Dear John ….. a birth and death… full circle at the Grand Canyon.

Wow so because I am going to post this letter I went back and revisited it. First of all this letter was written February 22nd 2016. It feels like lifetimes ago this happened. We reconnected on June 12, 2010, had a relationship via e-mail, never saw one another in person, until around January of 2014, and around that time I was at the height of discomfort with my disease and seeking understanding and lashing out at the things I couldn’t make sense of. It was around this time he cited that I was exhibiting frightening mental states on a public platform, and reminding him of my mother. And that was it for us. I didn’t have it in me anymore to be abandoned again. I chose not to abandon myself and my needs in the name of reducing anyone else’s discomfort.

I lost a relationship that I had always dreamt of with a father, I called off a wedding to a person who was the safest place I had, her and her family. I risked harming my children, and miles and miles of criticism from others. I was more alone than I have ever been in my life.

One of the things I didn’t realize until re-reading this today is that it was something in the book Big Magic, by Elizabeth Gilbert that helped me write my way to my own closure. This morning as I am reading some of the things that felt so amazing to hear from him, and then some of the things I wrote, and some as we fought, it tears the wound right open.

John Rexford Wilson (my father) died on December 28th at 11 am. He died from tuberculosis at 70 years old. He did not believe in the healthcare system. My brother stated they would be scattering his ashes at the Grand Canyon, and that he would keep me updated. He didn’t. I was not included. Once again the illegitimate. But in the end I chose to let go of him or my ideas about him, and any relationship we did form, because it was the healthiest thing for me.

My mind is trying to tell me now as I read the few nice things he said to me (the things I would try and gather the crumbs of to make something whole that didn’t exist), that maybe if I wasn’t so difficult I could have maintained a relationship with him until he died. We could have left on good terms. Time and time again I see people as this their biggest fear when it comes to not abandoning themselves. But what if we have a negative interaction and then the person dies. Well that is exactly what happened here. But only if you focus on the time we were in contact. What about when we weren’t? Wasn’t that his responsibility? Wasn’t he the parent? He just spoke so pragmatically about it all, about how men are and in those days. Like no big deal. Like it wasn’t a big deal to me. He didn’t allow any space for my feelings, and this is why I’ve dedicated my life to trying to allow space for people’s feelings, and to have enough room by doing my own work to be able to do this. It has taken lifetimes of healing.

It is so interesting that all of this comes up for me at the Grand Canyon. I never even thought of this. It all just came together right now. And about how I just met Elizabeth Gilbert and thanked her and why I cried so hard when I did.

Here I am at the Grand Canyon, where my father’s ashes are possibly spread, and feeling all of these things, that I didn’t know where they were coming from.

Here it is, full circle.

Dear John,

 

I was reading the end of Elizabeth Gilberts book Big Magic this evening. The section on Trust. Where she speaks of the difference between martyrdom and the trickster and how to find lightness in the pursuit of your passion versus a commitment to being the tortured artist. I for very many years had been committed to my suffering. It is the only way I knew how to be until I didnt. I have contemplated greatly over the subject of too much introspection and your words on the matter, and your feelings. I have gleaned a lot from that in terms of finding balance in my own life. I wanted to thank you for that. I even use it with my clients in private practice. It is true you can overthink. However I happen to appreciate the way that I think things through and it has served me in my pursuits. 

 Today I completed the first day (my orientation) at Wheeler clinic. I was recently hired as a senior clinician, heading a team of people in efforts to ease the transition of foster children who have struggled exceptionally into their new homes with their families. This is my first big girl job with a real salary and benefits and all of that good stuff. At 35 this is my first time knowing what it feels like to not struggle financially and to feel secure. In addition to this over the past couple of years I have done some amazing self work in leaving old wounds behind and finding a lightness of being, one that I never even imagined could exist. I feel as if I will finally write the way that I have always known is in me, I just have never trusted myself enough. Trust has not come easily for me. One of the most glorious parts of getting to talk to you was recognizing the writer in me that I believe came from you. I believe I have lots of parts genetically that came from you, and I am grateful for them. 

 In addition to the new position I have my own private practice that is thriving and for being a clinician fresh out of school I have a lot of people referring to me, and the consistent feedback is that I am helping people move further in their journey toward growth than they previously have been able to do. It is rewarding and I never would have gotten to this space without the entire process of self-doubt, fear, and a  degree of introspection (not to be confused with rumination). Without that whole journey I would not be at the space I am in now. I was thinking about this tonight, and my heart got heavy. It got heavy because youre missing out on all of it. This is not even the most important part of the greatness that I have created in my life. My children. I have 3 intelligent and phenomenal human beings that I helped create and they are beyond wonderful. Everyone feels their children are wonderful, as well they should, but these kids are so special. They bring so much to the world with their kind hearts and very bright minds, and that is just barely scratching the surface on them, and again youre missing out on it. Then I thought to myself this is probably mostly a projection and not a reality because its all subjective to each persons own human experience and I doubt that you feel or realize that you are missing out. Not because you dont have the capacity, you most certainly do, but more because of your commitment to the choice you have made and as you told me at the time you were not interested in rehashing any of the past but only to move forward. I desperately thought I could be willing to take any amount of being allowed to know you no matter what the cost to me. But the process by which all of my feelings existed is natural, wondering about a great many things that I never understood is natural. It is not only natural but also warranted without it causing shame to me or that my process is invalid. 

 Of course I hurt. Of course I wondered why we were not in touch, or how you didnt wonder about me and how I was doing. Of course I wondered if it was that necessary to never have contact with my mother again, to pay the ultimate price of not also being able to know me. Especially since those things never needed to be connected, they could always have been independent of one another, thought maybe that at one point felt impossible, or maybe that never mattered anyway and it really is more of just a choice of yours. Of course I wonder all of these things without it being shameful or wrong. 

 I could sit and tell you all the wonderful realizations I have had and sell you this idea of everything you are missing out on, but ultimately that process is about me and nothing to do with you and how you feel. The fact remains that I would try to be impressive to you in some ridiculous effort to feel loved. Its what Ive done with everyone I have ever come across to try and earn their affection with my merits and my effort. An exhausting pursuit to be sure, and also that has nothing to do with real love. Real love allows space for all of the parts of someone to come fully into their being in whatever process is needed. That is the kind of love I needed to find to become comfortable in my own skin. I had to stop searching for it from a million different resources that looked like a well in the middle of a desert, only to be dry at the bottom when I lowered the bucket. Ive been doing that process my whole life when all the while just over the next hill was an entire ocean. I am sailing right now and smiling and my heart is still heavy that youll never be on this boat with me. For whatever reason that is. I wont tell myself its because I was too sensitive or I was out of line by expressing pain in any way shape and form. I wont deny myself those feelings they are mine, and they are valid. But what I do take back is any amount of making you wrong or hanging onto any anger. I release myself from that prison. I dont need to understand. I wanted to see or know or be a part of your process or feelings or anything with you. A romantic notion to be sure that is again more about me and my heart and the way that I work, than it is about anything I have missed out on. I am not missing anything and I do not need anything. I want to share my thoughts and my mind because it is the truth of my feelings and for no other reason than that. 

 As with most things in my life I moved very quickly through being terrified having Crohns Disease would turn me into my mother, or that it would ruin the rest of my life. At the time it felt like a death sentence, at the time I felt afraid and alone. I see that person now and only have compassion for her, a compassion that it appeared at the time you were not able to find. I would like to say i would just move forward and embrace your pragmatic probably well-meaning advice and renounce taking what happened so personally, but again that would deny myself the natural process I was having, and it would allow me to accept a relationship that was also unhealthy, one that was based on the convenience of you experiencing an aspect of me without knowing much about the real story, like reading only a chapter in a book and making a decision about its value. In real love we dont get to weed out the undesirable aspects or parts of the story and keep the ones only that we want. If you need to chalk me up to emotionally unstable by association of your experience with my mother, if that is the process which you need who am I to stop you. 

 Amidst the wreckage of all of the old versions of me and many dysfunctional relationships has emerged a person who is powerfully influential to the world. A person who refuses not to feel every inch of everything even when it burns. I am a writer and I choose to only be grateful for getting some of that from you, but the credit for getting to the place where it can begin to come to life is all mine, and at least I get to know that. I get to know that. I will always wonder about a great many things with regard to you, but everything that truly matters is within me and I am ecstatic for this existence that I would not have without you. I can thank you for that regardless of what feelings may come and go. 

 

Thank you,

 

Christina 

 

Shame, Disease, and Dad: Grand Canyon Ponderings

I’m a little homesick this morning, so it makes sense that I am going to turn to my constant companion that is with me everywhere: my safe haven of the written word. Somehow I always feel better after I have bled my experience on the page, and someone hears it. I think we are all like that. I am sitting in a cute little coffee shop called Brewed Awakenings on Route 66 in Arizona, just a few minutes shy of the Grand Canyon. We are supposed to have a Pink Jeep Tour at 2:30 today, but on the Groupon it says “pending” and I am not sure what kind of weather these guys operate in. I am also not sure if we have the appropriate gear. We somehow assumed that Arizona would be warm. We rented a convertible car LOL! It just so happens that it is snowing this morning, and rainy and wet, and is supposed to be this way all day. “You can plan a pretty picnic, but you can’t predict the weather.

It is however a great day for the permission to write. I have several things on my mind this morning, it’s exciting to see what I will untangle from them. The most prominent thing, much to my frustration is my Crohn’s Disease, and it’s close companions are shame, a certain level of confusion about validating my own experience with it (and in general of course), and this brought up feelings of my Dad, and about how I “lost” him again. Though you can’t lose something you never had, and that isn’t the correct narrative. I chose to eliminate any source that would shame me without looking or investing in me.

So Courtney and I went to a little restaurant last night, it was an interesting experience. There was one cook, and one waitress and they became slammed. The Yelp information made it look like an established and popular establishment. Overall it wasn’t a bad experience, though I would not get food there again. The beer was delicious and probably because we didn’t eat much with it, I ended up squared up with my disease again.

Over the years I have really tailored any drinking because I can tell my body has a very hard time processing it. I essentially got to the point where if I have even a few drinks I get a very bad experience with heart palpitations and tachycardia, and sometimes even atrial fibrillation. However I have been rolling pretty smooth in the land of disease, until I got bronchitis over a month ago now, and had to skip an injection. I’ve been struggling since then, in ways that I haven’t in 6 years. I dread the possibility of another difficult round with this disease or having to change my medication and play that “game.” And at the same time what did I think was going to happen. That I would just take Humira and never have an issue again.

I struggle particularly after being at the International Women’s Summit, where there is lots of talk of sickness in our bodies being a symptom of repressed feelings, un-lived potential, etc. I have always struggled with feeling I’m injecting myself with poison, that is experimental, and doesn’t my body know what to do to heal itself. And on the other hand my GI tells me that this thinking is unrealistic, and that staying on top of this disease in a top down fashion can give me a much better quality of life. Confusion.

How do you know what is intuition and what is superstition?

This is a very important question. We human beings have very superstitious ways of thinking, the way we connect the dots in our experiences. And this isn’t limited to “unhealthy” things, most people think in these ways.

So anyway I woke up last night shortly after falling asleep with my heart beating so hard it felt like it was going to shake me out of the bed. My beats per minute on my Fitbit were over 100. TERROR. I could hear and feel my heart beating in my ears. Seven years ago when this would happen I would go to the emergency room, only to be told I had anxiety. So I gave up doing that long ago, though now I have to be nervous I won’t get help if I need it. I’ve worked that one through with a therapist as well. I’ve tried to cultivate a sense of faith in myself that if it continued to get worse in a variety of ways I would seek help. Except who knows what kind of medical care is available here. I mean people live here right, there must be something. But I’ve been spoiled living only 20 minutes from Yale Hospital. Where bad doctors can exist as well, arrogance can be as dangerous as anything. But that discussion will lead us off topic, as if I ever stay on topic, HA.

So my episode. I take .25 of Xanax to head off any panic attack this can cause, and because I am superstitious of course I believe it will lower my heart rate. I mean relaxing a little can’t hurt in that department right? And then the bathroom things happen, sweating, erratic heart rate bad bad things is what we will leave it at. When that is over I am left shaking and sweaty and cold and aching. Pain radiating up my back. So many symptoms that they tell you to watch out for in a heart attack, because that isn’t stressful. I sit up vigilant lest I pass away in my sleep. I don’t wake up my wife, because that makes it more real, if she gets afraid I’ll read her fear and then really get anxious. So I work my way through it. Eventually I get it down to 90 ish, and I’m doing deep breathing, and making my trips back and forth to the bathroom.

EXHAUSTED.

I wake up this morning feeling like I was hit by a truck, pain radiating up through my kidneys, bags under my eyes. Here I am at the Grand Canyon, and I want to BE fun. Notice what we do? I’m not worried about how I am feeling, and that I deserve to feel better. I am worried I will ruin someone else’s time. Because I know she will be disappointed if we stay in. I know the disease deserves our anger here, hers and mine. Not me. And I never know if I really have to or not. I never know when to push myself to just keep going, or when to validate this thing I don’t want in the first place. My dark passenger, Crohn’s Disease. When I put it like that I am grateful it is not the urge to murder anyone. This was a Dexter reference if you didn’t know.

So when I am grappling with shame and doubting my own experience, this time I am looking to the origin of it. When I got diagnosed with my disease I was so unseen in so many ways. It wasn’t anyone’s fault. After all I didn’t know what to do either. A dear friend of mine had rekindled a relationship with her father and I was wondering if that couldn’t be the same for me. My father stopped talking to me around the age of 12. There was no explanation he just disappeared. I suspect a complicated relationship with my mother and my grandparents, and a lot of confusion to blame, but it was never my fault, and yet I am the one who paid the ultimate price. He made a choice. There is still so much I’ll never know about that choice, so many unanswered questions.

So when I found my 1/2 brother on facebook and was able to look him up and we began corresponding via e-mail I was overjoyed. It felt like falling in love. He of course became romanticized even more so than the average parent in such a situation would because anything was better than the situation I grew up in. He always got the hero role by default almost. Because his energy felt more sane from what I remembered, it felt more normal than what I was going through at home. But as it turns out he was intellectual, and quite pragmatic to a fault. At first I appreciated these things, but as we moved further and further there was no empathy for my experience there. He stated he did not want to re-hash anything of the past only to move forward in relationship, this clearly had nothing to do with my needs, but then again it never did, did it? That was the first flag. But then I thought ok well I can work with that as long as I get to know him. I would do anything you know to have a relationship with a parent. Plus he was so smart and so worldly and doing such neat things. He was living in Xico Mexico at the time and writing a blog about life there.

We struck up a writing relationship. I was smitten. I couldn’t wait for an e-mail from him, and what was even better his take on me being gay was that evolutionarily this was the more intelligent thing to do. He said men were assholes mainly, so he was glad that I was with women. Another interesting perspective. Not one I expected, but I was so hungry for acceptance at this time. He even posted a picture of my daughters on his blog. We belonged! He was willing to own us as family is how it felt at that moment. I felt a taste of acceptance and belonging, one I had yearned my whole life for. He didn’t post a picture of my son, or of me, or anything else. I recall hearing about him that he was a womanizer etc, he appreciated beautiful things, cars, women etc. But I don’t know how much deeper his integrity or his heart went than that. He did stay with his wife (my step-mom when I was little) Anita, for the whole rest of his life. So that’s a sign of health one would think, but then again, people stay together all the time and are not necessarily healthy.

Here is what I do know. When I was lost and scared, riddled with physical symptoms and diagnosed with Crohn’s Disease, and in a relationship that didn’t feel particularly loving in the ways I was needing at the time (due to my behaviors as well)…. he said to me “daughter your posts as of late tend to exhibit some frightening mental states not unlike your mother”, and our relationship was over at that point. I cut it clean. I felt no warmth or empathy from him. I just thought I might find it there. It was like a mirage of an oasis in the middle of the desert, and to realize I was sucking in dry sand rather than water. My heart had to break again. The loss of him, or perhaps only the idea of him, to have a father, and then to lose him again. I then vented at him all the things that were hurting me. All the unanswered questions that burned at me my whole life, that I had to carry around. His responses were scathing and only burned more.

Then I got an e-mail from the brother I told you about that he died (this is 2 Decembers ago now). He was 72. I was only vaguely regarded with any information of his passing, even when I asked if perhaps I could attend the services for my own closure. I think his parents didn’t even know about me, and much of the rest of his family. I know I wasn’t given any empathy. There was only shame. SHAME SHAME SHAME.

This morning I saw a post from a friend reaching out on Facebook, and it made me think of people’s statements about whether people should or should not post about their lives on there. What an arrogant statement. Who is someone to know what another person needs. Perhaps in that moment facebook is all they have in terms of nurturance, and one person saying they are there for them may make the difference between life and death. How do you know? Is it really so shameful for someone to vent their sufferings in a public space? I think we need more of this, not less. We need less of the shaming.

Anyway I am going to add an additional post with my final letter to my father that he never read because I knew I was writing it for me, and I knew it wouldn’t be appreciated or received by him, and would only give another opportunity for me to be harmed. So I wrote it for me. It was a huge part in my growth. The decision, MY DECISION that I didn’t choose a relationship with him, rather than feeling abandoned or not chosen.

My letter on the next post….