm and rather than being still in the eye like I’ve been most of my life I’m joining the main stream in the storm, connected with others, not watching carefully so I don’t screw up my chances to belong. So my habit is to write deeply introspective even though lately I am not needing it as much, and I view that as a good thing. Rather than shaming it away, or wronging myself for it I am discovering a sense of peace that it will move along on it’s own accord as I am ready. This is where peace comes from.

We are selling our home and buying a new one. This will be an entire post, but for right now this means today I will be painting a front door, helping the kids store their things in bins for the showings, and mopping up their emotions as I go along. Something I didn’t even know I could do. It’s been a little rocky at first. I’m more likely to be just deal with it because that is what I had to do to myself so many years. I have literally re-wired myself to respond warm and compassionately (usually after I realize I haven’t). It is hard to write that. I want to backspace and delete those words because so often my vulnerabilities are turned against me. That is the reality of another struggle I am having in my life. How do you fight back against that without talking poorly of a child’s other parent? I am trying to stand up for myself, and also be compassionate and apply grace. I’m trying to scramble around and take care of everything as always. This historically would get me so tired out and running in circles that I would lash out.

I am attempting to change all of this. To stay in warmth, compassion, grace, confidence, and to truly be the rock of a mother… .wait I’ve always been a rock they are hard and cold. The lighthouse of a mother? The one I have always wanted to have I am trying to be that. That has always been my mission. Dorothy the power was in you all along? For me if this is true it was so deeply deeply buried in who I needed to become to survive all this time. I kept evolving and moving at lightspeed so in this lifetime I can know peace and my children can know the safe arms of a mother who loves them.

I just love differently is the thing. Again differently than what? I love with my whole story included. I wasn’t willing to part and parcel it out anymore in favor of something that looked or felt better at a face value. I needed to love with every part of myself brought along, all the dark and stormy ones too. I had to go back and recover them. It’s more work than that of 10 lifetimes and I’m doing it in one.

So here we are next to a gratitude waterfall that just keeps me standing in awe. I am standing in awe of my life right now, always almost close to tears.

I am safe. I am loved. I am safety. I am loving.

I have worked my way to financial security and approved for more than I ever imagined home wise. I am making good financial decisions, not just ones to comfort myself. I am becoming a calm place rather than the storm. I think I’ve said that line a lot recently. I am at the next upgrade on myself and I’m so afraid to step into that outfit/role because what if I don’t fill the shoes? See what just happened I went to say how amazing it all is and I got scared again. Fear is always all of our constant companions, how we use it is what is important.

Anyway it is time to go back to presence, I am hoping this post just unlocks a little bit of what is going on. Today I will be painting our front door, cleaning light fixtures lovingly by hand, moving furniture, and getting ready to say goodbye to the first solid thing I was able to help get for my kids. Our first real home together that has been ours.

Please keep our family in your thoughts right now and send us healing love. There is so much old energy that is being dragged up. Emotional dust is clogging our nostrils and making us sick. We are all nervous about the many changes and highly charged with nerves. Please help us let these emotions make us stronger and closer versus scratching and biting at one another.

foundher

I found her…. 

I am living in a new home inside my head, and physically we are moving into a new home soon. Magic

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Shame, Disease, and Dad: Grand Canyon Ponderings

I’m a little homesick this morning, so it makes sense that I am going to turn to my constant companion that is with me everywhere: my safe haven of the written word. Somehow I always feel better after I have bled my experience on the page, and someone hears it. I think we are all like that. I am sitting in a cute little coffee shop called Brewed Awakenings on Route 66 in Arizona, just a few minutes shy of the Grand Canyon. We are supposed to have a Pink Jeep Tour at 2:30 today, but on the Groupon it says “pending” and I am not sure what kind of weather these guys operate in. I am also not sure if we have the appropriate gear. We somehow assumed that Arizona would be warm. We rented a convertible car LOL! It just so happens that it is snowing this morning, and rainy and wet, and is supposed to be this way all day. “You can plan a pretty picnic, but you can’t predict the weather.

It is however a great day for the permission to write. I have several things on my mind this morning, it’s exciting to see what I will untangle from them. The most prominent thing, much to my frustration is my Crohn’s Disease, and it’s close companions are shame, a certain level of confusion about validating my own experience with it (and in general of course), and this brought up feelings of my Dad, and about how I “lost” him again. Though you can’t lose something you never had, and that isn’t the correct narrative. I chose to eliminate any source that would shame me without looking or investing in me.

So Courtney and I went to a little restaurant last night, it was an interesting experience. There was one cook, and one waitress and they became slammed. The Yelp information made it look like an established and popular establishment. Overall it wasn’t a bad experience, though I would not get food there again. The beer was delicious and probably because we didn’t eat much with it, I ended up squared up with my disease again.

Over the years I have really tailored any drinking because I can tell my body has a very hard time processing it. I essentially got to the point where if I have even a few drinks I get a very bad experience with heart palpitations and tachycardia, and sometimes even atrial fibrillation. However I have been rolling pretty smooth in the land of disease, until I got bronchitis over a month ago now, and had to skip an injection. I’ve been struggling since then, in ways that I haven’t in 6 years. I dread the possibility of another difficult round with this disease or having to change my medication and play that “game.” And at the same time what did I think was going to happen. That I would just take Humira and never have an issue again.

I struggle particularly after being at the International Women’s Summit, where there is lots of talk of sickness in our bodies being a symptom of repressed feelings, un-lived potential, etc. I have always struggled with feeling I’m injecting myself with poison, that is experimental, and doesn’t my body know what to do to heal itself. And on the other hand my GI tells me that this thinking is unrealistic, and that staying on top of this disease in a top down fashion can give me a much better quality of life. Confusion.

How do you know what is intuition and what is superstition?

This is a very important question. We human beings have very superstitious ways of thinking, the way we connect the dots in our experiences. And this isn’t limited to “unhealthy” things, most people think in these ways.

So anyway I woke up last night shortly after falling asleep with my heart beating so hard it felt like it was going to shake me out of the bed. My beats per minute on my Fitbit were over 100. TERROR. I could hear and feel my heart beating in my ears. Seven years ago when this would happen I would go to the emergency room, only to be told I had anxiety. So I gave up doing that long ago, though now I have to be nervous I won’t get help if I need it. I’ve worked that one through with a therapist as well. I’ve tried to cultivate a sense of faith in myself that if it continued to get worse in a variety of ways I would seek help. Except who knows what kind of medical care is available here. I mean people live here right, there must be something. But I’ve been spoiled living only 20 minutes from Yale Hospital. Where bad doctors can exist as well, arrogance can be as dangerous as anything. But that discussion will lead us off topic, as if I ever stay on topic, HA.

So my episode. I take .25 of Xanax to head off any panic attack this can cause, and because I am superstitious of course I believe it will lower my heart rate. I mean relaxing a little can’t hurt in that department right? And then the bathroom things happen, sweating, erratic heart rate bad bad things is what we will leave it at. When that is over I am left shaking and sweaty and cold and aching. Pain radiating up my back. So many symptoms that they tell you to watch out for in a heart attack, because that isn’t stressful. I sit up vigilant lest I pass away in my sleep. I don’t wake up my wife, because that makes it more real, if she gets afraid I’ll read her fear and then really get anxious. So I work my way through it. Eventually I get it down to 90 ish, and I’m doing deep breathing, and making my trips back and forth to the bathroom.

EXHAUSTED.

I wake up this morning feeling like I was hit by a truck, pain radiating up through my kidneys, bags under my eyes. Here I am at the Grand Canyon, and I want to BE fun. Notice what we do? I’m not worried about how I am feeling, and that I deserve to feel better. I am worried I will ruin someone else’s time. Because I know she will be disappointed if we stay in. I know the disease deserves our anger here, hers and mine. Not me. And I never know if I really have to or not. I never know when to push myself to just keep going, or when to validate this thing I don’t want in the first place. My dark passenger, Crohn’s Disease. When I put it like that I am grateful it is not the urge to murder anyone. This was a Dexter reference if you didn’t know.

So when I am grappling with shame and doubting my own experience, this time I am looking to the origin of it. When I got diagnosed with my disease I was so unseen in so many ways. It wasn’t anyone’s fault. After all I didn’t know what to do either. A dear friend of mine had rekindled a relationship with her father and I was wondering if that couldn’t be the same for me. My father stopped talking to me around the age of 12. There was no explanation he just disappeared. I suspect a complicated relationship with my mother and my grandparents, and a lot of confusion to blame, but it was never my fault, and yet I am the one who paid the ultimate price. He made a choice. There is still so much I’ll never know about that choice, so many unanswered questions.

So when I found my 1/2 brother on facebook and was able to look him up and we began corresponding via e-mail I was overjoyed. It felt like falling in love. He of course became romanticized even more so than the average parent in such a situation would because anything was better than the situation I grew up in. He always got the hero role by default almost. Because his energy felt more sane from what I remembered, it felt more normal than what I was going through at home. But as it turns out he was intellectual, and quite pragmatic to a fault. At first I appreciated these things, but as we moved further and further there was no empathy for my experience there. He stated he did not want to re-hash anything of the past only to move forward in relationship, this clearly had nothing to do with my needs, but then again it never did, did it? That was the first flag. But then I thought ok well I can work with that as long as I get to know him. I would do anything you know to have a relationship with a parent. Plus he was so smart and so worldly and doing such neat things. He was living in Xico Mexico at the time and writing a blog about life there.

We struck up a writing relationship. I was smitten. I couldn’t wait for an e-mail from him, and what was even better his take on me being gay was that evolutionarily this was the more intelligent thing to do. He said men were assholes mainly, so he was glad that I was with women. Another interesting perspective. Not one I expected, but I was so hungry for acceptance at this time. He even posted a picture of my daughters on his blog. We belonged! He was willing to own us as family is how it felt at that moment. I felt a taste of acceptance and belonging, one I had yearned my whole life for. He didn’t post a picture of my son, or of me, or anything else. I recall hearing about him that he was a womanizer etc, he appreciated beautiful things, cars, women etc. But I don’t know how much deeper his integrity or his heart went than that. He did stay with his wife (my step-mom when I was little) Anita, for the whole rest of his life. So that’s a sign of health one would think, but then again, people stay together all the time and are not necessarily healthy.

Here is what I do know. When I was lost and scared, riddled with physical symptoms and diagnosed with Crohn’s Disease, and in a relationship that didn’t feel particularly loving in the ways I was needing at the time (due to my behaviors as well)…. he said to me “daughter your posts as of late tend to exhibit some frightening mental states not unlike your mother”, and our relationship was over at that point. I cut it clean. I felt no warmth or empathy from him. I just thought I might find it there. It was like a mirage of an oasis in the middle of the desert, and to realize I was sucking in dry sand rather than water. My heart had to break again. The loss of him, or perhaps only the idea of him, to have a father, and then to lose him again. I then vented at him all the things that were hurting me. All the unanswered questions that burned at me my whole life, that I had to carry around. His responses were scathing and only burned more.

Then I got an e-mail from the brother I told you about that he died (this is 2 Decembers ago now). He was 72. I was only vaguely regarded with any information of his passing, even when I asked if perhaps I could attend the services for my own closure. I think his parents didn’t even know about me, and much of the rest of his family. I know I wasn’t given any empathy. There was only shame. SHAME SHAME SHAME.

This morning I saw a post from a friend reaching out on Facebook, and it made me think of people’s statements about whether people should or should not post about their lives on there. What an arrogant statement. Who is someone to know what another person needs. Perhaps in that moment facebook is all they have in terms of nurturance, and one person saying they are there for them may make the difference between life and death. How do you know? Is it really so shameful for someone to vent their sufferings in a public space? I think we need more of this, not less. We need less of the shaming.

Anyway I am going to add an additional post with my final letter to my father that he never read because I knew I was writing it for me, and I knew it wouldn’t be appreciated or received by him, and would only give another opportunity for me to be harmed. So I wrote it for me. It was a huge part in my growth. The decision, MY DECISION that I didn’t choose a relationship with him, rather than feeling abandoned or not chosen.

My letter on the next post….

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What ever happened to Lisa?

grief2

I’ve fashioned myself into the therapist, and left behind the survivor. I wanted to move past, beyond, ever away from my own trauma. It is only recently that I realize how much it is still with me today. I am reading the article “Touched by Trauma” in the most recent publication of Counseling Today.

I tend to move so quickly through life that I see the magazines on the desk, but rarely read them. Why wouldn’t I read what others are saying in my field? I wonder if I avoid it because of realizations like the one I have had just now? It can’t be that though, because I read many many books and articles on such topics, but I tend to ignore magazines, perhaps I regard them as more a waste of time like tabloids, People Magazine, and Entertainment Weekly.

Perhaps I am so hyper aroused all the time that I can’t focus for hardly a second. Perhaps this is not your garden variety ADHD, and something a lot more sinister. That requires a lot more attention that I have ever given it, because then it would become more real. And the fear is always that suddenly you will fall apart, or become swallowed by the associated feelings. They are too big, and there is no way to properly control how much of it you feel, when you are recalling. 

I never connected how much my Crohn’s Disease is probably an effect of my trauma. Instinctually I know, have read and seen how much cortisol, the stress hormone is bad for you. The article says, “Counselors also need to be mindful of the accumulative physical toll of long-term trauma. Research has shown that experiencing trauma- especially when it is prolonged and repetitive- rewires the nervous system in ways that cause hyperarousal and persistent anxiety. This continuous stress causes the body to release cortisol, which can cause chronic inflammation. Over time the inflammation leads to negative health effects. To help counteract this cascade of neurological and physical damage, practitioners can teach clients skills for calming their nervous systems. The treatment should be tailored to the individual client.” 

I’m still peeling back layers of my own abuse. 

When I read this I made an immediate connection. I have been inundated with physical health issues for the last 10 years of my life. I had problems as a child, asthma, and I’ve always identified as a hypochondriac. I was in and out of the hospital often. For awhile youth and enthusiasm to get away from my painful past kept me busy and disassociated from physical symptoms, but as soon as I realized I was not in the right marriage for how I was made and who I am I began to have a lot of problems.

It all began with heart palpitations. These sent me to the Emergency room several times, it actually took me years to realize, or have suggested to me that I could have anxiety, and it was not done kindly ever. It was more like I was too sensitive, making a big deal out of nothing. Anxiety was suggested to me as a personal flaw, not something that required further inquiry and comfort. 

Right now my family is out in the living room playing Trivial Pursuit. I can hear them and they are having fun, and to be fair so was I until my stomach began to bother me and I had to excuse myself. Once I read that and made a connection I went away to the place I so often reside, somewhere in my head trying to figure it all out. I’ve made the mistake of trying to figure it all out at once, because then the idea is perhaps I could be free of it. What it? I didn’t know what to call it. When we don’t know a language for something we tend to automatically internalize some fatal flaw within us. 

I just had a severe ringing in my ear, it happens sometimes, it came on suddenly. I have read more on symptoms and health than the average person probably ever will. My first thought as it happened was that my blood pressure is at some bad level and something is going to happen to me. I probably think about myself or someone I care about dying or suffering some terrible fate no less than 100 times a day. I can’t ride in a vehicle without jumping at any unforeseen occurrence. I am only now at 38 years old connecting so many of these dots.

I am able to do so because of this career as a counselor. 

I can still help people, in fact I am very good at helping people, AND it distracts me from my many anxious thoughts. This dispels the myth that you have to be fully healed in some capacity to be a healer. You just need to be healed enough to not unintentionally harm others. You have to be aware, and a good deal of the way towards acceptance of self and others, otherwise you can use someone else for your own needs. 

It has never occurred to me before this article and this point to be upset I have this disease, and a weakened immune system due to the trauma I have endured. I have worked so hard to keep myself separate from my beginning. I moved across the United States to get away. Another life and another me. I disconnected myself from it so much, that when I had a difficult time maintaining relationships all I experienced as a result was shame. There was no one to help me connect my triggers, behaviors, and anxiety related impulsivity, attachment fractured impulsivity. There was no one. Mostly I have lived marinating in shame and self-abuse as a means to shame myself into a new way of being. it never worked. 

I have so many thoughts to untangle about this. But the one this evening most prevalent is what in the hell happened to my mother and to her sisters to cause the type of toxic sibling rivalry that permeated my childhood. Who was the evil villain and how evil were they? Who is at the root of this, and how much damage has spread through the family tree? They worked so hard to look different than whatever hurt must have occurred, but my childhood felt terrifying in a variety of ways.

I have tried to minimize. I have tried to make myself responsible. I have tried to convince myself that it’s me who made all of this up. It’s unbelievable even to myself. I want to say I dramatized it. How can I trust any of those memories after all. But some of the memories I do know for sure. I know the gist. I know how I felt. And I know what I struggle with today…. and most importantly that this is not my fault. 

I can’t even say that and feel connected to it. It feels dramatic. My intense feelings have always been shamed. ALWAYS. By family, friends, and loved ones alike…. validation is not something I’ve had much of. I’ve often wondered why nobody saw me, why they didn’t notice a good heart, with behaviors that didn’t make any sense. So many people rarely look beneath the surface for answers. 

Where was that one person to come forward and help everyone make sense of it? 

People suffering from complex PTSD without being noticed are wounded warriors with no decoration. They have no percentage of disability, no purple hearts, and in fact are mostly invisible until they find their way into a Counselor’s office. Probably they will spend most of their life plagued by terrible thoughts that something bad will happen either to someone they love or to themselves. Running horrific scenarios through their heads. It will be difficult for them to travel or live any kind of a normal life unless they are disassociated enough to appear functional, but inside is a whole other story. 

My daughter came in to be snuggly and I was intense and in my head as usual. I want to erase this out of frustration. It will be seen as deep and dark, and no one wants to be seen like that. The kind view is no one should have had the experiences that cause them to feel this way on such a regular basis. With your kids you are supposed to be the parent, and present, and none of this is really something they can understand. So I only appear like I don’t care, or I am not present, then I feel guilty for being this way. Then I am shamed by my ex-husband, society, parents of the partners I dated before I connected any of these dots. Seen only for my behavior and my flaws. 

I want answers. I want to know what happened? I want to know if it’s fair to be estranged from my mother to protect my mental health, or if she too was a victim of some trauma I don’t know about and something could be done to heal it. The hope is always there that something could be done. With me healing was possible. What is the difference? Is it in the wiring? Could she have been wired from birth for narcissism, or was she so damaged a health self could never emerge, and if that is the case how can I make sense of any fairness behind all of my feelings towards her.

Where can I place this accountability if not always in myself? What if she never stood a chance? I never did either, but somehow I thrived and turned things around. Is the difference between us the severity of experience or the wiring?

I need to know. 

I don’t want to know.

I need to know.

I don’t want to know.

I distract by staying in the present, but we are never free from trauma that forged our entire nervous system.

I am a prisoner inside my own body is the dark side.

And I am a warrior of light and a protector.

If that isn’t confusing I don’t know what is.

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Hamilton: What will our play be called ?!

Thank you for seeing me in this way, for delighting in me and in us. It has literally saved our emotional lives. We had our physical lives before you, but our emotional ones are taking such beautiful shape now. And I want to write about it. I want the world to know your bright love. And I what we have created here. 

The image suggests perhaps a playful post about our experience in the city. Wouldn’t that be a more pleasant read ? Perhaps it would, but it wouldn’t be written by me then, at least not tonight. 😉

This blog post is a letter I wrote to my wife tonight. Whether or not all things are meant to be shared I think there is always a power in it for someone. This letter bled straight from my fingertips, it fell onto the page in waves of truth that couldn’t make their way out fast enough. A catharsis. Isn’t it always. If someone else has a different experience with those words who am I to stop them.

Clicking publish has always been an act of bravery…. one I never gave myself much credit for. Warning it begins with graphic Crohn’s Disease material exactly as I experienced it.

I had a stomach episode tonight unlike anything I’ve ever experienced. I thought I was going to have you have to call 911. I almost screamed for you. Literally. I had visions of me passing out and dying on the toilet. I woke up doubled over completely, and I mean completely. I hobbled to the toilet. I didn’t know if I would vomit or faint. I felt like all 3. I felt like I was going to have to poop but didn’t know what thing would come first. It felt like I was being ripped in half. My shirt was completely soaked, completely, and contrary to the scary fast heart rate I will have usually during an attack my heart felt like it couldn’t even beat, it was low 50’s. 

I just held on and tried to breathe deep as I could through the waves of pain and head swimming until finally I pooped literally probably 3 toilet bowls full. It wasn’t all at once. First was getting the hard part out, and then a ton came. 

By the time I was done I was left shaking and freezing and now I’m more wiped out than you can ever imagine. I just can’t even quite describe the pain.

A couple of things happened. One, I felt a tremendous wave of compassion for V and guilt at not feeling more present. It’s like I can’t weather watching her suffer and I must because I’m mom. What a confusing thing. And two, intense fear that having not taken my injection even for a week has thrown things into some terrible state with my health. What if?! And what if V is in for a lifetime of chronic suffering with her tummy that impedes so much of her adventurous self. My god that will break my heart. And then that I really do love my kids moment. Well of course I fucking do?! How could I ever be so unkind to myself, ?’ To not give myself this benefit of the doubt. 

And then I think of the good thing that I’ll make sure she is safe and supported forever. Never scared she won’t be able to support herself. And then the realization that I’m a steadfast supporter and provider and that I’m creating / have created that from scratch. 

And this is literally what a profound RE frame in thinking looks like. I’m strong and proud and safe and I’ll keep my family safe, not some impulsive person hanging by a thread.

I’m creating something beautiful in myself and for others and it’s my story. My legacy. What I want people to say about me, when they tell my story like Eliza did for Hamilton. What will they say?! We all wonder what people will say.

This makes me think of you: do you know all anybody says is nice things about you?! I always wanted to be that person, but I make too many waves, take too many risks, and don’t think enough about how I’ll make someone feel. You think too much, and I not enough. If you take us both you have the perfect person 😉 boastful? Perhaps. 

I make people uncomfortable, but do it with good intentions lol. Don’t they say the road to hell is paved with good intentions;) I make people uncomfortable by pointing out what is so readily visible to me, that for others it takes them a lifetime if at all to notice. A gift and a curse. 

I wonder if V felt a fraction of how I felt just now. If she did I feel terrible for her. I’m gonna root around in your magic bag of goodies, the bag leftover from our dead dreams (to be dramatic and truthful) and see if I can find some life giving electrolytes in the form of Gatorade to settle this tummy. It’s feeling like knives are raking it currently and I can’t be out of commission this long. 

If anything happens to me babe please tell my story. I need my story told. The need is getting fiercer now. I need people to know how hard I fought just to be ok on a daily basis and my kids to know how strong their love makes me. They are the fuel to my fire, and everything that makes me the person that I am.

Every person I’ve ever helped has them to thank. 

And I have you to thank. You’re such a source of comfort to me. Speaking of…. I’ll need to restock our sick supplies. We were so fortunate to have all these. Though the reason we do and they are unused is still excruciating. 

Babe I know your process is different but please know that if this didn’t happen I might not in some really profound way have truly known how much I want it. How I want to enjoy the tiny new life that we create rather than ever viewing him or her as a burden. And my life has already been so heavy so long, any small thing sometimes does feel this way. But in part due to experiencing this loss with you, I know even more profoundly how much each second even is worth. 

I do in a fucked up way feel it is meant to be this way. This sense that everything does happen for a reason, and not that that’s just something we say to make sense of things when they are too fucked up. It makes me believe in destiny and magic. 

Does that mean we couldn’t have done without this toll to our hearts, this wound, and these scars… of course not. 

But life would not hold as much meaning without the whole picture, the whole journey, and my life now is beyond filled with meaning. 

While I don’t plan on going anywhere soon, I am satisfied with my life right now. I need you to know that. I don’t regret for me or be sad for the rest of my unloved life ever, because I have lived it to my fullest already. I do want more of course, immense amounts more. But if it wasn’t in my cards I didn’t miss a thing. I knew exactly what I was doing. 

I want you to find the same feeling, but in whatever way Or path that’s meant for you. That’s my dream for you, never give in to self defeating thoughts, ones that lack compassion for your full journey. 

If you did ever lose me I want you to live on for me in the way I would have. Carry my legacy and be for my kids what I would have been for them. You are up to that task. No one is as well as you or I wouldn’t have picked you. They will need you forever. 

I don’t plan on going anywhere, but we never plan for that so I want these words down. I don’t care what laws or rules or fears or whatever. We have something very special here and blood relation has nothing to do with it. We must trust that. You are an irreplaceable part of the kids healing now. You’re already written into the story. And I would never want to let you be snuffed out in the event of my demise. And anyone who would try would do so out of ego or pride etc, finally able to have their kids back from my evil clutches you know 😉 but you know better. 

You’re the best thing that’s ever happened to us. Yes little ol you, it’s true. That’s a truth. And it couldn’t be without you being so much more than you see when you look in the mirror. That distorted perception is your only enemy, it kills more dreams than a semi-automatic with unlimited rounds. 

I hope my kids will delight in my letters someday when they are old enough to read how my mind worked. Find, keep, and appreciate them all, because they are who I always really was inside and kids know so little about that.

I’ll never know much about who my parents really were inside, so much is a mystery, especially my dads side, and my mother’s, a tragedy. So for them to have this insight. To know my mind intimately. Incredible.

Wow so all this feels like a product of a near death experience. Listen honestly. It may sound dramatic, but this episode was no joke. And all this sweating and gross (being on prednisone and scared) the past couple of weeks has been really humbling.

There is a level of acceptance I am at, that wasn’t there before. 

My disease has carried a large piece of denial for the longest. I wasn’t willing. I’ve been in as much denial of it as I have how damaging my childhood was to me. I am reaching a stage of acceptance now, and it’s making me so much stronger. So much more at peace and strong. Someone that you will feel proud and safe to have a baby with. Someone stable that will enjoy that adventure with, not resent it, or fear it, or feel guilty about it because I already have kids.

That is at least the take home I’m recognizing from this tragedy. 

I will get to move forward without a doubt in my mind, and for me, that’s like having rebuilt an entire nation after its downfall. I’ve been a shaky entity bordering on panic for as long as I can remember, to be emerging this strong, still, solid force of love and compassion is unbelievable even to myself. 

I am surprising myself a lot lately. The strong I always identified as prior was a sort of forced kind of strong, a necessary one. This strong now is the accumulation of weathering storms with a sense of grace rather than a frenzy or a panic. 

It’s a strong I am satisfied and proud of, not one thrust upon me without my consent. It’s a soft kind of strong, and I can’t wait to hold our baby in these new arms made of this.

Every time you grace me with your vision of seeing the loving child inside of me. I can see when you see her, I can see her too, and it brings powerful healing. You bring that to me. 

Thank you for seeing me in this way, for delighting in me and in us. It has literally saved our emotional lives. We had our physical lives before you, but our emotional ones are taking such beautiful shape now. And I want to write about it. I want the world to know your bright love. And I what we have created here. 

What if someone else could find this place (when they couldn’t before) because of our story? Or was able to believe in their dreams?! 

Bliss. 

My tummy has burning remnants of the suffering I just went through and I can’t even be bothered to focus on that. I’ve too much shit to do with my one life. Thank goodness because otherwise I’d crumble into a little ball of stress and worry and take days to recover. 

I don’t have days anymore to spend in that way, there’s too much work to be done.

Every word on every page for every day of my life…. are for you….

Now I am going to curl up as close to you as I can and let your breath lull me into a deep relaxation, and help the pain melt away. 

All the love in my heart 

Posted on

A Self on Ice

In my morning pages today I found myself pondering whether I like my new tattoo or not. I’ve posted it here, 2 birds in flight, it matches with my wife. It represents our identical twin pregnancy flying away, a dream removed without warning or time to prepare. A major disappointment. An earth shattering grief. The pain can be recalled at any second, but as we humans are wired for resilience we are back up and running and re-shaping our plans.

We got the tattoo on a moments notice in downtown Ansonia. I had just cut off all my hair, and my head was freezing, and my identity shaky. Who was I now? I went from the girl next door with her long hair that often hinged on the, “but you don’t look gay”, and “you’re so pretty” compliments for shelter, to someone I didn’t recognize in the mirror. Shocking.

I was suddenly transported back to childhood when I would stare long hours in the mirror wondering if the soul that was housed within, was the same as the body without.

Could anybody see me really.?

I’m still looking in the mirror and wondering. Waiting for evidence this way or that. If suddenly a client leaves then it must be my radical new appearance, analyzing everything. A disease really. Could the tattoo on my wrist so unlike my conservative self that was deeply forged in childhood, the one taught to constantly be observant for shame, signal something about me I don’t want?

Will someone think I’ve been to jail? I look at it and sometimes identify myself with some of the judgments people make about tattoos and that helps me connect to compassion for all misunderstandings we have about ourselves and others in this world.

My mind expands and so does my heart.

As I was writing my morning pages I wanted to share an excerpt because this is trauma and what it does. It may not go across as meaningful as I experienced it. But what I can tell you is that the words cascaded onto the page almost as if someone else wrote them and they evoked emotion.

That has to be the real magic they talk about of writing. It happens through us. It isn’t thinking, its feeling set to open space and room for what arises without judgment. That last part is the toughie. Without judgment, how does one do that amongst so much?

Loving myself better, for the right reasons, and thoroughly inside and out has been a life long pursuit for me. I’ve been fortunate enough to navigate myself into a position to teach others what I have learned about this journey through my counseling practice, and really through the way I live my life personally. And there’s still much work to be done. A lot of thinking this morning on how I want to be in my loving, when to be soft, when to be strong, when to bend so nothing breaks and knowing the boundaries on what is my part of the work, and when it’s outside of my control and something laid down long before I stepped on the scene.

Loving myself with my analytical nature, loving myself for my quirks, loving myself when I’m making mistakes, and being gentle, as I navigate this I’ll be better at doing the same for others.

This journey is not for the faint of heart.

So I was writing about my battle between nice girl next door who is nervous about what everyone thinks of her, and rebel without a cause who gives 0 fucks. I try to make my way toward the second, but my body even defies this option. I will always care more than I want to about everything it seems….

“A self on ice”

(A depersonalization separation disassociation until reunification)

A rebel whose stomach quivers

At the slightest disturbance,

I am a fraud my harpy critic shrieks.

All these selves will give way to

A little girl huddled down for safety

Holding her nighty night blanket

Sucking her thumb.

Where is she?

Give her back to me, I need her.

I left her.

When I am cold and hard,

I’ve left my child

And I’m guilty for it.

I stumble forward numb

Hoping to feel any connection

Scrambling for it.

That smile she had,

It was beautiful,

She lit up a room with her enthusiasm.

She’s died

A thousand times I’ve mourned her.

Each self built she went further

Underground

Until I stopped to dig and find her.

These years of doing that have

Been the hardest and the best.

I knew to love as you all deserve

I had to look at her,

See her suffering,

And not turn away in shame.

I had to hold her,

And I keep having to do so,

And it’s changed my whole world.

Fierce drive no longer cuts it,

Stopping to think how I feel,

And others as well,

Beats cold stubborn drive any day.

Now it does anyway,

But in the world of the trauma

Survivor

It’s one minute to the next,

Frantically meet that need at all costs

Zoom zoom

Leave all feeling behind

Assess situation,

find safety,

seek comfort

Run fast

No where in that is

Stop to feel

Be at peace

Love yourself

Rest

Now I am here

Seeking

Balance

No one told me

That thawing out

Could be this hard